Re: Re: irrational behaviors with mepron---is this ok?

[Guest guest]

Heidi,

I always appreciate your advice as you do seem to be very similar to my daughter with autism ( very chemically sensitve, tons of food allergies, terrible at fighting virus', subject to lots of inflammation and environmental factors ( ie. places, people, weather, you know the drill) I will look into the African Mango and Nigella Sativa. We are using Immusist and K-MAF, as well as Neem Synergy and Propolis.

Roseann

Re: irrational behaviors with mepron---is this ok?

Every herbal immune booster I have used has given me great results. You don't really have total high immunity; you only have parts of the immune system high. So, whenever you have some parts of the immune system high, you will have some parts low. The Th1/Th2 balance is a good explanation as to this. My immune system over-reacts to chemicals and under-reacts to intracellular pathogens, which is actually what is typically reported amongst the autism community. This is why people display food allergies, but not enough to kill pathogens. Some people say to be worried about immune boosters and only take immune modulators, but they both make me feel better. My current favorites for the immune system are bee products (pollen, propolis), African Mango, and my new favorite is Nigella Sativa, often referred to as Black Seed. (Note: other herbs may also be called Black Seed, but are a different herb.) Taking African Mango and Nigella Sativa together is much more effective for me than taking them separate. See what you health care practitioner says about immune system options.

Love and prayers,

Heidi N

How do you support a kid who is HYPER immune? He has normal IgG's. IgE's are high. Immune modulators? We are scared to make it worse......but their has to be a reason why this happens every time.

Chris

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[Guest guest]

I agree with the binder suggestion. I just don't do the abx anymore and only do herbs but either way, you need a good binder to sweep up the toxins. We use cholestyromine and that's worked wonders with my son and we also have to use the oxypowder at night and with that combo he has really improved and there's no constipation. I have heard the bentonite also is a good binder and you don't need a rx to get that but have not needed to try it. I'm sure it would be far less than the 230.00 a month I spend on the chol. but all this is working so well I don't dare change anything! At the same time, we are doing the Limu and a PEMF device at night. Deb

Re: irrational behaviors with mepron---is this ok?

What about using a binder, like charcoal or bentonite, 2-3 hours after and before meds, and make sure the bowels keep moving (like oxy powder, or magnesium citrate) before bed?>> hi everyone,> my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long?> thanks>

[Guest guest]

Allie,

What type of binder and what detoxes are you using? I did not see any so wondering if you are not using a good binder like cholesyromine? I have heard the bendonite is good also. And also wondering if you are using good detox? The first time we tried abx (my son is pos for lyme and lots of co-infections), the LLMD did not offer any binder or detox and I thought 's head would explode. I actually did have burber so it probably helped some but we don't do abx anymore. Anyway, whether you are doing abx or doing herbs like we are, a good binder is a must and I use 3 different detoxes now and that way we sweep up all the toxins that are flooding the system...the liver cannot handle all this and you will go through hell. Just did not see that so didn't know if you had that covered. We didn't know at first. Deb

Re: irrational behaviors with mepron---is this ok?

I just stopped giving my son Zithromax today. At first he did great a few weeks ago, and then has gotten worse; OCD, and other behaviors. Also I heard in the news today, that Zithromax is linked to Cardio heart pts, death. Its so frustrating as to, what to do, and so many of our kiddo's sound like they are having the same issues! Wonder if they need to do this like pluse IV antibx's are used? Anyone have ideas? Plus my son does not sleep while on Zithromax, so its so miserable.Allie> > > hi everyone,> > my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long?> > thanks > > > >>

[Guest guest]

Hey there just thought I would mention the CD-57. I know there are two different test result with this test and it's a good marker for how you are doing but the LLMD usually looks at the T-Cell, Natural Killer Cell count with the range of 60-360 as being considered "normal". Most good LLMD's know now we want our kids to be around 100-150 before we take a breath and feel good about their treatment. Most drs feel 60 is normal (it isn't) and most LLMD's are at least of the thought that you need to be at 100 before you think you are in remission. My son was at a 32 (good marker for pos for lyme or a syphilis type spirochette). Anyway, you may want to make sure you are looking at the right set of numbers for using the CD-57 results as your baseline. Deb

Re: irrational behaviors with mepron---is this ok?

my son has babesia (and has the strain that's hard to treat) and erlichosis. but the lyme tests have all been negative. his Labcore cd57 test is low at 1.6 (the range is 2-17). he is on mepron and z-max right now. his OCDs are almost intolerable. we are going to add homeopathy to the mix to help his detox. he is nonverbal so he can't tell me if something is hurting or helping him---so how the heck will i know if any of these meds are actually doing anything? > > > hi everyone,> > my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long?> > thanks > > > >>

[Guest guest]

Hey there Deborah,

No I have not noticed the oxypowder killing off beneficial bacteria but I do klaire Labs complete probiotic powder which is 100 billion CFUs of beneficial bacteria and also saccharomyces boulardii 3+ billion, both twice daily and Dr B would have me do that 3 X's a day but frankly I think it's overkill and with anti-micobibials and good bacteria needing to be separated, that's just too big a pain in the rear. So... since we know we are wiping out good bacteria with killer herbals like me or abx like most people, we know we have to provide good, regular probiotics anyway. Not sure why he thinks it's wiping out good bacteria but since it's a cleanse (a cleanse using ozonated magnesium oxides), perhaps he's right, but we support with good probiotics. Before cholestyromine, oxypowder, oreganol, I did see some scratching at the rectum but not since this protocol and I've checked his labs (yeast and bacteria by products) and he does not have those issues using oxypowder (4 capsules at night, every night). has no constipation, no bloating, no gas and now that I think about it, gas use to be a big issue so we are killing/balancing something with this protocol. My son needs the chol 4 times a day and we worked up very slowly. Oh and don't jump into 200 Billion CFU's of probiotics either if you are not doing that now. I took probably a month of less than half that before I got him up to this much. I really hope this helps and I know that every kid is different. Deb

p.s. I'm not surprised at the constipation and you really CANNOT do chol without doing something VERY effective at keeping things moving. Chol protocols insist that there's two good bowel movements a day AT ALL COSTS. Or, like you are suspecting, you would have to stop the chol.

Re: irrational behaviors with mepron---is this ok?

hey deb, have you noticed the oxypowder killing off the beneficial bacteria at all? A well known doc told me to stop oxypowder because he said it killed the good guys... the cholestyramine is still causeing the constipation/bloating and gas for my son and have gone down to twice a week, but it doesnt seem to be helping as well that infrequently. deborah> >> > hi everyone,> > my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long?> > thanks> >>