Σχετ: Re: what causes noise sensitivity?

[Guest guest]

Hi Deborah

We didn't do the test for CFD with Dr Quadros as I live outside the U.S. and the blood specimem would have taken a few days to arrive even under the best of circumstances and it needs to be sent overnight. Our DAN, who did the original study on CFD and autism, suggested we do a trial of high dose Leucovorin Calcium, based on my daughter's high FIGlu marker on her OAT.. My daughter is an undermethylator with high histamines, but by slowly increasing the Leucovorin and adding lots of MB12, and DMG, this has been one of our best interventions. The cognitive and speech gains have been impressive.

We had tried the Yasko recommendations for folate/.B12 supplementation, but the amounts were piddly compared to what my daughter needed.. We will continue to slowly increase the Leucovorin. Yes, there were side effects in the beginning but these soon dissipated. I know some kids do better on Leucovorin and others on l-5-methyltetrahydrofolate, but I think it's a case of trial and error to see which version your child tolerates best.

I have a local friend with a fourteen year old son on the spectrum who also trialled high dose Leucovorin Calcium and she is also very happy with the improvement she has seen in her son.

Elena

Απο: "dgfindley@..." ΠÏος: BorreliaMultipleInfectionsAndAutism Στάλθηκε: 7:35 μ.μ. Σάββατο, 19 ΜαÎου 2012Θεμα: Re: what causes noise sensitivity?

elena, what is your treatment for the folate deficiency? My son is on the MTHFR folate type part of yasko protocol he is on. My pandas doc sent me the lab forms for checking for the CFD but I cant get blood out of him, was going to check me also... deborah> > > > >> > > > > For our son it was HSV #6.ΓΒ Being on Acyclovir helped a lot.> > > > > Leann> > > > > > > > > > > > > > > ________________________________> > > > > From: "klwadler@" <klwadler@>> > > > > To: BorreliaMultipleInfectionsAndAutism ; Lyme-Aid > > > > > Sent: Monday, May 14, 2012 6:36 PM> > > > > Subject: what causes noise sensitivity?> > > > > > > > > > > > > > > ΓΒ > > > > > > > > > > > > > > > > > > > > I am wondering if there are any vitamin/mineral deficiencies that can cause > > > > > noise sensitivity. my son gets very aggressive when he hears loud noises. > > > > > karen > > > > > In a message dated 5/12/2012 8:14:08 P.M. Eastern Daylight Time,

> > > > > constantikes@ writes: > > > > > ΓΒ > > > > > >Hi,> > > > > >> > > > > >We are very new to the Lyme world.ΓΒ My > > > > > son has GI symptoms, but none of the classic Lyme symptoms. Still, > > > > > because has been bitten many times by ticks in North Carolina (and > > > > > probably Philadelphia, as well) and because his GI issues are so > > > > > intractable we are looking in to Lyme.ΓΒ > > > > > >> > > > > >We just did the > > > > > bloodwork for Advanced Labs, which I know only tests for Lyme. Do you > > > > > think that it's worth doing Igenex to look for co-infection?ΓΒ I > > > > > know that some people think Fry Labs is another

good option.ΓΒ Our > > > > > LLMD had nothing bad to say about Fry, but seemed more inclined to have > > > > > us do the Igenex test.ΓΒ I know it has a good reputation, but I also > > > > > know that some folks have not gotten accurate results from Igenex. > > > > > >> > > > > >Any thoughts would be most appreciated.> > > > > >> > > > > >Thanks,> > > > > > > > > > > >> > > > >> > > >> > >> >>