Update on Yana data

[Guest guest]

For the sake of any

newbies I’d just like to mention that my YANA

- You Are Not Alone Now www.yananow.net

site has contributions from more than 1,000 men giving their experiences

following their diagnosis of prostate cancer. 30 of the stories were submitted

by men who subsequently passed on – some of them from prostate cancer:

some from other causes. Their families have agreed to their stories being

maintained as a memorial to their loved ones.

All but 130 of the remaining

stories have been updated within the last 12 months. The ones that have not

been updated have by and large been retained because I feel they might be of

interest and help. Most of the men are prepared to answer e-mails if anyone has

specific questions about their choices and the outcomes.

25 of the stories on the

site relate to men who were diagnosed fifteen or more years ago: 50 to men

diagnosed between 10 and fourteen years ago and more than 400 from men diagnosed

between five and nine years ago. These veterans are in a position to give some

good examples of life after prostate cancer.

Most of the stories

(563) relate to men who chose surgery - 224 RP (Radical Prostatectomy) and 339

RALP (Robotic Assisted Laparoscopic Surgery). That is followed by Radiation

– 178 in all with 104 choosing EBRT (External Beam Radiation Treatment)

and 74 choosing Brachytherapy.

AS (Active Surveillance)

men total 99 with men on ADT (Androgen Deprivation Therapy) as a primary

therapy close behind at 96 – many men have adjuvant ADT and are indexed

with their primary therapy. PBT (Proton Beam Therapy) with 71; HIFU (High

Intensity Focused Ultrasound) with 18 and Cryotherapy with 18 make up the

balance.

I had fallen behind in

my reminder program, but with the help of Yana

member Hardy, and a bit of hard work – we processed more than 200

entries in March – we’re pretty well up to date now. So I can

resume my periodical posts giving brief details of the entries posted lately.

NEW ENTRIES

http://www.yananow.org/Mentors/ChristianE.htm

CHRISTIAN ELLEFESON chose PBT (Proton Beam

Therapy) with adjuvant ADT (Androgen Deprivation Therapy) for his GS 9

diagnosis

http://www.yananow.org/Mentors/Mc2.htm

JOHN MCANDREWS chose HIFU (High Intensity Focused Ultrasound) in view of

opposition from doctors to (AS) Active Surveillance. Salvage HIFU required

UPDATES FROM MEMBERS:

http://www.yananow.org/Mentors/BarryW.htm

BARRY WHIP rising PSA after PBT

(Proton Beam Therapy) – not sure what to do next

http://www.yananow.org/Mentors/SteveB4.htm

STEVE BRAZEL chose RALP (Robotic Assisted Laparoscopic Prostatectomy) and

is now recovering

http://www.yananow.org/Mentors/AlF.htm

AL FELL chose Surgery in 2004 and returns after a three year

absence - recovering from a stroke

http://www.yananow.org/Mentors/H.htm

TRACY HONEYCUTT his PSA has dropped he will

probably have focal Cryotherapy, depending on next biopsy

http://www.yananow.org/Mentors/JimC4.htm JIM COLLYNS heading

for orchidectomy and EBRT (External Beam Radiation Therapy) after failed ADT

(Androgen Deprivation Therapy)

http://www.yananow.org/Mentors/MikeG.htm MIKE G still undecided on

Surgery v EBRT (External Beam Radiation Therapy) for insignificant tumor

http://www.yananow.org/Mentors/RickyB.htm RICKY B sixteen months after

Brachytherapy and all’s well

http://www.yananow.org/Mentors/AlC.htm AL CALKINS has recovered from

most side effects from his IMRT (Intensity Modulated Radiation Therapy) plus

adjuvant ADT (Androgen Deprivation Therapy)

http://www.yananow.org/Mentors/JeromeF.htm JEROME FINNELL Silver member

who chose Watchful Waiting and is still doing so

http://www.yananow.org/Mentors/B.htm

ANTHONY BAKER Platinum member whose RP (Radical Prostatectomy) failed and

who has been on ADT (Androgen Deprivation Therapy) since about 1997/8. He now

has significant problems that may be ADT related and is seeking help

http://www.yananow.org/Mentors/JeffN.htm

JEFF NOVAK moves to PBT (Proton Beam Therapy) after 16 months Watchful

Waiting despite a falling PSA

http://www.yananow.org/Mentors/H.htm

STEPHEN HUGHES Silver member on (AS) Active Surveillance but has severe

prostatitis and ED

http://www.yananow.org/Mentors/S.htm BRIAN SWEET Silver member who

chose HDR (High Dose Radiation Brachytherapy) and adjuvant ADT (Androgen

Deprivation Therapy) still doing well, thanks to Viagra

http://www.yananow.org/Mentors/DonF.htm DON FLIEG the AdVance sling helped

with incontinence after failed RALP (Robotic Assisted Laparoscopic

Prostatectomy), ADT (Androgen Deprivation Therapy) and EBRT (External Beam

Radiation Therapy)

NEW LINK

Roz Baker, who is a Relationship Mentor in Western Australia has provided a thought

provoking paper which I think may be helpful. That’s at http://www.yananow.org/Relationships.htm

WHY MEN WITH PROSTATE CANCER OFTEN MAKE BETTER LOVERS

All the best

Prostate men need enlightening, not frightening

Terry Herbert - diagnosed in 1996 and still going

strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html