Guest guest Posted February 27, 2012 Report Share Posted February 27, 2012 I am wondering why wait and why did you stop ADT so soon. The studies that my Dr and I looked at said the best results were obtained when you stayed on ADT for 1 year after your PSa levels had reached its minima. A maximum of two years was recommended because of atrophy of testosterone production. That is where I am sitting right now. November was my first time I didn't get an injection and I will see what my PSA is on Wed. I have been at .001 since Sept 2010. We will see what happens this week but more importantly what happens in May. Good Luck to you Sent from my iPhone HelloI’ve just had my latest PSA result which is 1.0. I am on Intermittent ADT after failure of RRP and EBRT. I began ADT at the end of March 2010. My last injection was a three-month one of Triptorelin on 1 July 2011. Recent PSA counts were:7/3/2011 – 10.27/6/2011 – 0.435/9/2011 – 0.11 (Testosterone 0.5)1/10/2011 – 0.138/12/2011 – 0.3 (Testosterone 18.8)20/2/2012 – 1.0I am in excellent health otherwise, fully continent and reasonably potent (with a little help from Cialis). However, the PSA acceleration is obviously worrying. The current plan (on the advice of a leading medical oncologist at Barts Hospital in London) is to re-start Triptorelin when the PSA reaches 15 which looks from present trends to be in early autumn.My current questions are:a) Does my current strategy makes sense? (I can find no consensus on the web about IADT protocols) Are any of you in a similar position but pursuing different protocols? (I am not keen – and have been advised against – adding dutasteride at present)c) What would be the consensus on my probable prognosis?Thank you.Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 Bob, Not to start a war, but you do pay for your health service….taxes you know… Also, no one in the US of A goes without medical treatment. All they have to do is go to an emergency room and they get treated whether they can pay or not. I subscribe to the BBC RSS feeds and am constantly reading about issues with the NHS. About how they are trying to close hospitals and treatment facilities. How they are cutting back on health care professionals and the treatment for certain classes—especially the elderly. Recently, I read about cuts backs on Prostate treatments. So, someone is not getting the full story here. Dennis Dennis J dennisp42@...Seffner, FL 33584 From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Crozier Data ConsultancySent: Friday, March 02, 2012 06:09To: ProstateCancerSupport Subject: RE: -----SPAM----- RE: Any thoughts? _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 Hi DennisNo, I prefer informed debate. Yes, we pay for our health service in taxes but treatment does not depend on the ability to pay. My daughter and son-in-law are both physicians in the States. The ER is only for emergency care – what we are talking about is regular access to medical services.Naturally there is an on-going discussion about the Health Service. The main aim of all political parties is to get good value for money – they just differ about how that can be achieved. As in the States the number of elderly people as a proportion of the population is increasing all the time. Medical care for the elderly is not restricted but there is a heated debate about how much people should pay for residential care in their old age. There has also been a bit of a fuss among those with an interest in Prostate Cancer about NICE’s recommendation that Abiraterone should not be supplied on the NHS. The final decision has not yet been made and we are fighting it through the normal democratic channels.Take care.Bob From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of D Sent: 02 March 2012 14:57To: ProstateCancerSupport Subject: Any thoughts? Bob, Not to start a war, but you do pay for your health service….taxes you know… Also, no one in the US of A goes without medical treatment. All they have to do is go to an emergency room and they get treated whether they can pay or not. I subscribe to the BB C RSS feeds and am constantly reading about issues with the NHS. About how they are trying to close hospitals and treatment facilities. How they are cutting back on health care professionals and the treatment for certain classes—especially the elderly. Recently, I read about cuts backs on Prostate treatments. So, someone is not getting the full story here. Dennis Dennis J dennisp42@...Seffner, FL 33584 From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Crozier Data ConsultancySent: Friday, March 02, 2012 06:09To: ProstateCancerSupport Subject: RE: -----SPAM----- RE: Any thoughts? _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 Well said, Dennis. You will note in my response to Bob’s criticism that I also questioned his support of NHS services in the UK. I don’t know what his intent is in stirring the pot regarding UK vs US treatment of prostate cancer. There is absolutely no doubt in my mind that UK treatment for prostate cancer remains somewhat archaic and certainly not up to the expertise and knowledge of some of the top Medical Oncologists here in the U.S. who specialize in the treatment of recurring and advanced/high grade prostate cancer. I have been helping a woman in the U.K. whose parents live in Scotland. Here Dad was receiving little to no treatment for advanced prostate cancer and it was obvious the physicians in the area he lived knew little, if anything, regarding the treatment of prostate cancer. I did some research and found a Medical Oncologist professor in another part of Scotland and as the result of providing him information as to the care this man was NOT receiving, he provided the name and contact of an oncologist close enough for reasonable travel for this man. But even then I had to provide several papers that support the recommendations of protocol I was providing the daughter and her father before he was provided more appropriate treatment for his advanced PC status. Appropriate prostate cancer care is NOT widespread throughout the U.K., and each area of the country is separated with each such area receiving a certain amount of funding to provide services, so they cut services to retain funding, particularly when the appropriate services may be more expensive. Chuck Always as close as the other end of your computer to help address any prostate cancer concerns. " What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others. " (Chuck) Maack - Prostate Cancer Advocate/Activist Email: maack1@... PCa Help: " Observations " http://www.theprostateadvocate.com From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of D Sent: Friday, March 02, 2012 8:57 AMTo: ProstateCancerSupport Subject: Any thoughts? Bob, Not to start a war, but you do pay for your health service….taxes you know… Also, no one in the US of A goes without medical treatment. All they have to do is go to an emergency room and they get treated whether they can pay or not. I subscribe to the BBC RSS feeds and am constantly reading about issues with the NHS. About how they are trying to close hospitals and treatment facilities. How they are cutting back on health care professionals and the treatment for certain classes—especially the elderly. Recently, I read about cuts backs on Prostate treatments. So, someone is not getting the full story here. Dennis Dennis J dennisp42@...Seffner, FL 33584 From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Crozier Data ConsultancySent: Friday, March 02, 2012 06:09To: ProstateCancerSupport Subject: RE: -----SPAM----- RE: Any thoughts? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 Uh, Dennis. Try showing up at your nearest ER in the States and getting a shot of Lupron. Or Brachytherapy. Or robotic, laproscopic surgery. The first thing they ask for is your insurance card. "Il faut d'abord durer" Hemingway RE: Any thoughts? Well said, Dennis. You will note in my response to Bob’s criticism that I also questioned his support of NHS services in the UK. I don’t know what his intent is in stirring the pot regarding UK vs US treatment of prostate cancer. There is absolutely no doubt in my mind that UK treatment for prostate cancer remains somewhat archaic and certainly not up to the expertise and knowledge of some of the top Medical Oncologists here in the U.S. who specialize in the treatment of recurring and advanced/high grade prostate cancer. I have been helping a woman in the U.K. whose parents live in Scotland. Here Dad was receiving little to no treatment for advanced prostate cancer and it was obvious the physicians in the area he lived knew little, if anything, regarding the treatment of prostate cancer. I did some research and found a Medical Oncologist professor in another part of Scotland and as the result of providing him information as to the care this man was NOT receiving, he provided the name and contact of an oncologist close enough for reasonable travel for this man. But even then I had to provide several papers that support the recommendations of protocol I was providing the daughter and her father before he was provided more appropriate treatment for his advanced PC status. Appropriate prostate cancer care is NOT widespread throughout the U.K., and each area of the country is separated with each such area receiving a certain amount of funding to provide services, so they cut services to retain funding, particularly when the appropriate services may be more expensive. Chuck Always as close as the other end of your computer to help address any prostate cancer concerns. "What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others." (Chuck) Maack - Prostate Cancer Advocate/Activist Email: maack1@... PCa Help: "Observations" http://www.theprostateadvocate.com From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of D Sent: Friday, March 02, 2012 8:57 AMTo: ProstateCancerSupport Subject: Any thoughts? Bob, Not to start a war, but you do pay for your health service….taxes you know… Also, no one in the US of A goes without medical treatment. All they have to do is go to an emergency room and they get treated whether they can pay or not. I subscribe to the BBC RSS feeds and am constantly reading about issues with the NHS. About how they are trying to close hospitals and treatment facilities. How they are cutting back on health care professionals and the treatment for certain classes—especially the elderly. Recently, I read about cuts backs on Prostate treatments. So, someone is not getting the full story here. Dennis Dennis J dennisp42@... Seffner, FL 33584 From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Crozier Data ConsultancySent: Friday, March 02, 2012 06:09To: ProstateCancerSupport Subject: RE: -----SPAM----- RE: Any thoughts? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 Uh, , I doubt anyone would be going to the ER expecting “Lupron. Or Brachytherapy. Or robotic, laproscopic surgery” so that argument doesn’t fly. If a person has true emergency needs, the ER staff may ask if you have insurance, but if you don’t they don’t (or certainly shouldn’t) turn you away. Chuck " What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others. " (Chuck) Maack - Prostate Cancer Advocate/Activist Email: maack1@... PCa Help: " Observations " http://www.theprostateadvocate.com From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of KennedySent: Friday, March 02, 2012 11:48 AMTo: ProstateCancerSupport Subject: Re: Any thoughts? Uh, Dennis. Try showing up at your nearest ER in the States and getting a shot of Lupron. Or Brachytherapy. Or robotic, laproscopic surgery. The first thing they ask for is your insurance card. " Il faut d'abord durer " Hemingway RE: Any thoughts? Well said, Dennis. You will note in my response to Bob’s criticism that I also questioned his support of NHS services in the UK. I don’t know what his intent is in stirring the pot regarding UK vs US treatment of prostate cancer. There is absolutely no doubt in my mind that UK treatment for prostate cancer remains somewhat archaic and certainly not up to the expertise and knowledge of some of the top Medical Oncologists here in the U.S. who specialize in the treatment of recurring and advanced/high grade prostate cancer. I have been helping a woman in the U.K. whose parents live in Scotland. Here Dad was receiving little to no treatment for advanced prostate cancer and it was obvious the physicians in the area he lived knew little, if anything, regarding the treatment of prostate cancer. I did some research and found a Medical Oncologist professor in another part of Scotland and as the result of providing him information as to the care this man was NOT receiving, he provided the name and contact of an oncologist close enough for reasonable travel for this man. But even then I had to provide several papers that support the recommendations of protocol I was providing the daughter and her father before he was provided more appropriate treatment for his advanced PC status. Appropriate prostate cancer care is NOT widespread throughout the U.K., and each area of the country is separated with each such area receiving a certain amount of funding to provide services, so they cut services to retain funding, particularly when the appropriate services may be more expensive. Chuck Always as close as the other end of your computer to help address any prostate cancer concerns. " What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others. " (Chuck) Maack - Prostate Cancer Advocate/Activist Email: maack1@... PCa Help: " Observations " http://www.theprostateadvocate.com From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of D Sent: Friday, March 02, 2012 8:57 AMTo: ProstateCancerSupport Subject: Any thoughts? Bob, Not to start a war, but you do pay for your health service….taxes you know… Also, no one in the US of A goes without medical treatment. All they have to do is go to an emergency room and they get treated whether they can pay or not. I subscribe to the BBC RSS feeds and am constantly reading about issues with the NHS. About how they are trying to close hospitals and treatment facilities. How they are cutting back on health care professionals and the treatment for certain classes—especially the elderly. Recently, I read about cuts backs on Prostate treatments. So, someone is not getting the full story here. Dennis Dennis J dennisp42@...Seffner, FL 33584 From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Crozier Data ConsultancySent: Friday, March 02, 2012 06:09To: ProstateCancerSupport Subject: RE: -----SPAM----- RE: Any thoughts?No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1424 / Virus Database: 2113/4846 - Release Date: 03/02/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 Uh, Dennis said a person without insurance could go to any ER and get treated. Not true. Sorry. "Il faut d'abord durer" Hemingway RE: Any thoughts? Well said, Dennis. You will note in my response to Bob’s criticism that I also questioned his support of NHS services in the UK. I don’t know what his intent is in stirring the pot regarding UK vs US treatment of prostate cancer. There is absolutely no doubt in my mind that UK treatment for prostate cancer remains somewhat archaic and certainly not up to the expertise and knowledge of some of the top Medical Oncologists here in the U.S. who specialize in the treatment of recurring and advanced/high grade prostate cancer. I have been helping a woman in the U.K. whose parents live in Scotland. Here Dad was receiving little to no treatment for advanced prostate cancer and it was obvious the physicians in the area he lived knew little, if anything, regarding the treatment of prostate cancer. I did some research and found a Medical Oncologist professor in another part of Scotland and as the result of providing him information as to the care this man was NOT receiving, he provided the name and contact of an oncologist close enough for reasonable travel for this man. But even then I had to provide several papers that support the recommendations of protocol I was providing the daughter and her father before he was provided more appropriate treatment for his advanced PC status. Appropriate prostate cancer care is NOT widespread throughout the U.K., and each area of the country is separated with each such area receiving a certain amount of funding to provide services, so they cut services to retain funding, particularly when the appropriate services may be more expensive. Chuck Always as close as the other end of your computer to help address any prostate cancer concerns. "What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others." (Chuck) Maack - Prostate Cancer Advocate/Activist Email: maack1@... PCa Help: "Observations" http://www.theprostateadvocate.com From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of D Sent: Friday, March 02, 2012 8:57 AMTo: ProstateCancerSupport Subject: Any thoughts? Bob, Not to start a war, but you do pay for your health service….taxes you know… Also, no one in the US of A goes without medical treatment. All they have to do is go to an emergency room and they get treated whether they can pay or not. I subscribe to the BBC RSS feeds and am constantly reading about issues with the NHS. About how they are trying to close hospitals and treatment facilities. How they are cutting back on health care professionals and the treatment for certain classes—especially the elderly. Recently, I read about cuts backs on Prostate treatments. So, someone is not getting the full story here. Dennis Dennis J dennisp42@... Seffner, FL 33584 From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Crozier Data ConsultancySent: Friday, March 02, 2012 06:09To: ProstateCancerSupport Subject: RE: -----SPAM----- RE: Any thoughts? No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1424 / Virus Database: 2113/4846 - Release Date: 03/02/12 Quote Link to comment Share on other sites More sharing options...
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