Steve Jordan has died

[Guest guest]

I appreciate this update.  Steve was very helpful to me when I was first diagnosed.  God bless him.  He will be missed.

 

Coy

, Michigan

 

 

Steve Jordan has been a frequent participant on PCa Support and other internet patient forums, and is well known to many of us. Today a message appeared on the PCa newsgroup with the information that he died on September 8:

http://groups.google.com/group/alt.support.cancer.prostate/t/3b9f37104dc2dae9?hl=enSteve was a true believer in doing all he could to help us in our battle.

Clausen

--

 

G. Coy

shootingcpa@...

 

" History does not entrust the care of freedom

      to the weak or timid. "   ... Dwight D. Eisenhower

 

[Guest guest]

I joined the Brotherhood of the Balloon, a group formed by prostate cancer survivors who had received proton beam therapy at Loma University medical center. The Brotherhood of the Balloon is open to all prostate cancer survivors regardless of where they received their proton beam therapy. However, I note that the website has been pretty dormant since 2007, and I wondered if there was an active followup of alumni. What is the reason for the lack of participation on that website? Are the patients dying off and no one is reporting the passings?Or are there better websites, such as this one? It seems to me that data on all patients who receive treatment, including watchful waiters, would be beneficial. Regards, T I appreciate this update. Steve was very helpful to me when I was first diagnosed. God bless him. He will be missed. Coy, Michigan Steve Jordan has been a frequent participant on PCa Support and other internet patient forums, and is well known to many of us. Today a message appeared on the PCa newsgroup with the information that he died on September 8:http://groups.google.com/group/alt.support.cancer.prostate/t/3b9f37104dc2dae9?hl=enSteve was a true believer in doing all he could to help us in our battle. Clausen-- G. Coyshootingcpa@... "History does not entrust the care of freedom to the weak or timid. " ... Dwight D. Eisenhower

[Guest guest]

I inquired at PCAinAZ.org, an US TOO chapter in Arizona in which Steve was

active and heard from Ralph Valle, a active member of that group who knew Steve

and tried to find out what happened to him.

All anyone was able to find out was that Steve died of something other than

prostate cancer.

I appreciated Steve's participation in this and other forums for prostate cancer

patients and survivors. He himself had a long battle with the disease following

a cryotherapy treatment that didn't work at all and left him with unpleasant

side effects. It is my recollection that he felt that he had chosen that

treatment without doing enough research or consulting enough people and he

decided that he was going to try to help other cancer patients avoid the mistake

of trying to deal with their disease without sufficient knowledge.

One thing he did that was most appreciated was that he prepared a number of

lists of things to think about or do, and notable specialist doctors and labs to

consult. When a new member came to this group who was in need of that kind of

information, Steve was able to send something that had been carefully prepared

and refined over time rather than firing off an ad hoc answer to someone's

questions. I think that Terry Herbert and Chuck Maack in our group have also

been very helpful to new patients in the same way.

Steve was also a moderator of this group and did his share of moderation duties.

As I understand it, Steve had no family and no one knows much about what

happened to him. When no one in the group had heard from Steve for some time

Ralph called Steve's doctor but, for reasons of patient confidentiality, was not

told anything. Then he saw an obituary notice in the newspaper and called the

funeral home, but got no more information from them either.

Steve may have died alone but there were many people who read his postings on

the Internet and appreciated his efforts on their behalf. I hope he knew that

at the end and hope that it gave him some comfort.

Alan

[Guest guest]

Hi All,

Steve helped me and my husband almost 3 years ago,,he was there for me,,when I started to panic he knew just what to say. He will be sadly missed.

Thank you for letting us know about Steve's passing.

Best Wishes to All,

Sheila

[Guest guest]

I didn't have the honor of knowing Steve, Alan, but this tribute you have written in his memory is verymoving. Just from what you have shared, I'm certainthat this wonderful man who helped so many would take delight in his world knowing that the PCa was NOT what took his life! May he rest in peace!MikeSent from my iPad

I inquired at PCAinAZ.org, an US TOO chapter in Arizona in which Steve was active and heard from Ralph Valle, a active member of that group who knew Steve and tried to find out what happened to him.

All anyone was able to find out was that Steve died of something other than prostate cancer.

I appreciated Steve's participation in this and other forums for prostate cancer patients and survivors. He himself had a long battle with the disease following a cryotherapy treatment that didn't work at all and left him with unpleasant side effects. It is my recollection that he felt that he had chosen that treatment without doing enough research or consulting enough people and he decided that he was going to try to help other cancer patients avoid the mistake of trying to deal with their disease without sufficient knowledge.

One thing he did that was most appreciated was that he prepared a number of lists of things to think about or do, and notable specialist doctors and labs to consult. When a new member came to this group who was in need of that kind of information, Steve was able to send something that had been carefully prepared and refined over time rather than firing off an ad hoc answer to someone's questions. I think that Terry Herbert and Chuck Maack in our group have also been very helpful to new patients in the same way.

Steve was also a moderator of this group and did his share of moderation duties.

As I understand it, Steve had no family and no one knows much about what happened to him. When no one in the group had heard from Steve for some time Ralph called Steve's doctor but, for reasons of patient confidentiality, was not told anything. Then he saw an obituary notice in the newspaper and called the funeral home, but got no more information from them either.

Steve may have died alone but there were many people who read his postings on the Internet and appreciated his efforts on their behalf. I hope he knew that at the end and hope that it gave him some comfort.

Alan

[Guest guest]



Sorry all that I have not thanked Steve post freedom from pain for his work moderating this group.

Mum was diagnosed with 98% liver cancer on Sept 11th this year. She passed away on Oct 8th in hospice. We are pretty sure it was secondaries from breast cancer. We have the funeral on Thursday.

Back to Steve, he helped so many people and was an able moderator. I wish I could thank him personally for his support.

[Guest guest]

I concur with that. Steve will be missed here on the group.

Malaga,Spain

Re: Steve Jordan has died

I appreciate this update. Steve was very helpful to me when I was first diagnosed. God bless him. He will be missed.

Coy

, Michigan

Steve Jordan has been a frequent participant on PCa Support and other internet patient forums, and is well known to many of us. Today a message appeared on the PCa newsgroup with the information that he died on September 8:http://groups.google.com/group/alt.support.cancer.prostate/t/3b9f37104dc2dae9?hl=enSteve was a true believer in doing all he could to help us in our battle. Clausen

--

G. Coy

shootingcpa@...

"History does not entrust the care of freedom

to the weak or timid. " ... Dwight D. Eisenhower

[Guest guest]



Hi T.,

I'm not a member of the 'Brotherhood' as I didn't receive Proton TX. I had IGRT photons here in Spain. Have you considered that there is not much news abecause Protons have been 'successful' for most people and they just 'move on with their lives'? I used to correspond with a couple of guys receiving Protons at the time I was receiving Photons and correspondence has now dwindled to zero.

Spain

Re: Re: Steve Jordan has died

I joined the Brotherhood of the Balloon, a group formed by prostate cancer survivors who had received proton beam therapy at Loma University medical center. The Brotherhood of the Balloon is open to all prostate cancer survivors regardless of where they received their proton beam therapy. However, I note that the website has been pretty dormant since 2007, and I wondered if there was an active followup of alumni. What is the reason for the lack of participation on that website? Are the patients dying off and no one is reporting the passings?

Or are there better websites, such as this one? It seems to me that data on all patients who receive treatment, including watchful waiters, would be beneficial. Regards, T

I appreciate this update. Steve was very helpful to me when I was first diagnosed. God bless him. He will be missed.

Coy

, Michigan

Steve Jordan has been a frequent participant on PCa Support and other internet patient forums, and is well known to many of us. Today a messag e appeared on the PCa newsgroup with the information that he died on September 8:http://groups.google.com/group/alt.support.cancer.prostate/t/3b9f37104dc2dae9?hl=enSteve was a true believer in doing all he could to help us in our battle. Clausen

--

G. Coy

shootingcpa@...

"History does not entrust the care of freedom

to the weak or timid. " ... Dwight D. Eisenhower

[Guest guest]

A heartfelt 'AMEN' to your thoughts Alan.

Chris

Re: Steve Jordan has died

I inquired at PCAinAZ.org, an US TOO chapter in Arizona in which Steve was active and heard from Ralph Valle, a active member of that group who knew Steve and tried to find out what happened to him.All anyone was able to find out was that Steve died of something other than prostate cancer.I appreciated Steve's participation in this and other forums for prostate cancer patients and survivors. He himself had a long battle with the disease following a cryotherapy treatment that didn't work at all and left him with unpleasant side effects. It is my recollection that he felt that he had chosen that treatment without doing enough research or consulting enough people and he decided that he was going to try to help other cancer patients avoid the mistake of trying to deal with their disease without sufficient knowledge.One thing he did that was most appreciated was that he prepared a number of lists of things to think about or do, and notable specialist doctors and labs to consult. When a new member came to this group who was in need of that kind of information, Steve was able to send something that had been carefully prepared and refined over time rather than firing off an ad hoc answer to someone's questions. I think that Terry Herbert and Chuck Maack in our group have also been very helpful to new patients in the same way.Steve was also a moderator of this group and did his share of moderation duties.As I understand it, Steve had no family and no one knows much about what happened to him. When no one in the group had heard from Steve for some time Ralph called Steve's doctor but, for reasons of patient confidentiality, was not told anything. Then he saw an obituary notice in the newspaper and called the funeral home, but got no more information from them either.Steve may have died alone but there were many people who read his postings on the Internet and appreciated his efforts on their behalf. I hope he knew that at the end and hope that it gave him some comfort.Alan