Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Goodmorning! I was diagnosed in late 2000. Had PSA 4.7 and I believe my Gleason was 6. After much thought, researching, praying and made my decision to have external radiation, then about 3-wks.after completing that, Bracytherapy (126 seeds). Except for the weekend after my Bracytherapy, I never missed a day of work. Yesterday, I got the results from my 12-year checkup and urologist said that for the past 10yrs (out of 12) my PSA has been undetectable. Dr.Lippman, believes I just may not have any future problems as far as prostae cancer is concerned. Only complications I experienced was some radiation burns in the rectum area but that eventually cleared up. Other complication was that the radiation therapy hasten almost total onset of ED, which was actually caused by gradual onset of heart disease. The radation simply hasten the syndrome. I have since rectified both those problems. Keep in mind, that regardless which way you go, there will be some complications of sorts....but those are minor compared to the alternative. Has the Urologist confirmed that your husband is a suitable candidate for Bracytherapy? Ask....in fact don't be bashful in asking ANY Questions....PERIOD. Feel free to write me directly if you wish. - Spring,Texas >> My husband Bob 58 has been recently diagnoised with Prostate cancer on Feb 16 2012. He, as many of you know has many options which we have narrowed down to 2, either Surgery or Bracytherapy.> If any of you have gone through these proceedures and don`t mind sharing the outcome with us we would appreciate it. We are concerned that Surgery may leave him wearing pads, and he may have ED. The concern we have with Bracytherapy is the Prostate is still there, how likely is the Cancer to return.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 What is his PSA and Gleason? How aggressive does the doctor consider it to be? Cancer can recur with either or brachytherapy. If there is a recurrence there may be more options ie radiation if there is a recurrence. My husband had brachytherapy in 2000 and it recurred within a year. His PSA was below 10 when he went for brachy. Lots to consider. All the best! Ann Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 > My husband Bob 58 has been recently diagnoised with Prostate > cancer on Feb 16 2012. He, as many of you know has many > options which we have narrowed down to 2, either Surgery or > Bracytherapy. > If any of you have gone through these proceedures and don`t > mind sharing the outcome with us we would appreciate it. We > are concerned that Surgery may leave him wearing pads, and he > may have ED. The concern we have with Bracytherapy is the > Prostate is still there, how likely is the Cancer to return. I had two " High Dose Rate " (HDR) brachytherapy sessions together with supplemental 3DCRT external beam radiation and 4 months of Lupron injections for my Gleason 4+3, PSA 10 cancer. That was in the winter of 2003-4 and, knock on wood, I appear to be cancer free. HDR brachytherapy is similar to the more common low dose rate procedure but the seeds are very " hot " (highly radioactive) and are only implanted for seconds at a time in each location in the prostate, then withdrawn. No seeds are left in the prostate. However I am told that, in some ways, the effects and side effects are similar. I experienced a number of short term and long term side effects of the treatment. Short term: Soreness in the perineum. That's the region between the anus and the testicles where the needles are inserted to plant the seeds. It lasted a couple of weeks. Blood in urine and semen. Happened a couple of times. Difficulty urinating. This was caused by the prostate swelling up after the radiation and clamping the urethra. The urine couldn't get through. It was very uncomfortable and caused me to have to urinate about once an hour, which was most bothersome at night. I had to take Flomax to be able to urinate. The problem was most severe for about two months and had completely cleared up in about five months. Aggravation of some pre-existing hemorrhoids. Some proctitis - scarring and itching in the rectum. The scarring is probably permanent but the itching is gone and everything seems normal. Long term: " Peyronie's Disease " - the penis was a little bent during an erection. This took about a year to develop. Impotence - This took a number of years to develop. Sometimes, if everything is just right and I've taken a good dose of viagra, I can achieve penetration, but mostly I can't and don't try. However I can still have orgasms and still very much enjoy sex. We have sex in other, equally satisfying, ways. The short term effects of surgery and brachytherapy are quite different. However long term effects are thought by many doctors to be very comparable. It is believed, for example, that a number of patients get Peyronie's from either treatment, and that the rate and degree of long term impotence is about the same. For more information and to see stories from more patients, please try Terry Herbert's " You Are Not Alone Now " website at: http://www.yananow.org He's got lots of great information there. To see info about specific treatments try: http://www.yananow.org/choices.htm and click on one of the treatments. It is also possible to see stories from hundreds of men about their personal experiences. Personally, I think brachytherapy can be a good treatment, but the key questions are: 1. Does your husband need treatment, or is " active surveillance " appropriate for his case? 2. If he needs treatment, does he need aggressive treatment or standard treatment? Aggressive treatment might include hormone therapy and external beam radiation along with brachytherapy, or following surgery. 3. MOST IMPORTANT! Have you found a doctor you can trust? That last question is critical. Many doctors think their job is to perform medical procedures, often as quickly as possible on as many patients as possible. But what you want is a doctor who thinks his job is to cure patients. There's a big difference between performing procedures and curing patients. Curing patients requires experience, skill, honesty, patience, caring, and commitment. I'd rather have surgery from a surgeon I really trust than brachytherapy from a run of the mill radiation oncologist, and vice versa for a run of the mill surgeon and a trustworthy rad onc. Good luck is always a great thing too. So I wish the best of luck to you, your husband, and your family. Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 FWIW -- With brachy, yes, " the prostate is still there " . But the radiation field extends a little beyond the prostate, and may kill cancer that the surgeon might miss! My " local " brachytherapy group (in Vancouver, working with patients from BC) has tracked its results for over 10 years, and finally published about a year ago. Their relapse rate (adjusted for cancer stage and Gleason score, I think) is lower than reported surgical rates. You have to be _very_ careful in looking at reported relapse rates. There are several different definitions of " biochemical relapse " , and several different ways of rating the patients coming _into_ the study. And you also have to ask: .. . . How does _my_ surgeon compare to the guys who are writing .. . . papers? .. . . How does _my_ brachytherapist compare to the guys who are .. . . writing papers? The side-effects tradeoff (as you probably know) is something like this: .. . . Surgery: Immediate ED which may get better over the long run; .. . . . . . . Immediate continence problems which will probably .. . . . . . . . get better over the long run. .. . . Brachy: No immediate ED, but ED is likely to develop over .. . . . . . . . the long run; .. . . . Possible problems with urinary blockage and/or .. . . . radiation damage to the bowel. I had surgery in 2007. Given what I've experienced, and information that's become available since then, I'd probably lean toward brachy now. But it's a close call. The doctors seem to think there will _never_ be a properly randomized, head-to-head trial of the two techniques. .. > > My husband Bob 58 has been recently diagnoised with Prostate cancer on Feb 16 2012. He, as many of you know has many options which we have narrowed down to 2, either Surgery or Bracytherapy. > If any of you have gone through these proceedures and don`t mind sharing the outcome with us we would appreciate it. We are concerned that Surgery may leave him wearing pads, and he may have ED. The concern we have with Bracytherapy is the Prostate is still there, how likely is the Cancer to return. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 A few more comments: 1) If you read through YanaNow.org, you'll find a wide dispersion of side-effect severity for _any_ therapy. Yes, he _could_ end up wearing pads after surgery, and probably will for weeks or a few months after surgery. But _most_ surgical patients regain continence in somewhere between 3 months and a year. Some have longer-lasting problems. He will _almost certainly_ have serious ED after surgery. That doesn't mean " no orgasms " , it means " no erections " . There's reasonable evidence that he should be on a " penile rehab " program. He will _probably_ recover some erectile function, slowly. His age is in his favor. My current status, 4 years after surgery (FWIW -- remember what I said about " wide dispersion " ): I'm fully continent in the mornings, with mild stress incontinence late afternoons and evenings. Long fast afternoon walk = " wear a pad " . I could improve the situation by doing Kegels, which I neglect. For intercourse, Viagra isn't quite enough. I've been using injections for over 3 years, and they work very well. I don't know if this will frighten you, or make you hopeful. But it's one data point . . . PS -- If you haven't read Mulhall's " Saving Your Sex Life: A Guide to Men with Prostate Cancer " , this would be a good time to do it. > > My husband Bob 58 has been recently diagnoised with Prostate cancer on Feb 16 2012. He, as many of you know has many options which we have narrowed down to 2, either Surgery or Bracytherapy. > If any of you have gone through these proceedures and don`t mind sharing the outcome with us we would appreciate it. We are concerned that Surgery may leave him wearing pads, and he may have ED. The concern we have with Bracytherapy is the Prostate is still there, how likely is the Cancer to return. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 I was looking to have Brachytherapy but as I had soreness in the urethra it was ruled out and I had surgery. That was 16 years ago nearly. My friend down the road had brachytherapy and faired well. I don't think there is a perfect treatment, put the proc and cons down on paper and think which pros do I want, which cons can I live with Surgery verses Bracytherapy My husband Bob 58 has been recently diagnoised with Prostate cancer on Feb 16 2012. He, as many of you know has many options which we have narrowed down to 2, either Surgery or Bracytherapy.If any of you have gone through these proceedures and don`t mind sharing the outcome with us we would appreciate it. We are concerned that Surgery may leave him wearing pads, and he may have ED. The concern we have with Bracytherapy is the Prostate is still there, how likely is the Cancer to return. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 Thank you all so much for sharing your experiences with us. We are going to see the Radiologist tomorrow to speak further regarding Bracytherapy. We now feel a bit more educated on the subject and know what to ask them. I will let you all know the outcome of our visit. As you all know, knowing you have the big C reguardless of what type is a scary thing. Having input from people that have gone through proceedures and seeing your successes give us hope and relief. I will most likely have more questions to come, and will be getting back to quite a few of you. Thanks again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 : Your post describes the SEs for surgery but implies none for brachytherapy. As others have noted there are SEs to brachytherapy. ED takes a while to develop, but I believe the data shows it to be less than surgery. Brachytherapy has much higher incidence of rectal incontinence than surgery which is very low. Surgery has higher incidence of urinary incontinence due to cutting out the bladder sphincter. The following caused me to select surgery: 1) higher rectal incontinence for brachytherapy- yuch!! 2) availablity of a pathology report on the removed prostate gland which gives you another piece of data that may suggest further treatment or give you peace of mind, and 3) a very immediate indication of success- a negligible PSA reading. With brachytherapy, you have a long period of hopefully declining PSA readings until you know the PCa has been " cured " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 In an excellent post wrote: > Your post describes the SEs for surgery but implies none for > brachytherapy. As others have noted there are SEs to > brachytherapy. Yes indeed. > ED takes a while to develop, but I believe the data shows it to > be less than surgery. I've seen claims, e.g., in Dr. Mulhall's book " Saving Your Sex Life " that, after 3-5 years, the incidence of ED is about the same for surgery and radiation. Much depends on the age of the patient, how potent he was before the procedures, how skillful the doctor is, whether " penile rehabilitation " is started soon after the procedure (that one is still controversial), and the general dumb luck that seems to be a factor in every cancer case. There are different sexual side effects for each procedure (e.g. some surgery patients experience climacturia), but ED is one that has a fairly high likelihood with both. After a while there will be some recovery after surgery and some loss after radiation but, for most men, the net result will be that, even if they can still manage some of the time and/or with the aid of drugs, they aren't as potent as they were. I personally think it's important to be prepared for this but also important NOT to allow it to destroy physical intimacy, which I believe can still be just as satisfying to both partners after ED as before it. .... > 3) a very immediate indication of success- a negligible PSA > reading. > > With brachytherapy, you have a long period of hopefully > declining PSA readings until you know the PCa has been " cured " . I agree with that but I think I might phrase it the other way around. Surgery gives you an immediate indication of failure if you don't have a negligible PSA shortly after the procedure. Whether it was really successful is, like with radiation, a question of time. Whatever treatment he chooses, a patient should find the very, very best doctor he can to apply it. Alan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2012 Report Share Posted March 26, 2012 Please take a look at the attached report. 1 of 1 File(s) Long Term Outlook Therapy Choices.pdf Quote Link to comment Share on other sites More sharing options...
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