RE: Fw: PANDAS symptoms, low amylose, low (now COloidal Silver)

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Sorry, I have not researched silver very much, just know that it can be a very good antibiotic in many cases.  I have also not researched the MTHFR mutations as yet. Anne Mears, RN, MSN/IHmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of KrassiSent: Tuesday, July 10, 2012 3:40 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Fw: PANDAS symptoms, low amylose, low (now COloidal Silver) Thank you Anne and for your responses. I have been hesitant to use continuously Coloidal Silver in the past (although it always test very well with the ART testing) because my son is not detoxying well (he has 2 of the MTHFR mutations) and I don't know if he will be able to detox the silver. On the other hand seeing now how well he responded for the 2 days on it makes me wonder if he will improve even more if I continue. Do you know or have links to any studies showing if coloidal silver is easy to detox? My son is also taking lots of chlorella every day, wondering if chlorella will be enough to bind the silver and flush it out once the silver has killed the bacteria? What are your thoughts on that?Thanks again,Krassi> > >> > > Thanks for the good info Deb! We are starting low amylose diet perÂ> son's LLMD > > > after my son's b-day tomorrow. He just came back (as I imagine I will) w> the > > > " dreaded genotypes " for lyme and mold when we ran the Shoemaker labs> recently. > > > Now I need to do the ERMI to see how our house scores for mold.> > > > > > We tried taking out just high oxylates a few wks ago but couldnt find> any milk > > > we could drink (almond etc were out) and no more nut butters-- short> list of > > > veggies were left (everything he didnt like) it seemed. Guess we will do> the lab > > > to see if he needs to do this too. > > > > > >  > > > As far as sugars- Im assuming the 2 safe ones are still allowed (stevia> and > > > xylitol)- I forgot to ask the Dr about this. Cane juice is not allowed-> correct? > > > I have to look up honey as well altho we rarely use it. His Dr said only> corn is > > > allowed but I keep reading quinoa is ok so Im going ot go w that as he> can then > > > still have his fav noodles which are org corn and quinoa. > > > > > > great to have support thru all this!> > > > > > > > > > > > > > > ________________________________> > > From: Deb <allstars_memteam@>> > > To: BorreliaMultipleInfectionsAndAutism > <mailto:BorreliaMultipleInfectionsAndAutism%40yahoogroups.com> > > > Sent: Thu, April 5, 2012 11:04:28 PM> > > Subject: Re: Fw: PANDAS symptoms,> low > > > amylose, low [2 Attachments]> > > > > >  > > > [Attachment(s) from Deb included below] > > > > > > > > > Don't know why the low oxylate diets did not go through the first time.Â> > > > > > > > > > > > >   Subject: PANDAS symptoms, low amylose, low> > > > > > > > > To , Krassi and whoever is interested in low amylose, low oxylate> diet. > > > Stopped my sons constant urge to urinate.> > > > > > I have attached the two diets that I got from Dr. B. As you will see,> you can > > > find the low oxylate online. I did not ask them but it look VERY> similar to one > > > you can easily get online. > > > > > > > > > I questioned Dr B on both of them because at first it looks ridiculously> hard to > > > pull off and sometimes you just cannot do everything to the letter but> you will > > > cutting way down on amylose and oxylates at least. Do it slowly if you> need > > > to. My son is a veteran at all this stuff and frankly his condition> was so > > > terrible I had to do things quickly. I did not have time for doing> things one > > > at a time. I will include her answers below.> > > > > > I must tell you that I started the PEMF device by mid-Jan which helped> sleep A > > > LOT so that's another variable....but I am confident that the diet> (especially > > > low amylose) effected the frequent urination BC it did not stop till we> did that > > > - (low amylose started Jan 18 and low oxylate started Feb 1. > > > > > > Also, in the past 3 weeks I have started him on LIMU and ASEA and they> both > > > could be having a very positive effect on him, but again I did see the> PANDAS > > > symptoms go way down or stop before the introduction of LIMU and ASEA.Â> > > > > > > I've have now cut down on his meds and he does not need any pain meds> anymore > > > and I do attribute that to the pad, possibly ASEA and LIMU.  > > > eats a lot of melons, mangos, peeled pears, peeled apples,> avocado, > > > peeled cucumber, peas, corn, cauliflower, lean organic meats, some> boiled eggs, > > > organic corn chips, some pop corn.  I may put lentils back in.Â> Conflicting > > > opinions about lentils. > > > > > > > > > On both diets: Allowed grains:  Tapioca, quinoa, yucca root flour> (we don't > > > even know if this exists), coconut, spelt (yeah right), corn flour.Â> Yeast is > > > okay. So you can have your bread made but we just do Ezekiel and not> every > > > day. We make coconut pizza dough, coconut muffins and they are quite> good. All > > > meat, fruit and veggees are suppose to be organic but meat is the most> important > > > and as long as the meat is no hormone, no antibiotic, it's okay.Â> Traces of > > > canola and other oils on chips or whatever are okay. Get use to> cooking all the > > > time. Sucks. > > > > > > > > > > > > > > > > > > > > > -- Re: PANDAS symptoms, low> amylose, > > > low oxylate diet, cholestyromine treatments> > > > > > > > > Debbie,> > > Thank you for your explanation about the low amylose diet, if you don't> mind I > > > would like to ask you few more questions. Where can I find a list of the> low > > > amylose foods, I searched in Internet but there are lots of conflicting> opinions > > > indeed. Some say no fruits at all, others say most fruits are allowed,> with > > > exception of watermelon and dates, are there any others we should avoid> (my son > > > loves fruits and eats them all day long, especially apples and bananas).> Also > > > all vegetables that grow under the ground are not allowed, right? Do you> give > > > rice - white and brown? We avoid quinoa because it is high in oxalates,> but you > > > are saying you are giving it, what other high oxalates grains you have> been > > > giving without negative results? My son has been all organic gluten> free/sugar > > > free/soy free food for the past 3 years (very rarely exceptions), but> this by > > > itself has not made any difference with the frequent urination, the only> > > > difference we have seen is going on the low oxalates foods, but again -> there > > > are other triggers that we haven't found yet and that's why I am hoping> the low > > > amylose diet may help.> > > Thanks for your help,> > > Krassi> > >> >>