Survival issues - was Elevated PSA

[Guest guest]

1. I am sorry to say I cannot lay my hands

on the copy of the report which was sent to me, but the abstract is here http://www.goldjournal.net/article/S0090-4295%2801%2901178-5/abstract

Perspectives on prostate cancer

diagnosis and treatment: a roundtable. It was from this report that I

took a quote from Stamey that read in part <snip> I believe that when the final chapter of this disease is written,

which is unlikely to be in my lifetime, never in the history of oncology will

so many men have been so overtreated for one disease. <snip> You

may find it interesting to read some of the reports in Urology Volume 58, Issue 2, Supplement 1, Pages 1-146 (August

2001) First International Conference on Newer

Approaches to Androgen Deprivation Therapy in Prostate Cancer 10 November 2000

- 11 November 2000 athttp://www.goldjournal.net/issues/contents?issue_key=S0090-4295%2800%29X0046-5

2. Platinum Members are those diagnosed

more than 15 years ago. This index http://www.yananow.net/Chart-Yearpre07.htm#06

shows the number of men diagnosed before 1996. As you will see there are fifteen

stories, inclusive of those of the three men who have passed on. It is not

possible to say definitively why there are not more stories, given that there

are more survivors than that!, but a couple of tentative reasons might be

(a) that the website was only started in

1999, and we were not actively collecting stories initially, focusing instead

on providing unbiased basic information

( many of the men in this category are

likely to be older rather than younger and less internet enabled

© the majority of men just get on with

their lives after they have recovered from their treatment and don’t

visit sites like this unless they develop a problem – with side effects

or treatment failure

(d) men ‘returning’ to the

internet for reasons suggested in © above rarely bother to tell their

stories, despite the value of these stories to newly diagnosed men. (When I catch

up my backlog, you’ll see that our

has submitted his story which will be put up in due course!)

(e) given that the median age for

diagnosis in the mid-90s was mid-seventies, many of the men diagnosed in that

era would have passed on in the fifteen years that have elapsed, most of

them from something other than PCa

All the best

Prostate men need enlightening, not

frightening

Terry Herbert - diagnosed in 1996 and

still going strong

Read A Strange Place for unbiased information at http://www.yananow.net/StrangePlace/index.html

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of sammy_bates

Sent: Friday, 24 September 2010

7:14 AM

To: ProstateCancerSupport

Subject:

Re: Elevated PSA

Terry,

A couple of questions.

1. Would you try to dig out that reference you mentioned in the thread

below, please?

2. How many Platinum Members are on YANA ? [ I

can find about half a

dozen, surely there are more ? ]

Thanks again !

Sam.

>

> Larry and all,

>

>

>

> I think the belief that ADT (Androgen Deprivation Therapy) always

fails,

> eventually or only delays the inevitable is not correct. Some years

ago, a

> study, which I can't lay my hands on, demonstrated that many of the

men on

> ADT lived out their normal life expectancy (and died of something

else, the

> fate of most of us) while some of the anecdotal evidence

(non-scientific and

> valueless in the eyes of some) from men who have survived many years

on ADT

> or even on ADT vacation also demonstrate this fallacy.

>

>

>

> No one on ADT should assume it will inevitably fail. There are no

> unbreakable rules for prostate cancer.

>

>

>

> All the best

>

> Prostate men need enlightening, not frightening

>

> Terry Herbert - diagnosed in 1996 and still going strong

>

> Read A Strange Place for unbiased information at

> http://www.yananow.net/StrangePlace/index.html

>

>

>

> _____

>

> From: ProstateCancerSupport

> [mailto:ProstateCancerSupport ]

On Behalf Of Larry

Helber

> Sent: Wednesday, 22 September 2010 7:59 PM

> To: ProstateCancerSupport

> Subject: RE: Re: Elevated PSA

>

>

>

>

>

> OK, I agree, palliative may be a little strong in its use here. I

have a

> very close friend who has lived over 15 years on hormones before going

> refractory. He just recently decided to for go chemo and let the

disease

> run its course. He's 82. Still, hormones and chemo, at the moment,

don't

> cure they just delay the inevitable. Which is the point that I wanted

to

> make.

>

>

>

> _____

>

> From: ProstateCancerSupport

> [mailto:ProstateCancerSupport ]

On Behalf Of C

> Sent: Wednesday, September 22, 2010 12:40 AM

> To: ProstateCancerSupport

> Subject: Re: Elevated PSA

>

>

>

>

>

> Larry --

>

> " Palliative treatments " ?????

>

> It's true that hormone-blocking drugs (and chemo) always fail

_eventually_.

> But they can give the patient quite a few years -- often, a decade or

more

> -- of decent living, as several members of my local PCa support group

can

> testify.

>

> I'm not suggesting that radiation treatment should be delayed --

that's a

> whole different question.

>

>

>