Re: Why I HATE hospitals!

[Guest guest]

We heard just the abridged version earlier, although we did hear the

no panties and man in the room part and some of the rest. That is

horrifying.

Here most icu's have changed dramatically. In fact the majority have

private rooms. Not the best for nurses being able to see but better

for equipment and monitoring. I was in ICU in the Heart Hospital and

it was a huge private room. To think anyone was treated in a hospital

as you were that day infuriates me.

Yes, it is a nice rant and well merited. We're all so glad you're

getting better and so sorry you had to go through such a day. I've

said it, I think as much as I hate it we can all deal with the

illnesses. Its when we get so many uncaring and/or incompetent

providers on top. We are already at the threshold of what we can

take. Well, certainly you are and have been pushed so far. Then you

have to suffer with $95 mattresses, running low or out of oxygen, men

and women with no panties, no food or water, no bathroom, no meds,

oxygen turned down. Only thing worse i can imagine is what if no

friends or family to come rescue you from that?

I don't even want to think more about your experience there or the

others i've seen and heard recently. It hurts to know someone we care

about was so abused. Yes, thats the word. Not improperly cared for

nor neglected or any other euphemism. ABUSED.

Thank God that ordeal is over. Glad you're home and hope each day is

a little better.

>

>

> I never fail to face a calamity when I get to visit the Big House.

I

> just wanted to share this one with you.

>

> I was summoned to the BH on Tuesday. They did testing into the

night

> and did a heart catherization on Wednesday a.m. This cath was a

much

> better experience than the one at . They gave me lots of

drugs

> and all went well....except the findings. On Thursday morning, they

> told me that I would have to be transferred to ICU to initiate the

> Flolan treatments. So they took me to an ICU unit (they have 3).

My

> paperwork, however, went another direction. My girlfriend was with

me.

> They rolled me in the room and stuck my bed in a small corner. The

> curtain was pulled, but I could tell that the rest of the room was

the

> actual room and this was like a holding place for me until they

found

> out who I was and where my papers were. They came in a took my

friend

> outside into the waiting area. She could never get back in. It was

> around 10:00 a.m.

>

> They closed the doors, there was no air flow in the room. I was

having

> trouble breathing. At that point some respiratory girl came in to

tell

> me that she would have to turn my 02 down to 5L, which she did. I

can't

> remember why. So, I was in a panic. Then I heard the voice of my

room

> mate. It was a MAN. Now, I had no underwear on due to the cath

> bandanges. I was in a room with a MAN and I had no underwear on.

And

> they were cutting my air out. I began to protest and they ignored

me.

> They told me that I could never get out of my bed during the week

that I

> would be there. I refused to use a bedpan, so my bladder was about

to

> burst. They told me that they had no bathrooms in that unit that

all

> the people there were confined to thier bed. (turns out it was the

> place that they took the patients who were dying). They were

surprised

> to have someone rolled in who could talk back to them. The nurses

there

> were so angry that I was there. They were extremely rude to me.

> Hateful.

>

> About 1:00 my friend and one of the elders from my church got back

in.

> I told him right away that I was in a room with a man and that I

had no

> panties on. I will never live that down. I was soaked in sweat.

Soon

> after, my daughter and grandson got in. At 2:30 my husband came.

> had just called my doctor. Lucian in a not so soft voice

> asked to talk with someone with half a brain. A nurse management

man

> came and he told him to unhook me that he was taking me home. About

> that time my doc came. He was furious. No one knew why I was

there.

> Thank God, they didn't take me to the morgue.

>

> There WAS a bathroom, right in the room where I was. The male nurse

> took me there. The poor man that was in the room was sitting in a

chair

> down by the bathroom and was not covered up. He didn't have his

panties

> on either. It was not pretty! Aaaargh!

>

> They decided that they had taken me to the wrong ICU. I begged my

> doctor not to make me go to an ICU unit. They put me in the TMU in

a

> private room. They had never initiated Flolan outside of ICU, but

the

> docs did it a different way and I stayed in my nice private

room...with

> no men roomates.

>

> I filed reports while there, my doc filed a report, my friend who

is a

> nurse on that floor filed a report and as soon as I am up to it, a

> letter will go out to everyone affiliated with that hospital. That

is

> one of the worst days of my life. Every other person that worked

there

> was super nice and caring. But that group of women in that one unit

> were really mean and hateful. I know for certain that I do not

want to

> die in such a place. It was horrible. I did not get my meds, my

nebs,

> my lunch or even water.

>

> Were you all aware that they put men and women in rooms together in

ICU

> areas? That is unaccecptable! What happened to dignity?

>

> Maybe I am getting bettere, I am ranting!

>

> Hugs, Joyce D.

>

> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

Hypertension

> 2008 Mixed Connective Tissue

Disease

> (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

>

> I will not forget you...Behold, I have engraved you on the palms of

my

> hands. Isaiah 49:15-16

>

[Guest guest]

Joyce, I LOVE hearing you rant! What an awful experience! Once when I was in the hospital, I was unable to get out of the bed or even sit up. The doctor had taken away my peg tube, catheter, IVs, etc. I was suppose to call for the bedpan. I couldn't even turn over to get on the bedpan. At first I would call and no one would bring me the bedpan in time. So I thought, PHOOEY! I just used the diapers. Then I would ask them to change my diapers. They never mentioned the bedpan. When I was transferred to the rehab hospital in Chattanooga, I insisted that I wanted to sit on the potty. 3or 4 people helped me (with the sliding board) and boy was that relief!

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl>> > I never fail to face a calamity when I get to visit the Big House. I> just wanted to share this one with you.> > I was summoned to the BH on Tuesday. They did testing into the night> and did a heart catherization on Wednesday a.m. This cath was a much> better experience than the one at . They gave me lots of drugs> and all went well....except the findings. On Thursday morning, they> told me that I would have to be transferred to ICU to initiate the> Flolan treatments. So they took me to an ICU unit (they have 3). My> paperwork, however, went another direction. My girlfriend was with me. > They rolled me in the room and stuck my bed in a small corner. The> curtain was pulled, but I could tell that the rest of the room was the> actual room and this was like a holding place for me until they found> out who I was and where my papers were. They came in a took my friend> outside into the waiting area. She could never get back in. It was> around 10:00 a.m.> > They closed the doors, there was no air flow in the room. I was having> trouble breathing. At that point some respiratory girl came in to tell> me that she would have to turn my 02 down to 5L, which she did. I can't> remember why. So, I was in a panic. Then I heard the voice of my room> mate. It was a MAN. Now, I had no underwear on due to the cath> bandanges. I was in a room with a MAN and I had no underwear on. And> they were cutting my air out. I began to protest and they ignored me. > They told me that I could never get out of my bed during the week that I> would be there. I refused to use a bedpan, so my bladder was about to> burst. They told me that they had no bathrooms in that unit that all> the people there were confined to thier bed. (turns out it was the> place that they took the patients who were dying). They were surprised> to have someone rolled in who could talk back to them. The nurses there> were so angry that I was there. They were extremely rude to me. > Hateful.> > About 1:00 my friend and one of the elders from my church got back in. > I told him right away that I was in a room with a man and that I had no> panties on. I will never live that down. I was soaked in sweat. Soon> after, my daughter and grandson got in. At 2:30 my husband came. > had just called my doctor. Lucian in a not so soft voice> asked to talk with someone with half a brain. A nurse management man> came and he told him to unhook me that he was taking me home. About> that time my doc came. He was furious. No one knew why I was there. > Thank God, they didn't take me to the morgue.> > There WAS a bathroom, right in the room where I was. The male nurse> took me there. The poor man that was in the room was sitting in a chair> down by the bathroom and was not covered up. He didn't have his panties> on either. It was not pretty! Aaaargh!> > They decided that they had taken me to the wrong ICU. I begged my> doctor not to make me go to an ICU unit. They put me in the TMU in a> private room. They had never initiated Flolan outside of ICU, but the> docs did it a different way and I stayed in my nice private room...with> no men roomates.> > I filed reports while there, my doc filed a report, my friend who is a> nurse on that floor filed a report and as soon as I am up to it, a> letter will go out to everyone affiliated with that hospital. That is> one of the worst days of my life. Every other person that worked there> was super nice and caring. But that group of women in that one unit> were really mean and hateful. I know for certain that I do not want to> die in such a place. It was horrible. I did not get my meds, my nebs,> my lunch or even water.> > Were you all aware that they put men and women in rooms together in ICU> areas? That is unaccecptable! What happened to dignity?> > Maybe I am getting bettere, I am ranting!> > Hugs, Joyce D.> > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension> 2008 Mixed Connective Tissue Disease> (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006> > I will not forget you...Behold, I have engraved you on the palms of my> hands. Isaiah 49:15-16>

[Guest guest]

Hi Joyce, I know exactly how you feel when going in to the big house.

1-While you were in the hospital also I was facing similar problems........

I received a Blood Thinner injection, nurse wasn't watching were she was injecting it on my stomach, so she injected it right into my small intestine were my Crohn's disease is located and she caused a blockage. In 20 days, I lost approximately 25 pounds. I was put on Cipro 500mg & Flagyl 500mg (2 twice a day), Entocort...if the treatment tommorrow doesn't work I might be facing surgery will know about this Friday. My right side feels like a truck has run over it. Asked one of my friends to come to the hospital with me tommorrow, because if I see nurse, who did this to me, my friend will have to keep me in place otherwise security will be have to be called in. I told the same thing to my dr.

2-While I was in ER waiting room, I told the nurse I'm in tremendous pain, can I lay on a stretcher please, she told me well too bad...you have to wait here I ended waiting for 6 hours...so I ended up sleeping on ER floor for 3 hours in pain. When I asked for pain meds they refused to give them to me.

When finally, I was taken to ultrasound I asked the guy please bring a stetcher, otherwise I will just fall on the floor. He was very nice and he did. When coming back from ultrasound, they had lost my chart, they didn't know whether I was registered or not, if I had seen anybody or if I belonged in minor or major care area, they kept on asking different nurses/dr's no one had an idea.

They had put me in the hallway, so I had to asked technicians, electricians, administrators, other patients or their family members or whoever passed by to help me get to the washroom. Which I'm glad they helped me. I told one hospital employee please go tell the nurse I want to see her now! not 10mins later because there's going to be Hell to pay!

The nurse comes and says to me, are you Irene I say d'uh, that's me...and she replies well you're not registered and we don't know were your file is....I got pretty mad and within 5 minutes they found my chart.

3-I was accused by my Rheumatologist sending her pornographic pictures. Now I'm waiting for an appointment with new Rheumatologist. I have an appointment to see new lung dr.

I did spend approximately 24 hrs in observation, on 3 litres of oxygen, because I couldn't gasp for air

So at the moment being in the big house for me, it can be fatal with all the medical incompetence.

Sending you virtual hugs

Irene

Raynaud's Disease 09/07

PF 03/07

Canada

---- Original Message ----

To: Breathe-Support

Sent: Mon, 11 Feb 2008 9:34 pm

Subject: Why I HATE hospitals!

I never fail to face a calamity when I get to visit the Big House. I just wanted to share this one with you.

I was summoned to the BH on Tuesday. They did testing into the night and did a heart catherization on Wednesday a.m. This cath was a much better experience than the one at . They gave me lots of drugs and all went well....except the findings. On Thursday morning, they told me that I would have to be transferred to ICU to initiate the Flolan treatments. So they took me to an ICU unit (they have 3). My paperwork, however, went another direction. My girlfriend was with me. They rolled me in the room and stuck my bed in a small corner. The curtain was pulled, but I could tell that the rest of the room was the actual room and this was like a holding place for me until they found out who I was and where my papers were. They came in a took my friend outside into the waiting area. She could never get back in. It was around 10:00 a.m.

They closed the doors, there was no air flow in the room. I was having trouble breathing. At that point some respiratory girl came in to tell me that she would have to turn my 02 down to 5L, which she did. I can't remember why. So, I was in a panic. Then I heard the voice of my room mate. It was a MAN. Now, I had no underwear on due to the cath bandanges. I was in a room with a MAN and I had no underwear on. And they were cutting my air out. I began to protest and they ignored me. They told me that I could never get out of my bed during the week that I would be there. I refused to use a bedpan, so my bladder was about to burst. They told me that they had no bathrooms in that unit that all the people there were confined to thier bed. (turns out it was the place that they took the patients who were dying). They were surprised to have someone rolled in who could talk back to them. The nurses there were so angry that I was there. They were extremely rude to me. Hateful.

About 1:00 my friend and one of the elders from my church got back in. I told him right away that I was in a room with a man and that I had no panties on. I will never live that down. I was soaked in sweat. Soon after, my daughter and grandson got in. At 2:30 my husband came. had just called my doctor. Lucian in a not so soft voice asked to talk with someone with half a brain. A nurse management man came and he told him to unhook me that he was taking me home. About that time my doc came. He was furious. No one knew why I was there. Thank God, they didn't take me to the morgue.

There WAS a bathroom, right in the room where I was. The male nurse took me there. The poor man that was in the room was sitting in a chair down by the bathroom and was not covered up. He didn't have his panties on either. It was not pretty! Aaaargh!

They decided that they had taken me to the wrong ICU. I begged my doctor not to make me go to an ICU unit. They put me in the TMU in a private room. They had never initiated Flolan outside of ICU, but the docs did it a different way and I stayed in my nice private room...with no men roomates.

I filed reports while there, my doc filed a report, my friend who is a nurse on that floor filed a report and as soon as I am up to it, a letter will go out to everyone affiliated with that hospital. That is one of the worst days of my life. Every other person that worked there was super nice and caring. But that group of women in that one unit were really mean and hateful. I know for certain that I do not want to die in such a place. It was horrible. I did not get my meds, my nebs, my lunch or even water.

Were you all aware that they put men and women in rooms together in ICU areas? That is unaccecptable! What happened to dignity?

Maybe I am getting bettere, I am ranting!

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of my hands. Isaiah 49:15-16

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

[Guest guest]

Oh Joyce, I am so glad to see you laughing and showing your warrior

side. GO GET UM. I know the male nurse that took you to the bathroom

must have been a bit surprised or hopefully embarrassed for you. Oh

what a trip.

Ya know since you made everyone aware of my new bloomers on the

Chattanooga trip is the reason you have to have a bloomer story. I do

admit it is a better story. I am so glad that is behind you.

Do you have a home nurse coming? How's the mixing going? Did Lucian

GET it ?

Ok, Go rest. Love ya loads... BIG HUGS.((((((((((@))))))))))

Love and Prayers, Peggy

ipf 6/04

Worry looks around.

Sorry looks back,

Faith looks up.

I never fail to face a calamity when I get to visit the Big House. I

just wanted to share this one with you.

I was summoned to the BH on Tuesday. They did testing into the night

and did a heart catherization on Wednesday a.m. This cath was a much

better experience than the one at . They gave me lots of drugs

and all went well....except the findings. On Thursday morning, they

told me that I would have to be transferred to ICU to initiate the

Flolan treatments. So they took me to an ICU unit (they have 3). My

paperwork, however, went another direction. My girlfriend was with

me. They rolled me in the room and stuck my bed in a small corner.

The curtain was pulled, but I could tell that the rest of the room

was the actual room and this was like a holding place for me until

they found out who I was and where my papers were. They came in a

took my friend outside into the waiting area. She could never get

back in. It was around 10:00 a.m.

They closed the doors, there was no air flow in the room. I was

having trouble breathing. At that point some respiratory girl came

in to tell me that she would have to turn my 02 down to 5L, which she

did. I can't remember why. So, I was in a panic. Then I heard the

voice of my room mate. It was a MAN. Now, I had no underwear on due

to the cath bandanges. I was in a room with a MAN and I had no

underwear on. And they were cutting my air out. I began to protest

and they ignored me. They told me that I could never get out of my

bed during the week that I would be there. I refused to use a

bedpan, so my bladder was about to burst. They told me that they had

no bathrooms in that unit that all the people there were confined to

thier bed. (turns out it was the place that they took the patients

who were dying). They were surprised to have someone rolled in who

could talk back to them. The nurses there were so angry that I was

there. They were extremely rude to me. Hateful.

About 1:00 my friend and one of the elders from my church got back

in. I told him right away that I was in a room with a man and that I

had no panties on. I will never live that down. I was soaked in

sweat. Soon after, my daughter and grandson got in. At 2:30 my

husband came. had just called my doctor. Lucian in a not

so soft voice asked to talk with someone with half a brain. A nurse

management man came and he told him to unhook me that he was taking

me home. About that time my doc came. He was furious. No one knew

why I was there. Thank God, they didn't take me to the morgue.

There WAS a bathroom, right in the room where I was. The male nurse

took me there. The poor man that was in the room was sitting in a

chair down by the bathroom and was not covered up. He didn't have

his panties on either. It was not pretty! Aaaargh!

They decided that they had taken me to the wrong ICU. I begged my

doctor not to make me go to an ICU unit. They put me in the TMU in a

private room. They had never initiated Flolan outside of ICU, but

the docs did it a different way and I stayed in my nice private

room...with no men roomates.

I filed reports while there, my doc filed a report, my friend who is

a nurse on that floor filed a report and as soon as I am up to it, a

letter will go out to everyone affiliated with that hospital. That

is one of the worst days of my life. Every other person that worked

there was super nice and caring. But that group of women in that one

unit were really mean and hateful. I know for certain that I do not

want to die in such a place. It was horrible. I did not get my

meds, my nebs, my lunch or even water.

Were you all aware that they put men and women in rooms together in

ICU areas? That is unaccecptable! What happened to dignity?

Maybe I am getting bettere, I am ranting!

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

Hypertension 2008 Mixed Connective

Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of

my hands. Isaiah 49:15-16

[Guest guest]

I thought of submitting the show idea to Tru TV (formerly Court TV),

Not Reality TV, Actuality TV. Each episode we show an unbelievable

series of events we have faced at the hands of medical providers.

>

> Hi Joyce, I know exactly how you feel when going in to the big

house.

>

> 1-While you were in the hospital also I was facing similar

problems........

> I received a Blood Thinner injection, nurse wasn't watching were

she was injecting it on my stomach, so she injected it right into my

small intestine were my Crohn's disease is located and she caused a

blockage. In 20 days, I lost approximately 25 pounds. I was put on

Cipro 500mg? & Flagyl 500mg (2 twice a day), Entocort...if the

treatment tommorrow doesn't work I might be facing surgery will know

about this Friday. My right side feels like a truck has run over it.

Asked one of my friends to come to the hospital with me tommorrow,

because if I see?nurse, who did this to me, my friend will have to

keep me in place otherwise security will be have to be called in. I

told the same thing to my dr.

>

> 2-While I was in ER waiting room, I told the nurse I'm in

tremendous pain, can I lay on a stretcher please, she told me well

too bad...you have to wait here I ended waiting for 6 hours...so I

ended up sleeping on ER floor for 3 hours in pain. When I asked for

pain meds they refused to give them to me.

>

> When finally, I was taken to ultrasound I asked the guy please

bring a stetcher, otherwise I will just fall on the floor. He was

very nice and he did. When coming back from ultrasound, they had lost

my chart,? they didn't know whether I was registered or not, if I had

seen anybody or if I belonged in minor or major care area, they kept

on asking different nurses/dr's no one had an idea.

>

> They had put me in the hallway, so I had to asked technicians,

electricians, administrators, other patients or their family members

or whoever passed by to help me get to the washroom. Which I'm glad

they helped me. I told one hospital employee please go tell the nurse

I want to see her now! not 10mins later because there's going to be

Hell to pay!

>

> The nurse comes and says to me, are you Irene I say d'uh, that's

me...and she replies well you're not registered and we don't know

were your file is....I got pretty mad and within 5 minutes they found

my chart.

>

> 3-I was accused by my Rheumatologist sending her pornographic

pictures. Now I'm waiting for an appointment with new Rheumatologist.

I have an appointment to see new lung dr.

>

> I did spend approximately 24 hrs in observation, on 3 litres of

oxygen, because I couldn't gasp for air

> So at the moment being in the big house for me, it can be fatal

with all the medical incompetence.

>

> Sending you virtual hugs

> Irene

> Raynaud's Disease 09/07

> PF 03/07

> Canada

>

> ---- Original Message ----

>

> To: Breathe-Support

> Sent: Mon, 11 Feb 2008 9:34 pm

> Subject: Why I HATE hospitals!

>

>

>

>

>

>

>

>

> I never fail to face a calamity when I get to visit the Big House.?

I just wanted to share this one with you.?

>

> I was summoned to the BH on Tuesday.? They did testing into the

night and did a heart catherization on Wednesday a.m.? This cath was

a much better experience than the one at .? They gave me lots

of drugs and all went well....except the findings.? On Thursday

morning, they told me that I would have to be transferred to ICU to

initiate the Flolan treatments.? So they took me to an ICU unit (they

have 3).? My paperwork, however, went another direction.? My

girlfriend was with me.? They rolled me in the room and stuck my bed

in a small corner.? The curtain was pulled, but I could tell that the

rest of the room was the actual room and this was like a holding

place for me until they found out who I was and where my papers

were.? They came in a took my friend outside into the waiting area.?

She could never get back in.? It was around 10:00 a.m.?

>

> They closed the doors, there was no air flow in the room.? I was

having trouble breathing.? At that point some respiratory girl came

in to tell me that she would have to turn my 02 down to 5L, which she

did.? I can't remember why.? So, I was in a panic.? Then I heard the

voice of my room mate.? It was a MAN.? Now, I had no underwear on due

to the cath bandanges.? I was in a room with a?MAN?and I had?no

underwear on.? And they were cutting my air out.? I began to protest

and they ignored me.? They told me that I could never get out of my

bed during the week that I would be there.? I refused to use a

bedpan, so my bladder was about to burst.? They told me that they had

no bathrooms in that unit that all the people there were confined to

thier bed.? (turns out it was the place that they took the patients

who were dying).? They were surprised to have someone rolled in who

could talk back to them.? The nurses there were so angry that I was

there.? They were extremely rude to me.? Hateful.?

>

> About 1:00 my friend and one of the elders from my church got back

in.? I told him right away that I was in a room with a man and that I

had no panties on. I will never live that down.? I was soaked in

sweat.? Soon after, my daughter and grandson got in.? At 2:30 my

husband came.? had just called my doctor.? Lucian in a not

so soft voice asked to talk with someone with half a brain.? A nurse

management man came and he told him to unhook me that he was taking

me home.? About that time my doc came.? He was furious.? No one knew

why I was there.? Thank God, they didn't take me to the morgue.

>

> There WAS a bathroom, right in the room where I was.? The male

nurse took me there.? The poor man that was in the room was sitting

in a chair down by the bathroom and was not covered up.? He didn't

have his panties on either.? It was not pretty!? Aaaargh!?

>

> They decided that they had taken me to the wrong ICU.? I begged my

doctor not to make me go to an ICU unit.? They put me in the TMU in a

private room.? They had never initiated Flolan outside of ICU, but

the docs did it a different way and I stayed in my nice private

room...with no men roomates.?

>

> I filed reports while there, my doc filed a report, my friend who

is a nurse on that floor filed a report and as soon as I am up to it,

a letter will go out to everyone affiliated with that hospital.? That

is one of the worst days of my life.? Every other person that worked

there was super nice and caring.? But that group of women in that one

unit were really mean and hateful.? I know for certain that I do not

want to die in such a place.? It was horrible.? I did not get my

meds, my nebs, my lunch or even water.?

>

> Were you all aware that they put men and women in rooms together in

ICU areas?? That is unaccecptable!??What happened to dignity??

>

> Maybe I am getting bettere, I am ranting!

>

> Hugs, Joyce D.

>

> Pulmonary Fibrosis 1997??? Bronchiectasis 2004??? Pulmonary

Hypertension 2008??????????????????????????????????? Mixed Connective

Tissue Disease (Lupus, RA, Sjogren's, etc)? Rejected for Transplant

2006??

>

> I will not forget you...Behold, I have engraved you on the palms of

my hands.? Isaiah 49:15-16?

>

> ?

>

>

>

>

>

>

______________________________________________________________________

__

> Meet the new AOL.ca. Free radio, music, videos, news &

entertainment ? with a Canadian perspective.

>

[Guest guest]

Joyce - its nice to hear your rant and rave! And I feel the same

way, leave me in my private room! Take care of yourself and I hope

you dont have to go to the big house anytime soon!

Sandie

>

>

> I never fail to face a calamity when I get to visit the Big House.

I

> just wanted to share this one with you.

>

> I was summoned to the BH on Tuesday. They did testing into the

night

> and did a heart catherization on Wednesday a.m. This cath was a

much

> better experience than the one at . They gave me lots of

drugs

> and all went well....except the findings. On Thursday morning, they

> told me that I would have to be transferred to ICU to initiate the

> Flolan treatments. So they took me to an ICU unit (they have 3).

My

> paperwork, however, went another direction. My girlfriend was with

me.

> They rolled me in the room and stuck my bed in a small corner. The

> curtain was pulled, but I could tell that the rest of the room was

the

> actual room and this was like a holding place for me until they

found

> out who I was and where my papers were. They came in a took my

friend

> outside into the waiting area. She could never get back in. It was

> around 10:00 a.m.

>

> They closed the doors, there was no air flow in the room. I was

having

> trouble breathing. At that point some respiratory girl came in to

tell

> me that she would have to turn my 02 down to 5L, which she did. I

can't

> remember why. So, I was in a panic. Then I heard the voice of my

room

> mate. It was a MAN. Now, I had no underwear on due to the cath

> bandanges. I was in a room with a MAN and I had no underwear on.

And

> they were cutting my air out. I began to protest and they ignored

me.

> They told me that I could never get out of my bed during the week

that I

> would be there. I refused to use a bedpan, so my bladder was about

to

> burst. They told me that they had no bathrooms in that unit that

all

> the people there were confined to thier bed. (turns out it was the

> place that they took the patients who were dying). They were

surprised

> to have someone rolled in who could talk back to them. The nurses

there

> were so angry that I was there. They were extremely rude to me.

> Hateful.

>

> About 1:00 my friend and one of the elders from my church got back

in.

> I told him right away that I was in a room with a man and that I

had no

> panties on. I will never live that down. I was soaked in sweat.

Soon

> after, my daughter and grandson got in. At 2:30 my husband came.

> had just called my doctor. Lucian in a not so soft voice

> asked to talk with someone with half a brain. A nurse management

man

> came and he told him to unhook me that he was taking me home. About

> that time my doc came. He was furious. No one knew why I was

there.

> Thank God, they didn't take me to the morgue.

>

> There WAS a bathroom, right in the room where I was. The male nurse

> took me there. The poor man that was in the room was sitting in a

chair

> down by the bathroom and was not covered up. He didn't have his

panties

> on either. It was not pretty! Aaaargh!

>

> They decided that they had taken me to the wrong ICU. I begged my

> doctor not to make me go to an ICU unit. They put me in the TMU in

a

> private room. They had never initiated Flolan outside of ICU, but

the

> docs did it a different way and I stayed in my nice private

room...with

> no men roomates.

>

> I filed reports while there, my doc filed a report, my friend who

is a

> nurse on that floor filed a report and as soon as I am up to it, a

> letter will go out to everyone affiliated with that hospital. That

is

> one of the worst days of my life. Every other person that worked

there

> was super nice and caring. But that group of women in that one unit

> were really mean and hateful. I know for certain that I do not

want to

> die in such a place. It was horrible. I did not get my meds, my

nebs,

> my lunch or even water.

>

> Were you all aware that they put men and women in rooms together in

ICU

> areas? That is unaccecptable! What happened to dignity?

>

> Maybe I am getting bettere, I am ranting!

>

> Hugs, Joyce D.

>

> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

Hypertension

> 2008 Mixed Connective Tissue

Disease

> (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

>

> I will not forget you...Behold, I have engraved you on the palms of

my

> hands. Isaiah 49:15-16

>

[Guest guest]

I long long ago stopped even thinking of any degree of modesty in

hospitals, labs or doctors offices. I cannot tie the gowns in the back

so nurse always has to. Guess any I had left, departed quickly with

sponge bath. Although normally it is limited to medical professionals,

I'm sure there have been times it hasn't been. While thats the funniest

part of your story, only in retrospect, it's all the other aspects that

are horrifying evidence of non-caring leading to incompetence. I'm sure

they would all whine about how overworked they are but there are just no

excuses.

>

>

> I never fail to face a calamity when I get to visit the Big House. I

> just wanted to share this one with you.

>

> I was summoned to the BH on Tuesday. They did testing into the night

> and did a heart catherization on Wednesday a.m. This cath was a much

> better experience than the one at . They gave me lots of drugs

> and all went well....except the findings. On Thursday morning, they

> told me that I would have to be transferred to ICU to initiate the

> Flolan treatments. So they took me to an ICU unit (they have 3). My

> paperwork, however, went another direction. My girlfriend was with

> me. They rolled me in the room and stuck my bed in a small corner.

> The curtain was pulled, but I could tell that the rest of the room

> was the actual room and this was like a holding place for me until

> they found out who I was and where my papers were. They came in a

> took my friend outside into the waiting area. She could never get

> back in. It was around 10:00 a.m.

>

> They closed the doors, there was no air flow in the room. I was

> having trouble breathing. At that point some respiratory girl came

> in to tell me that she would have to turn my 02 down to 5L, which she

> did. I can't remember why. So, I was in a panic. Then I heard the

> voice of my room mate. It was a MAN. Now, I had no underwear on due

> to the cath bandanges. I was in a room with a MAN and I had no

> underwear on. And they were cutting my air out. I began to protest

> and they ignored me. They told me that I could never get out of my

> bed during the week that I would be there. I refused to use a

> bedpan, so my bladder was about to burst. They told me that they had

> no bathrooms in that unit that all the people there were confined to

> thier bed. (turns out it was the place that they took the patients

> who were dying). They were surprised to have someone rolled in who

> could talk back to them. The nurses there were so angry that I was

> there. They were extremely rude to me. Hateful.

>

> About 1:00 my friend and one of the elders from my church got back

> in. I told him right away that I was in a room with a man and that I

> had no panties on. I will never live that down. I was soaked in

> sweat. Soon after, my daughter and grandson got in. At 2:30 my

> husband came. had just called my doctor. Lucian in a not

> so soft voice asked to talk with someone with half a brain. A nurse

> management man came and he told him to unhook me that he was taking

> me home. About that time my doc came. He was furious. No one knew

> why I was there. Thank God, they didn't take me to the morgue.

>

> There WAS a bathroom, right in the room where I was. The male nurse

> took me there. The poor man that was in the room was sitting in a

> chair down by the bathroom and was not covered up. He didn't have

> his panties on either. It was not pretty! Aaaargh!

>

> They decided that they had taken me to the wrong ICU. I begged my

> doctor not to make me go to an ICU unit. They put me in the TMU in a

> private room. They had never initiated Flolan outside of ICU, but

> the docs did it a different way and I stayed in my nice private

> room...with no men roomates.

>

> I filed reports while there, my doc filed a report, my friend who is

> a nurse on that floor filed a report and as soon as I am up to it, a

> letter will go out to everyone affiliated with that hospital. That

> is one of the worst days of my life. Every other person that worked

> there was super nice and caring. But that group of women in that one

> unit were really mean and hateful. I know for certain that I do not

> want to die in such a place. It was horrible. I did not get my

> meds, my nebs, my lunch or even water.

>

> Were you all aware that they put men and women in rooms together in

> ICU areas? That is unaccecptable! What happened to dignity?

>

> Maybe I am getting bettere, I am ranting!

>

> Hugs, Joyce D.

>

> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

> Hypertension 2008 Mixed Connective

> Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant

2006

>

> I will not forget you...Behold, I have engraved you on the palms of

> my hands. Isaiah 49:15-16

>

[Guest guest]

I don't share a room at home and I sure don't want to in a hospital.

Certainly not unless I get to choose with whom. I'm so glad the newer

hospitals here are building nothing but private rooms.

> >

> >

> > I never fail to face a calamity when I get to visit the Big

House.

> I

> > just wanted to share this one with you.

> >

> > I was summoned to the BH on Tuesday. They did testing into the

> night

> > and did a heart catherization on Wednesday a.m. This cath was a

> much

> > better experience than the one at . They gave me lots of

> drugs

> > and all went well....except the findings. On Thursday morning,

they

> > told me that I would have to be transferred to ICU to initiate the

> > Flolan treatments. So they took me to an ICU unit (they have

3).

> My

> > paperwork, however, went another direction. My girlfriend was

with

> me.

> > They rolled me in the room and stuck my bed in a small corner.

The

> > curtain was pulled, but I could tell that the rest of the room

was

> the

> > actual room and this was like a holding place for me until they

> found

> > out who I was and where my papers were. They came in a took my

> friend

> > outside into the waiting area. She could never get back in. It

was

> > around 10:00 a.m.

> >

> > They closed the doors, there was no air flow in the room. I was

> having

> > trouble breathing. At that point some respiratory girl came in

to

> tell

> > me that she would have to turn my 02 down to 5L, which she did.

I

> can't

> > remember why. So, I was in a panic. Then I heard the voice of

my

> room

> > mate. It was a MAN. Now, I had no underwear on due to the cath

> > bandanges. I was in a room with a MAN and I had no underwear

on.

> And

> > they were cutting my air out. I began to protest and they

ignored

> me.

> > They told me that I could never get out of my bed during the week

> that I

> > would be there. I refused to use a bedpan, so my bladder was

about

> to

> > burst. They told me that they had no bathrooms in that unit that

> all

> > the people there were confined to thier bed. (turns out it was

the

> > place that they took the patients who were dying). They were

> surprised

> > to have someone rolled in who could talk back to them. The

nurses

> there

> > were so angry that I was there. They were extremely rude to me.

> > Hateful.

> >

> > About 1:00 my friend and one of the elders from my church got

back

> in.

> > I told him right away that I was in a room with a man and that I

> had no

> > panties on. I will never live that down. I was soaked in sweat.

> Soon

> > after, my daughter and grandson got in. At 2:30 my husband came.

> > had just called my doctor. Lucian in a not so soft

voice

> > asked to talk with someone with half a brain. A nurse management

> man

> > came and he told him to unhook me that he was taking me home.

About

> > that time my doc came. He was furious. No one knew why I was

> there.

> > Thank God, they didn't take me to the morgue.

> >

> > There WAS a bathroom, right in the room where I was. The male

nurse

> > took me there. The poor man that was in the room was sitting in

a

> chair

> > down by the bathroom and was not covered up. He didn't have his

> panties

> > on either. It was not pretty! Aaaargh!

> >

> > They decided that they had taken me to the wrong ICU. I begged my

> > doctor not to make me go to an ICU unit. They put me in the TMU

in

> a

> > private room. They had never initiated Flolan outside of ICU,

but

> the

> > docs did it a different way and I stayed in my nice private

> room...with

> > no men roomates.

> >

> > I filed reports while there, my doc filed a report, my friend who

> is a

> > nurse on that floor filed a report and as soon as I am up to it, a

> > letter will go out to everyone affiliated with that hospital.

That

> is

> > one of the worst days of my life. Every other person that worked

> there

> > was super nice and caring. But that group of women in that one

unit

> > were really mean and hateful. I know for certain that I do not

> want to

> > die in such a place. It was horrible. I did not get my meds, my

> nebs,

> > my lunch or even water.

> >

> > Were you all aware that they put men and women in rooms together

in

> ICU

> > areas? That is unaccecptable! What happened to dignity?

> >

> > Maybe I am getting bettere, I am ranting!

> >

> > Hugs, Joyce D.

> >

> > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

> Hypertension

> > 2008 Mixed Connective Tissue

> Disease

> > (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

> >

> > I will not forget you...Behold, I have engraved you on the palms

of

> my

> > hands. Isaiah 49:15-16

> >

>

[Guest guest]

Joyce,

I am so so glad you are home and safe. Yes I did know that about ICU-hospitals take away all dignity. I posted earlier this week that my test results were benign. And my other good news is that I get to go down to 10 mg prednisone. I am praying that the headaches go away, you get comfortable sleep, and you don't have to visit the big house again. Love you-

Sarcoid/PF 3/2006 California

Why I HATE hospitals!

I never fail to face a calamity when I get to visit the Big House. I just wanted to share this one with you.

I was summoned to the BH on Tuesday. They did testing into the night and did a heart catherization on Wednesday a.m. This cath was a much better experience than the one at . They gave me lots of drugs and all went well....except the findings. On Thursday morning, they told me that I would have to be transferred to ICU to initiate the Flolan treatments. So they took me to an ICU unit (they have 3). My paperwork, however, went another direction. My girlfriend was with me. They rolled me in the room and stuck my bed in a small corner. The curtain was pulled, but I could tell that the rest of the room was the actual room and this was like a holding place for me until they found out who I was and where my papers were. They came in a took my friend outside into the waiting area. She could never get back in. It was around 10:00 a.m.

They closed the doors, there was no air flow in the room. I was having trouble breathing. At that point some respiratory girl came in to tell me that she would have to turn my 02 down to 5L, which she did. I can't remember why. So, I was in a panic. Then I heard the voice of my room mate. It was a MAN. Now, I had no underwear on due to the cath bandanges. I was in a room with a MAN and I had no underwear on. And they were cutting my air out. I began to protest and they ignored me. They told me that I could never get out of my bed during the week that I would be there. I refused to use a bedpan, so my bladder was about to burst. They told me that they had no bathrooms in that unit that all the people there were confined to thier bed. (turns out it was the place that they took the patients who were dying). They

were surprised to have someone rolled in who could talk back to them. The nurses there were so angry that I was there. They were extremely rude to me. Hateful.

About 1:00 my friend and one of the elders from my church got back in. I told him right away that I was in a room with a man and that I had no panties on. I will never live that down. I was soaked in sweat. Soon after, my daughter and grandson got in. At 2:30 my husband came. had just called my doctor. Lucian in a not so soft voice asked to talk with someone with half a brain. A nurse management man came and he told him to unhook me that he was taking me home. About that time my doc came. He was furious. No one knew why I was there. Thank God, they didn't take me to the morgue.

There WAS a bathroom, right in the room where I was. The male nurse took me there. The poor man that was in the room was sitting in a chair down by the bathroom and was not covered up. He didn't have his panties on either. It was not pretty! Aaaargh!

They decided that they had taken me to the wrong ICU. I begged my doctor not to make me go to an ICU unit. They put me in the TMU in a private room. They had never initiated Flolan outside of ICU, but the docs did it a different way and I stayed in my nice private room...with no men roomates.

I filed reports while there, my doc filed a report, my friend who is a nurse on that floor filed a report and as soon as I am up to it, a letter will go out to everyone affiliated with that hospital. That is one of the worst days of my life. Every other person that worked there was super nice and caring. But that group of women in that one unit were really mean and hateful. I know for certain that I do not want to die in such a place. It was horrible. I did not get my meds, my nebs, my lunch or even water.

Were you all aware that they put men and women in rooms together in ICU areas? That is unaccecptable! What happened to dignity?

Maybe I am getting bettere, I am ranting!

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of my hands. Isaiah 49:15-16

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Peggy,

I think they are going to have to cut my Flolan back. I am having awful headaches. Today my feet swelled. While I was having the catherization, they tested the various meds on the pressure. Flolan was the one that worked. It cut the pressure back 18%. The pressure was on the artery that has the 70% blockage. They said that if I could tolerate the Flolan they would probably add Trackleer or Revitio...or both. But, the pressure has to come down.

I am just not bouncing back. I feel bad. They started Coumadin and I know that is a tough drug to get used to. So, who knows. I am just dragging around. I see my new doc on Monday. I just dread the thought of getting dressed to go anywhere.

My sweet husband has worked like a dog to master this task of my medication. This is a very difficult med to administer and the mixing and all the sterile procedures are overwhelming. Then comes the computerized part, which is not his strong point. But, he is doing great. I just love him so much for taking such good care of me. Today was the first time we had mixed the medicine and the little pump started beeping and we couldn't figure out what to do next. We were both shaking. I only have 3 minutes to get changed over once it is unhooked. We called the nurse and she talked us through it. He flushes out the pic lines and everything. Tomorrow we change dressing. A health nurse will come the first couple of times. Then he will have to do it.

Just keep praying. I am doing my part. God will do his. His will be done.

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of my hands. Isaiah 49:15-16 > > > I never fail to face a calamity when I get to visit the Big House. I > just wanted to share this one with you.> > I was summoned to the BH on Tuesday. They did testing into the night > and did a heart catherization on Wednesday a.m. This cath was a much > better experience than the one at . They gave me lots of drugs > and all went well....except the findings. On Thursday morning, they > told me that I would have to be transferred to ICU to initiate the > Flolan treatments. So they took me to an ICU unit (they have 3). My > paperwork, however, went another direction. My girlfriend was with > me. They rolled me in the room and stuck my bed in a small corner. > The curtain was pulled, but I could tell that the rest of the room > was the actual room and this was like a holding place for me until > they found out who I was and where my papers were. They came in a > took my friend outside into the waiting area. She could never get > back in. It was around 10:00 a.m.> > They closed the doors, there was no air flow in the room. I was > having trouble breathing. At that point some respiratory girl came > in to tell me that she would have to turn my 02 down to 5L, which she > did. I can't remember why. So, I was in a panic. Then I heard the > voice of my room mate. It was a MAN. Now, I had no underwear on due > to the cath bandanges. I was in a room with a MAN and I had no > underwear on. And they were cutting my air out. I began to protest > and they ignored me. They told me that I could never get out of my > bed during the week that I would be there. I refused to use a > bedpan, so my bladder was about to burst. They told me that they had > no bathrooms in that unit that all the people there were confined to > thier bed. (turns out it was the place that they took the patients > who were dying). They were surprised to have someone rolled in who > could talk back to them. The nurses there were so angry that I was > there. They were extremely rude to me. Hateful.> > About 1:00 my friend and one of the elders from my church got back > in. I told him right away that I was in a room with a man and that I > had no panties on. I will never live that down. I was soaked in > sweat. Soon after, my daughter and grandson got in. At 2:30 my > husband came. had just called my doctor. Lucian in a not > so soft voice asked to talk with someone with half a brain. A nurse > management man came and he told him to unhook me that he was taking > me home. About that time my doc came. He was furious. No one knew > why I was there. Thank God, they didn't take me to the morgue.> > There WAS a bathroom, right in the room where I was. The male nurse > took me there. The poor man that was in the room was sitting in a > chair down by the bathroom and was not covered up. He didn't have > his panties on either. It was not pretty! Aaaargh!> > They decided that they had taken me to the wrong ICU. I begged my > doctor not to make me go to an ICU unit. They put me in the TMU in a > private room. They had never initiated Flolan outside of ICU, but > the docs did it a different way and I stayed in my nice private > room...with no men roomates.> > I filed reports while there, my doc filed a report, my friend who is > a nurse on that floor filed a report and as soon as I am up to it, a > letter will go out to everyone affiliated with that hospital. That > is one of the worst days of my life. Every other person that worked > there was super nice and caring. But that group of women in that one > unit were really mean and hateful. I know for certain that I do not > want to die in such a place. It was horrible. I did not get my > meds, my nebs, my lunch or even water.> > Were you all aware that they put men and women in rooms together in > ICU areas? That is unaccecptable! What happened to dignity?> > Maybe I am getting bettere, I am ranting!> > Hugs, Joyce D.> > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary > Hypertension 2008 Mixed Connective > Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006> > I will not forget you...Behold, I have engraved you on the palms of > my hands. Isaiah 49:15-16>

[Guest guest]

I wander who ever thought it was a grand idea to put two really sick, infectuous , semi-nude strangers in a room together. Now, some moron has decided that we need to share the room with a member of the opposite sex.

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of my hands. Isaiah 49:15-16 > > >> > > > > > I never fail to face a calamity when I get to visit the Big > House. > > I> > > just wanted to share this one with you.> > > > > > I was summoned to the BH on Tuesday. They did testing into the > > night> > > and did a heart catherization on Wednesday a.m. This cath was a > > much> > > better experience than the one at . They gave me lots of > > drugs> > > and all went well....except the findings. On Thursday morning, > they> > > told me that I would have to be transferred to ICU to initiate the> > > Flolan treatments. So they took me to an ICU unit (they have > 3). > > My> > > paperwork, however, went another direction. My girlfriend was > with > > me. > > > They rolled me in the room and stuck my bed in a small corner. > The> > > curtain was pulled, but I could tell that the rest of the room > was > > the> > > actual room and this was like a holding place for me until they > > found> > > out who I was and where my papers were. They came in a took my > > friend> > > outside into the waiting area. She could never get back in. It > was> > > around 10:00 a.m.> > > > > > They closed the doors, there was no air flow in the room. I was > > having> > > trouble breathing. At that point some respiratory girl came in > to > > tell> > > me that she would have to turn my 02 down to 5L, which she did. > I > > can't> > > remember why. So, I was in a panic. Then I heard the voice of > my > > room> > > mate. It was a MAN. Now, I had no underwear on due to the cath> > > bandanges. I was in a room with a MAN and I had no underwear > on. > > And> > > they were cutting my air out. I began to protest and they > ignored > > me. > > > They told me that I could never get out of my bed during the week > > that I> > > would be there. I refused to use a bedpan, so my bladder was > about > > to> > > burst. They told me that they had no bathrooms in that unit that > > all> > > the people there were confined to thier bed. (turns out it was > the> > > place that they took the patients who were dying). They were > > surprised> > > to have someone rolled in who could talk back to them. The > nurses > > there> > > were so angry that I was there. They were extremely rude to me. > > > Hateful.> > > > > > About 1:00 my friend and one of the elders from my church got > back > > in. > > > I told him right away that I was in a room with a man and that I > > had no> > > panties on. I will never live that down. I was soaked in sweat. > > Soon> > > after, my daughter and grandson got in. At 2:30 my husband came. > > > had just called my doctor. Lucian in a not so soft > voice> > > asked to talk with someone with half a brain. A nurse management > > man> > > came and he told him to unhook me that he was taking me home. > About> > > that time my doc came. He was furious. No one knew why I was > > there. > > > Thank God, they didn't take me to the morgue.> > > > > > There WAS a bathroom, right in the room where I was. The male > nurse> > > took me there. The poor man that was in the room was sitting in > a > > chair> > > down by the bathroom and was not covered up. He didn't have his > > panties> > > on either. It was not pretty! Aaaargh!> > > > > > They decided that they had taken me to the wrong ICU. I begged my> > > doctor not to make me go to an ICU unit. They put me in the TMU > in > > a> > > private room. They had never initiated Flolan outside of ICU, > but > > the> > > docs did it a different way and I stayed in my nice private > > room...with> > > no men roomates.> > > > > > I filed reports while there, my doc filed a report, my friend who > > is a> > > nurse on that floor filed a report and as soon as I am up to it, a> > > letter will go out to everyone affiliated with that hospital. > That > > is> > > one of the worst days of my life. Every other person that worked > > there> > > was super nice and caring. But that group of women in that one > unit> > > were really mean and hateful. I know for certain that I do not > > want to> > > die in such a place. It was horrible. I did not get my meds, my > > nebs,> > > my lunch or even water.> > > > > > Were you all aware that they put men and women in rooms together > in > > ICU> > > areas? That is unaccecptable! What happened to dignity?> > > > > > Maybe I am getting bettere, I am ranting!> > > > > > Hugs, Joyce D.> > > > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary > > Hypertension> > > 2008 Mixed Connective Tissue > > Disease> > > (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006> > > > > > I will not forget you...Behold, I have engraved you on the palms > of > > my> > > hands. Isaiah 49:15-16> > >> >>

[Guest guest]

Oh, same person who puts screaming person in with heart patient? Same

person who doesn't understand staph infection? Idiots....lol

> > > >

> > > >

> > > > I never fail to face a calamity when I get to visit the Big

> > House.

> > > I

> > > > just wanted to share this one with you.

> > > >

> > > > I was summoned to the BH on Tuesday. They did testing into the

> > > night

> > > > and did a heart catherization on Wednesday a.m. This cath was

a

> > > much

> > > > better experience than the one at . They gave me lots of

> > > drugs

> > > > and all went well....except the findings. On Thursday morning,

> > they

> > > > told me that I would have to be transferred to ICU to

initiate the

> > > > Flolan treatments. So they took me to an ICU unit (they have

> > 3).

> > > My

> > > > paperwork, however, went another direction. My girlfriend was

> > with

> > > me.

> > > > They rolled me in the room and stuck my bed in a small corner.

> > The

> > > > curtain was pulled, but I could tell that the rest of the room

> > was

> > > the

> > > > actual room and this was like a holding place for me until

they

> > > found

> > > > out who I was and where my papers were. They came in a took my

> > > friend

> > > > outside into the waiting area. She could never get back in. It

> > was

> > > > around 10:00 a.m.

> > > >

> > > > They closed the doors, there was no air flow in the room. I

was

> > > having

> > > > trouble breathing. At that point some respiratory girl came in

> > to

> > > tell

> > > > me that she would have to turn my 02 down to 5L, which she

did.

> > I

> > > can't

> > > > remember why. So, I was in a panic. Then I heard the voice of

> > my

> > > room

> > > > mate. It was a MAN. Now, I had no underwear on due to the cath

> > > > bandanges. I was in a room with a MAN and I had no underwear

> > on.

> > > And

> > > > they were cutting my air out. I began to protest and they

> > ignored

> > > me.

> > > > They told me that I could never get out of my bed during the

week

> > > that I

> > > > would be there. I refused to use a bedpan, so my bladder was

> > about

> > > to

> > > > burst. They told me that they had no bathrooms in that unit

that

> > > all

> > > > the people there were confined to thier bed. (turns out it was

> > the

> > > > place that they took the patients who were dying). They were

> > > surprised

> > > > to have someone rolled in who could talk back to them. The

> > nurses

> > > there

> > > > were so angry that I was there. They were extremely rude to

me.

> > > > Hateful.

> > > >

> > > > About 1:00 my friend and one of the elders from my church got

> > back

> > > in.

> > > > I told him right away that I was in a room with a man and

that I

> > > had no

> > > > panties on. I will never live that down. I was soaked in

sweat.

> > > Soon

> > > > after, my daughter and grandson got in. At 2:30 my husband

came.

> > > > had just called my doctor. Lucian in a not so soft

> > voice

> > > > asked to talk with someone with half a brain. A nurse

management

> > > man

> > > > came and he told him to unhook me that he was taking me home.

> > About

> > > > that time my doc came. He was furious. No one knew why I was

> > > there.

> > > > Thank God, they didn't take me to the morgue.

> > > >

> > > > There WAS a bathroom, right in the room where I was. The male

> > nurse

> > > > took me there. The poor man that was in the room was sitting

in

> > a

> > > chair

> > > > down by the bathroom and was not covered up. He didn't have

his

> > > panties

> > > > on either. It was not pretty! Aaaargh!

> > > >

> > > > They decided that they had taken me to the wrong ICU. I

begged my

> > > > doctor not to make me go to an ICU unit. They put me in the

TMU

> > in

> > > a

> > > > private room. They had never initiated Flolan outside of ICU,

> > but

> > > the

> > > > docs did it a different way and I stayed in my nice private

> > > room...with

> > > > no men roomates.

> > > >

> > > > I filed reports while there, my doc filed a report, my friend

who

> > > is a

> > > > nurse on that floor filed a report and as soon as I am up to

it, a

> > > > letter will go out to everyone affiliated with that hospital.

> > That

> > > is

> > > > one of the worst days of my life. Every other person that

worked

> > > there

> > > > was super nice and caring. But that group of women in that one

> > unit

> > > > were really mean and hateful. I know for certain that I do not

> > > want to

> > > > die in such a place. It was horrible. I did not get my meds,

my

> > > nebs,

> > > > my lunch or even water.

> > > >

> > > > Were you all aware that they put men and women in rooms

together

> > in

> > > ICU

> > > > areas? That is unaccecptable! What happened to dignity?

> > > >

> > > > Maybe I am getting bettere, I am ranting!

> > > >

> > > > Hugs, Joyce D.

> > > >

> > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

> > > Hypertension

> > > > 2008 Mixed Connective Tissue

> > > Disease

> > > > (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

> > > >

> > > > I will not forget you...Behold, I have engraved you on the

palms

> > of

> > > my

> > > > hands. Isaiah 49:15-16

> > > >

> > >

> >

>

[Guest guest]

I know sometimes they feel the need but sure wish they'd just add one

med at a time so the side effects could be clearly distinguished.

> >

> >

> > I never fail to face a calamity when I get to visit the Big

House. I

> > just wanted to share this one with you.

> >

> > I was summoned to the BH on Tuesday. They did testing into the

night

> > and did a heart catherization on Wednesday a.m. This cath was a

much

> > better experience than the one at . They gave me lots of

drugs

> > and all went well....except the findings. On Thursday morning,

they

> > told me that I would have to be transferred to ICU to initiate the

> > Flolan treatments. So they took me to an ICU unit (they have 3).

My

> > paperwork, however, went another direction. My girlfriend was with

> > me. They rolled me in the room and stuck my bed in a small corner.

> > The curtain was pulled, but I could tell that the rest of the room

> > was the actual room and this was like a holding place for me until

> > they found out who I was and where my papers were. They came in a

> > took my friend outside into the waiting area. She could never get

> > back in. It was around 10:00 a.m.

> >

> > They closed the doors, there was no air flow in the room. I was

> > having trouble breathing. At that point some respiratory girl came

> > in to tell me that she would have to turn my 02 down to 5L, which

she

> > did. I can't remember why. So, I was in a panic. Then I heard the

> > voice of my room mate. It was a MAN. Now, I had no underwear on

due

> > to the cath bandanges. I was in a room with a MAN and I had no

> > underwear on. And they were cutting my air out. I began to protest

> > and they ignored me. They told me that I could never get out of my

> > bed during the week that I would be there. I refused to use a

> > bedpan, so my bladder was about to burst. They told me that they

had

> > no bathrooms in that unit that all the people there were confined

to

> > thier bed. (turns out it was the place that they took the patients

> > who were dying). They were surprised to have someone rolled in who

> > could talk back to them. The nurses there were so angry that I was

> > there. They were extremely rude to me. Hateful.

> >

> > About 1:00 my friend and one of the elders from my church got back

> > in. I told him right away that I was in a room with a man and

that I

> > had no panties on. I will never live that down. I was soaked in

> > sweat. Soon after, my daughter and grandson got in. At 2:30 my

> > husband came. had just called my doctor. Lucian in a not

> > so soft voice asked to talk with someone with half a brain. A

nurse

> > management man came and he told him to unhook me that he was

taking

> > me home. About that time my doc came. He was furious. No one knew

> > why I was there. Thank God, they didn't take me to the morgue.

> >

> > There WAS a bathroom, right in the room where I was. The male

nurse

> > took me there. The poor man that was in the room was sitting in a

> > chair down by the bathroom and was not covered up. He didn't have

> > his panties on either. It was not pretty! Aaaargh!

> >

> > They decided that they had taken me to the wrong ICU. I begged my

> > doctor not to make me go to an ICU unit. They put me in the TMU

in a

> > private room. They had never initiated Flolan outside of ICU, but

> > the docs did it a different way and I stayed in my nice private

> > room...with no men roomates.

> >

> > I filed reports while there, my doc filed a report, my friend who

is

> > a nurse on that floor filed a report and as soon as I am up to

it, a

> > letter will go out to everyone affiliated with that hospital. That

> > is one of the worst days of my life. Every other person that

worked

> > there was super nice and caring. But that group of women in that

one

> > unit were really mean and hateful. I know for certain that I do

not

> > want to die in such a place. It was horrible. I did not get my

> > meds, my nebs, my lunch or even water.

> >

> > Were you all aware that they put men and women in rooms together

in

> > ICU areas? That is unaccecptable! What happened to dignity?

> >

> > Maybe I am getting bettere, I am ranting!

> >

> > Hugs, Joyce D.

> >

> > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary

> > Hypertension 2008 Mixed Connective

> > Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant

> 2006

> >

> > I will not forget you...Behold, I have engraved you on the palms

of

> > my hands. Isaiah 49:15-16

> >

>

[Guest guest]

Joyce,

How I dearly wish there was a way to lift this burden from you. Flolan is such a difficult med...as someone who used to suffer from migraines I'm sorry about the headaches. They are so debilitating.

You are in my thoughts and prayers continually, you and Lucian both actually. If I was close by I'd bring a pot of chicken and dumplings over and some apple crisp.

Consider yourself hugged anyway!!

Beth in NC age 48 Fibrotic NSIP 06/06

"For as long as I shall live, I will testify to Love."

Re: Why I HATE hospitals!

Peggy,

I think they are going to have to cut my Flolan back. I am having awful headaches. Today my feet swelled. While I was having the catherization, they tested the various meds on the pressure. Flolan was the one that worked. It cut the pressure back 18%. The pressure was on the artery that has the 70% blockage. They said that if I could tolerate the Flolan they would probably add Trackleer or Revitio...or both. But, the pressure has to come down.

I am just not bouncing back. I feel bad. They started Coumadin and I know that is a tough drug to get used to. So, who knows. I am just dragging around. I see my new doc on Monday. I just dread the thought of getting dressed to go anywhere.

My sweet husband has worked like a dog to master this task of my medication. This is a very difficult med to administer and the mixing and all the sterile procedures are overwhelming. Then comes the computerized part, which is not his strong point. But, he is doing great. I just love him so much for taking such good care of me. Today was the first time we had mixed the medicine and the little pump started beeping and we couldn't figure out what to do next. We were both shaking. I only have 3 minutes to get changed over once it is unhooked. We called the nurse and she talked us through it. He flushes out the pic lines and everything. Tomorrow we change dressing. A health nurse will come the first couple of times. Then he will have to do it.

Just keep praying. I am doing my part. God will do his. His will be done.

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of my hands. Isaiah 49:15-16 > > > I never fail to face a calamity when I get to visit the Big House. I > just wanted to share this one with you.> > I was summoned to the BH on Tuesday. They did testing into the night > and did a heart catherization on Wednesday a.m. This cath was a much > better experience than the one at . They gave me lots of drugs > and all went well....except the findings. On Thursday morning, they > told me that I would have to be transferred to ICU to initiate the > Flolan treatments. So they took me to an ICU unit (they have 3). My > paperwork, however, went another direction. My girlfriend was with > me. They rolled me in the room and stuck my bed in

a small corner. > The curtain was pulled, but I could tell that the rest of the room > was the actual room and this was like a holding place for me until > they found out who I was and where my papers were. They came in a > took my friend outside into the waiting area. She could never get > back in. It was around 10:00 a.m.> > They closed the doors, there was no air flow in the room. I was > having trouble breathing. At that point some respiratory girl came > in to tell me that she would have to turn my 02 down to 5L, which she > did. I can't remember why. So, I was in a panic. Then I heard the > voice of my room mate. It was a MAN. Now, I had no underwear on due > to the cath bandanges. I was in a room with a MAN and I had no > underwear on. And they were cutting my air out. I began to protest > and they ignored me. They told me that I could never get out

of my > bed during the week that I would be there. I refused to use a > bedpan, so my bladder was about to burst. They told me that they had > no bathrooms in that unit that all the people there were confined to > thier bed. (turns out it was the place that they took the patients > who were dying). They were surprised to have someone rolled in who > could talk back to them. The nurses there were so angry that I was > there. They were extremely rude to me. Hateful.> > About 1:00 my friend and one of the elders from my church got back > in. I told him right away that I was in a room with a man and that I > had no panties on. I will never live that down. I was soaked in > sweat. Soon after, my daughter and grandson got in. At 2:30 my > husband came. had just called my doctor. Lucian in a not > so soft voice asked to talk with someone with half a

brain. A nurse > management man came and he told him to unhook me that he was taking > me home. About that time my doc came. He was furious. No one knew > why I was there. Thank God, they didn't take me to the morgue.> > There WAS a bathroom, right in the room where I was. The male nurse > took me there. The poor man that was in the room was sitting in a > chair down by the bathroom and was not covered up. He didn't have > his panties on either. It was not pretty! Aaaargh!> > They decided that they had taken me to the wrong ICU. I begged my > doctor not to make me go to an ICU unit. They put me in the TMU in a > private room. They had never initiated Flolan outside of ICU, but > the docs did it a different way and I stayed in my nice private > room...with no men roomates.> > I filed reports while there, my doc filed a report, my friend who is

> a nurse on that floor filed a report and as soon as I am up to it, a > letter will go out to everyone affiliated with that hospital. That > is one of the worst days of my life. Every other person that worked > there was super nice and caring. But that group of women in that one > unit were really mean and hateful. I know for certain that I do not > want to die in such a place. It was horrible. I did not get my > meds, my nebs, my lunch or even water.> > Were you all aware that they put men and women in rooms together in > ICU areas? That is unaccecptable! What happened to dignity?> > Maybe I am getting bettere, I am ranting!> > Hugs, Joyce D.> > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary > Hypertension 2008 Mixed Connective > Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006> > I

will not forget you...Behold, I have engraved you on the palms of > my hands. Isaiah 49:15-16>

[Guest guest]

Beth,

Do you even know how good that sounds. Yum, yum.

Hugs, Joyce D.

Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006

I will not forget you...Behold, I have engraved you on the palms of my hands. Isaiah 49:15-16 > > > > > > I never fail to face a calamity when I get to visit the Big House. I > > just wanted to share this one with you.> > > > I was summoned to the BH on Tuesday. They did testing into the night > > and did a heart catherization on Wednesday a.m. This cath was a much > > better experience than the one at . They gave me lots of drugs > > and all went well....except the findings. On Thursday morning, they > > told me that I would have to be transferred to ICU to initiate the > > Flolan treatments. So they took me to an ICU unit (they have 3). My > > paperwork, however, went another direction. My girlfriend was with > > me. They rolled me in the room and stuck my bed in a small corner. > > The curtain was pulled, but I could tell that the rest of the room > > was the actual room and this was like a holding place for me until > > they found out who I was and where my papers were. They came in a > > took my friend outside into the waiting area. She could never get > > back in. It was around 10:00 a.m.> > > > They closed the doors, there was no air flow in the room. I was > > having trouble breathing. At that point some respiratory girl came > > in to tell me that she would have to turn my 02 down to 5L, which she > > did. I can't remember why. So, I was in a panic. Then I heard the > > voice of my room mate. It was a MAN. Now, I had no underwear on due > > to the cath bandanges. I was in a room with a MAN and I had no > > underwear on. And they were cutting my air out. I began to protest > > and they ignored me. They told me that I could never get out of my > > bed during the week that I would be there. I refused to use a > > bedpan, so my bladder was about to burst. They told me that they had > > no bathrooms in that unit that all the people there were confined to > > thier bed. (turns out it was the place that they took the patients > > who were dying). They were surprised to have someone rolled in who > > could talk back to them. The nurses there were so angry that I was > > there. They were extremely rude to me. Hateful.> > > > About 1:00 my friend and one of the elders from my church got back > > in. I told him right away that I was in a room with a man and that I > > had no panties on. I will never live that down. I was soaked in > > sweat. Soon after, my daughter and grandson got in. At 2:30 my > > husband came. had just called my doctor. Lucian in a not > > so soft voice asked to talk with someone with half a brain. A nurse > > management man came and he told him to unhook me that he was taking > > me home. About that time my doc came. He was furious. No one knew > > why I was there. Thank God, they didn't take me to the morgue.> > > > There WAS a bathroom, right in the room where I was. The male nurse > > took me there. The poor man that was in the room was sitting in a > > chair down by the bathroom and was not covered up. He didn't have > > his panties on either. It was not pretty! Aaaargh!> > > > They decided that they had taken me to the wrong ICU. I begged my > > doctor not to make me go to an ICU unit. They put me in the TMU in a > > private room. They had never initiated Flolan outside of ICU, but > > the docs did it a different way and I stayed in my nice private > > room...with no men roomates.> > > > I filed reports while there, my doc filed a report, my friend who is > > a nurse on that floor filed a report and as soon as I am up to it, a > > letter will go out to everyone affiliated with that hospital. That > > is one of the worst days of my life. Every other person that worked > > there was super nice and caring. But that group of women in that one > > unit were really mean and hateful. I know for certain that I do not > > want to die in such a place. It was horrible. I did not get my > > meds, my nebs, my lunch or even water.> > > > Were you all aware that they put men and women in rooms together in > > ICU areas? That is unaccecptable! What happened to dignity?> > > > Maybe I am getting bettere, I am ranting!> > > > Hugs, Joyce D.> > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary > > Hypertension 2008 Mixed Connective > > Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006> > > > I will not forget you...Behold, I have engraved you on the palms of > > my hands. Isaiah 49:15-16> >>