Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Connie, Hivers often experience joint pain because one of the by-products of mast cell degranulation is PGD2. Aspirin and some NASIDS actually destroy PGD2, this is not just " masking " pain this is destoying the by-product that produces joint swelling and inflamation. However, this course of treatment needs to be followed with the help of a Dr, since about 5% of hivers are salicylate reactive which is the major compotent of aspirin and NSAIDS. Also, you need to have a test for h-pylori and be on H2 to protect the stomach lining, at the recommended doses. Some people like my daughter who has had systemic anaphalaxis can actually be controlled by massive doses of NASIDS. Hope this helps. Hugs, Myra joint pain >I am wondering... How many of you poor urticaria sufferers have chronic joint >pain also? I am only 30 years old and have chronic hip pain and sometimes >knee pain. I have been to arthritis doctors and have had x-rays and blood >tests, but they say nothing is wrong with my hips. Just wondering if anyone >else has had difficulty with this. Any suggestions? > >Connie > >------------------------------------------------------------------------ >Save 75% on Products! >Find incredible deals on overstocked items with Free shipping! >http://click./1/4013/1/_/453246/_/958180075/ >------------------------------------------------------------------------ > >This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other >as a worldwide cyber-family. > >We post medical information, mental health information, and other informatoin. > >Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2000 Report Share Posted July 12, 2000 I get the joint pain pretty badly as well...and I've tried all the NSAID's. I find that Voltaren works the best. However there is a new one called Cataflam which is sodium free which is even better. Remember to always take these meds on a full stomach....it's very important. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 Hi everyone, I have had CU for 7 months now and only afew days ago I have been getting joint pain. I dont know if it is related to my CU and the side effects from taking prednisolone. My doc is on holiday so I felt that I needed to mail my itching friends for any help and advice. The pain is in my ankles and I am finding it really hard to walk properly, I am hobbling about everywhere! Is there anything I can take to help with this pain? I would appreciate any help or tips from anyone. Take care and I wish you all well. Dawn - UK -----Original Message-----From: Myra & Sent: 12 July 2000 17:47To: urticaria@...; urticariaegroupsCc: Annie66@...Subject: Joint Pain Tammy wrote: I hate to be a whiner, but I think the joint pain is worse than the hives! Does anyone have joint pain every day?? Have you been told not to use NSAIDS, like ibuprofen? I was told not to use them but cant function without them some days! Extra strength Tylenol is totally useless! I am exhausted by the end of a day at work and the pain and swelling is downright awful! Tammy, I don't know why you were told to stay away from NSAID's, if this is do to another medical condition or because of a salicylate reaction, but generally NSAID's are prescribed by some top Drs for urticaria as they do control PGD2 which is often the cause of joint swelling in hivers. Other meds which might help on this front are singular or accolate, since they work on the leukotrienes which are part of the second phase response. I don't remember all the specifics of your case, but another possible med to discuss with your DR, if you have significant digestive tract involvement is gastrocrom.......which also helps with joint swelling. Hugs, MyraThis list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 Myra, I was on NSAID's for about 6 mos. and got really ill -- I then tested positive for drug induced lupus. After 6 mos. off, I don't test positive anymore. The doc felt that the NSAIDs were the cause. I dealt with the weakness and joint pain by seeing a physical therapist that specialized in sports medicine. They taught me great posture for strength; how to do most of my chores with less stress on certain areas. I also get out of a car differently and breath differently. Also showed some great tips for the ankle & calf areas which sometimes feel like I have shin splits. It really makes a difference. It is not a cure but I can deal with much more pain and it reduces the fatigue. in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 One thing that helps me is to take plenty of calcium and potassium. If you're on Pred, you should be taking calcium supplements anyway, since Pred sucks the calcium right out of you and can lead to osteoporosis and breakage of teeth. (Learned that the hard way.) I take 600 mg of calcium every day; double that when I take Pred. Plus try to get plenty in my diet. If I don't take the calcium I start to also get severe muscle cramps. For potassium, I eat a banana or two every day. > >Reply-To: urticariaegroups >To: " 'urticariaegroups' " <urticariaegroups> >Subject: RE: Joint Pain >Date: Thu, 13 Jul 2000 09:44:02 +0100 > >Hi everyone, I have had CU for 7 months now and only afew days ago I have >been getting joint pain. I dont know if it is related to my CU and the >side >effects from taking prednisolone. My doc is on holiday so I felt that I >needed to mail my itching friends for any help and advice. The pain is in >my ankles and I am finding it really hard to walk properly, I am hobbling >about everywhere! Is there anything I can take to help with this pain? I >would appreciate any help or tips from anyone. Take care and I wish you >all >well. > >Dawn - UK ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 Thanks to all who wrote back about their joint pain and the NSAID use. I have a follow up appointment tomorrow with my rheumatologist and I'll be sure to get something for the pain. I have had hives for almost 8 months now. I am currently taking Zyrtec, Zantac, and Accolate. I have been off of prednisone for over 1month, with the exception of a 3 day burst a week ago for a bad outbreak that really hurt my feet so bad I couldn't walk for 24hrs. So I don't really attribute the joint pain to the prednisone. My hives really seem to be under control, they come and go, itch a little, not so bothersome. As for the blood tests, I've been drained of atleast a gallon of blood (Blood letting, maybe a cure???). Had Complement series, Lyme disease, ANA, Sed Rate, Rheumatoid factor, Anti ds dna, cbc, urinalysis, and maybe a few more. Oh yeah, they tested me for syphillis!!! Thankfully that was negative! Ever get the feeling your Drs pass you around to another when they dont know what to do next for you? Thanks again for all the responses! Tammy in MI Joint Pain Tammy wrote: I hate to be a whiner, but I think the joint pain is worse than the hives! Does anyone have joint pain every day?? Have you been told not to use NSAIDS, like ibuprofen? I was told not to use them but cant function without them some days! Extra strength Tylenol is totally useless! I am exhausted by the end of a day at work and the pain and swelling is downright awful! Tammy, I don't know why you were told to stay away from NSAID's, if this is do to another medical condition or because of a salicylate reaction, but generally NSAID's are prescribed by some top Drs for urticaria as they do control PGD2 which is often the cause of joint swelling in hivers. Other meds which might help on this front are singular or accolate, since they work on the leukotrienes which are part of the second phase response. I don't remember all the specifics of your case, but another possible med to discuss with your DR, if you have significant digestive tract involvement is gastrocrom.......which also helps with joint swelling. Hugs, Myra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 Thanks to all who wrote back about their joint pain and the NSAID use. I have a follow up appointment tomorrow with my rheumatologist and I'll be sure to get something for the pain. I have had hives for almost 8 months now. I am currently taking Zyrtec, Zantac, and Accolate. I have been off of prednisone for over 1month, with the exception of a 3 day burst a week ago for a bad outbreak that really hurt my feet so bad I couldn't walk for 24hrs. So I don't really attribute the joint pain to the prednisone. My hives really seem to be under control, they come and go, itch a little, not so bothersome. As for the blood tests, I've been drained of atleast a gallon of blood (Blood letting, maybe a cure???). Had Complement series, Lyme disease, ANA, Sed Rate, Rheumatoid factor, Anti ds dna, cbc, urinalysis, and maybe a few more. Oh yeah, they tested me for syphillis!!! Thankfully that was negative! Ever get the feeling your Drs pass you around to another when they dont know what to do next for you? Thanks again for all the responses! Tammy in MI Joint Pain Tammy wrote: I hate to be a whiner, but I think the joint pain is worse than the hives! Does anyone have joint pain every day?? Have you been told not to use NSAIDS, like ibuprofen? I was told not to use them but cant function without them some days! Extra strength Tylenol is totally useless! I am exhausted by the end of a day at work and the pain and swelling is downright awful! Tammy, I don't know why you were told to stay away from NSAID's, if this is do to another medical condition or because of a salicylate reaction, but generally NSAID's are prescribed by some top Drs for urticaria as they do control PGD2 which is often the cause of joint swelling in hivers. Other meds which might help on this front are singular or accolate, since they work on the leukotrienes which are part of the second phase response. I don't remember all the specifics of your case, but another possible med to discuss with your DR, if you have significant digestive tract involvement is gastrocrom.......which also helps with joint swelling. Hugs, Myra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2000 Report Share Posted July 13, 2000 I sincerely know how you feel. One of the things that seems to help me is to soak my feet in warm water. I also like to add Avon's theraputic foot soak to the water. It has a nice cooling sensation. I suppose any foot soak product would do. It seems to relieve the tenderness just a bit, helps soothe the itching too. Good Luck! Try to stay off your feet. Tammy in MI RE: Joint Pain Hi everyone, I have had CU for 7 months now and only afew days ago I have been getting joint pain. I dont know if it is related to my CU and the side effects from taking prednisolone. My doc is on holiday so I felt that I needed to mail my itching friends for any help and advice. The pain is in my ankles and I am finding it really hard to walk properly, I am hobbling about everywhere! Is there anything I can take to help with this pain? I would appreciate any help or tips from anyone. Take care and I wish you all well. Dawn - UK -----Original Message-----From: Myra & Sent: 12 July 2000 17:47To: urticaria@...; urticariaegroupsCc: Annie66@...Subject: Joint Pain Tammy wrote: I hate to be a whiner, but I think the joint pain is worse than the hives! Does anyone have joint pain every day?? Have you been told not to use NSAIDS, like ibuprofen? I was told not to use them but cant function without them some days! Extra strength Tylenol is totally useless! I am exhausted by the end of a day at work and the pain and swelling is downright awful! Tammy, I don't know why you were told to stay away from NSAID's, if this is do to another medical condition or because of a salicylate reaction, but generally NSAID's are prescribed by some top Drs for urticaria as they do control PGD2 which is often the cause of joint swelling in hivers. Other meds which might help on this front are singular or accolate, since they work on the leukotrienes which are part of the second phase response. I don't remember all the specifics of your case, but another possible med to discuss with your DR, if you have significant digestive tract involvement is gastrocrom.......which also helps with joint swelling. Hugs, MyraThis list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2000 Report Share Posted July 17, 2000 Conflicting information- My allergist told me to stay away from NSAID's and beta blockers (bp medication) as they can exacerbate the hives. Also if you have ever had a tightening of the throat or trouble breathing (even if you haven't shocked) it may be a good idea to have an epipen. Better safe than sorry. I ignored these symptoms until it was too late. Sallie >>> 7/16/00 10:53:25 PM >>> Urticaria In a message dated 07/12/2000 11:45:50 AM US Mountain Standard Time, titus@... writes: << generally NSAID's are prescribed by some top Drs for urticaria as they do control PGD2 which is often the cause of joint swelling in hivers. >> I have never heard of NSAID's being prescribed FOR urticaria. In fact, in my experience over the last 20 years, many people who have CIU are advised to stay away from NSAID's of any kind, as they can frequently cause a serious reaction. At least they do in my case. So be very careful. What experiences have others had with NSAID's is ______________________________________________________________________ To unsubscribe, write to urticaria-unsubscribe@... BEST PRICES ON THE NET AT IMANDI.COM Cheapest prices on new cars, insurance, airfare, maids, custom pc's, mortgages, moving and more! Tell us what you want. We locate it for free -- across town & across the country. http://www.bcentral.com/listbot/imandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 kate444 wrote: > Does anyone else have joint pain who is not taking pred? > Kate, I have had joint pain (hip and knee) with urticaria and without taking the evil Prednisone. My joint pain is not nearly as bad on the yeast free diet (so far). Connie > > > > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Hey Connie, I am curious what you eat in your daily diet. I have been having a terrible time deleting grains from my diet. I eat a lot of protein and vegetables, but when it comes to breakfast, eggs by themselves aren't really appealing to me. Fruit around our house seems to go bad before it gets all eaten. That is probably my problem. Love on another, P. in KC, MO ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
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