Problems again

[Guest guest]

I have been feeling worse and worse for the past couple of weeks. Last Saturday

I was feeling bad enough to call the doctor’s office. I was told I could go to

the hospital or see the doctor on Monday. I decided to wait until Monday. By

Monday, though, I was feeling a little better, so I thought I’d wait it out.

Every day then I kept feeling worse and worse. Yesterday, I woke up and could

barely breath. I called the doctor’s office as soon as I woke up and they told

me to come in for an EKG.

Now, like most people with Fibromyalgia, I’m very sensitive to drugs. After I

had my stroke they put me on several different drugs to help prevent me from

having another one. I kept having bad reactions to all of them. Finally they

found one that I didn’t react to right away, but they also told me it was the

only drug that they had left that would help my condition. It also cost me $50 a

month co-pay but that’s another story. This was in June. When I called, I told

them I thought I was having a reaction to the drug. I also didn’t take my

morning dose. When I got to the doctor’s office, they checked my blood

pressure and it was a little high but not too bad. They did the EKG and it was

alright. And then they weighed me. “I had gained 25 pounds since my visit on

June 8th.†Of course my regular doctor was on vacation, but they had me wait

to see another Cardiologist in the practice. When he came in he said he doubted

it was the drug and then added that I was probably having Congestive Heart

Failure. He prescribed me Lasix and Potassium.

Well, I was feeling so bad, I didn’t argue with him, but it just didn’t

sound right to me. I’d had all the heart tests possible in April and May and

my heart was fine. So then I get to the store and go to pick up the

prescriptions. Well, the nurse had made a mistake and she had called in the

Potassium, but not the Lasix. And of course the doctor’s office was closed.

And not only that, but this is a Holiday weekend and the office will be closed

until Tuesday morning. So—I got to wondering if God was looking out for me

better than the doctors were. I decided to not take my pill again last night and

wait and see how I was feeling this morning.

I’m happy to say, I was doing much better this morning, so I decided not to

take my morning pill either. All day today, I have been gradually feeling

better. In fact I’m feeling better than I have in weeks. So now “I†know

for sure what was causing all my problems lately. It will be interesting to hear

what they say when I call in on Tuesday and tell them I quit taking the drug.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

[Guest guest]

Hi Judy,

Sorry to hear you were not doing well, but at least you are better. What drug

did they have you on. It can sometimes take a while for reactions to happen. Do

you think it made you gain weight as well? The doc said " probably you were

having congestive heart failure " , but prescribed something for it anyway. Docs

seldom see anyone's symptoms as a side effect of the drugs they are on. Wish I

had had the internet when I was given drugs. I read the inserts on them, but

they never tell the whole story. I have had some really bad reactions, and so

glad now I am off all of them.

C

>

> I have been feeling worse and worse for the past couple of weeks. Last

Saturday I was feeling bad enough to call the doctor’s office. I was told I

could go to the hospital or see the doctor on Monday. I decided to wait until

Monday. By Monday, though, I was feeling a little better, so I thought I’d

wait it out. Every day then I kept feeling worse and worse. Yesterday, I woke up

and could barely breath. I called the doctor’s office as soon as I woke up and

they told me to come in for an EKG.

>

> Now, like most people with Fibromyalgia, I’m very sensitive to drugs. After

I had my stroke they put me on several different drugs to help prevent me from

having another one. I kept having bad reactions to all of them. Finally they

found one that I didn’t react to right away, but they also told me it was the

only drug that they had left that would help my condition. It also cost me $50 a

month co-pay but that’s another story. This was in June. When I called, I told

them I thought I was having a reaction to the drug. I also didn’t take my

morning dose. When I got to the doctor’s office, they checked my blood

pressure and it was a little high but not too bad. They did the EKG and it was

alright. And then they weighed me. “I had gained 25 pounds since my visit on

June 8th.†Of course my regular doctor was on vacation, but they had me wait

to see another Cardiologist in the practice. When he came in he said he doubted

it was the drug and then added that I was probably having Congestive Heart

Failure. He prescribed me Lasix and Potassium.

>

> Well, I was feeling so bad, I didn’t argue with him, but it just didn’t

sound right to me. I’d had all the heart tests possible in April and May and

my heart was fine. So then I get to the store and go to pick up the

prescriptions. Well, the nurse had made a mistake and she had called in the

Potassium, but not the Lasix. And of course the doctor’s office was closed.

And not only that, but this is a Holiday weekend and the office will be closed

until Tuesday morning. So†" I got to wondering if God was looking out for me

better than the doctors were. I decided to not take my pill again last night and

wait and see how I was feeling this morning.

>

> I’m happy to say, I was doing much better this morning, so I decided not to

take my morning pill either. All day today, I have been gradually feeling

better. In fact I’m feeling better than I have in weeks. So now “I†know

for sure what was causing all my problems lately. It will be interesting to hear

what they say when I call in on Tuesday and tell them I quit taking the drug.

>

> Judy H

> To Health Through Knowledge

> Started taking Low Dose Naltrexone on January 20, 2009 for

> Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

> http://health.groups.yahoo.com/group/LDNforFibro/

>

>

[Guest guest]

I was on Flecainide twice a day. And that is one of the side effects that’s

listed. I don’t understand how they could keep telling me that it

“couldn’t†be the drug. I think I know my body better than anyone. I wish

I could get off my drugs too and hopefully some day I’ll be able to.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: cindy_martian

Sent: Saturday, September 01, 2012 9:13 PM

To: fibromyalgiacured

Subject: Re: Problems again

Hi Judy,

Sorry to hear you were not doing well, but at least you are better. What drug

did they have you on. It can sometimes take a while for reactions to happen. Do

you think it made you gain weight as well? The doc said " probably you were

having congestive heart failure " , but prescribed something for it anyway. Docs

seldom see anyone's symptoms as a side effect of the drugs they are on. Wish I

had had the internet when I was given drugs. I read the inserts on them, but

they never tell the whole story. I have had some really bad reactions, and so

glad now I am off all of them.

C

>

> I have been feeling worse and worse for the past couple of weeks. Last

Saturday I was feeling bad enough to call the doctor’s office. I was told I

could go to the hospital or see the doctor on Monday. I decided to wait until

Monday. By Monday, though, I was feeling a little better, so I thought I’d

wait it out. Every day then I kept feeling worse and worse. Yesterday, I woke up

and could barely breath. I called the doctor’s office as soon as I woke up

and they told me to come in for an EKG.

>

> Now, like most people with Fibromyalgia, I’m very sensitive to drugs.

After I had my stroke they put me on several different drugs to help prevent me

from having another one. I kept having bad reactions to all of them. Finally

they found one that I didn’t react to right away, but they also told me it

was the only drug that they had left that would help my condition. It also cost

me $50 a month co-pay but that’s another story. This was in June. When I

called, I told them I thought I was having a reaction to the drug. I also

didn’t take my morning dose. When I got to the doctor’s office, they

checked my blood pressure and it was a little high but not too bad. They did the

EKG and it was alright. And then they weighed me. “I had gained 25 pounds

since my visit on June 8th.†Of course my regular doctor was on vacation,

but they had me wait to see another Cardiologist in the practice. When he came

in he said he doubted it was the drug and then added that I was probably having

Congestive Heart Failure. He prescribed me Lasix and Potassium.

>

> Well, I was feeling so bad, I didn’t argue with him, but it just

didn’t sound right to me. I’d had all the heart tests possible in

April and May and my heart was fine. So then I get to the store and go to pick

up the prescriptions. Well, the nurse had made a mistake and she had called in

the Potassium, but not the Lasix. And of course the doctor’s office was

closed. And not only that, but this is a Holiday weekend and the office will be

closed until Tuesday morning. So†" I got to wondering if God was looking out

for me better than the doctors were. I decided to not take my pill again last

night and wait and see how I was feeling this morning.

>

> I’m happy to say, I was doing much better this morning, so I decided not

to take my morning pill either. All day today, I have been gradually feeling

better. In fact I’m feeling better than I have in weeks. So now

“I†know for sure what was causing all my problems lately. It will be

interesting to hear what they say when I call in on Tuesday and tell them I quit

taking the drug.

>

> Judy H

> To Health Through Knowledge

> Started taking Low Dose Naltrexone on January 20, 2009 for

> Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

> http://health.groups.yahoo.com/group/LDNforFibro/

>

>