Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 I think our case it is the lyme. Sent from my iPhone I am probably way off base here, but I thought I would add my view about noise sensitivity. I see this when my daughter is on anti-biotics, particularly Bactrim or Flagyl and I beleive it has to do with the fact that they decrease folate. She already has Cerebral Folate Deficiency and these anti-biotics make it worse - this is when we see noise sensitivity. We also see a drop in speech with tboth anti-biotics, which correlates with the folate deficiency, so we avoid them. Elena Απο: Caryn_Reid Î Ïος: BorreliaMultipleInfectionsAndAutism Στάλθηκε: 8:29 Ï€.μ. ΠαÏασκευή, 18 ΜαÎου 2012Θεμα: Re: what causes noise sensitivity? Hi Deborah, mmepron and alinia can target babesia, but also other things. We have a plethora of worms and other little parasites. I have only been taking MMS for a couple of months and I am not sure itnis particularly effective if the parasite department. I have discontinued my own antibiotics protocol for MMS and will know what sort of coverage I am getting from it after I see my LLMD in July for ART. My son is on much less MMS and is not off of other meds yet.I am a big fan of Zhang's artemisiae. I have taken others with less success. But when we used high dose artemisiae we got elected liver enzymes.> > > >> > > > For our son it was HSV #6. Being on Acyclovir helped a lot.> > > > Leann> > > > > > > > > > > > ________________________________> > > > From: "klwadler@" <klwadler@>> > > > To: BorreliaMultipleInfectionsAndAutism ; Lyme-Aid > > > > Sent: Monday, May 14, 2012 6:36 PM> > > > Subject: what causes noise sensitivity?> > > > > > > > > > > >  > > > > > > > > > > > > > > > > I am wondering if there are any vitamin/mineral deficiencies that can cause > > > > noise sensitivity. my son gets very aggressive when he hears loud noises. > > > > karen > > > > In a message dated 5/12/2012 8:14:08 P.M. Eastern Daylight Time, > > > > constantikes@ writes: > > > >  > > > > >Hi,> > > > >> > > > >We are very new to the Lyme world. My > > > > son has GI symptoms, but none of the classic Lyme symptoms. Still, > > > > because has been bitten many times by ticks in North Carolina (and > > > > probably Philadelphia, as well) and because his GI issues are so > > > > intractable we are looking in to Lyme. > > > > >> > > > >We just did the > > > > bloodwork for Advanced Labs, which I know only tests for Lyme. Do you > > > > think that it's worth doing Igenex to look for co-infection? I > > > > know that some people think Fry Labs is another good option. Our > > > > LLMD had nothing bad to say about Fry, but seemed more inclined to have > > > > us do the Igenex test. I know it has a good reputation, but I also > > > > know that some folks have not gotten accurate results from Igenex. > > > > >> > > > >Any thoughts would be most appreciated.> > > > >> > > > >Thanks,> > > > > > > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2012 Report Share Posted May 19, 2012 Elena, I think you may be right on the Folate. BUT, the biggest consumers of folate are parasites. So flaring parasites will cause sound sensitivity and treating them will decrease it. I believe that parasites may jbe the root causative for most illness. I believe that MTHFR may even be a genetic mutation caused ib our ancestors by parasites so that they we would use folic acid poorly and they would have more to eat. We probably inherited both the parasites and the MTHFR from our ancestors. They are probably therefore, causing Cerebral Folate Deficiency. Caryn > > > > > > > > > > For our son it was HSV #6. Being on Acyclovir helped a lot. > > > > > Leann > > > > > > > > > > > > > > > ________________________________ > > > > > From: " klwadler@ " <klwadler@> > > > > > To: BorreliaMultipleInfectionsAndAutism ; Lyme-Aid > > > > > Sent: Monday, May 14, 2012 6:36 PM > > > > > Subject: what causes noise sensitivity? > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > I am wondering if there are any vitamin/mineral deficiencies that can cause > > > > > noise sensitivity. my son gets very aggressive when he hears loud noises. > > > > > karen > > > > > In a message dated 5/12/2012 8:14:08 P.M. Eastern Daylight Time, > > > > > constantikes@ writes: > > > > >  > > > > > >Hi, > > > > > > > > > > > >We are very new to the Lyme world. My > > > > > son has GI symptoms, but none of the classic Lyme symptoms. Still, > > > > > because has been bitten many times by ticks in North Carolina (and > > > > > probably Philadelphia, as well) and because his GI issues are so > > > > > intractable we are looking in to Lyme. > > > > > > > > > > > >We just did the > > > > > bloodwork for Advanced Labs, which I know only tests for Lyme. Do you > > > > > think that it's worth doing Igenex to look for co-infection? I > > > > > know that some people think Fry Labs is another good option. Our > > > > > LLMD had nothing bad to say about Fry, but seemed more inclined to have > > > > > us do the Igenex test. I know it has a good reputation, but I also > > > > > know that some folks have not gotten accurate results from Igenex. > > > > > > > > > > > >Any thoughts would be most appreciated. > > > > > > > > > > > >Thanks, > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2012 Report Share Posted May 19, 2012 elena, what is your treatment for the folate deficiency? My son is on the MTHFR folate type part of yasko protocol he is on. My pandas doc sent me the lab forms for checking for the CFD but I cant get blood out of him, was going to check me also... deborah > > > > > > > > > > For our son it was HSV #6. Being on Acyclovir helped a lot. > > > > > Leann > > > > > > > > > > > > > > > ________________________________ > > > > > From: " klwadler@ " <klwadler@> > > > > > To: BorreliaMultipleInfectionsAndAutism ; Lyme-Aid > > > > > Sent: Monday, May 14, 2012 6:36 PM > > > > > Subject: what causes noise sensitivity? > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > > > > > > I am wondering if there are any vitamin/mineral deficiencies that can cause > > > > > noise sensitivity. my son gets very aggressive when he hears loud noises. > > > > > karen > > > > > In a message dated 5/12/2012 8:14:08 P.M. Eastern Daylight Time, > > > > > constantikes@ writes: > > > > >  > > > > > >Hi, > > > > > > > > > > > >We are very new to the Lyme world. My > > > > > son has GI symptoms, but none of the classic Lyme symptoms. Still, > > > > > because has been bitten many times by ticks in North Carolina (and > > > > > probably Philadelphia, as well) and because his GI issues are so > > > > > intractable we are looking in to Lyme. > > > > > > > > > > > >We just did the > > > > > bloodwork for Advanced Labs, which I know only tests for Lyme. Do you > > > > > think that it's worth doing Igenex to look for co-infection? I > > > > > know that some people think Fry Labs is another good option. Our > > > > > LLMD had nothing bad to say about Fry, but seemed more inclined to have > > > > > us do the Igenex test. I know it has a good reputation, but I also > > > > > know that some folks have not gotten accurate results from Igenex. > > > > > > > > > > > >Any thoughts would be most appreciated. > > > > > > > > > > > >Thanks, > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2012 Report Share Posted May 26, 2012 Hi Sasmita I give a combined Methyl B12/Adenosyl B12 shot every second day, 4 x Jarrow MB12 lozenges per day, http://www.iherb.com/Jarrow-Formulas-Methyl-B-12-5000-mcg-60-Lozenges/117 and three droperfulls of Angamik DMG per day http://www.iherb.com/FoodScience-Aangamik-DMG-Liquid-300-mg-2-fl-oz-60-ml/3287 I don't know if this is right or not, but it is the only way we have been able to avoid the 'folate trap'. My daughter does well on methyl donors. Thanks Elena Απο: Sasmita Î Ïος: BorreliaMultipleInfectionsAndAutism Στάλθηκε: 1:12 Ï€.μ. Σάββατο, 26 ΜαÎου 2012Θεμα: ΣÇεÄ: Re: what causes noise sensitivity? Elena, how much MB12 and DMG do you give?Thanks,Sasmita> > > > > >> > > > > > For our son it was HSV #6.Ξ"Ξ'Î’ Being on Acyclovir helped a lot.> > > > > > Leann> > > > > > > > > > > > > > > > > > ________________________________> > > > > > From: "klwadler@" <klwadler@>> > > > > > To: BorreliaMultipleInfectionsAndAutism ; Lyme-Aid > > > > > > Sent: Monday, May 14, 2012 6:36 PM> > > > > > Subject: what causes noise sensitivity?> > > > > > > > > > > > > > > > > > Ξ"Ξ'Î’ > > > > > > > > > > > > > > > > > > > > > > > > I am wondering if there are any vitamin/mineral deficiencies that can cause > > > > > > noise sensitivity. my son gets very aggressive when he hears loud noises. > > > > > > karen > > > > > > In a message dated 5/12/2012 8:14:08 P.M. Eastern Daylight Time, > > > > > > constantikes@ writes: > > > > > > Ξ"Ξ'Î’ > > > > > > >Hi,> > > > > > >> > > > > > >We are very new to the Lyme world.Ξ"Ξ'Î’ My > > > > > > son has GI symptoms, but none of the classic Lyme symptoms. Still, > > > > > > because has been bitten many times by ticks in North Carolina (and > > > > > > probably Philadelphia, as well) and because his GI issues are so > > > > > > intractable we are looking in to Lyme.Ξ"Ξ'Î’ > > > > > > >> > > > > > >We just did the > > > > > > bloodwork for Advanced Labs, which I know only tests for Lyme. Do you > > > > > > think that it's worth doing Igenex to look for co-infection?Ξ"Ξ'Î’ I > > > > > > know that some people think Fry Labs is another good option.Ξ"Ξ'Î’ Our > > > > > > LLMD had nothing bad to say about Fry, but seemed more inclined to have > > > > > > us do the Igenex test.Ξ"Ξ'Î’ I know it has a good reputation, but I also > > > > > > know that some folks have not gotten accurate results from Igenex. > > > > > > >> > > > > > >Any thoughts would be most appreciated.> > > > > > >> > > > > > >Thanks,> > > > > > > > > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2012 Report Share Posted May 26, 2012 Clostridia and or tetanus infection.This is talked about in the book,Gut and Psychology Syndrome.Homeopathy may be of help,and coconut oil in the ears. > > > > > > > > > > > > > > For our son it was HSV #6.Ξ " Ξ'Î' Being on Acyclovir helped a lot. > > > > > > > Leann > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > From: " klwadler@ " <klwadler@> > > > > > > > To: BorreliaMultipleInfectionsAndAutism ; Lyme-Aid > > > > > > > Sent: Monday, May 14, 2012 6:36 PM > > > > > > > Subject: what causes noise sensitivity? > > > > > > > > > > > > > > > > > > > > > Ξ " Ξ'Î' > > > > > > > > > > > > > > > > > > > > > > > > > > > > I am wondering if there are any vitamin/mineral deficiencies that can cause > > > > > > > noise sensitivity. my son gets very aggressive when he hears loud noises. > > > > > > > karen > > > > > > > In a message dated 5/12/2012 8:14:08 P.M. Eastern Daylight Time, > > > > > > > constantikes@ writes: > > > > > > > Ξ " Ξ'Î' > > > > > > > >Hi, > > > > > > > > > > > > > > > >We are very new to the Lyme world.Ξ " Ξ'Î' My > > > > > > > son has GI symptoms, but none of the classic Lyme symptoms. Still, > > > > > > > because has been bitten many times by ticks in North Carolina (and > > > > > > > probably Philadelphia, as well) and because his GI issues are so > > > > > > > intractable we are looking in to Lyme.Ξ " Ξ'Î' > > > > > > > > > > > > > > > >We just did the > > > > > > > bloodwork for Advanced Labs, which I know only tests for Lyme. Do you > > > > > > > think that it's worth doing Igenex to look for co-infection?Ξ " Ξ'Î' I > > > > > > > know that some people think Fry Labs is another good option.Ξ " Ξ'Î' Our > > > > > > > LLMD had nothing bad to say about Fry, but seemed more inclined to have > > > > > > > us do the Igenex test.Ξ " Ξ'Î' I know it has a good reputation, but I also > > > > > > > know that some folks have not gotten accurate results from Igenex. > > > > > > > > > > > > > > > >Any thoughts would be most appreciated. > > > > > > > > > > > > > > > >Thanks, > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.