NSIP

[Guest guest]

Hello, I'm back and putting my two cents

in here. I read some of the posts regarding the DX of NSIP

and honeycombing. My many pulmonary doctors referred to the scarring

as honeycombing. They did not differentiate

between scarring, fibrosis or honeycombing. The pattern of the

scarring,etc is different for NSIP but it's still fibrosis!

--

Z fibriotic NSIP/05

Z fibriotic NSIP/o5/PA

And “mild” PH/10/07 and Reynaud’s

too!!

Potter, reader,carousel lover and

MomMom to

Darah

“I’m

gonna

be iron like a lion in Zion” Bob Marley

[Guest guest]

Hi Sista,

Good to see you back with us..I've been too distracted to follow the Forum over the last couple of days. I'm reading backwards but I can contribute a little here....NSIP is most usually indicated by 'ground glass' appearance in the scarring pattern rather than a honeycomb pattern. They are both 'Fibrotic'...There is also a type of NSIP called 'Cellular' NSIP & it is that form which responds best to treatment with Steroids. Fibrotic NSIP does have a very small success rate (10% I think from memory) & is closer to UIP in its response to Steroid treatment.

My HRCT shows a distinct 'Honeycomb' pattern & that is considered quite rare for Fibrotic NSIP. However my VATS returned pathology more consistant with Fibrotic NSIP, HOWEVER the sample was so thin & of such poor testing quality that the Pathologists were not prepared to make a call!

AS I've said before reserachers have found that it is possible for patients to have both Fibrotic NSIP & UIP....the disease then is considered to follow a typical UIP path.

That is my understanding based on reading oodles of mainly US & some Dutch research plus what I've been told by the 2 Lung Specialists I've consulted in Oz.

in Oz

IPF: Fibrotic NSIP/UIP????

Reynauds'

May 2007

>> Hello, I'm back and putting my two cents in here. I read some of the > posts regarding the DX of NSIP> and honeycombing. My many pulmonary doctors referred to the scarring as > honeycombing. They did not differentiate> between scarring, fibrosis or honeycombing. The pattern of the > scarring,etc is different for NSIP but it's still fibrosis!> -- > > > Z fibriotic NSIP/o5/PA> > > And "mild" PH/10/07 and Reynaud's too!!> > > Potter, reader,carousel lover and MomMom to Darah > > *"I'm gonna be iron like a lion in Zion" Bob Marley***>

[Guest guest]

,

Thanks for the info, my NSIP has been fibrotic or type II. Over the

years the dx has had many names but basically the symptoms and test

results never changed much. Progression has been very slow but

steady. My CTs have noted both the ground glass and honeycombing. I

feel better taking prednisone, 10mg maintenance so will continue to

take it. Have taken much higher doses through the years but can't

tolerate it for long. Thanks for your input. As I mentioned to

Bruce I don't reserch nearly as much as I used or even fret about

what I have. By now it doesn't really matter what I call it.

Always good to read your posts, .

Kathie WA NSIP 96, etc.

> >

> > Hello, I'm back and putting my two cents in here. I read some of

the

> > posts regarding the DX of NSIP

> > and honeycombing. My many pulmonary doctors referred to the

scarring

> as

> > honeycombing. They did not differentiate

> > between scarring, fibrosis or honeycombing. The pattern of the

> > scarring,etc is different for NSIP but it's still fibrosis!

> > --

> >

> >

> > Z fibriotic NSIP/o5/PA

> >

> >

> > And " mild " PH/10/07 and Reynaud's too!!

> >

> >

> > Potter, reader,carousel lover and MomMom to Darah

> >

> > * " I'm gonna be iron like a lion in Zion " Bob Marley***

> >

>