Re: Re: Problems again/Weaning off meds/Judy

[Guest guest]

Judy

 

I stayed on most of mymeds for 18 months, and instead focused more on sorting

out the stuff I was addicted to. I also learned to eat less and feel satisfied

using McKenna CDs.

 

Slowly but surely I nurtured myself forward. As I got to know my new self, which

was actually my original self, the person before the illness, but older now, so

in some ways new, but as I got to know me the new me in amuch more intimate way,

getting off the meds became a doddle.

 

To my way of thinking about all this, it is just one day at a time. Keeping a

journal and monitoring my progress, however slight, also helped

 

Hope this helps,

 

Love Joanne

To: fibromyalgiacured

Sent: Sunday, 2 September 2012, 4:18

Subject: Re: Re: Problems again

 

I was on Flecainide twice a day. And that is one of the side effects that’s

listed. I don’t understand how they could keep telling me that it

“couldn’t†be the drug. I think I know my body better than anyone. I wish

I could get off my drugs too and hopefully some day I’ll be able to.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: cindy_martian

Sent: Saturday, September 01, 2012 9:13 PM

To: mailto:fibromyalgiacured%40yahoogroups.com

Subject: Re: Problems again

Hi Judy,

Sorry to hear you were not doing well, but at least you are better. What drug

did they have you on. It can sometimes take a while for reactions to happen. Do

you think it made you gain weight as well? The doc said " probably you were

having congestive heart failure " , but prescribed something for it anyway. Docs

seldom see anyone's symptoms as a side effect of the drugs they are on. Wish I

had had the internet when I was given drugs. I read the inserts on them, but

they never tell the whole story. I have had some really bad reactions, and so

glad now I am off all of them.

C

>

> I have been feeling worse and worse for the past couple of weeks. Last

Saturday I was feeling bad enough to call the doctorâs office. I was told I

could go to the hospital or see the doctor on Monday. I decided to wait until

Monday. By Monday, though, I was feeling a little better, so I thought Iâd wait

it out. Every day then I kept feeling worse and worse. Yesterday, I woke up and

could barely breath. I called the doctorâs office as soon as I woke up and they

told me to come in for an EKG.

>

> Now, like most people with Fibromyalgia, Iâm very sensitive to drugs. After I

had my stroke they put me on several different drugs to help prevent me from

having another one. I kept having bad reactions to all of them. Finally they

found one that I didnât react to right away, but they also told me it was the

only drug that they had left that would help my condition. It also cost me $50 a

month co-pay but thatâs another story. This was in June. When I called, I told

them I thought I was having a reaction to the drug. I also didnât take my

morning dose. When I got to the doctorâs office, they checked my blood pressure

and it was a little high but not too bad. They did the EKG and it was alright.

And then they weighed me. âI had gained 25 pounds since my visit on June 8th.â

Of course my regular doctor was on vacation, but they had me wait to see another

Cardiologist in the practice. When he came in he said he doubted it was the drug

and then added

that I was probably having Congestive Heart Failure. He prescribed me Lasix and

Potassium.

>

> Well, I was feeling so bad, I didnât argue with him, but it just didnât

sound right to me. Iâd had all the heart tests possible in April and May and my

heart was fine. So then I get to the store and go to pick up the prescriptions.

Well, the nurse had made a mistake and she had called in the Potassium, but not

the Lasix. And of course the doctorâs office was closed. And not only that, but

this is a Holiday weekend and the office will be closed until Tuesday morning.

Soâ " I got to wondering if God was looking out for me better than the doctors

were. I decided to not take my pill again last night and wait and see how I was

feeling this morning.

>

> Iâm happy to say, I was doing much better this morning, so I decided not to

take my morning pill either. All day today, I have been gradually feeling

better. In fact Iâm feeling better than I have in weeks. So now âIâ know for

sure what was causing all my problems lately. It will be interesting to hear

what they say when I call in on Tuesday and tell them I quit taking the drug.

>

> Judy H

> To Health Through Knowledge

> Started taking Low Dose Naltrexone on January 20, 2009 for

> Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

> http://health.groups.yahoo.com/group/LDNforFibro/

>

>