Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 Hello to all. My name is Dominic and I am 44 years old and of asian origin. I been diagnosed with prostate cancer last June. The discovery stated with my complain to my doctor as I have to visit bathroom every hour to pee during night. Last year (March 2011), my previous medical facility took blood sample and i had 7.68 PSA. I had a rectal check and sonar check and my prostate shows no sign of enlargement and irregularities. So they diagnosed me with UTI and they gave me Cipro for 14 days. After a year (March 2012), I moved to another medical facility and open the same problem. They took blood samples again and PSA result is 5.26. I was referred to a Urology and as I mentioned to him that my family have a history of prostate cancer (my grandfather died of prostate cancer - 1995), he recommended a prostate biopsy. June 5, 2012 I had a biopsy. 12 samples - 6 on the left and 6 on the right. The result is 6 samples on the right shows no cancer and 1 out of 6 samples on the left shows 50% of the cancer scored Gleason 3+4=7. I took second opinion and sent my slides to a reputable pathologist in NY and they confirmed I was positive. It is really difficult times as I am not very knowledgeable about what PC is. Joining this group have boosted my ego and self confidence that there are lot of chances and options of treatment available. Ideas and advises are often encouraging. I been diagnosed also with prostatitis and I am on 30 days Cipro. My urology offered me a surgery and at the same time a second opinion as he refered me to Oncolorgy Radiation specialist. The oncology provided me some insights and after analysing the biopsy and other relevant medical results, he provided me an option for radiation therapy. For some points, he mentioned to me that I am qualified for this kind of treatment as the cancer is still localized. Also he mentioned that it is in the early stage. I have an incoming Prostate MRI this August and have included me already in the cancer care program. Another schedule of PSA check is on the way before the start of the program which starts on beginning of September with a 30 days of Bicalutamide. In the mid Sept. I will have my first of 2 Lupron. Mid November to Mid January start of Radiotherapy. Mid December is my second of 2 Lupron. I want to share this with you as I have some questions or I want to solicit opinion. 1. Question about PSA.- Does Cipro use for treating my prostatitis affects the PSA going up or down? 2. Question about my biopsy result. - granting that only 1 sample is positive our of the 6 samples, does this really confirmed that my cancer is still localized? 3. Question about my choice of treatment which is Radiotherapy. - Did I make the good decision here? I really appreciate your feedback. Please forgive my english and grammar. I am happy to join this group and been reading a lot of exchanges in this group. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 Tuga,Just having one positive core does not confirm that the cancer is still locted in the gland, but it is VERY likely that it is still localized. You certainly could do a treatent at this point, but you will have some degree (no way to pre-determine to what extent) of side effects which could include incontenence and impotence. Having just one core positive you could give serious consideration to active survallence along with life style modifications including diet modifications. Given your very young age I ask that you learn about this approach before making any decisions, you do not have to rush to make such a serious decision. Take your time, speak to other men who are involved in active survalence as well as men who have had surgery and radiation treatments. If you do opt for a trearment protocol other than active survalience also look in to cryotherapy as well as surgery and radiation. Also, remembern that these treatments (other than AS) will leave you infertile, so think about banking sperm prior to any treatment. At 44 years you still might decide to father a child so leave this option available. T Nowak, M.A., M.S.W.Director of Advocacy & Advanced Prostate Cancer ProgramsMalecarewww.malecare.comwww.advancedprostatecancer.net Hello to all. My name is Dominic and I am 44 years old and of asian origin. I been diagnosed with prostate cancer last June. The discovery stated with my complain to my doctor as I have to visit bathroom every hour to pee during night. Last year (March 2011), my previous medical facility took blood sample and i had 7.68 PSA. I had a rectal check and sonar check and my prostate shows no sign of enlargement and irregularities. So they diagnosed me with UTI and they gave me Cipro for 14 days. After a year (March 2012), I moved to another medical facility and open the same problem. They took blood samples again and PSA result is 5.26. I was referred to a Urology and as I mentioned to him that my family have a history of prostate cancer (my grandfather died of prostate cancer - 1995), he recommended a prostate biopsy. June 5, 2012 I had a biopsy. 12 samples - 6 on the left and 6 on the right. The result is 6 samples on the right shows no cancer and 1 out of 6 samples on the left shows 50% of the cancer scored Gleason 3+4=7. I took second opinion and sent my slides to a reputable pathologist in NY and they confirmed I was positive. It is really difficult times as I am not very knowledgeable about what PC is. Joining this group have boosted my ego and self confidence that there are lot of chances and options of treatment available. Ideas and advises are often encouraging. I been diagnosed also with prostatitis and I am on 30 days Cipro. My urology offered me a surgery and at the same time a second opinion as he refered me to Oncolorgy Radiation specialist. The oncology provided me some insights and after analysing the biopsy and other relevant medical results, he provided me an option for radiation therapy. For some points, he mentioned to me that I am qualified for this kind of treatment as the cancer is still localized. Also he mentioned that it is in the early stage. I have an incoming Prostate MRI this August and have included me already in the cancer care program. Another schedule of PSA check is on the way before the start of the program which starts on beginning of September with a 30 days of Bicalutamide. In the mid Sept. I will have my first of 2 Lupron. Mid November to Mid January start of Radiotherapy. Mid December is my second of 2 Lupron. I want to share this with you as I have some questions or I want to solicit opinion. 1. Question about PSA.- Does Cipro use for treating my prostatitis affects the PSA going up or down? 2. Question about my biopsy result. - granting that only 1 sample is positive our of the 6 samples, does this really confirmed that my cancer is still localized? 3. Question about my choice of treatment which is Radiotherapy. - Did I make the good decision here? I really appreciate your feedback. Please forgive my english and grammar. I am happy to join this group and been reading a lot of exchanges in this group. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 Dear , Thanks a lot for your advise. I will keep it and will weight with other similar opinions at hand. Again, really appreciate your feedback. > > > Hello to all. My name is Dominic and I am 44 years old and of asian origin. I been diagnosed with prostate cancer last June. The discovery stated with my complain to my doctor as I have to visit bathroom every hour to pee during night. Last year (March 2011), my previous medical facility took blood sample and i had 7.68 PSA. I had a rectal check and sonar check and my prostate shows no sign of enlargement and irregularities. So they diagnosed me with UTI and they gave me Cipro for 14 days. After a year (March 2012), I moved to another medical facility and open the same problem. They took blood samples again and PSA result is 5.26. I was referred to a Urology and as I mentioned to him that my family have a history of prostate cancer (my grandfather died of prostate cancer - 1995), he recommended a prostate biopsy. June 5, 2012 I had a biopsy. 12 samples - 6 on the left and 6 on the right. The result is 6 samples on the right shows no cancer and 1 out of 6 samples on the left shows 50% of the cancer scored Gleason 3+4=7. I took second opinion and sent my slides to a reputable pathologist in NY and they confirmed I was positive. It is really difficult times as I am not very knowledgeable about what PC is. Joining this group have boosted my ego and self confidence that there are lot of chances and options of treatment available. Ideas and advises are often encouraging. I been diagnosed also with prostatitis and I am on 30 days Cipro. My urology offered me a surgery and at the same time a second opinion as he refered me to Oncolorgy Radiation specialist. The oncology provided me some insights and after analysing the biopsy and other relevant medical results, he provided me an option for radiation therapy. For some points, he mentioned to me that I am qualified for this kind of treatment as the cancer is still localized. Also he mentioned that it is in the early stage. I have an incoming Prostate MRI this August and have included me already in the cancer care program. Another schedule of PSA check is on the way before the start of the program which starts on beginning of September with a 30 days of Bicalutamide. In the mid Sept. I will have my first of 2 Lupron. Mid November to Mid January start of Radiotherapy. Mid December is my second of 2 Lupron. I want to share this with you as I have some questions or I want to solicit opinion. 1. Question about PSA.- Does Cipro use for treating my prostatitis affects the PSA going up or down? 2. Question about my biopsy result. - granting that only 1 sample is positive our of the 6 samples, does this really confirmed that my cancer is still localized? 3. Question about my choice of treatment which is Radiotherapy. - Did I make the good decision here? I really appreciate your feedback. Please forgive my english and grammar. I am happy to join this group and been reading a lot of exchanges in this group. Thank you very much. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 Hello. I do not know where you live , but with regard to your selection of radiotherapy , I would make two points: (1)Given your relative young age, there may be a long term risk of another type of cancer later in live due to the radiation treatment. Check it out. (2) As an alternative, consider proton beam therapy, which can be more direct, with fewer side effects. Regards, T Hello to all. My name is Dominic and I am 44 years old and of asian origin. I been diagnosed with prostate cancer last June. The discovery stated with my complain to my doctor as I have to visit bathroom every hour to pee during night. Last year (March 2011), my previous medical facility took blood sample and i had 7.68 PSA. I had a rectal check and sonar check and my prostate shows no sign of enlargement and irregularities. So they diagnosed me with UTI and they gave me Cipro for 14 days. After a year (March 2012), I moved to another medical facility and open the same problem. They took blood samples again and PSA result is 5.26. I was referred to a Urology and as I mentioned to him that my family have a history of prostate cancer (my grandfather died of prostate cancer - 1995), he recommended a prostate biopsy. June 5, 2012 I had a biopsy. 12 samples - 6 on the left and 6 on the right. The result is 6 samples on the right shows no cancer and 1 out of 6 samples on the left shows 50% of the cancer scored Gleason 3+4=7. I took second opinion and sent my slides to a reputable pathologist in NY and they confirmed I was positive. It is really difficult times as I am not very knowledgeable about what PC is. Joining this group have boosted my ego and self confidence that there are lot of chances and options of treatment available. Ideas and advises are often encouraging. I been diagnosed also with prostatitis and I am on 30 days Cipro. My urology offered me a surgery and at the same time a second opinion as he refered me to Oncolorgy Radiation specialist. The oncology provided me some insights and after analysing the biopsy and other relevant medical results, he provided me an option for radiation therapy. For some points, he mentioned to me that I am qualified for this kind of treatment as the cancer is still localized. Also he mentioned that it is in the early stage. I have an incoming Prostate MRI this August and have included me already in the cancer care program. Another schedule of PSA check is on the way before the start of the program which starts on beginning of September with a 30 days of Bicalutamide. In the mid Sept. I will have my first of 2 Lupron. Mid November to Mid January start of Radiotherapy. Mid December is my second of 2 Lupron. I want to share this with you as I have some questions or I want to solicit opinion. 1. Question about PSA.- Does Cipro use for treating my prostatitis affects the PSA going up or down? 2. Question about my biopsy result. - granting that only 1 sample is positive our of the 6 samples, does this really confirmed that my cancer is still localized? 3. Question about my choice of treatment which is Radiotherapy. - Did I make the good decision here? I really appreciate your feedback. Please forgive my english and grammar. I am happy to join this group and been reading a lot of exchanges in this group. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 I would suggest to perform another biospy. To: ProstateCancerSupport Sent: Tuesday, July 31, 2012 5:21 PM Subject: Re: Help Me Hello. I do not know where you live , but with regard to your selection of radiotherapy , I would make two points: (1)Given your relative young age, there may be a long term risk of another type of cancer later in live due to the radiation treatment. Check it out. (2) As an alternative, consider proton beam therapy, which can be more direct, with fewer side effects. Regards, T Hello to all. My name is Dominic and I am 44 years old and of asian origin. I been diagnosed with prostate cancer last June. The discovery stated with my complain to my doctor as I have to visit bathroom every hour to pee during night. Last year (March 2011), my previous medical facility took blood sample and i had 7.68 PSA. I had a rectal check and sonar check and my prostate shows no sign of enlargement and irregularities. So they diagnosed me with UTI and they gave me Cipro for 14 days. After a year (March 2012), I moved to another medical facility and open the same problem. They took blood samples again and PSA result is 5.26. I was referred to a Urology and as I mentioned to him that my family have a history of prostate cancer (my grandfather died of prostate cancer - 1995), he recommended a prostate biopsy. June 5, 2012 I had a biopsy. 12 samples - 6 on the left and 6 on the right. The result is 6 samples on the right shows no cancer and 1 out of 6 samples on the left shows 50% of the cancer scored Gleason 3+4=7. I took second opinion and sent my slides to a reputable pathologist in NY and they confirmed I was positive. It is really difficult times as I am not very knowledgeable about what PC is. Joining this group have boosted my ego and self confidence that there are lot of chances and options of treatment available. Ideas and advises are often encouraging. I been diagnosed also with prostatitis and I am on 30 days Cipro. My urology offered me a surgery and at the same time a second opinion as he refered me to Oncolorgy Radiation specialist. The oncology provided me some insights and after analysing the biopsy and other relevant medical results, he provided me an option for radiation therapy. For some points, he mentioned to me that I am qualified for this kind of treatment as the cancer is still localized. Also he mentioned that it is in the early stage. I have an incoming Prostate MRI this August and have included me already in the cancer care program. Another schedule of PSA check is on the way before the start of the program which starts on beginning of September with a 30 days of Bicalutamide. In the mid Sept. I will have my first of 2 Lupron. Mid November to Mid January start of Radiotherapy. Mid December is my second of 2 Lupron. I want to share this with you as I have some questions or I want to solicit opinion. 1. Question about PSA.- Does Cipro use for treating my prostatitis affects the PSA going up or down? 2. Question about my biopsy result. - granting that only 1 sample is positive our of the 6 samples, does this really confirmed that my cancer is still localized? 3. Question about my choice of treatment which is Radiotherapy. - Did I make the good decision here? I really appreciate your feedback. Please forgive my english and grammar. I am happy to join this group and been reading a lot of exchanges in this group. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 Get a copy of Dr Walsh's book on surviving prostate cancer. You can probably get a copy at the local library. He covers how PC is detected, treated, and spreads. An estimated 30,000,000 men in America have PC. Only 1 out of 1,000 will die in any year. This is why most men do not need treatment. Unfortunately you have a Gleason 4 cancer. You need treatment. The cancer has to be removed or killed. Memorial Sloan-Kettering has prostate cancer prediction tools on their website. You enter your data and you can see the long term results for different treatment options. http://www.mskcc.org/cancer-care/adult/prostate/prediction-tools Good luck. Keep asking questions. Charlie D. To: ProstateCancerSupport Sent: Tuesday, July 31, 2012 5:44 PM Subject: Help Me Hello to all. My name is Dominic and I am 44 years old and of asian origin. I been diagnosed with prostate cancer last June. The discovery stated with my complain to my doctor as I have to visit bathroom every hour to pee during night. Last year (March 2011), my previous medical facility took blood sample and i had 7.68 PSA. I had a rectal check and sonar check and my prostate shows no sign of enlargement and irregularities. So they diagnosed me with UTI and they gave me Cipro for 14 days. After a year (March 2012), I moved to another medical facility and open the same problem. They took blood samples again and PSA result is 5.26. I was referred to a Urology and as I mentioned to him that my family have a history of prostate cancer (my grandfather died of prostate cancer - 1995), he recommended a prostate biopsy. June 5, 2012 I had a biopsy. 12 samples - 6 on the left and 6 on the right. The result is 6 samples on the right shows no cancer and 1 out of 6 samples on the left shows 50% of the cancer scored Gleason 3+4=7. I took second opinion and sent my slides to a reputable pathologist in NY and they confirmed I was positive. It is really difficult times as I am not very knowledgeable about what PC is. Joining this group have boosted my ego and self confidence that there are lot of chances and options of treatment available. Ideas and advises are often encouraging. I been diagnosed also with prostatitis and I am on 30 days Cipro. My urology offered me a surgery and at the same time a second opinion as he refered me to Oncolorgy Radiation specialist. The oncology provided me some insights and after analysing the biopsy and other relevant medical results, he provided me an option for radiation therapy. For some points, he mentioned to me that I am qualified for this kind of treatment as the cancer is still localized. Also he mentioned that it is in the early stage. I have an incoming Prostate MRI this August and have included me already in the cancer care program. Another schedule of PSA check is on the way before the start of the program which starts on beginning of September with a 30 days of Bicalutamide. In the mid Sept. I will have my first of 2 Lupron. Mid November to Mid January start of Radiotherapy. Mid December is my second of 2 Lupron. I want to share this with you as I have some questions or I want to solicit opinion. 1. Question about PSA.- Does Cipro use for treating my prostatitis affects the PSA going up or down? 2. Question about my biopsy result. - granting that only 1 sample is positive our of the 6 samples, does this really confirmed that my cancer is still localized? 3. Question about my choice of treatment which is Radiotherapy. - Did I make the good decision here? I really appreciate your feedback. Please forgive my english and grammar. I am happy to join this group and been reading a lot of exchanges in this group. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 Dominic,You are young for PC. I was diagnosed two years ago at 53. That puts us both in the 1-2% of youngest. I had 3+3 with quite a few more positives. Post surgery the prostate analysis was a bit worse score than the biopsy. Biopsy can miss cancer. I chose surgery because the likelihood of living quite a few years was there (I could easily last 20-25 more years) and I did not want a chance of re-occurrence at an advanced age. In my case (and I expect yours) the chance of it getting out in any major way was small. Having said that the time for any escaping to grow to a problem is a bit longer than for most that are diagnosed. Â The major treatments are surgery to remove the prostate or radiation (seed and beam or both). There are others, proton and Cryo. Proton is, I think, like beam and Cryo is like seed. In all treatments the number one, two and three most important things are: get a doctor with over 200 procedures, get a doctor with over 200 procedures, and get a doctor with over 200 procedures. In all treatments the prostate is destroyed/removed. The effect of this is that you will never ejaculate again, ever, you will be completely dry. Erections will be a problem for a year or two after surgery. With other treatments it will start out normal but over time will deteriorate to match that of surgery. When it stabilizes your erection will only reach about 80% firmness. There are drugs (like on TV) that help and a shot I have not tried that I am assured will restore you to full potency with each application. One big item is that if you have surgery your penis will shrink 1 1/2 to 2 inches since the prostate is removed and so is the urethra (the pee/sperm tube). The loss of the tube tends to pull the penis into the body. I understand that is not the case with seed/beams. You will most likely not have incontinence beyond occasion drips escaping. This can be due to exertion, coughing or farting. You will learn to deal with it. It was my biggest fear and I found it just needs to be managed. Empty the bladder before exerting. Surgery is quick, recovery is a month or two. Seeds are short treatment and even quicker recovery. Beam is a short treatment every day for about 3 months. A group in Atlanta uses what they call ProstRcision. I found talking to their surgeon very informative (and the phone consult is free). They use seeds and follow it up with beam. It is long but the results are probably better than any of the single treatments. I just could not see spending the time. Problems can occur in all types of treatment but are really quite rare. Especially given your age I would not worry too much as long as you get a good treatment specialistGood luck, you are on the right forum to get the best information. I wish you the best. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2012 Report Share Posted July 31, 2012 G’day Dominic and welcome to our Club – even if you didn’t want to join. You might like to go to my website at YANA – You Are Not Alone Now at http://www.yananow.org which I set up after I was diagnosed in 1996 when you were a young man under 30!! It is set up to help newly diagnosed men undertand the diseae and all the options and there is also a section where the stories of over 1,100 men are available – some of the men younger than you even. It can be useful to ee how and why they made their decisions and what the outcome has been. My answers to your three questions are: 1. Question about PSA.- Does Cipro use for treating my prostatitis affects the PSA going up or down? Cipro can make a significant difference to PSA results because PSA is not a prostate cancer specific disease. In your case, because the amount of cancer that ha been identified by your initial biopsy is so small, there I a good chance that most of the PSA is generated by your prostatitis – see PSA 101 for some more on the PSA test http://www.yananow.org/PSA101.shtml 2. Question about my biopsy result. - granting that only 1 sample is positive our of the 6 samples, does this really confirmed that my cancer is still localized? There is no certainty in the prostate cancer world, just probabilities. It is probable that with a intermediate grade disease with a Gleason Score of 7a and only one in 12 positive samples that your tumour will be contained within the gland. 3. Question about my choice of treatment which is Radiotherapy. - Did I make the good decision here? There are very few ‘good’ or ‘bad’ decisions because a man with your diagnosis will have very similar outcomes no matter what his choice of treatment – or even if he choose the AS (Active Surveillance) routes, as I did sixteen years ago. You need to satisfy yourself that you have done all you need to do to establish the potential consequences of the therapy that you choose. Good luck whatever your path – and why not share your story with the other Yana men by going along to http://www.yananow.org/JoinUsForm.php All the best Prostate men need enlightening, not frightening Terry Herbert - diagnosed in 1996 and still going strong Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of TugaK Sent: Wednesday, 1 August 2012 7:44 AM To: ProstateCancerSupport Subject: Help Me Hello to all. My name is Dominic and I am 44 years old and of asian origin. I been diagnosed with prostate cancer last June. The discovery stated with my complain to my doctor as I have to visit bathroom every hour to pee during night. Last year (March 2011), my previous medical facility took blood sample and i had 7.68 PSA. I had a rectal check and sonar check and my prostate shows no sign of enlargement and irregularities. So they diagnosed me with UTI and they gave me Cipro for 14 days. After a year (March 2012), I moved to another medical facility and open the same problem. They took blood samples again and PSA result is 5.26. I was referred to a Urology and as I mentioned to him that my family have a history of prostate cancer (my grandfather died of prostate cancer - 1995), he recommended a prostate biopsy. June 5, 2012 I had a biopsy. 12 samples - 6 on the left and 6 on the right. The result is 6 samples on the right shows no cancer and 1 out of 6 samples on the left shows 50% of the cancer scored Gleason 3+4=7. I took second opinion and sent my slides to a reputable pathologist in NY and they confirmed I was positive. It is really difficult times as I am not very knowledgeable about what PC is. Joining this group have boosted my ego and self confidence that there are lot of chances and options of treatment available. Ideas and advises are often encouraging. I been diagnosed also with prostatitis and I am on 30 days Cipro. My urology offered me a surgery and at the same time a second opinion as he refered me to Oncolorgy Radiation specialist. The oncology provided me some insights and after analysing the biopsy and other relevant medical results, he provided me an option for radiation therapy. For some points, he mentioned to me that I am qualified for this kind of treatment as the cancer is still localized. Also he mentioned that it is in the early stage. I have an incoming Prostate MRI this August and have included me already in the cancer care program. Another schedule of PSA check is on t he way before the start of the program which starts on beginning of September with a 30 days of Bicalutamide. In the mid Sept. I will have my first of 2 Lupron. Mid November to Mid January start of Radiotherapy. Mid December is my second of 2 Lupron. I want to share this with you as I have some questions or I want to solicit opinion. 1. Question about PSA.- Does Cipro use for treating my prostatitis affects the PSA going up or down? 2. Question about my biopsy result. - granting that only 1 sample is positive our of the 6 samples, does this really confirmed that my cancer is still localized? 3. Question about my choice of treatment which is Radiotherapy. - Did I make the good decision here? I really appreciate your feedback. Please forgive my english and grammar. I am happy to join this group and been reading a lot of exchanges in this group. Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 Dear Steve, I thank you very much for your response. This is very informative and comforting. Thank you-Dominic To: ProstateCancerSupport Sent: Wednesday, August 1, 2012 4:23 AMSubject: Re: Re: Help Me Dominic,You are young for PC. I was diagnosed two years ago at 53. That puts us both in the 1-2% of youngest. I had 3+3 with quite a few more positives. Post surgery the prostate analysis was a bit worse score than the biopsy. Biopsy can miss cancer. I chose surgery because the likelihood of living quite a few years was there (I could easily last 20-25 more years) and I did not want a chance of re-occurrence at an advanced age. In my case (and I expect yours) the chance of it getting out in any major way was small. Having said that the time for any escaping to grow to a problem is a bit longer than for most that are diagnosed. The major treatments are surgery to remove the prostate or radiation (seed and beam or both). There are others, proton and Cryo. Proton is, I think, like beam and Cryo is like seed. In all treatments the number one, two and three most important things are: get a doctor with over 200 procedures, get a doctor with over 200 procedures, and get a doctor with over 200 procedures. In all treatments the prostate is destroyed/removed. The effect of this is that you will never ejaculate again, ever, you will be completely dry. Erections will be a problem for a year or two after surgery. With other treatments it will start out normal but over time will deteriorate to match that of surgery. When it stabilizes your erection will only reach about 80% firmness. There are drugs (like on TV) that help and a shot I have not tried that I am assured will restore you to full potency with each application. One big item is that if you have surgery your penis will shrink 1 1/2 to 2 inches since the prostate is removed and so is the urethra (the pee/sperm tube). The loss of the tube tends to pull the penis into the body. I understand that is not the case with seed/beams. You will most likely not have incontinence beyond occasion drips escaping. This can be due to exertion, coughing or farting. You will learn to deal with it. It was my biggest fear and I found it just needs to be managed. Empty the bladder before exerting. Surgery is quick, recovery is a month or two. Seeds are short treatment and even quicker recovery. Beam is a short treatment every day for about 3 months. A group in Atlanta uses what they call ProstRcision. I found talking to their surgeon very informative (and the phone consult is free). They use seeds and follow it up with beam. It is long but the results are probably better than any of the single treatments. I just could not see spending the time. Problems can occur in all types of treatment but are really quite rare. Especially given your age I would not worry too much as long as you get a good treatment specialistGood luck, you are on the right forum to get the best information. I wish you the best.Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 Dear Dominique,From what I have read, your disease seems minimal. Particularly now that Cipro has got PSA down. The benign component of your condition can also be approached with alpha blockers such as Tamsulosin. [ This should help you pee better.]  because you have some tumor showing up in your biopsy your local doctors may not have considered a less onerous route for you to try out first, before going for radiotherapy. My questions would be: How are your symptoms now ? What is your PSA ?If your condition is NOT worsening it may be worth 'watchful waiting' or 'active surveillance' to see if dietary and lifestyle changes help your condition without radiotherapy (or surgery or castration inducing drugs). If after six months, your PSA fails to return to normal range, and if you persist with urinary difficulties then you can always go back to that more extreme path advocated by your doctors. Many men have found that actively challenging their condition with healthier food, and a daily exercise routine (including weights) does complement the Cipro and Tamsulosin to such a degree that nothing more is needed for several years - perhaps ever.   In my case the tumor was too advanced to make much of an impact with diet and exercise in the first few months, but your case is different and that is why my suggestions for your treatment differe from my own. After six months of strengthening exercise, you may even find that a second biopsy gives you lower tumor markers. Nothing to lose as I see it, although you may have missed out important data in your brief description. Good luck, Sam.dob.47; LUTS.95(PSA20) [Treatment not offered here although it should have been in view of high risk of advanced PCa.] ; dx.96(PSA50) - biopsy 3,4 - HB, surgery, LN+SV. IHT until present 2011, chemo & stuff.  Dear Steve, I thank you very much for your response. This is very informative and comforting. Thank you-Dominic  To: ProstateCancerSupport Sent: Wednesday, August 1, 2012 4:23 AM Subject: Re: Re: Help Me  Dominic,You are young for PC. I was diagnosed two years ago at 53. That puts us both in the 1-2% of youngest. I had 3+3 with quite a few more positives. Post surgery the prostate analysis was a bit worse score than the biopsy. Biopsy can miss cancer. I chose surgery because the likelihood of living quite a few years was there (I could easily last 20-25 more years) and I did not want a chance of re-occurrence at an advanced age. In my case (and I expect yours) the chance of it getting out in any major way was small. Having said that the time for any escaping to grow to a problem is a bit longer than for most that are diagnosed.  The major treatments are surgery to remove the prostate or radiation (seed and beam or both). There are others, proton and Cryo. Proton is, I think, like beam and Cryo is like seed. In all treatments the number one, two and three most important things are: get a doctor with over 200 procedures, get a doctor with over 200 procedures, and get a doctor with over 200 procedures. In all treatments the prostate is destroyed/removed. The effect of this is that you will never ejaculate again, ever, you will be completely dry. Erections will be a problem for a year or two after surgery. With other treatments it will start out normal but over time will deteriorate to match that of surgery. When it stabilizes your erection will only reach about 80% firmness. There are drugs (like on TV) that help and a shot I have not tried that I am assured will restore you to full potency with each application. One big item is that if you have surgery your penis will shrink 1 1/2 to 2 inches since the prostate is removed and so is the urethra (the pee/sperm tube). The loss of the tube tends to pull the penis into the body. I understand that is not the case with seed/beams. You will most likely not have incontinence beyond occasion drips escaping. This can be due to exertion, coughing or farting. You will learn to deal with it. It was my biggest fear and I found it just needs to be managed. Empty the bladder before exerting. Surgery is quick, recovery is a month or two. Seeds are short treatment and even quicker recovery. Beam is a short treatment every day for about 3 months. A group in Atlanta uses what they call ProstRcision. I found talking to their surgeon very informative (and the phone consult is free). They use seeds and follow it up with beam. It is long but the results are probably better than any of the single treatments. I just could not see spending the time. Problems can occur in all types of treatment but are really quite rare. Especially given your age I would not worry too much as long as you get a good treatment specialistGood luck, you are on the right forum to get the best information. I wish you the best.Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2012 Report Share Posted August 4, 2012 Dear Sam,I have another schedule of PSA this coming August 25th. Meeting with my Oncologist on the 27th and I will be expecting a brief plan go over again. On the 28th, I will have the prostate MRI and then after that, another briefing with my Oncologist. As what was planned, The program is made of 1 month of a daily tablet, 2 injections 3 months apart, and 8 weeks of daily radiotherapy as follows : September 1, 2012 : Start on Bicalutamide tablets for one month. Mid September 2012 : First Lupron injection (2 weeks after starting the tablets) Mid November 2012 to mid January 2013 : radiation therapy Mid December 2012 : Second Lupron injection (1 month after starting radiotherapy) Wish me all the best...Thank so much... Dominic To: ProstateCancerSupport Sent: Saturday, August 4, 2012 5:08 AM Subject: Re: Re: Help Me Dear Dominique,From what I have read, your disease seems minimal. Particularly now that Cipro has got PSA down. The benign component of your condition can also be approached with alpha blockers such as Tamsulosin. [ This should help you pee better.] because you have some tumor showing up in your biopsy your local doctors may not have considered a less onerous route for you to try out first, before going for radiotherapy. My questions would be: How are your symptoms now ? What is your PSA ?If your condition is NOT worsening it may be worth 'watchful waiting' or 'active surveillance' to see if dietary and lifestyle changes help your condition without radiotherapy (or surgery or castration inducing drugs). If after six months, your PSA fails to return to normal range, and if you persist with urinary difficulties then you can always go back to that more extreme path advocated by your doctors. Many men have found that actively challenging their condition with healthier food, and a daily exercise routine (including weights) does complement the Cipro and Tamsulosin to such a degree that nothing more is needed for several years - perhaps ever. In my case the tumor was too advanced to make much of an impact with diet and exercise in the first few months, but your case is different and that is why my suggestions for your treatment differe from my own. After six months of strengthening exercise, you may even find that a second biopsy gives you lower tumor markers. Nothing to lose as I see it, although you may have missed out important data in your brief description. Good luck, Sam.dob.47; LUTS.95(PSA20) [Treatment not offered here although it should have been in view of high risk of advanced PCa.] ; dx.96(PSA50) - biopsy 3,4 - HB, surgery, LN+SV. IHT until present 2011, chemo & stuff. Dear Steve, I thank you very much for your response. This is very informative and comforting. Thank you-Dominic To: ProstateCancerSupport Sent: Wednesday, August 1, 2012 4:23 AM Subject: Re: Re: Help Me Dominic,You are young for PC. I was diagnosed two years ago at 53. That puts us both in the 1-2% of youngest. I had 3+3 with quite a few more positives. Post surgery the prostate analysis was a bit worse score than the biopsy. Biopsy can miss cancer. I chose surgery because the likelihood of living quite a few years was there (I could easily last 20-25 more years) and I did not want a chance of re-occurrence at an advanced age. In my case (and I expect yours) the chance of it getting out in any major way was small. Having said that the time for any escaping to grow to a problem is a bit longer than for most that are diagnosed. The major treatments are surgery to remove the prostate or radiation (seed and beam or both). There are others, proton and Cryo. Proton is, I think, like beam and Cryo is like seed. In all treatments the number one, two and three most important things are: get a doctor with over 200 procedures, get a doctor with over 200 procedures, and get a doctor with over 200 procedures. In all treatments the prostate is destroyed/removed. The effect of this is that you will never ejaculate again, ever, you will be completely dry. Erections will be a problem for a year or two after surgery. With other treatments it will start out normal but over time will deteriorate to match that of surgery. When it stabilizes your erection will only reach about 80% firmness. There are drugs (like on TV) that help and a shot I have not tried that I am assured will restore you to full potency with each application. One big item is that if you have surgery your penis will shrink 1 1/2 to 2 inches since the prostate is removed and so is the urethra (the pee/sperm tube). The loss of the tube tends to pull the penis into the body. I understand that is not the case with seed/beams. You will most likely not have incontinence beyond occasion drips escaping. This can be due to exertion, coughing or farting. You will learn to deal with it. It was my biggest fear and I found it just needs to be managed. Empty the bladder before exerting. Surgery is quick, recovery is a month or two. Seeds are short treatment and even quicker recovery. Beam is a short treatment every day for about 3 months. A group in Atlanta uses what they call ProstRcision. I found talking to their surgeon very informative (and the phone consult is free). They use seeds and follow it up with beam. It is long but the results are probably better than any of the single treatments. I just could not see spending the time. Problems can occur in all types of treatment but are really quite rare. Especially given your age I would not worry too much as long as you get a good treatment specialistGood luck, you are on the right forum to get the best information. I wish you the best.Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2012 Report Share Posted August 4, 2012 Dominique:I hope your tolerance of Lupron and it's side effects are a lot better then mine were. It sounds like your Oncologist has given you a cookie cutter plan devised by the medical industry. You might expect your quality of life to be reduced considerably. I was 68 when I received my Lupron shot and IMRT (ten years ago). Quality of life was gone as was my cognitive powers. My wife tells people that I was as dumb as a doorbell during that time. My daughter talked me into using testosterone, so I did get out of the Lupron Fog. Her rational was "we are all going to die at some time so why spend our last years being miserable ?" She was dying of breast cancer at the time. (8 years ago)Henry////////////////////// Dear Sam,I have another schedule of PSA this coming August 25th. Meeting with my Oncologist on the 27th and I will be expecting a brief plan go over again. On the 28th, I will have the prostate MRI and then after that, another briefing with my Oncologist. As what was planned, The program is made of 1 month of a daily tablet, 2 injections 3 months apart, and 8 weeks of daily radiotherapy as follows : September 1, 2012 : Start on Bicalutamide tablets for one month. Mid September 2012 : First Lupron injection (2 weeks after starting the tablets) Mid November 2012 to mid January 2013 : radiation therapy Mid December 2012 : Second Lupron injection (1 month after starting radiotherapy) Wish me all the best...Thank so much... Dominic To: ProstateCancerSupport Sent: Saturday, August 4, 2012 5:08 AM Subject: Re: Re: Help Me Dear Dominique,From what I have read, your disease seems minimal. Particularly now that Cipro has got PSA down. The benign component of your condition can also be approached with alpha blockers such as Tamsulosin. [ This should help you pee better.] because you have some tumor showing up in your biopsy your local doctors may not have considered a less onerous route for you to try out first, before going for radiotherapy. My questions would be: How are your symptoms now ? What is your PSA ?If your condition is NOT worsening it may be worth 'watchful waiting' or 'active surveillance' to see if dietary and lifestyle changes help your condition without radiotherapy (or surgery or castration inducing drugs). If after six months, your PSA fails to return to normal range, and if you persist with urinary difficulties then you can always go back to that more extreme path advocated by your doctors. Many men have found that actively challenging their condition with healthier food, and a daily exercise routine (including weights) does complement the Cipro and Tamsulosin to such a degree that nothing more is needed for several years - perhaps ever. In my case the tumor was too advanced to make much of an impact with diet and exercise in the first few months, but your case is different and that is why my suggestions for your treatment differe from my own. After six months of strengthening exercise, you may even find that a second biopsy gives you lower tumor markers. Nothing to lose as I see it, although you may have missed out important data in your brief description. Good luck, Sam.dob.47; LUTS.95(PSA20) [Treatment not offered here although it should have been in view of high risk of advanced PCa.] ; dx.96(PSA50) - biopsy 3,4 - HB, surgery, LN+SV. IHT until present 2011, chemo & stuff. Dear Steve, I thank you very much for your response. This is very informative and comforting. Thank you-Dominic To: ProstateCancerSupport Sent: Wednesday, August 1, 2012 4:23 AM Subject: Re: Re: Help Me Dominic,You are young for PC. I was diagnosed two years ago at 53. That puts us both in the 1-2% of youngest. I had 3+3 with quite a few more positives. Post surgery the prostate analysis was a bit worse score than the biopsy. Biopsy can miss cancer. I chose surgery because the likelihood of living quite a few years was there (I could easily last 20-25 more years) and I did not want a chance of re-occurrence at an advanced age. In my case (and I expect yours) the chance of it getting out in any major way was small. Having said that the time for any escaping to grow to a problem is a bit longer than for most that are diagnosed. The major treatments are surgery to remove the prostate or radiation (seed and beam or both). There are others, proton and Cryo. Proton is, I think, like beam and Cryo is like seed. In all treatments the number one, two and three most important things are: get a doctor with over 200 procedures, get a doctor with over 200 procedures, and get a doctor with over 200 procedures. In all treatments the prostate is destroyed/removed. The effect of this is that you will never ejaculate again, ever, you will be completely dry. Erections will be a problem for a year or two after surgery. With other treatments it will start out normal but over time will deteriorate to match that of surgery. When it stabilizes your erection will only reach about 80% firmness. There are drugs (like on TV) that help and a shot I have not tried that I am assured will restore you to full potency with each application. One big item is that if you have surgery your penis will shrink 1 1/2 to 2 inches since the prostate is removed and so is the urethra (the pee/sperm tube). The loss of the tube tends to pull the penis into the body. I understand that is not the case with seed/beams. You will most likely not have incontinence beyond occasion drips escaping. This can be due to exertion, coughing or farting. You will learn to deal with it. It was my biggest fear and I found it just needs to be managed. Empty the bladder before exerting. Surgery is quick, recovery is a month or two. Seeds are short treatment and even quicker recovery. Beam is a short treatment every day for about 3 months. A group in Atlanta uses what they call ProstRcision. I found talking to their surgeon very informative (and the phone consult is free). They use seeds and follow it up with beam. It is long but the results are probably better than any of the single treatments. I just could not see spending the time. Problems can occur in all types of treatment but are really quite rare. Especially given your age I would not worry too much as long as you get a good treatment specialistGood luck, you are on the right forum to get the best information. I wish you the best.Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2012 Report Share Posted August 4, 2012 God Bless you Henry, and you dear daughter. She did us all a service by helping make aware this alternarive pathway so few of us dare consider. Dominique, I wish you the best and God's speed along your chosen path. Our staying informed of each other's progress will teach the next generation, and the generations that follow. Cheers,SDam.  Dominique:I hope your tolerance of Lupron and it's side effects are a lot better then mine were. It sounds like your Oncologist has given you a cookie cutter plan devised by the medical industry. You might expect your quality of life to be reduced considerably. I was 68 when I received my Lupron shot and IMRT (ten years ago). Quality of life was gone as was my cognitive powers. My wife tells people that I was as dumb as a doorbell during that time. My daughter talked me into using testosterone, so I did get out of the Lupron Fog. Her rational was " we are all going to die at some time so why spend our last years being miserable ? " She was dying of breast cancer at the time. (8 years ago) Henry//////////////////////  Dear Sam,I have another schedule of PSA this coming August 25th. Meeting with my Oncologist on the 27th and I will be expecting a brief plan go over again. On the 28th, I will have the prostate MRI and then after that, another briefing with my Oncologist. As what was planned, The program is made of 1 month of a daily tablet, 2 injections 3 months apart, and 8 weeks of daily radiotherapy as follows : September 1, 2012 : Start on Bicalutamide tablets for one month. Mid September 2012 : First Lupron injection (2 weeks after starting the tablets) Mid November 2012 to mid January 2013 : radiation therapy Mid December 2012 : Second Lupron injection (1 month after starting radiotherapy) Wish me all the best...Thank so much... Dominic To: ProstateCancerSupport Sent: Saturday, August 4, 2012 5:08 AM Subject: Re: Re: Help Me  Dear Dominique,From what I have read, your disease seems minimal. Particularly now that Cipro has got PSA down. The benign component of your condition can also be approached with alpha blockers such as Tamsulosin. [ This should help you pee better.]  because you have some tumor showing up in your biopsy your local doctors may not have considered a less onerous route for you to try out first, before going for radiotherapy. My questions would be: How are your symptoms now ? What is your PSA ?If your condition is NOT worsening it may be worth 'watchful waiting' or 'active surveillance' to see if dietary and lifestyle changes help your condition without radiotherapy (or surgery or castration inducing drugs). If after six months, your PSA fails to return to normal range, and if you persist with urinary difficulties then you can always go back to that more extreme path advocated by your doctors. Many men have found that actively challenging their condition with healthier food, and a daily exercise routine (including weights) does complement the Cipro and Tamsulosin to such a degree that nothing more is needed for several years - perhaps ever.   In my case the tumor was too advanced to make much of an impact with diet and exercise in the first few months, but your case is different and that is why my suggestions for your treatment differe from my own. After six months of strengthening exercise, you may even find that a second biopsy gives you lower tumor markers. Nothing to lose as I see it, although you may have missed out important data in your brief description. Good luck, Sam.dob.47; LUTS.95(PSA20) [Treatment not offered here although it should have been in view of high risk of advanced PCa.] ; dx.96(PSA50) - biopsy 3,4 - HB, surgery, LN+SV. IHT until present 2011, chemo & stuff.  Dear Steve, I thank you very much for your response. This is very informative and comforting. Thank you-Dominic  To: ProstateCancerSupport Sent: Wednesday, August 1, 2012 4:23 AM Subject: Re: Re: Help Me  Dominic,You are young for PC. I was diagnosed two years ago at 53. That puts us both in the 1-2% of youngest. I had 3+3 with quite a few more positives. Post surgery the prostate analysis was a bit worse score than the biopsy. Biopsy can miss cancer. I chose surgery because the likelihood of living quite a few years was there (I could easily last 20-25 more years) and I did not want a chance of re-occurrence at an advanced age. In my case (and I expect yours) the chance of it getting out in any major way was small. Having said that the time for any escaping to grow to a problem is a bit longer than for most that are diagnosed.  The major treatments are surgery to remove the prostate or radiation (seed and beam or both). There are others, proton and Cryo. Proton is, I think, like beam and Cryo is like seed. In all treatments the number one, two and three most important things are: get a doctor with over 200 procedures, get a doctor with over 200 procedures, and get a doctor with over 200 procedures. In all treatments the prostate is destroyed/removed. The effect of this is that you will never ejaculate again, ever, you will be completely dry. Erections will be a problem for a year or two after surgery. With other treatments it will start out normal but over time will deteriorate to match that of surgery. When it stabilizes your erection will only reach about 80% firmness. There are drugs (like on TV) that help and a shot I have not tried that I am assured will restore you to full potency with each application. One big item is that if you have surgery your penis will shrink 1 1/2 to 2 inches since the prostate is removed and so is the urethra (the pee/sperm tube). The loss of the tube tends to pull the penis into the body. I understand that is not the case with seed/beams. You will most likely not have incontinence beyond occasion drips escaping. This can be due to exertion, coughing or farting. You will learn to deal with it. It was my biggest fear and I found it just needs to be managed. Empty the bladder before exerting. Surgery is quick, recovery is a month or two. Seeds are short treatment and even quicker recovery. Beam is a short treatment every day for about 3 months. A group in Atlanta uses what they call ProstRcision. I found talking to their surgeon very informative (and the phone consult is free). They use seeds and follow it up with beam. It is long but the results are probably better than any of the single treatments. I just could not see spending the time. Problems can occur in all types of treatment but are really quite rare. Especially given your age I would not worry too much as long as you get a good treatment specialistGood luck, you are on the right forum to get the best information. I wish you the best.Steve Quote Link to comment Share on other sites More sharing options...
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