Re: : Steve Jordan has died

[Guest guest]

Hello Yes I did think that success was a reason for inactivity. I recently was invited to a dinner by the President of Loma University. There were eight men who had had proton beam therapy. I was the only one who received treatment from a facility other than Loma . These seven other men were quite impressive. They had taken the problem into their own hands, sought the best doctors and facility available and all ended up at Loma . They all looked very healthy. One lives on his small cruise ship sailing from the Bahamas to Newport. Another lives in Sonama, Ca and flies his own plane. One had hired a doctor at Yale University to advise his and get him appointments with doctors. So, success is one reason why activity on the Brothers of the Balloon website has tapererd off. But, Loma continues to treat PC patients. But, the treatment is so easy. These guys check into a resort style apartment for six to eight weeks, and get treated early in the morning, then play golf all day. On weekends they drive into Los Angeles or drive along the coast. No need to worry. I guess that explains the lack of activity on the website. I was looking for advice on what to eat while receiving treatment, and afterwards, too. Regards, T Hi T., I'm not a member of the 'Brotherhood' as I didn't receive Proton TX. I had IGRT photons here in Spain. Have you considered that there is not much news abecause Protons have been 'successful' for most people and they just 'move on with their lives'? I used to correspond with a couple of guys receiving Protons at the time I was receiving Photons and correspondence has now dwindled to zero. Spain Re: Re: Steve Jordan has died I joined the Brotherhood of the Balloon, a group formed by prostate cancer survivors who had received proton beam therapy at Loma University medical center. The Brotherhood of the Balloon is open to all prostate cancer survivors regardless of where they received their proton beam therapy. However, I note that the website has been pretty dormant since 2007, and I wondered if there was an active followup of alumni. What is the reason for the lack of participation on that website? Are the patients dying off and no one is reporting the passings?Or are there better websites, such as this one? It seems to me that data on all patients who receive treatment, including watchful waiters, would be beneficial. Regards, T I appreciate this update. Steve was very helpful to me when I was first diagnosed. God bless him. He will be missed. Coy, Michigan Steve Jordan has been a frequent participant on PCa Support and other internet patient forums, and is well known to many of us. Today a messag e appeared on the PCa newsgroup with the information that he died on September 8:http://groups.google.com/group/alt.support.cancer.prostate/t/3b9f37104dc2dae9?hl=enSteve was a true believer in doing all he could to help us in our battle. Clausen-- G. Coyshootingcpa@... "History does not entrust the care of freedom to the weak or timid. " ... Dwight D. Eisenhower