RE: YANA is back in business

[Guest guest]

This is just some brief feedback/suggestions for Dave H's YANA post that is shown below:

"UPDATES FROM MEMBERS:

.. . . . ,

http://www.yananow.org/Mentors/DaveH.htm DAVE H just had his third biopsy in 12 months – no change in diagnosis so he continues his (AS) Active Surveillance"

One suggestion is to check out the follwing recently published book: http://www.amazon.com/Invasion-Prostate-Snatchers-Unnecessary-Treatment/dp/1590513428 .

And, the second suggestion is to do a Google search for "Dr. Bob Leibowitz" for info about his treatment approach that does not involve radiation or surgery.

Subject: YANA is back in businessTo: ProstateCancerSupport , newdx@..., ww@...Date: Sunday, January 16, 2011, 1:01 AM

Well, I am back and Yana is now open for business again. You can share your prostate cancer experience by going to http://www.yananow.org/JoinUsForm.html JOIN US or, if you have already told your story, you can update it at http://www.yananow.org/UpdateYourStatsForm.html UPDATE YOUR STORY

The planned changes on the site are not yet quite complete, but the initial ones will make it a good deal easier for me to deal with the data and will also make access by visitors simpler – and hopefully quicker. For the time being, things continue as they were.

I uploaded some of the updates in early December before I went on vacation, the rest have been done today or yesterday.

GOOD NEWS/BAD NEWS

The Good News is that reports of the passing of http://www.yananow.org/Mentors/B.htm DEREK BIRD have been greatly exaggerated. When he did not respond to a reminder, I feared the worst, but although he is far from well, with his PSA heading North of 200 ng/ml he didn’t respond to me because he was in hospital with a broken leg. He has now been discharged but is feeling rather poorly.

Regrettably, two other members passed on with notifications coming in while I was away:

http://www.yananow.org/Mentors/TimK.htm TIM KEEFER diagnosed aged 50 in 2008 with metastasized disease with a Gleason Score of 8 and a PSA of 375 ng/ml passed on in October last year http://www.yananow.org/Mentors/S.htm PAUL S diagnosed aged 51 in 2009 with metastasized disease with a Gleason Score of 9 and a PSA of 362 ng/ml passed on earlier this month

NEW POST:

http://www.yananow.org/Mentors/A.htm RICHARD A chose RALP (Robotic Assisted Laparoscopic Prostatectomy) with adjuvant IMRT (Intensity Modulated Radiation Therapy) and ADT (Androgen Deprivation Therapy) for a T3 GS 7 diagnosis

UPDATES FROM MEMBERS:

http://www.yananow.org/Mentors/S.htm ERIC SONDEEN decided to try Degarelix after his failed HIFU (High Intensity Focused Ultrasound) and ADT (Androgen Deprivation Therapy)

http://www.yananow.org/Mentors/DaveH.htm DAVE H just had his third biopsy in 12 months – no change in diagnosis so he continues his (AS) Active Surveillance

http://www.yananow.org/Mentors/LennyH.htm LENNY HIRSCH Gold Four Star Member and just over 14 years after his diagnosis, having tried a number of therapies to control his disease, he is now headed for EBRT (External Beam Radiation Therapy)

http://www.yananow.org/Mentors/DougH.htm DOUG HARVEY with a PSA of 0.29 ng/ml after RP (Radical Prostatectomy) he is looking for advice on radiologists to carry out his salvage EBRT (External Beam Radiation Therapy)

http://www.yananow.org/Mentors/NedG.htm NED G has persuaded his urologist to support (AS) Active Surveillance despite his age of 46 at diagnosis

NEW LINK

While I was away Dr Gerald Chodak produced two publications. One is what has been termed a Vook - described as an innovation in reading that blends a well-written book, high-quality video and the power of the Internet into a single, complete story. I think both are excellent publications and would be very helpful, especially for newly diagnosed men. These publications are linked on the RESOURCES page of the site at http://www.yananow.org/resources.html#gerry

Anyone interested in seeing where we went for our White Christmas Tour can see some of my pictures here http://tinyurl.com/WhiteX2010

All the best

Prostate men need enlightening, not frightening

Terry Herbert - diagnosed in 1996 and still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

[Guest guest]

Not too sure about Dr Bob being the best

bet for Dave H with his diagnosis, but why don’t you mail Dave directly? That’s

the concept of the Yana set up: people tell

their stories, other people mail them with suggestions and support.

All the best

Prostate men need enlightening, not

frightening

Terry Herbert - diagnosed in 1996 and

still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of L

Sent: Monday, 17 January 2011 7:56

AM

To: ProstateCancerSupport

Subject: Re:

YANA is back in

business

This is just some brief feedback/suggestions for

Dave H's YANA post that is shown below:

" UPDATES

FROM MEMBERS:

.. . . . ,

http://www.yananow.org/Mentors/DaveH.htm DAVE H just had his third biopsy in 12 months – no change in

diagnosis so he continues his (AS) Active Surveillance "

One suggestion is to

check out the follwing recently published book: http://www.amazon.com/Invasion-Prostate-Snatchers-Unnecessary-Treatment/dp/1590513428 .

And, the second

suggestion is to do a Google search for " Dr. Bob Leibowitz " for

info about his treatment approach that does not involve radiation or surgery.

Subject: YANA is

back in business

To: ProstateCancerSupport ,

newdx@..., ww@...

Date: Sunday, January 16, 2011, 1:01 AM

Well, I am

back and Yana is now open for business

again. You can share your prostate cancer experience by going to http://www.yananow.org/JoinUsForm.html

JOIN US

or, if you have already told your story, you can update it at http://www.yananow.org/UpdateYourStatsForm.html

UPDATE YOUR STORY

The planned

changes on the site are not yet quite complete, but the initial ones will

make it a good deal easier for me to deal with the data and will also make

access by visitors simpler – and hopefully quicker. For the time being,

things continue as they were.

I uploaded some of the

updates in early December before I went on vacation, the rest have been done

today or yesterday.

GOOD NEWS/BAD NEWS

The Good News is that

reports of the passing of http://www.yananow.org/Mentors/B.htm DEREK

BIRD have been greatly exaggerated. When he did not respond to a reminder, I

feared the worst, but although he is far from well, with his PSA heading

North of 200 ng/ml he didn’t respond to me because he was in hospital with a

broken leg. He has now been discharged but is feeling rather poorly.

Regrettably, two other

members passed on with notifications coming in while I was away:

http://www.yananow.org/Mentors/TimK.htm

TIM KEEFER diagnosed aged 50 in 2008 with metastasized disease with a

Gleason Score of 8 and a PSA of 375 ng/ml passed on in October last year http://www.yananow.org/Mentors/S.htm

PAUL S diagnosed aged 51 in 2009 with metastasized disease with a Gleason

Score of 9 and a PSA of 362 ng/ml passed on earlier this month

NEW POST:

http://www.yananow.org/Mentors/A.htm

RICHARD A chose RALP (Robotic Assisted Laparoscopic Prostatectomy) with

adjuvant IMRT (Intensity Modulated Radiation Therapy) and ADT (Androgen

Deprivation Therapy) for a T3 GS 7 diagnosis

UPDATES

FROM MEMBERS:

http://www.yananow.org/Mentors/S.htm ERIC SONDEEN decided to try Degarelix after his failed HIFU

(High Intensity Focused Ultrasound) and ADT (Androgen Deprivation Therapy)

http://www.yananow.org/Mentors/DaveH.htm DAVE H just had his third biopsy in 12 months – no change in

diagnosis so he continues his (AS) Active Surveillance

http://www.yananow.org/Mentors/LennyH.htm

LENNY HIRSCH Gold Four Star Member and just over 14 years after his

diagnosis, having tried a number of therapies to control his disease, he is

now headed for EBRT (External Beam Radiation Therapy)

http://www.yananow.org/Mentors/DougH.htm

DOUG HARVEY with a PSA of 0.29 ng/ml after RP (Radical

Prostatectomy) he is looking for advice on radiologists to carry out his

salvage EBRT (External Beam Radiation Therapy)

http://www.yananow.org/Mentors/NedG.htm NED G has persuaded his urologist to support (AS) Active

Surveillance despite his age of 46 at diagnosis

NEW LINK

While I was away Dr

Gerald Chodak produced two publications. One is what has been termed a Vook -

described as an innovation

in reading that blends a well-written book, high-quality video and the power

of the Internet into a single, complete story. I think both are excellent

publications and would be very helpful, especially for newly diagnosed men.

These publications are linked on the RESOURCES page of the site at http://www.yananow.org/resources.html#gerry

Anyone interested in

seeing where we went for our White Christmas Tour can see some of my pictures

here http://tinyurl.com/WhiteX2010

All the best

Prostate men need enlightening,

not frightening

Terry Herbert - diagnosed in 1996

and still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html