Re: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

[Guest guest]

Chuck and all,

I’m not starting and certainly won’t

be joining in any discussion on the pros and cons of PSA testing. There is a

good piece on The “New” Prostate Cancer Infolink at http://tinyurl.com/6wfrwpd

with links to the actual recommendations and statements in support

from Otis Brawley and against from Catalona. It makes interesting reading.

Most people may not know precisely what

was recommended – and supported by a variety of organizations. This is

it:

<snip> For men of any age, the

USPSTF recommends that doctors and patients do not screen for prostate cancer

because the potential benefits do not outweigh the harms. However, the

USPSTF realizes that some men may continue

requesting the PSA test and some physicians may continue offering it. The

decision to start or continue screening should be

an informed one that reflects an

understanding of the possible benefits and harms and should respect an

individual man’s preferences. <snip>

Speaking personally I simply do not understand

what the fuss is about. Men who are concerned – whether they need to be

concerned or not - can still request PSA tests. Doctors who believe in the

value of PSA tests can still order them. The aim is that both parties –

the doctor and the man should have a clear understanding of the limitations of

the test. What is wrong with that?

I am an alien, so I can only observe

actions in the US

from afar, but it seems really odd to me that there are enormous outcries about

Government treating people like children on the one hand and not treating them

like children on the other. Surely adult sentient men should be given the known

facts, ascertained by scientific studies on the potential benefits and harms

associated with PSA tests. It is interesting in a country like South Africa –

generally regarded as a Third World country, people cannot be given and AIDS

test without first having counseling about the potential outcomes of the test. Would

it be so hard to do tha same thing about PSA tests?

All the best

Prostate men need enlightening, not

frightening

Terry Herbert - diagnosed in 1996 and

still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Chuck Maack

Sent: Tuesday, 22 May 2012 9:37 AM

To: Chuck Maack

Subject:

Men's Health Network and Veterans Health Council Oppose Final USPSTF

Recommendation Against Prostate Cancer Screening

Men's Health Network and Veterans Health Council Oppose

Final USPSTF Recommendation Against Prostate Cancer Screening

USPSTFPCaMHNVHCpressrelease052112.pdf

http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf

AMEN!

Chuck

Disclaim er: Please recognize that I am not a Medical

Doctor. I have been an avid student researching and studying prostate

cancer as a survivor and continuing patient since 1992. I have dedicated

my retirement years to continued research and study in order to serve as an

advocate for prostate cancer awareness, and, from a activist patient’s

viewpoint, to help patients, caregivers, and others interested develop an

understanding of prostate cancer, its treatment options, and the treatment of

the side effects that often accompany treatment. Readers of this paper

must understand that the comments or recommendations I make are not intended to

be the procedure to blindly follow; rather, they are to be reviewed as my

opinion, then used for further personal research, study, and subsequent

discussion with the medical professional/physician providing prostate cancer

care.

Always as close as the other end of your computer to help address

any prostate cancer concerns.

" What you leave behind is not what is engraved in stone

monuments, but what is woven into the lives of others. "

(Chuck) Maack - Rmd, PCaA, PCaM

Email: maack1@...

PCa Help: " Observations " http://www.theprostateadvocate.com

[Guest guest]

I just want to say that I am very thankful for a doctor that ordered PSA testing for my husband as part of his regular 50 year old testing. My husband was asymptomatic.

The path report following surgery said that my husband has Gleason 4+3 stage 3 cancer with the cancer spreading just outside the prostate (they think they got everything in surgery).

I think he would have died for sure if he didn't have that test.

As it is, his 3 month post surgery PSA was undetectable, and he'll get his next test done in a few weeks. We're still debating whether or not he should have radiation.

Subject: RE: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer ScreeningTo: ProstateCancerSupport Date: Monday, May 21, 2012, 6:20 PM

Chuck and all,

I’m not starting and certainly won’t be joining in any discussion on the pros and cons of PSA testing. There is a good piece on The “New†Prostate Cancer Infolink at http://tinyurl.com/6wfrwpd with links to the actual recommendations and statements in support from Otis Brawley and against from Catalona. It makes interesting reading.

Most people may not know precisely what was recommended – and supported by a variety of organizations. This is it:

<snip> For men of any age, the USPSTF recommends that doctors and patients do not screen for prostate cancer because the potential benefits do not outweigh the harms. However, the

USPSTF realizes that some men may continue requesting the PSA test and some physicians may continue offering it. The decision to start or continue screening should be

an informed one that reflects an understanding of the possible benefits and harms and should respect an individual man’s preferences. <snip>

Speaking personally I simply do not understand what the fuss is about. Men who are concerned – whether they need to be concerned or not - can still request PSA tests. Doctors who believe in the value of PSA tests can still order them. The aim is that both parties – the doctor and the man should have a clear understanding of the limitations of the test. What is wrong with that?

I am an alien, so I can only observe actions in the US from afar, but it seems really odd to me that there are enormous outcries about Government treating people like children on the one hand and not treating them like children on the other. Surely adult sentient men should be given the known facts, ascertained by scientific studies on the potential benefits and harms associated with PSA tests. It is interesting in a country like South Africa – generally regarded as a Third World country, people cannot be given and AIDS test without first having counseling about the potential outcomes of the test. Would it be so hard to do tha same thing about PSA tests?

All the best

Prostate men need enlightening, not frightening

Terry Herbert - diagnosed in 1996 and still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of Chuck MaackSent: Tuesday, 22 May 2012 9:37 AMTo: Chuck MaackSubject: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

USPSTFPCaMHNVHCpressrelease052112.pdf

http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf

AMEN!

Chuck

Disclaim er: Please recognize that I am not a Medical Doctor. I have been an avid student researching and studying prostate cancer as a survivor and continuing patient since 1992. I have dedicated my retirement years to continued research and study in order to serve as an advocate for prostate cancer awareness, and, from a activist patient’s viewpoint, to help patients, caregivers, and others interested develop an understanding of prostate cancer, its treatment options, and the treatment of the side effects that often accompany treatment. Readers of this paper must understand that the comments or recommendations I make are not intended to be the procedure to blindly follow; rather, they are to be reviewed as my opinion, then used for further personal research, study, and subsequent discussion with the medical

professional/physician providing prostate cancer care.

Always as close as the other end of your computer to help address any prostate cancer concerns.

"What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others."

(Chuck) Maack - Rmd, PCaA, PCaM

Email: maack1@...

PCa Help: "Observations" http://www.theprostateadvocate.com

[Guest guest]

Suzi,

I respect your decision and hope that all

will be well into the future, but you say

<snip> I think he

would have died for sure if he didn't have that test. <snip>

That belief is not necessarily based on

facts. Of course he would have died at some time in the future because we must

all die some day, but not necessarily from prostate cancer. As good old Dr

Whitmore said “Growing old is

invariably fatal while prostate cancer is only sometimes so.”

All the best

Prostate men need enlightening, not

frightening

Terry Herbert - diagnosed in 1996 and

still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Suzi Knowles

Sent: Tuesday, 22 May 2012 12:40

PM

To: ProstateCancerSupport

Subject: RE:

Men's Health Network and Veterans Health Council Oppose

Final USPSTF Recommendation Against Prostate Cancer Screening

I just want to say that I am very thankful for a

doctor that ordered PSA testing for my husband as part of his regular 50 year

old testing. My husband was asymptomatic.

The path report following surgery said that my

husband has Gleason 4+3 stage 3 cancer with the cancer spreading

just outside the prostate (they think they got everything in surgery).

I think he would have died for sure if he didn't

have that test.

As it is, his 3 month post surgery PSA was

undetectable, and he'll get his next test done in a few weeks. We're

still debating whether or not he should have radiation.

Subject: RE: Men's Health Network and Veterans Health

Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

To: ProstateCancerSupport

Date: Monday, May 21, 2012, 6:20 PM

Chuck and all,

I’m not starting and

certainly won’t be joining in any discussion on the pros and cons of PSA

testing. There is a good piece on The “New” Prostate Cancer Infolink at http://tinyurl.com/6wfrwpd

with links to the actual recommendations and statements in support

from Otis Brawley and against from Catalona. It makes interesting reading.

Most people may not

know precisely what was recommended – and supported by a variety of

organizations. This is it:

<snip> For men of

any age, the USPSTF recommends that doctors and patients do not screen for

prostate cancer because the potential benefits do not outweigh the harms.

However, the

USPSTF realizes that

some men may continue requesting the PSA test and some physicians may

continue offering it. The decision to start or continue screening should be

an informed one that

reflects an understanding of the possible benefits and harms and should

respect an individual man’s preferences. <snip>

Speaking personally I

simply do not understand what the fuss is about. Men who are concerned –

whether they need to be concerned or not - can still request PSA tests.

Doctors who believe in the value of PSA tests can still order them. The aim is

that both parties – the doctor and the man should have a clear understanding

of the limitations of the test. What is wrong with that?

I am an alien, so I can

only observe actions in the US

from afar, but it seems really odd to me that there are enormous outcries

about Government treating people like children on the one hand and not

treating them like children on the other. Surely adult sentient men should be

given the known facts, ascertained by scientific studies on the potential

benefits and harms associated with PSA tests. It is interesting in a country

like South Africa – generally regarded as a Third World country, people

cannot be given and AIDS test without first having counseling about the

potential outcomes of the test. Would it be so hard to do tha same thing

about PSA tests?

All the best

Prostate men need

enlightening, not frightening

Terry Herbert -

diagnosed in 1996 and still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of Chuck Maack

Sent: Tuesday, 22 May 2012 9:37

AM

To: Chuck Maack

Subject:

Men's Health Network and Veterans Health Council Oppose Final USPSTF

Recommendation Against Prostate Cancer Screening

Men's Health Network and Veterans

Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

USPSTFPCaMHNVHCpressrelease052112.pdf

http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf

AMEN!

Chuck

Disclaim

er: Please recognize that I am not a Medical Doctor. I have been an

avid student researching and studying prostate cancer as a survivor and

continuing patient since 1992. I have dedicated my retirement years to

continued research and study in order to serve as an advocate for prostate

cancer awareness, and, from a activist patient’s viewpoint, to help patients,

caregivers, and others interested develop an understanding of prostate

cancer, its treatment options, and the treatment of the side effects that

often accompany treatment. Readers of this paper must understand that

the comments or recommendations I make are not intended to be the procedure

to blindly follow; rather, they are to be reviewed as my opinion, then used

for further personal research, study, and subsequent discussion with the

medical professional/physician providing prostate cancer care.

Always as

close as the other end of your computer to help address any prostate cancer

concerns.

" What

you leave behind is not what is engraved in stone monuments, but what is

woven into the lives of others. "

(Chuck) Maack - Rmd, PCaA, PCaM

Email: maack1@...

PCa Help:

" Observations " http://www.theprostateadvocate.com

[Guest guest]

Terry,

What I worry about is that subset of men who don't like to go to doctors in the first place. They will see the USPSTF statement and use it to reinforce their decision not to go. I surely believe some of them will die needlessly.

Manny

Subject: RE: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer ScreeningTo: ProstateCancerSupport Date: Monday, May 21, 2012, 9:20 PM

Chuck and all,

I’m not starting and certainly won’t be joining in any discussion on the pros and cons of PSA testing. There is a good piece on The “New†Prostate Cancer Infolink at http://tinyurl.com/6wfrwpd with links to the actual recommendations and statements in support from Otis Brawley and against from Catalona. It makes interesting reading.

Most people may not know precisely what was recommended – and supported by a variety of organizations. This is it:

<snip> For men of any age, the USPSTF recommends that doctors and patients do not screen for prostate cancer because the potential benefits do not outweigh the harms. However, the

USPSTF realizes that some men may continue requesting the PSA test and some physicians may continue offering it. The decision to start or continue screening should be

an informed one that reflects an understanding of the possible benefits and harms and should respect an individual man’s preferences. <snip>

Speaking personally I simply do not understand what the fuss is about. Men who are concerned – whether they need to be concerned or not - can still request PSA tests. Doctors who believe in the value of PSA tests can still order them. The aim is that both parties – the doctor and the man should have a clear understanding of the limitations of the test. What is wrong with that?

I am an alien, so I can only observe actions in the US from afar, but it seems really odd to me that there are enormous outcries about Government treating people like children on the one hand and not treating them like children on the other. Surely adult sentient men should be given the known facts, ascertained by scientific studies on the potential benefits and harms associated with PSA tests. It is interesting in a country like South Africa – generally regarded as a Third World country, people cannot be given and AIDS test without first having counseling about the potential outcomes of the test. Would it be so hard to do tha same thing about PSA tests?

All the best

Prostate men need enlightening, not frightening

Terry Herbert - diagnosed in 1996 and still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of Chuck MaackSent: Tuesday, 22 May 2012 9:37 AMTo: Chuck MaackSubject: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

USPSTFPCaMHNVHCpressrelease052112.pdf

http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf

AMEN!

Chuck

Disclaim er: Please recognize that I am not a Medical Doctor. I have been an avid student researching and studying prostate cancer as a survivor and continuing patient since 1992. I have dedicated my retirement years to continued research and study in order to serve as an advocate for prostate cancer awareness, and, from a activist patient’s viewpoint, to help patients, caregivers, and others interested develop an understanding of prostate cancer, its treatment options, and the treatment of the side effects that often accompany treatment. Readers of this paper must understand that the comments or recommendations I make are not intended to be the procedure to blindly follow; rather, they are to be reviewed as my opinion, then used for further personal research, study, and subsequent discussion with the medical

professional/physician providing prostate cancer care.

Always as close as the other end of your computer to help address any prostate cancer concerns.

"What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others."

(Chuck) Maack - Rmd, PCaA, PCaM

Email: maack1@...

PCa Help: "Observations" http://www.theprostateadvocate.com

[Guest guest]

Forgot to mention that he is only 50.

Subject: RE: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer ScreeningTo: ProstateCancerSupport Date: Monday, May 21, 2012, 6:20 PM

Chuck and all,

I’m not starting and certainly won’t be joining in any discussion on the pros and cons of PSA testing. There is a good piece on The “New†Prostate Cancer Infolink at http://tinyurl.com/6wfrwpd with links to the actual recommendations and statements in support from Otis Brawley and against from Catalona. It makes interesting reading.

Most people may not know precisely what was recommended – and supported by a variety of organizations. This is it:

<snip> For men of any age, the USPSTF recommends that doctors and patients do not screen for prostate cancer because the potential benefits do not outweigh the harms. However, the

USPSTF realizes that some men may continue requesting the PSA test and some physicians may continue offering it. The decision to start or continue screening should be

an informed one that reflects an understanding of the possible benefits and harms and should respect an individual man’s preferences. <snip>

Speaking personally I simply do not understand what the fuss is about. Men who are concerned – whether they need to be concerned or not - can still request PSA tests. Doctors who believe in the value of PSA tests can still order them. The aim is that both parties – the doctor and the man should have a clear understanding of the limitations of the test. What is wrong with that?

I am an alien, so I can only observe actions in the US from afar, but it seems really odd to me that there are enormous outcries about Government treating people like children on the one hand and not treating them like children on the other. Surely adult sentient men should be given the known facts, ascertained by scientific studies on the potential benefits and harms associated with PSA tests. It is interesting in a country like South Africa – generally regarded as a Third World country, people cannot be given and AIDS test without first having counseling about the potential outcomes of the test. Would it be so hard to do tha same thing about PSA tests?

All the best

Prostate men need enlightening, not frightening

Terry Herbert - diagnosed in 1996 and still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of Chuck MaackSent: Tuesday, 22 May 2012 9:37 AMTo: Chuck MaackSubject: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

USPSTFPCaMHNVHCpressrelease052112.pdf

http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf

AMEN!

Chuck

Disclaim er: Please recognize that I am not a Medical Doctor. I have been an avid student researching and studying prostate cancer as a survivor and continuing patient since 1992. I have dedicated my retirement years to continued research and study in order to serve as an advocate for prostate cancer awareness, and, from a activist patient’s viewpoint, to help patients, caregivers, and others interested develop an understanding of prostate cancer, its treatment options, and the treatment of the side effects that often accompany treatment. Readers of this paper must understand that the comments or recommendations I make are not intended to be the procedure to blindly follow; rather, they are to be reviewed as my opinion, then used for further personal research, study, and subsequent discussion with the medical

professional/physician providing prostate cancer care.

Always as close as the other end of your computer to help address any prostate cancer concerns.

"What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others."

(Chuck) Maack - Rmd, PCaA, PCaM

Email: maack1@...

PCa Help: "Observations" http://www.theprostateadvocate.com

[Guest guest]

Manny, right now what percentage of men

have PSA tests? It is a long time since I looked up the figures but I seem to

recall a post saying it was under 50% and that the rate was falling. I think

that some men wil do everything they can to avoid going to a doctor, while

others will have a very different view. Do you really think that the men who

are currently avoiding doctors’ visits will increase by a significant degree

following this recommendation? They don’t need an excuse.

All the best

Terry

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Rosenbaum

Sent: Tuesday, 22 May 2012 2:22 PM

To: ProstateCancerSupport

Subject: RE:

Men's Health Network and Veterans Health Council Oppose

Final USPSTF Recommendation Against Prostate Cancer Screening

Terry,

What I worry about is that subset of men who don't

like to go to doctors in the first place. They will see the USPSTF statement

and use it to reinforce their decision not to go. I surely believe some of

them will die needlessly.

Manny

Subject: RE: Men's Health Network and Veterans Health

Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

To: ProstateCancerSupport

Date: Monday, May 21, 2012, 9:20 PM

Chuck and all,

I’m not starting and

certainly won’t be joining in any discussion on the pros and cons of PSA

testing. There is a good piece on The “New” Prostate Cancer Infolink at http://tinyurl.com/6wfrwpd

with links to the actual recommendations and statements in support

from Otis Brawley and against from Catalona. It makes interesting reading.

Most people may not

know precisely what was recommended – and supported by a variety of

organizations. This is it:

<snip> For men of

any age, the USPSTF recommends that doctors and patients do not screen for

prostate cancer because the potential benefits do not outweigh the harms.

However, the

USPSTF realizes that

some men may continue requesting the PSA test and some physicians may

continue offering it. The decision to start or continue screening should be

an informed one that

reflects an understanding of the possible benefits and harms and should

respect an individual man’s preferences. <snip>

Speaking personally I

simply do not understand what the fuss is about. Men who are concerned –

whether they need to be concerned or not - can still request PSA tests.

Doctors who believe in the value of PSA tests can still order them. The aim

is that both parties – the doctor and the man should have a clear

understanding of the limitations of the test. What is wrong with that?

I am an alien, so I can

only observe actions in the US

from afar, but it seems really odd to me that there are enormous outcries

about Government treating people like children on the one hand and not

treating them like children on the other. Surely adult sentient men should be

given the known facts, ascertained by scientific studies on the potential

benefits and harms associated with PSA tests. It is interesting in a country

like South Africa – generally regarded as a Third World country, people

cannot be given and AIDS test without first having counseling about the

potential outcomes of the test. Would it be so hard to do tha same thing

about PSA tests?

All the best

Prostate men need

enlightening, not frightening

Terry Herbert -

diagnosed in 1996 and still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of Chuck Maack

Sent: Tuesday, 22 May 2012 9:37

AM

To: Chuck Maack

Subject:

Men's Health Network and Veterans Health Council Oppose Final USPSTF

Recommendation Against Prostate Cancer Screening

Men's Health Network and Veterans

Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

USPSTFPCaMHNVHCpressrelease052112.pdf

http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf

AMEN!

Chuck

Disclaim

er: Please recognize that I am not a Medical Doctor. I have been an

avid student researching and studying prostate cancer as a survivor and

continuing patient since 1992. I have dedicated my retirement years to

continued research and study in order to serve as an advocate for prostate

cancer awareness, and, from a activist patient’s viewpoint, to help patients,

caregivers, and others interested develop an understanding of prostate

cancer, its treatment options, and the treatment of the side effects that

often accompany treatment. Readers of this paper must understand that

the comments or recommendations I make are not intended to be the procedure

to blindly follow; rather, they are to be reviewed as my opinion, then used

for further personal research, study, and subsequent discussion with the

medical professional/physician providing prostate cancer care.

Always as

close as the other end of your computer to help address any prostate cancer

concerns.

" What

you leave behind is not what is engraved in stone monuments, but what is

woven into the lives of others. "

(Chuck) Maack - Rmd, PCaA, PCaM

Email: maack1@...

PCa Help:

" Observations " http://www.theprostateadvocate.com

[Guest guest]

I was 54 in 1996 when I was diagnosed with

a Gleason 7 disease.

All the best

Terry

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Suzi Knowles

Sent: Tuesday, 22 May 2012 3:05 PM

To: ProstateCancerSupport

Subject: RE:

Men's Health Network and Veterans Health Council Oppose

Final USPSTF Recommendation Against Prostate Cancer Screening

Forgot to mention that he is only 50.

Subject: RE: Men's Health Network and Veterans

Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer

Screening

To: ProstateCancerSupport

Date: Monday, May 21, 2012, 6:20 PM

Chuck and all,

I’m not starting and

certainly won’t be joining in any discussion on the pros and cons of PSA

testing. There is a good piece on The “New” Prostate Cancer Infolink at http://tinyurl.com/6wfrwpd with links to the

actual recommendations and statements in support from Otis Brawley and

against from Catalona. It makes interesting reading.

Most people may not

know precisely what was recommended – and supported by a variety of

organizations. This is it:

<snip> For men

of any age, the USPSTF recommends that doctors and patients do not screen

for prostate cancer because the potential benefits do not outweigh the

harms. However, the

USPSTF realizes that

some men may continue requesting the PSA test and some physicians may

continue offering it. The decision to start or continue screening should be

an informed one that

reflects an understanding of the possible benefits and harms and should

respect an individual man’s preferences. <snip>

Speaking personally I

simply do not understand what the fuss is about. Men who are concerned –

whether they need to be concerned or not - can still request PSA tests.

Doctors who believe in the value of PSA tests can still order them. The aim

is that both parties – the doctor and the man should have a clear

understanding of the limitations of the test. What is wrong with that?

I am an alien, so I

can only observe actions in the US from afar, but it seems

really odd to me that there are enormous outcries about Government treating

people like children on the one hand and not treating them like children on

the other. Surely adult sentient men should be given the known facts,

ascertained by scientific studies on the potential benefits and harms

associated with PSA tests. It is interesting in a country like South Africa

– generally regarded as a Third World country, people cannot be given and

AIDS test without first having counseling about the potential outcomes of

the test. Would it be so hard to do tha same thing about PSA tests?

All the best

Prostate men need

enlightening, not frightening

Terry Herbert -

diagnosed in 1996 and still going strong

Read A

Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of Chuck Maack

Sent: Tuesday, 22 May 2012

9:37 AM

To: Chuck Maack

Subject:

Men's Health Network and Veterans Health Council Oppose Final USPSTF

Recommendation Against Prostate Cancer Screening

Men's

Health Network and Veterans Health Council Oppose Final USPSTF

Recommendation Against Prostate Cancer Screening

USPSTFPCaMHNVHCpressrelease052112.pdf

http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf

AMEN!

Chuck

Disclaim

er: Please recognize that I am not a Medical Doctor. I have been an

avid student researching and studying prostate cancer as a survivor and

continuing patient since 1992. I have dedicated my retirement years

to continued research and study in order to serve as an advocate for

prostate cancer awareness, and, from a activist patient’s viewpoint, to

help patients, caregivers, and others interested develop an understanding

of prostate cancer, its treatment options, and the treatment of the side

effects that often accompany treatment. Readers of this paper must

understand that the comments or recommendations I make are not intended to

be the procedure to blindly follow; rather, they are to be reviewed as my

opinion, then used for further personal research, study, and subsequent

discussion with the medical professional/physician providing prostate

cancer care.

Always as

close as the other end of your computer to help address any prostate cancer

concerns.

" What

you leave behind is not what is engraved in stone monuments, but what is

woven into the lives of others. "

(Chuck) Maack - Rmd, PCaA, PCaM

Email: maack1@...

PCa Help:

" Observations " http://www.theprostateadvocate.com

[Guest guest]

The concern, Terry, is whether or not we are among the, as you note, “sometimes so” that would be in that 30,000 number that die “of” prostate cancer here in the U.S. Chuck Always as close as the other end of your computer to help address any prostate cancer concerns. " What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others. " (Chuck) Maack - Rmd, PCaA, PCaM Email: maack1@... PCa Help: " Observations " http://www.theprostateadvocate.com From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Terry HerbertSent: Monday, May 21, 2012 10:00 PMTo: ProstateCancerSupport Subject: RE: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening Suzi, I respect your decision and hope that all will be well into the future, but you say <snip> I think he would have died for sure if he didn't have that test. <snip> That belief is not necessarily based on facts. Of course he would have died at some time in the future because we must all die some day, but not necessarily from prostate cancer. As good old Dr Whitmore said “Growing old is invariably fatal while prostate cancer is only sometimes so.” All the best Prostate men need enlightening, not frighteningTerry Herbert - diagnosed in 1996 and still going strongRead A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Suzi KnowlesSent: Tuesday, 22 May 2012 12:40 PMTo: ProstateCancerSupport Subject: RE: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening I just want to say that I am very thankful for a doctor that ordered PSA testing for my husband as part of his regular 50 year old testing. My husband was asymptomatic. The path report following surgery said that my husband has Gleason 4+3 stage 3 cancer with the cancer spreading just outside the prostate (they think they got everything in surgery). I think he would have died for sure if he didn't have that test. As it is, his 3 month post surgery PSA was undetectable, and he'll get his next test done in a few weeks. We're still debating whether or not he should have radiation.Subject: RE: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer ScreeningTo: ProstateCancerSupport Date: Monday, May 21, 2012, 6:20 PM Chuck and all, I’m not starting and certainly won’t be joining in any discussion on the pros and cons of PSA testing. There is a good piece on The “New” Prostate Cancer Infolink at http://tinyurl.com/6wfrwpd with links to the actual recommendations and statements in support from Otis Brawley and against from Catalona. It makes interesting reading. Most people may not know precisely what was recommended – and supported by a variety of organizations. This is it: <snip> For men of any age, the USPSTF recommends that doctors and patients do not screen for prostate cancer because the potential benefits do not outweigh the harms. However, theUSPSTF realizes that some men may continue requesting the PSA test and some physicians may continue offering it. The decision to start or continue screening should bean informed one that reflects an understanding of the possible benefits and harms and should respect an individual man’s preferences. <snip> Speaking personally I simply do not understand what the fuss is about. Men who are concerned – whether they need to be concerned or not - can still request PSA tests. Doctors who believe in the value of PSA tests can still order them. The aim is that both parties – the doctor and the man should have a clear understanding of the limitations of the test. What is wrong with that? I am an alien, so I can only observe actions in the US from afar, but it seems really odd to me that there are enormous outcries about Government treating people like children on the one hand and not treating them like children on the other. Surely adult sentient men should be given the known facts, ascertained by scientific studies on the potential benefits and harms associated with PSA tests. It is interesting in a country like South Africa – generally regarded as a Third World country, people cannot be given and AIDS test without first having counseling about the potential outcomes of the test. Would it be so hard to do tha same thing about PSA tests? All the best Prostate men need enlightening, not frighteningTerry Herbert - diagnosed in 1996 and still going strongRead A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of Chuck MaackSent: Tuesday, 22 May 2012 9:37 AMTo: Chuck MaackSubject: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer ScreeningUSPSTFPCaMHNVHCpressrelease052112.pdf http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdfAMEN! Chuck Disclaim er: Please recognize that I am not a Medical Doctor. I have been an avid student researching and studying prostate cancer as a survivor and continuing patient since 1992. I have dedicated my retirement years to continued research and study in order to serve as an advocate for prostate cancer awareness, and, from a activist patient’s viewpoint, to help patients, caregivers, and others interested develop an understanding of prostate cancer, its treatment options, and the treatment of the side effects that often accompany treatment. Readers of this paper must understand that the comments or recommendations I make are not intended to be the procedure to blindly follow; rather, they are to be reviewed as my opinion, then used for further personal research, study, and subsequent discussion with the medical professional/physician providing prostate cancer care. Always as close as the other end of your computer to help address any prostate cancer concerns. " What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others. " (Chuck) Maack - Rmd, PCaA, PCaM Email: maack1@... PCa Help: " Observations " http://www.theprostateadvocate.com No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2176 / Virus Database: 2425/5014 - Release Date: 05/21/12

[Guest guest]

Those men will die of numerous reasons not just prostate cancer diagnostic

failure if they do not have regular checkups and react to bodily warnings of all

sorts. The USPSTF statement will have no net effect as the data shows.

Prostate over-treatment is a tremendous cash cow, driven by fear, and very much

based on anecdotal evidence from persons who underwent the treatment.

Neuroscience has shown that people want to " feel " right, not necessarily be

right. Once treated for confined PCa, that is a big driver of their perspective.

Mr Herbert has a very reasoned view of this situation, ah but we should all have

such a balanced view.

Rich Luxton

>

> Terry,

>  

> What I worry about is that subset of men who don't like to go to doctors in

the first place. They will see the USPSTF statement and use it to reinforce

their decision not to go. I surely believe some of them will die needlessly.

>  

> Manny

>

[Guest guest]

Did you have treatment?

Subject: RE: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer ScreeningTo: ProstateCancerSupport Date: Monday, May 21, 2012, 6:20 PM

Chuck and all,

I’m not starting and certainly won’t be joining in any discussion on the pros and cons of PSA testing. There is a good piece on The “New†Prostate Cancer Infolink at http://tinyurl.com/6wfrwpd with links to the actual recommendations and statements in support from Otis Brawley and against from Catalona. It makes interesting reading.

Most people may not know precisely what was recommended – and supported by a variety of organizations. This is it:

<snip> For men of any age, the USPSTF recommends that doctors and patients do not screen for prostate cancer because the potential benefits do not outweigh the harms. However, the

USPSTF realizes that some men may continue requesting the PSA test and some physicians may continue offering it. The decision to start or continue screening should be

an informed one that reflects an understanding of the possible benefits and harms and should respect an individual man’s preferences. <snip>

Speaking personally I simply do not understand what the fuss is about. Men who are concerned – whether they need to be concerned or not - can still request PSA tests. Doctors who believe in the value of PSA tests can still order them. The aim is that both parties – the doctor and the man should have a clear understanding of the limitations of the test. What is wrong with that?

I am an alien, so I can only observe actions in the US from afar, but it seems really odd to me that there are enormous outcries about Government treating people like children on the one hand and not treating them like children on the other. Surely adult sentient men should be given the known facts, ascertained by scientific studies on the potential benefits and harms associated with PSA tests. It is interesting in a country like South Africa – generally regarded as a Third World country, people cannot be given and AIDS test without first having counseling about the potential outcomes of the test. Would it be so hard to do tha same thing about PSA tests?

All the best

Prostate men need enlightening, not frightening

Terry Herbert - diagnosed in 1996 and still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport [mailto: ProstateCancerSupport ] On Behalf Of Chuck MaackSent: Tuesday, 22 May 2012 9:37 AMTo: Chuck MaackSubject: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

USPSTFPCaMHNVHCpressrelease052112.pdf

http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf

AMEN!

Chuck

Disclaim er: Please recognize that I am not a Medical Doctor. I have been an avid student researching and studying prostate cancer as a survivor and continuing patient since 1992. I have dedicated my retirement years to continued research and study in order to serve as an advocate for prostate cancer awareness, and, from a activist patient’s viewpoint, to help patients, caregivers, and others interested develop an understanding of prostate cancer, its treatment options, and the treatment of the side effects that often accompany treatment. Readers of this paper must understand that the comments or recommendations I make are not intended to be the procedure to blindly follow; rather, they are to be reviewed as my opinion, then used for further personal research, study, and subsequent discussion with the medical

professional/physician providing prostate cancer care.

Always as close as the other end of your computer to help address any prostate cancer concerns.

"What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others."

(Chuck) Maack - Rmd, PCaA, PCaM

Email: maack1@...

PCa Help: "Observations" http://www.theprostateadvocate.com

[Guest guest]

Gotcha beat as to “when” diagnosed, Terry….1992 and age 59 when diagnosed, also with Gleason 7/3+4….and like you, have lived “with” the beast ever since. Life goes on as long as we learn how to deal with the obstacles along the way and accept and get on with our lives for those which we cannot personally control. Chuck " What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others. " (Chuck) Maack - Rmd, PCaA, PCaM Email: maack1@... PCa Help: " Observations " http://www.theprostateadvocate.com From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Terry HerbertSent: Tuesday, May 22, 2012 12:15 AMTo: ProstateCancerSupport Subject: RE: Men's Health Network and Veterans Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer Screening I was 54 in 1996 when I was diagnosed with a Gleason 7 disease. All the best Terry

[Guest guest]

Hello Chuck,

Went to see Dr. Busby this AM but seen two PA'S. I lowered the boom

on Busby about his office presents and the time lapse without seeing

me. I did get the necessary paper work for transfer of my medical

records. He will leaving this week-end where he came from.

My PSA has doubled 13.6. Lupron shots is what she is going to do but

not after I see my PCP. He is new and wants to talk to me before I

see this other Dr. who first did my biopsy. My brain is spinning out

of control. What can I look forward too other than dying.

Thanks Pal

Rody

Men's

Health Network and Veterans Health Council Oppose

Final USPSTF Recommendation Against Prostate Cancer

Screening

USPSTFPCaMHNVHCpressrelease052112.pdf

http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf

AMEN!

Chuck

Disclaim

er: Please recognize that I am not a Medical Doctor.

I have been an avid student researching and studying

prostate cancer as a survivor and continuing patient

since 1992. I have dedicated my retirement years to

continued research and study in order to serve as an

advocate for prostate cancer awareness, and, from a

activist patient’s viewpoint, to help patients,

caregivers, and others interested develop an

understanding of prostate cancer, its treatment

options, and the treatment of the side effects that

often accompany treatment. Readers of this paper must

understand that the comments or recommendations I make

are not intended to be the procedure to blindly

follow; rather, they are to be reviewed as my opinion,

then used for further personal research, study, and

subsequent discussion with the medical

professional/physician providing prostate cancer care.

Always as

close as the other end of your computer to help

address any prostate cancer concerns.

"What you

leave behind is not what is engraved in stone

monuments, but what is woven into the lives of

others."

(Chuck) Maack - Rmd, PCaA, PCaM

Email: maack1@...

PCa Help:

"Observations" http://www.theprostateadvocate.com

[Guest guest]

Rody;Obviously I am not Chuck, but take it from me, just relax a bit.Not too long ago I was in your same position in wondering what to expect. At the time of my diagnosis, my PSA was 61.3. Gleason 3+4 7. After surgery my Gleason was upgraded to 4+3 7, with some lymph node involvement.On June 7, it will be 2 years since surgery. My PSA never did go to undetectable. Lowest it ever got was 0.1. Now it is rising back up and am on several meds to help control it.Enough about me. I write this note to you to let you know you are in good company here on this list. Several, if not all of us men here have been where you are. If your insurance is like mine, your PCP has to be the one who refers you to a specialist. That may be why you need to see yours first. I would not be too concerned with dying yet. You most likely still

have plenty of time to make an informed decision on your course of action. I have seen men on here with a PSA count out of sight (1000 and more), and most are still kicking. You might also want to check out Terry Herbert's site, http://www.yananow.org/There are 1000's of men there who have survived what we are going through and tell us in their own words what they did, are doing, and what kind of results there are getting.Just don't panic. I know the Big "C" word sends shivers up and down most everyone's spines, but worrying and being too anxious will not help anything. In fact, it may even cause unnecessary stress and more complications. Lupron shots are really quite painless. That is saying something for a guy who can pass out by just seeing a needle! I know I have to have them, and it goes well for me.Just take it one day at a time. Take a little walk. Read a good book. Do some of the things you have wanted

to do. Just let go and relax. Just because we have been diagnosed with prostate cancer doesn't mean we are going to keel over any time soon. Take care my new found friend,Dan Harriman 2 1/4 yr survivor since diagnosis, and 2 yr survivor since surgery. Still planning for the future!If at first you don't succeed, maybe you shouldn't try sky diving!

Men's

Health Network and Veterans Health Council Oppose

Final USPSTF Recommendation Against Prostate Cancer

Screening USPSTFPCaMHNVHCpressrelease052112.pdf http://www.menshealthnetwork.org/library/USPSTFPCaMHNVHCpressrelease052112.pdf AMEN! Chuck Disclaim

er: Please recognize that I am not a Medical Doctor.

I have been an avid student researching and studying

prostate cancer as a survivor and continuing patient

since 1992. I have dedicated my retirement years to

continued research and study in order to serve as an

advocate for prostate cancer awareness, and, from a

activist patient’s viewpoint, to help patients,

caregivers, and others interested develop an

understanding of prostate cancer, its treatment

options, and the treatment of the side effects that

often accompany treatment. Readers of this paper must

understand that the comments or recommendations I make

are not intended to be the procedure to blindly

follow; rather, they are to be reviewed as my opinion,

then used for further personal research, study, and

subsequent discussion with the medical

professional/physician providing prostate cancer care. Always as

close as the other end of your computer to help

address any prostate cancer concerns. "What you

leave behind is not what is engraved in stone

monuments, but what is woven into the lives of

others."

(Chuck) Maack - Rmd, PCaA, PCaM Email: maack1@... PCa Help:

"Observations" http://www.theprostateadvocate.com

[Guest guest]

Not when I was diagnosed. I chose what was

then called Watchful Waiting now AS (Active Surveillance). See http://www.yananow.org/display_story.php?id=984

if you are interested in the detail

All the best

Prostate men need enlightening, not

frightening

Terry Herbert - diagnosed in 1996 and

still going strong

Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From:

ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of Suzi Knowles

Sent: Wednesday, 23 May 2012 1:09

AM

To:

ProstateCancerSupport

Subject: RE:

Men's Health Network and Veterans Health Council Oppose

Final USPSTF Recommendation Against Prostate Cancer Screening

Did you have treatment?

Subject: RE: Men's Health Network and Veterans

Health Council Oppose Final USPSTF Recommendation Against Prostate Cancer

Screening

To: ProstateCancerSupport

Date: Monday, May 21, 2012, 8:00 PM

Suzi,

I respect your

decision and hope that all will be well into the future, but you say

<snip>

I think he would have died for sure if he didn't have that test. <snip>

That belief is not

necessarily based on facts. Of course he would have died at some time in

the future because we must all die some day, but not necessarily from

prostate cancer. As good old Dr Whitmore said “Growing old is invariably fatal while prostate cancer is

only sometimes so.”

All the best

Prostate men need

enlightening, not frightening

Terry Herbert -

diagnosed in 1996 and still going strong

Read A

Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html

From: ProstateCancerSupport

[mailto: ProstateCancerSupport ] On Behalf Of Suzi Knowles

Sent: Tuesday, 22 May 2012

12:40 PM

To:

ProstateCancerSupport

Subject: RE:

Men's Health Network and Veterans Health Council

Oppose Final USPSTF Recommendation Against Prostate Cancer Screening

I just want to say that I am very thankful for a

doctor that ordered PSA testing for my husband as part of his regular 50

year old testing. My husband was asymptomatic.

The path report following surgery said that my

husband has Gleason 4+3 stage 3 cancer with the

cancer spreading just outside the prostate (they think they got

everything in surgery).

I think he would have died for sure if he didn't

have that test.

As it is, his 3 month post surgery PSA was

undetectable, and he'll get his next test done in a few weeks.

We're still debating whether or not he should have radiation.

[Guest guest]

Alan,

You are absolutely correct in your perspective. Unfortunately, it is not

feasible, at least today, to find " best practices " of treatment throughout the

country. Matter of fact, many are met with a gloom and doom prognostication that

may or may not be warranted. That latter happened to my neighbor.

As with any activity where there is little consistency, many egos, and numerous

other causes, treatments vary widely based upon even wider abilities to either

provide or assess those treatments.

Under the current scenario of medical practice in the USA, the recommended

approach is valid. Furthermore, there aren't enough Dr Myers to treat everyone.

The underlying issue is far larger than the panel's recommended approach.

The next generation proton radiation therapy machines are being, or were being,

developed upon the economic model derived from prostate cancer treatment. PCa

treatment is considered the based load revenue source.

I wish it were different but it is not.