RE: Yana Experiences is closing down

[Guest guest]

Terry

I can't begin to tell you how much your work and your vision helped me and my family on our prostate cancer journey. I am 3 years out now and the first thing I tell men and women that request my advice is to start at YANA. I will never forget you and God speed.

Tom

Dear Terry,

Thank you for all the work you have done, and good luck with the next stage of your life. May you live many more than the five years additional you are hoping for.

Mike

Subject: Yana Experiences is closing downTo: "ProstateCancerSupport" <ProstateCancerSupport >, "NewDx" , newdx@...Date: Thursday, July 28, 2011, 1:02 AM

When I was initially diagnosed in 1996 I was told that I could expect to live 3 – 5 years if I did not have immediate invasive therapy. I did not accept that advice. Once I had learned a little, I challenged this prediction but was told that since I was a ‘young man’ of 54 with a life expectancy in excess of ten years, I should have the therapy soon or I would surely die before I was 70 – in a little over fifteen years from the date of my diagnosis. Again I was not convinced by these statements since there was no solid evidence to back up the predictions. Since I am somewhat contrarian I made it my aim to live for at least twenty years, if only to demonstrate that I was not wrong.

The fifteen year mark which I was told was my predicted maximum life expectation is coming up on August 12 followed within a few months by my Biblical ‘use by’ date of three score years and ten. This has caused me to pause and re-examine my life; to consider what I have achieved and what I want to do IF I do have only the five years of my original target left. I realise that I have been spending more time than I had originally intended on prostate cancer related work. So that has to be cut back. As an initial step, I am sorry to have to tell you that I will shortly be closing the Experiences section of YANA .

Fortunately a similar, but much improved version of the YANA Experiences site has been developed in Switzerland and I would urge everyone who has contributed their experiences to the YANA site to move their story there. It has become very clear to me over the last fifteen years that personal accounts of our journeys are very important indeed to those who follow behind us. My story is there already.

The Swiss site is called myProstate and is at http://www.myprostate.eu/ All information on the site is available in four languages at present and there are many excellent features such as summaries of side effects of various therapies and drugs, graphs that plot PSA (and other) results, and many others. Updating your story will be much more simple in the future than it is now because contributors can enter data and details of their journey directly.

All that is needed initially is to use a valid e-mail address to set up a password, fill in the chosen name, country, date of birth (to calculate present age and age at diagnosis) and language choice. This will establish a blog and details of individual stories can then be entered. The simplest way to do that, for anyone who has contributed to Yana is to copy the current Yana entry into a word processing document such as Word.doc, edit it if necessary and then copy and paste onto the myProstate site. Perhaps ten minutes work but invaluable to others.

Good luck to each of you on your journey and my thanks to those of you who participated on Yana .

All the best

Prostate men need enlightening, not frightening Terry Herbert - diagnosed in 1996 and still going strong Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

[Guest guest]

I'd like to just clear up a few things

about the Yana site but before doing that I'd

also like to thank all you folk who had such kind things to say about me both

here and in personal mails. I'm not sure that I deserve all the accolades,, but

perceptions are reality and at least I have, through your mails, achieved one

of my of-stated aims - that people should say nice things about me before I go

up the chimney rather than afterwards?:-)

Here we go:

1. The Yana

Experiences will not disappear. They will stay exactly as they are now for the

moment, but no new stories will be added: no updates will be posted. As time

goes by I will probably start weeding out stories that may have no real long

term value, but I will certainly be leaving the monuments to those members who

have passed on and also some of the equally monumental stories from men who had

powerful stories to tell.

2. Although the myProstate site may come

up in German at times, this can be corrected by clicking on the English

language button (this also translates any of the other language entries). Franz

and I have been busy dealing with the English translations of the Instructions

at http://www.myprostate.eu/?req=download_center Those that will help in the

registration and loading the story are already on the site - and can be

downloaded as a fairly large (3MB) pdf file on the site and here

http://www.yananow.org/myProstateLogIn.pdf Reading this will give you a good

idea of the scope of the site and how useful if will be for all of us once

there are enough stories loaded. The instructions for searching und viewing

reports will loaded in English within the next few days and will demonstrate

just how you can focus on finding stories that match your criteria. This really

is a Mercedes Benz of a site, compared to the old farm ute Yana

site: Nothing wrong with a farm utility vehicle, but ……

3. The Yana

site will not be closed down. As and when I have the time I will be going over

what can be compared to the remodelling and refurbishing of a somewhat rambling

house that needs a bit of work on it. If traffic to the site drops of to a

level where it seems not to be serving any useful purpose I will close it.

4. I intend to expand my booklet - A Strange Place

- some and possibly incorporate my own personal experiences, so it would

be a two part book, using the funds that have been donated over time as the

'seed money' since I doubt that any publisher would be too keen on the project.

5. I will probably land up back on the

internet Forums, but intend taking time off from these too.

6. Those of you who have extended kind

invitations to me if Anthea and I should return for another visit to the US should be

aware that we may wel take you up on that - provided I can get those pesky

travel insurers to agree that they can give me some cover.

Again my thanks for your kind words.

All the best

Prostate men need enlightening, not

frightening

Terry Herbert - diagnosed in 1996 and

still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Terry Herbert

Sent: Thursday, 28 July 2011 3:03

PM

To: ProstateCancerSupport; NewDx;

newdx@...

Subject:

Yana Experiences is closing down

When

I was initially diagnosed in 1996 I was told that I could expect to live 3

– 5 years if I did not have immediate invasive therapy. I did not accept

that advice. Once I had learned a little, I challenged this prediction but was

told that since I was a ‘young man’ of 54 with a life expectancy in

excess of ten years, I should have the therapy soon or I would surely die

before I was 70 – in a little over fifteen years from the date of my

diagnosis. Again I was not convinced by these statements since there was

no solid evidence to back up the predictions. Since I am somewhat contrarian I

made it my aim to live for at least twenty years, if only to demonstrate that I

was not wrong.

The

fifteen year mark which I was told was my predicted maximum life expectation

is coming up on August 12 followed within a few months by my Biblical

‘use by’ date of three score years and ten. This has caused me to

pause and re-examine my life; to consider what I have achieved and what I want

to do IF I do have only the five

years of my original target left. I realise that I have been spending more time

than I had originally intended on prostate cancer related work. So that has to

be cut back. As an initial step, I am sorry to have to tell you that I will

shortly be closing the Experiences section of YANA.

Fortunately

a similar, but much improved version of the YANA Experiences site has been

developed in Switzerland

and I would urge everyone who has contributed their experiences to the YANA site to move their story there. It has become

very clear to me over the last fifteen years that personal accounts of our

journeys are very important indeed to those who follow behind us. My story is there already.

The

Swiss site is called myProstate and is at http://www.myprostate.eu/ All

information on the site is available in four languages at present and there are

many excellent features such as summaries of side effects of various therapies

and drugs, graphs that plot PSA (and other) results, and many others. Updating

your story will be much more simple in the future than it is now because

contributors can enter data and details of their journey directly.

All

that is needed initially is to use a valid e-mail address to set up a password,

fill in the chosen name, country, date of birth (to calculate present age and

age at diagnosis) and language choice. This will establish a blog and details

of individual stories can then be entered. The simplest way to do that, for

anyone who has contributed to Yana is to copy the current Yana entry into a word processing document such as

Word.doc, edit it if necessary and then copy and paste onto the myProstate

site. Perhaps ten minutes work but invaluable to others.

Good

luck to each of you on your journey and my thanks to those of you who

participated on Yana.

All

the best

Prostate

men need enlightening, not frightening

Terry

Herbert - diagnosed in 1996 and still going strong

Read

A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html