Side Effects from ADT....was.... PSA is down

[Guest guest]

Sammy says:

<snip>………

when I see in the thread below a problem with side effects

from treatment, I don't think it is right to say it is " no problem " .

It is a BIG problem as long as you are taking the Zoladex / Lupron ……..I

know has said he does not suffer from " SEs of ADT " , but how

many men are like him ? How about a " hands up " ?<snip>

I am on my second round of Zoladex –

I had no serious side effects the first time round and there are none so far on

this round.

All the best

Terry Herbert

in Melbourne

Australia

Diagnosed ‘96: Age

54: Stage T2b: PSA 7.2: Gleason 7: No treatment. Jun '07 PSA 42.0 - Bony Metastasis:Started

ADT Aug '07: May '08 - stopped ADT. May '10 PSA 8.20 : Recommenced ADT

My site is at www.prostatecancerwatchfulwaiting.co.za

It is a

tragedy of the world that no one knows what he doesn’t know, and the less

a man knows, the more sure he is that he knows everything. Joyce Carey

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of sammy_bates

Sent: Saturday, 7 August 2010 9:09

AM

To: ProstateCancerSupport

Subject:

Re: PSA is down

Steve,

Sorry I have to contradict you here when you say ..

> (1) There is no need to suffer the SEs of ADT (aka " hormones " ).

The fact is that as long as you are on ADT / " hormones " /

" TIP " as the links put it (I call it " castration therapy " )

you are going to experience " SEs of ADT " as you put it. [ i.e. side

effects of androgen deprivation therapy -- Sorry for all the acronyms to

anyone here for the first time.]

Anyhow, to continue .. This is what I read several times on the PCRI site where

your links point:-

" Unfortunately

there is no way to prevent or treat this problem. [ i.e. " SEs of

ADT " ] However, once testosterone deprivation therapy is completed and

testosterone levels return to normal .. "

So, when I see in the thread below a problem with side effects from treatment,

I don't think it is right to say it is " no problem " . It is a BIG

problem as long as you are taking the Zoladex / Lupron, and one that will

always be with many men as long as this damned castration therapy is the mainstream

medical treatment of choice. I have great sympathy for the guy in the thread

(Ralph I think) who let his PSA go up to 1800+ because he just hated being on

castration therapy.

I know has said he does not suffer from " SEs of ADT " , but how

many men are like him ? How about a " hands up " ? I am not for sure.

" SEs of ADT " have always been an issue for me, and indeed have driven

me to seek alternative ways of managing my PC. I too have allowed my PSA to go

higher than maybe it should have in the past. There are other guys who do

testosterone with more success - but anyhow, I am still around after 15

years. The pity is not many men give testosterone a try, and not many of

those who do, effectively communicate what they are doing.

Sam.