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the hearing is not that bad at all. it isn't like a criminal courn thing so

it is much easier. just be very knowledgable about what bothers you and the

meds you take along with the side effects of the meds. I just told the judge

what my daily life is like (I exaggerated) and what I can no longer do.

stress the no longer able to do things, sy you have to have help running the

kids places doing house work crap like that. any other questions ljust let me

know

Love and Gentle Hugs,

Angie

Yesterday will fade and tomorrow will take care of itself. Lord, help me

today

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  • 7 months later...

It started when I was 10 and playing football. My coach threw me a

pass and it hit my pancreas. The rest is history. The illness had

progessively gotten worse. I can barley eat anything and now my

doc's think I have chron's disease. They have said that my

pancreas,liver,kidney's and heart are all looking well so that is a

relief. Hope that joey is doing well. I have out lived my doctor's

expectation's so that is good.

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In a message dated 10/12/00 1:19:01 PM Pacific Daylight Time, KebaJ@...

writes:

<< ...the other times I got turned down was because the doctor that reviewed

my case thought it (my Pancreatitis) would go away. >>

That is exactly what was said the first time I was denied. They said that the

doctor who reviewed the case said that I was expected to return to full

functional capability within 6 months. I only wish it were true!

<< I was lucky and had a judge that believed me. My case will be reviewed

every

three years.>>

Well, I have been denied twice, and am now waiting for a hearing with a judge

in the flesh, person to person. They seem to wait until the very last

possible date to set the hearing. I don't think hiring a lawyer pays off at

all. They also wait until the very last date, too. That way they get a bigger

cut. I have heard that more people are approved the third time when the judge

is able to speak to me directly. DO they always place a review date on every

body, like yours being every three years?

<< It is kinda hard to explain how they decide who can and can't get

benefits>>

I don't think there is any rhyme or reason as to who they approve.

<<if anyone needs help or advice please email me. >>

Did anyone take a witness or written statement from doctors with them to give

to the judge?

Karyn

Pancreatitis Support Network

Indianapolis Symposium on Pancreatitis 2000

November 11, 2000

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Sheila,

The main hurdle is that your doctor has to say you are permanenty disabled - it

does NOT have to be totally disabled although some SSDI people may tell you

that. If you start falling or have movement problems (from MSA) which keep you

from doing your job with " reasonable accomodation " from your employer, you

should be elgible for SSDI. Your best bet is to talk to both your primary care

physician and your neuro in advance. SSDI will want to know dates, names and

addresses of every doctor and hospital you've seen in the las few years. You

can get this info from your doctors.

You also must have worked so many years out of the last so many years, so don't

stop too early. But file as soon as you feel you can not handle the work any

more. It still takes two years after receiving SSDI (or reaching 65), before

you can apply for Medicare. Charlotte even got her interview over the phone.

Once you get it, you still have to prove you are disabled every two years. If

you have a diagnoses of MSA, there should be no real problem.

Once you file, if your doctors go along, there should be no hoops to go

through. At worst, you may have to go to a local government doctor for

confirmation.

Take care, Bill and Charlotte

==============================================================

sheila coutant wrote:

> would like to know what you have to produce to get SSI .... and the hoops

> you have to go through ... anyone??? Bill ????/

>

> thx

> sheila

> -----

>

>

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Sheila:

In terms of hoops -- I've just been through them. I applied for SSDI in

January. Filled out lenghty questionaire and provided doctor references.

Then SSA turned my application over to a state governement agency to review.

They sent me another, even longer questionaire. Evetually they had me see

their own doctors who are consultants to the agency. Finally it got approved

in September, establishing my eligibility from April 1999 as I had claimed.

I guess I (my doctors) made a good case. I won't be reviewed for 5 to 7

years. Hope I'm still around for the review!

Good luck.

Moller

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Sheila,

In spite of grave reservations about the social secuurity system, Rob

applied for and received SSDI without any problem. My recollection

is that he has to complete a lenghty application and get his doctor

to do the same. I also wrote a letter, as I recall. We were totally

shocked when it was approved! It was quick, with no bulls**t.

There's a link on Jeff's Shy Drager page that can tell you more about

the process. (And there's a link to Jeff's page in the " link's "

section to the left on the egroups page.)

Good luck!

Carol & Rob

> would like to know what you have to produce to get SSI .... and the

hoops

> you have to go through ... anyone??? Bill ????/

>

> thx

> sheila

> -----

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Oops! There's NOT a link to Jeff's page to the left. There is,

however a link through Jim Todd's Memorial Links to SSDI info.

Sorry!

Carol & Rob

> > would like to know what you have to produce to get SSI .... and

the

> hoops

> > you have to go through ... anyone??? Bill ????/

> >

> > thx

> > sheila

> > -----

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Once a person turns 65, they no longer can receive disability AND social

security, right? Bob (huband) received disability for about 6 months because of

MSA, then turned 65, and the disability stopped. We were quite taken back -

that's quite a drop in income when person is not able to work. Education is

the key - I'm afraid we were ignorant on this subject, never thinking we would

need to utilize the benefit! Thanks for all the input - it is so very helpful

Elaine Grimmesey

>>> Werre 10/19/00 05:44AM >>>

Sheila,

The main hurdle is that your doctor has to say you are permanenty disabled - it

does NOT have to be totally disabled although some SSDI people may tell you

that. If you start falling or have movement problems (from MSA) which keep you

from doing your job with " reasonable accomodation " from your employer, you

should be elgible for SSDI. Your best bet is to talk to both your primary care

physician and your neuro in advance. SSDI will want to know dates, names and

addresses of every doctor and hospital you've seen in the las few years. You

can get this info from your doctors.

You also must have worked so many years out of the last so many years, so don't

stop too early. But file as soon as you feel you can not handle the work any

more. It still takes two years after receiving SSDI (or reaching 65), before

you can apply for Medicare. Charlotte even got her interview over the phone.

Once you get it, you still have to prove you are disabled every two years. If

you have a diagnoses of MSA, there should be no real problem.

Once you file, if your doctors go along, there should be no hoops to go

through. At worst, you may have to go to a local government doctor for

confirmation.

Take care, Bill and Charlotte

==============================================================

sheila coutant wrote:

> would like to know what you have to produce to get SSI .... and the hoops

> you have to go through ... anyone??? Bill ????/

>

> thx

> sheila

> -----

>

>

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Elaine,

I don't think you ever get both SS and SSDI. When you turn 65, the SSDI should

turn into straight SS. The only difference is that at 65 you add Medicare (or

two years after you get SSDI).

You may be talking about a private disability insurance program and they usually

deduct SSDI from whatever benefits they pay out. Several people on the list get

private disability insurance.

Take care, Bill and Charlotte

=======================================================

Elaine Grimmesey wrote:

> Once a person turns 65, they no longer can receive disability AND social

security, right? Bob (huband) received disability for about 6 months because of

MSA, then turned 65, and the disability stopped. We were quite taken back -

that's quite a drop in income when person is not able to work. Education is

the key - I'm afraid we were ignorant on this subject, never thinking we would

need to utilize the benefit! Thanks for all the input - it is so very helpful

>

> Elaine Grimmesey

>

> >>> Werre 10/19/00 05:44AM >>>

> Sheila,

>

> The main hurdle is that your doctor has to say you are permanenty disabled -

it

> does NOT have to be totally disabled although some SSDI people may tell you

> that. If you start falling or have movement problems (from MSA) which keep

you

> from doing your job with " reasonable accomodation " from your employer, you

> should be elgible for SSDI. Your best bet is to talk to both your primary

care

> physician and your neuro in advance. SSDI will want to know dates, names and

> addresses of every doctor and hospital you've seen in the las few years. You

> can get this info from your doctors.

>

> You also must have worked so many years out of the last so many years, so

don't

> stop too early. But file as soon as you feel you can not handle the work any

> more. It still takes two years after receiving SSDI (or reaching 65), before

> you can apply for Medicare. Charlotte even got her interview over the phone.

> Once you get it, you still have to prove you are disabled every two years. If

> you have a diagnoses of MSA, there should be no real problem.

>

> Once you file, if your doctors go along, there should be no hoops to go

> through. At worst, you may have to go to a local government doctor for

> confirmation.

>

> Take care, Bill and Charlotte

> ==============================================================

> sheila coutant wrote:

>

> > would like to know what you have to produce to get SSI .... and the hoops

> > you have to go through ... anyone??? Bill ????/

> >

> > thx

> > sheila

> > -----

> >

> >

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