Guest guest Posted April 4, 2000 Report Share Posted April 4, 2000 Susuan, Kari, Randi and all on pulled posts, Thanks for your replies. . . it's so nice to have a dialogue on this list!! I really am grateful for all of you. Anyway, I agree with everyone, and , your words really made me think (as did something said). I totally agree that some of the volunteers on the Bb have suffered tremendously and I am absolutely convinced that they have not only the best intentions, but good intentions beyond what most of us have--they're devoted to helping others to such a marvelous extent. Anyway, I think I'll stay away from the BB because it just gets on my nerves too much. Here's what makes it the hardest for me: I know absolutely mean well AND I think they're making a huge mistake by advocating RAI and controlling the conversation so that standard medicine is never challenged. For me personally, that's the combination that makes it depressing. It makes me think about anorexia. . . I know it seems off subject, but my dissertation is on anorexia. Anyway, anorexics used to be treated with electroconvulsive therapy -- electric shocks to the brain where they killed brain cells dictating starvation. It also used to be cured with (ironically) thyroid hormones to speed up or slow down thyroid or whatever. It also used to be " cured " by behavior modification where they locked anorexics in rooms for days on end, made them use bedpans, no contact with people, no readiing, etc. (in the 1980s) until they gained weight. With all these various treatments, women gained lots of weight and were deemed " cured. " Of course, there as an amazing amount of relapse and even suicide. It's just that the short term, convenient solutions were lauded as amazing breakthroughs. I kind of wonder about RAI in that way, too. > I cannot be outraged at the other board for pulling the posts because I > do not understand their position for RAI. They run that board and that > is their right to pull anything. However, they have suffered terribly. > Two of them have suffered beyond what most of us have faced and they are > probably two of the best examples of the dangers of RAI. They have > undergone countless eye operations and radiation. Their thyroids have > been destroyed and they have access to the best and brightest doctors. > Yet, like us, they still suffer from the work the anti bodies do on our > bodies and minds. As far as I know they are volunteers so there is no > financial gain. The only explaination I can think of is that they are > fundalmentalists and that people with a purpose can endure anything. > Still....... > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > http://click./1/936/3/_/585824/_/954901486/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Good luck, Debbie! I'm sure you'll be fine. Can I recommend taking Ginkgo? I was having trouble remembering words, too, and started on a Ginkgo supplement every day. I've gotten much better. Don't know if that symptom just passed on like some do, or if the ginkgo helped! Kari RE: Graves >Date: Sat, May 6, 2000, 2:34 PM > > >Dyslexia - horrible > > I've found myself stuttering a bit, from time to time. And there was that > spell where I would forget compound words. That seems to be coming back, a > little, like the tremors. > >>Are we saying that even when we are on ATD we still have these lovely > symptoms. > > Yup! Not as horribly, though! It takes a while to work those excess > hormones out of your system, I guess. > > Kari > > ------------------------------------------------------------------------ > You have a voice mail message waiting for you at iHello.com: > http://click./1/3555/5/_/585824/_/957648798/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > ------------------------------------------------------------------------ Save up to 54% on Quest & Kelty tents, backpacks, sleeping bags and outdoor gear. FREE Shipping and a 30 Day Money-Back Guarantee at screaminghotdeals.com http://click./1/4012/5/_/585824/_/957660181/ ------------------------------------------------------------------------ ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 My sister who is hypo and on synthroid says her brain is mush. I have not noticed difficulty with Graves. I do think we all have selective memory at times and shouldn't whip ourselves when it happens. Women seem far less afflicted with selective hearing or memory problems than men and children. Sorry guys! <laughter>. Hugs to all, Elaine RE: Graves > Good luck, Debbie! I'm sure you'll be fine. Can I recommend taking Ginkgo? > I was having trouble remembering words, too, and started on a Ginkgo > supplement every day. I've gotten much better. Don't know if that symptom > just passed on like some do, or if the ginkgo helped! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 Thanks Kari, I'll try the Ginkgo. Don't know if it will work for Tues. pre-test, but the good thing is what we have trouble with the instructor has a whole month to help us get ready. So I'll have a whole month to take the Ginkgo and try it. Thanks a bunch! Debbie ---------- > >To: " 'graves_supportegroups ' " <graves_supportegroups> >Subject: RE: Graves >Date: Sun, May 7, 2000, 8:45 AM > > Good luck, Debbie! I'm sure you'll be fine. Can I recommend taking Ginkgo? > I was having trouble remembering words, too, and started on a Ginkgo > supplement every day. I've gotten much better. Don't know if that symptom > just passed on like some do, or if the ginkgo helped! > > Kari > > RE: Graves >>Date: Sat, May 6, 2000, 2:34 PM >> > >> >Dyslexia - horrible >> >> I've found myself stuttering a bit, from time to time. And there was > that >> spell where I would forget compound words. That seems to be coming > back, a >> little, like the tremors. >> >>>Are we saying that even when we are on ATD we still have these lovely >> symptoms. >> >> Yup! Not as horribly, though! It takes a while to work those excess >> hormones out of your system, I guess. >> >> Kari >> >> > ------------------------------------------------------------------------ >> You have a voice mail message waiting for you at iHello.com: >> http://click./1/3555/5/_/585824/_/957648798/ >> > ------------------------------------------------------------------------ >> >> ------------------------------------- >> The Graves' list is intended for informational purposes only and is > not >> intended to replace expert medical care. >> Please consult your doctor before changing or trying new treatments. >> ---------------------------------------- >> > > ------------------------------------------------------------------------ > Save up to 54% on Quest & Kelty tents, backpacks, sleeping bags and > outdoor gear. FREE Shipping and a 30 Day Money-Back Guarantee at > screaminghotdeals.com > http://click./1/4012/5/_/585824/_/957660181/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > ------------------------------------------------------------------------ > Would you like to save big on your phone bill -- and keep on saving > more each month? Join beMANY! Our huge buying group gives you Long Distance > rates which fall monthly, plus an extra $60 in FREE calls! > http://click./1/2567/5/_/585824/_/957714273/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2000 Report Share Posted May 29, 2000 <<Does anyone else have the trembling hands, but not the racing heart? I had the heart racing thing, but that's been gone awhile. The trembling went away, too, but it's been back for about a month!>> Kari, I have been having this same experience! The racing/pounding heart and the trembling went away, then this past week just the trembling returned. Weird. Ann Ann McCrea, RN Internet Director www.NavigateDreams.com RE: Graves > >paradoxically, I gained a lot of weight over the last few years, even > though I have Graves' disease). > > I've gained about ten pounds, with Graves! I initially lost about 8, put > that all back on, and gained more! Has *anyone* here lost weight with > Graves? I'm not hypo, either. Odd! > > >Yeah, but I've mentioned this before -- fits of rage. > > I've been a bit ragey lately, too, but I think it might be because I've been > so tired (work's been hellish). But I worry, when I feel that anger > bubbling up again, and I hate snapping at my poor husband. Poor guy. I > must remember to thank him more often for putting up with me, when I get > that way. > > Does anyone else have the trembling hands, but not the racing heart? I had > the heart racing thing, but that's been gone awhile. The trembling went > away, too, but it's been back for about a month! > > Kari > > ------------------------------------------------------------------------ > Best friends, most artistic, class clown Find 'em here: > http://click./1/4054/5/_/585824/_/959356816/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2000 Report Share Posted May 30, 2000 >>I have been having this same experience! The racing/pounding heart and the trembling went away, then this past week just the trembling returned. Weird. Ann, That's so odd! I wonder why it's happening? Perhaps when the docs reduce our doses, we produce more of the hormone, which in turn starts acting on our bodies like it first did, so we go a bit more hyper until it settles again. Hm. Are you still taking propranolol? (if you ever did...) Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2000 Report Share Posted May 30, 2000 Oh, i don't underrate it! I've just never tried it. I've not actively searched it out. I do believe in massage therapy, and chiropractics (to a point). And definitely in the power of herbals and vitamins. And accupressure! You see? I'm not disbelieving. I just didn't like the tone of some of Stoll's posts. (if that's what we're still talking about....) Kari Graves Hi Kari, don't under rate accupuncture. It works. I tried it for smoking years ago. After the first session my car broke down on the highway. I didn't even think about a having a smoke. But I also think that it has to be used by a person who qualified. ------------------------------------------------------------------------ Failed tests, classes skipped, forgotten locker combinations. Remember the good 'ol days http://click./1/4053/5/_/585824/_/959715939/ ------------------------------------------------------------------------ ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Hi - No one really knows what causes autoimmune disease. Everything out there is a theory. Some say stress but...... There are some compelling theories about viral or bacterial triggers. One theory is that a genetically susceptible host gets infected with a virus or bacteria that has antigens that are immunologically similar to the host's antigen (autoantigens) but different enough to induce an immune response when they are presented to T cells. Tolerance to one's own antigens breaks down causing an autoimmune response. In this case, autoimmune disease wouldn't really have much to do with stress. I kind of like this theory because I had no real stress factors at all when I became sick with Graves'. It had always confused me that I got so sick when my life was so happy at the time and I was told Graves' was triggered by stress. And, actually, at that time I lived a pretty healthy lifestyle and ran 5 days/week. It made no sense that stress was the trigger in my case. But, at the best, these are just theories. No one really knows. Take care, Utecht Hearn wrote: > Hi my beauties, I was just wondering if allopathic medicine got a better > idea then Dr. Stoll on what causes or triggers Graves or do they have > any explanation at all? > > ------------------------------------------------------------------------ > Who else wants to pay half and get free shipping? > http://click./1/4746/5/_/585824/_/959822232/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 Dianne, Thanks for that info on the antibody....can you tell me where you find out information such as this? I really want to start learning all I can about Graves. Since I'm gonna have it forever I might as well get to know it well. Thanks, Ann Ann McCrea, RN Helping others acheive wellness. One person at a time. www.NavigateDreams.com Re: Graves Autoimmune Technologies is currently doing work on this, which I found interesting: " Research done at Tulane University Medical Center suggests that Graves' disease may be associated with a retroviral particle called Human Intracisternal A-Type Particle, or HIAP. Antibodies to this particle have been found in a very high percentage of patients with Graves' disease. These antibodies have also been found in a very high percentage of patients with three other autoimmune disorders: systemic lupus erythematosus, Sjögren's syndrome, and juvenile rheumatoid arthritis. Researchers believe that these four disorders may result from the presence of HIAP together with genetic factors and some internal or external stimulus which all combine to dictate the specific symptomatology. " Dianne Wiley > > Hearn wrote: > > > Hi my beauties, I was just wondering if allopathic medicine got a better > > idea then Dr. Stoll on what causes or triggers Graves or do they have > > any explanation at all? > > > > ------------------------------------------------------------------ ------ > > Who else wants to pay half and get free shipping? > > http://click./1/4746/5/_/585824/_/959822232/ > > ------------------------------------------------------------------ ------ > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- ------------------------------------------------------------------------ Keep in touch with eGroups, Keep your long distance bills lower with beMANY! http://click./1/4120/5/_/585824/_/959879098/ ------------------------------------------------------------------------ ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 Here's some more antibody information. This is from Elaine . I sure it will be included in her up coming book on Graves.Ann McCrea, RN wrote: Thyroglobulin antibodies (TgAb) were the first thyroid antibodies discovered in people with thyroid disorders. They're antibodies to thyroglobulin, the collagen substance in thyroid cells which stores the thyroid hormones. TgAb are present in 76-100% of patients with Hashimoto's thyroiditis (HT) and about 70% of patients with primary autoimmune myxedema. In Graves' they're present 30-50% of the time. The prevalence of TgAb in women in general is 18% with higher frequencies in older women-30%. Thyroid Peroxidase antibodies (TPO Ab) are antibodies to an antigen that hides out in the storage vesicles where fresh thyroglobulin is stored. This test is the same as anti-microsomal antibodies, an earlier less sensitive determination of the microsomes in the vesicles. TPO Ab are present in the serum of almost all patients with HT. The highest titers are found in hypothyroid patients with HT. High titers are also found in hyperthyroid HT patients and patients with GD (titers > 1:6400). Reactive or positive titers which are considered to be >1:100 are seen in 10-13% of women and 3% of men but these titers never get way up there like in GD or HT. TPO Ab show up in almost all patients with HT and 57-74% of patients with Graves' disease with titers >1:6400. Euthyroid patients with high titers of TPO Ab and increasing levels of TSH are thought to have a 3%-4% chance each year of developing hyothyroidism. TSH binding globulin abtibodies are a type of TSH receptor antibody. There are stimulating, binding and blocking types. The stimulating ones are diagnostic for active GD although most GD people have a combination of types. When the binding ones predominate, TSH can't act on the receptor because the binding antibody is in the way--and the patient gets autoimmune thyroiditis. In GD the stimulating ones predominate and mimic TSH so hormone keeps getting made. After treatment or maybe as a natural progression of GD (few different theories on this) some of us get the binding antibodies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 > , > > I went to several yoga classes at my gym several months ago and from my experience, yoga requires something that I do not have , balance! I could not do any of the moves at all. > > e > Dear e, Yoga GIVES balance!... And GIVES health!... There might be many postures that you cannot hold right now, being the sick you've been. But there are others which you certainly can do now, f.i. shavasana (deep relaxation lying on the floor), and I would encourage you to try it for half an hour daily --and two or three times if possible-- There are also other postures on the floor, that you can hold right now, and would help you healing. In some weeks you'll notice how your body is responding, and how you're able of doing more. If you talk to your yoga-teacher he/she can adapt a mini-serie of asanas that work better for you now. I would encourage you to persist, and not give up. Anything you can do will be all right at this moment. Yoga is not intended as a training to win a contest. Its a marvellous healing tool, and improvements either in your yogic capabilities and in your health will come from practicing it. Best health wishes. A. > > > >From: " B " <petr0013@t...> > >Date: Wed, 28 Jun 2000 08:42:48 -0500 > >To: <graves_supportegroups> > >Subject: Re: Graves > > > >Kari, > > > >Yoga isn't necessarily touted as a weight loss program, but I've seen people > >lose weight doing a daily practice and a healthy diet. These were people > >who had a few pounds to trim off, not a large amount. I can't say enough > >about yoga. I began taking classes nearly six years ago now and started > >teaching classes in January. It's easy to incorporate into your life -- it > >can take as little as half an hour or fifteen minutes in the morning, > >evening. I do it often with my four year old while the toddler naps. But > >such a small amount during your regular life should be combined with a more > >rigorous and regular class. Yoga is also a wonderful way to center one's > >self, relax, gain a larger perspective on being alive. > > > > > > > > > >------------------------------------------------------------------- ----- > >Free Conference Calling with Firetalk! > >Click Here! > ><a href= " http://click./1/5480/6/_/585824/_/962200329/ " >http:// click./1/5480/6/_/585824/_/962200329/</a> > >------------------------------------------------------------------- ----- > > > >------------------------------------- > >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > >Please consult your doctor before changing or trying new treatments. > >---------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 In the Monitor Section, under " Lawsuits " : Rap impresario " Puffy " Combs, 30 agreed May 24 to pay an undisclosed sum to Levy, 25, an administrative assistant who was injured during a December '91 stampede at a Combs-organized celebrity basketball game in Manhattan that killed nine and injured 27. In the last civil suit stemming from the incident, Levy claimed she contracted Graves' disease (a hyperthyroid condition sometimes triggered by stress) after watching her best friend, , fatally suffocate. The rapper's lawyer says the claim " is without merit but [we] opted for settlement to avoid a protracted trial. " ... Ms Levy was very lucky to be diagnosed so quickly. No doubt it was very stessful seeing 9 people die. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 In a message dated 7/20/00 11:53:24 AM Eastern Daylight Time, elainetm@... writes: << Remember also that Graves is now considered a possible disability. It was not when I entered my first bout, although I was unable to concentrate on working nor able to handle the stress. I left work on savings. For those who might be experiencing similar difficulties, please do not ignore the possibility of a disability claim. My life would be much easier had I been permitted such an option. >> Howdy all! Long time no talk to. Elaine, did you file the claim through SSI? How did you go about it? What did you need to do that? Thanks in advance Jewls Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Hi Jewls, No, I wiped out all my savings and coasted to widows' social security benefits. My first bout with Graves was in 1991, it was not designated a " disability " at that time. It only reached that legal claim to fame in the last year or so. If you feel you are entitled to benefits I would talk to the doctor and tell him you are thinking of presenting a claim for disability. You will undoubtedly need his cooperation in presenting a claim. Good luck! Elaine Re: Graves > In a message dated 7/20/00 11:53:24 AM Eastern Daylight Time, > elainetm@... writes: > > << Remember also that Graves is now considered a possible disability. It was > not when I entered my first bout, although I was unable to concentrate on > working nor able to handle the stress. I left work on savings. For those > who might be experiencing similar difficulties, please do not ignore the > possibility of a disability claim. My life would be much easier had I been > permitted such an option. >> > > Howdy all! Long time no talk to. > > Elaine, did you file the claim through SSI? How did you go about it? What > did you need to do that? > > Thanks in advance > Jewls > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Hi Jody- I meant that levothyroxine (T4) was easier for docs just because it's half-life is so much longer (6 days as opposed to 3/4 of a day). That short half-life is why you get the ups and downs on T3. So T4 stays in your system much longer and at a more constant rate. There are differences between brands (as you've found out) but even so, they're still easier to regulate than that and the T3. I'm a dunce! I completely forgot about the congestive heart failure. Elaine had it on the ball. Sometimes I forget that we're all different in age here and I was mostly yapping about the problems the endo had with me. I think the problems are worth it though. My brain still doesn't work as well as it did when I had some thyroid function but it's a heck of a lot better than it was. I was disappointed because that and the exhaustion were what I wanted to go away and they're still here. I do have periods now where I'm not exhausted which is much better than I was before. The T3 did take care of any muscle pain, aches and arthritis I had. Neuropathies are gone and so is the sleep apnea and anxiety and panic attacks. Overall, my quality of life is definitely improved over what it was. One thing I've noticed. My blood pressure and heartrate were high on the big dose of Cytomel (T3) and Synthroid. On Armour (it's supposed to be even a bigger dose), my BP and HR are well within normal. And since I have no thyroid function, I prefer to take Armour since they don't know what the other stuff is for and they didn't think we needed T3 even though some of us clearly do. So I wonder what else they'll find out. I don't think it was a mistake to switch to Levothroid. Once you're regulated on it, it's supposed to be very consistant. It's the generic pills that you have to worry about from batch to batch. Take care, Jody Spitale wrote: > Thanks for the info , and yes I want to know the pro's and the con's of > T3...most I have talked to on it have said it is really hard to get > regulated, takes time but the one thing all of said is that their minds are > back to working so much better. > > My memory use to be excellant but not since GD and it is probably the most > frustrating for me to deal with...I truly need my memory back!!! > > What did you mean synthroid is easier for most drs. to deal with? I > switched from synthrhoid to levethroid in June, went from .088 of synthroid > to .10 of levethroid...both the dr. and the pharmascist said the only 'safe' > way to switch brands is when the dosage is being increased ... I have been > on the levethroid for 5 weeks now but I have to say I am feeling more and > more hypo...when my dose was changed earlier in the year I had a dramatic > reaction in lots of little ways, my cycles being one of them...so I don't > know what is going on. I do go for bloodwork next week though so should > know in about 8/9 days what is going on. My new endo is great, she mails me > my lab results immediately or will fax them to me. > > Do you think it was a mistake to switch brands? Just out of curiosity. I > only did it because I got on my 'high horse' attitude over the synthroid > law-suit <grin> > Take care, > Jody > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 Again, Jody, I'm glad you alerted me to this. When the hepatitis B shots came out for schoolchildren, I was abhorred. I figured the drug company started up a campaign and that's how things escalated. It really does make little sense. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 , You said something that has risen another question...you said when you started on the T3 you 'arthritis' went away...I wonder if this would help all arthritis sufferers? Just a thought. I think I like the idea of Armour, especially if it means taking just that and not the T4 too...as far as it taking awhile to get regulated, heck after 4 years I am STILL trying for that LOL. I do have hypertension, it is kept in check at 112/62 with 2 pills a day. I have been on meds. for that since I was 28. Will the Armour affect it? As for the T1 and T2, and I forgot what else Elaine said was in there, hmmmm maybe it is something that those with no functioning or slowly dying thyroids need and that is what does make us feel better. I wonder if anyone one will ever have the answers someday? *HUGZ* Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 Jody, Do we know (are they telling) which vaccines are affected? Terry > > Reply-To: graves_supportegroups > Date: Sat, 12 Aug 2000 21:54:05 EDT > To: graves_supportegroups > Subject: Re: Graves > > , Elaine and , (Francine, I thought you might like this post too) > > This is so strange since this topic was brought in here first this week and > I haven't talked with anyone else about it...the following is a copy and > paste of a post from my NOVaccines group...talk about DejaVu!!! > > Subject: Made Cow Disease From Vaccines... > > " Vaccines made from bovine-derived > materials from countries with a known or uncertain risk of bovine spongiform > encephalopathy (BSE) carry only an infinitesimal risk " - As infinitesimal as > the risk of severe side effect from vaccine? If so, then I'll pass, thanks. > > > > [PROVE] Mad Cow Disease from Vaccines? > > > (Some vaccines may be contaminated with Mad Cow Disease from the fetal cow > serum used to make vaccines and the FDA won't fess up and reveal the > companies using potentially contaminated serum - but those who profess to > know better for your child than you still say it is safe to give shots) > Vaccines Made From Materials From BSE Countries Present Almost No Risk of > CJD > By Steve > > WASHINGTON, Jul 28 (Reuters Health) - Vaccines made from ovine-derived > materials from countries with a known or uncertain risk of bovine spongiform > encephalopathy (BSE) carry only an infinitesimal risk of new variant > Creutzfeldt-Jakob disease (vCJD), two advisory committees of the US Food and > Drug Administration (FDA) said at a joint meeting on Thursday. > > The Transmissible Spongiform Encephalopathies Advisory Committee and the > Vaccines and Related Biological Products Advisory Committee unanimously > agreed with committee member Dr. Bruce M. Ewenstein's assessment that > " although there is a theoretical risk...the risks do not exceed the > benefits " of vaccination. > > Dr. Egan, acting director of the FDA's Office of Vaccine Research > and Review, said that the agency convened the meeting because it learned in > March that its recommendation that bovine-derived materials from countries > with a certain or unknown BSE risk not be used in biological products " has > not been followed universally by vaccine manufacturers. " > > He noted, however, that " no evidence exists that any case of vCJD has > resulted from the administration of a vaccine product. " An official from the > Centers for Disease Control and Prevention (CDC) confirmed this assessment, > saying that since 1979 " there have been no documented cases of vCJD in the > US...so we're pretty confident that we do not have vCJD in the US. " > > Despite the agreement by both committees that the risk was almost > nonexistent, most committee members believed that some effort should be made > to communicate this risk to physicians. Although a Dear Doctor letter and an > addition to labeling was suggested, the committees deemed these insufficient > and instead favored committee member Dr. Ferrieri's suggestion that > the FDA place a notice in the Journal of the American Medical Association. > > Officials from the FDA agreed with this idea. The communication should note > that this is only a theoretical risk and that " no change in practice is > indicated, " Dr. Ewenstein said. > > Vaccine manufacturers will probably not have to rederive their master seeds, > which representatives from Aventis said would result in an entirely new > vaccine and require the submission of a new New Drug Application. Both > committees unanimously agreed with chair of the Transmissible Spongiform > Encephalopathies committee Dr. Brown's suggestion that " it will not be > necessary to rederive master seeds. " > > The committees also agreed that fetal calf serum sourced from the UK in the > mid-1980s used in master cell banks constitutes a negligible risk. > Furthermore, bovine materials sourced before 1980 are not of concern, the > committees agreed. > > The FDA has been unwilling to name the manufacturers who have used materials > sourced from countries with a BSE risk, and Dr. G. Lurie of Public > Citizen's Health Research Group urged the agency to come forth with the > names of the manufacturers and the specific vaccines. Because the risk of > vCJD is only theoretical, it appears unlikely that the FDA will do this. > > " At a minimum, there should be some sort of public apology from the FDA and > the manufacturers at fault, " Dr. Lurie said in an interview with Reuters > Health. > > The FDA's Dr. Egan refused to comment to Reuters Health on this issue. > ----------------------------------------------------------------------Dawn > > PROVE(Parents Requesting Open Vaccine Education) > P.O. Box 1071 > Cedar Park, TX 78630-1071 > > prove@... (email) > http://vaccineinfo.net (web site) > ----------------------------------------------------------------------PROVE > provides information on vaccines, and immunization policies and practices > that affect the children and adults of Texas. Our mission is to prevent > vaccine injury and death and to promote and protect > the right of every person to make informed independent vaccination decisions > for themselves and their families. > ---------------------------------------------------------------------- > This information is not to be construed as medical OR legal advice. The > decision to vaccinate and how you implement that decision is yours and yours > alone. > > > > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 Hi Terry, Regarding Mad Cow Disease, I am not sure, I have just gotten that article and not had the time to persue it. But vaccines that can damage an immune system, cause autism as well as a wide spectrum of other problems that I have been reading about include the DPT, MMR, HiB and Hep B. You can read more on this at: www.909shot.com If you want more URL's I will be happy to forward them to you. They use Mercury, Formaldahyde, Tin and Aluminium as binding agents and preservatives (even Thermarsil (sp?)(Mercury) free vaccines have a small amount of thermarasil in them as a preservative. Let me know if you want more sites, but 909shot is a great starting place on this. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 How interesting. And of course there haven't been any new cases recently. The organism is said to harbor in the body for years before symptoms begin. What a legacy to be passing on. How an FDA recommendation like that can be ignored is appalling. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 Terry, I am putting together an e-mail of URL sites that those interested in reading can see. It will probably take me a couple of days, just with the ones I have bookmarked...the following though is one that is unbelieveable in what is says about auto-immune diseases and vaccinations...check it out. http://www.healthy.net/asp/templates/article.asp?PageType=Article & ID=525 Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 Jody, Thanks for the info. I will check out the 909shot site. I've always been uncomfortable with all the immunizations, although my kids had all the ones required at the time and seem so far (at 28, 18 & 16 yrs.)to be OK. But I drew the line at the hepatitis B vaccine! And, when I eventually have grandkids, I want to know all the facts. We're so boxed in on this issue, with the schools refusing to take unvaccinated kids! Terry > > Reply-To: graves_supportegroups > Date: Sun, 13 Aug 2000 10:33:34 EDT > To: graves_supportegroups > Subject: Re: Graves > > Hi Terry, > Regarding Mad Cow Disease, I am not sure, I have just gotten that article > and not had the time to persue it. But vaccines that can damage an immune > system, cause autism as well as a wide spectrum of other problems that I > have been reading about include the DPT, MMR, HiB and Hep B. You can read > more on this at: > > www.909shot.com > > If you want more URL's I will be happy to forward them to you. They use > Mercury, Formaldahyde, Tin and Aluminium as binding agents and preservatives > (even Thermarsil (sp?)(Mercury) free vaccines have a small amount of > thermarasil in them as a preservative. > > Let me know if you want more sites, but 909shot is a great starting place on > this. > Jody > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2000 Report Share Posted September 27, 2000 Hi , There are definitely neurotransmitter aberrations in GD, and several recent studies show that many of us have antibodies to certain neurotransmitters as well as to the TSH receptor. What you're proposing alludes to the focus of Dr. Noel Rose, an Immunology Professor at s Hopkins. The thyroid is just the scapegoat. It's the immune system that needs to be addressed. Rose explains that the way medicine evolved led to specializations which usually don't offer any good solutions for those of us with autoimmune disease. For autoimmune thyroid disorders we see an endocrinologist who addresses the isssue by cutting down thyroid hormone production in hyper... or replacing thyroid hormone in hypo. Rose feels the focus, and really this is where research is heading, should be on the immune system defect. Current research with monoclonal antibodies and cytokines is headed that way, and for some diseases like MS this form of treatment is in use. Not so for us. Yet anyway. And our symptoms need to be treated so we're forced to go the endo route. At least ATD's manage to mildly suppress the immune system while symptoms spontaneously resolve. So ATD's offer more in the way of a cure. Because we're alreading experiencing a deficiency in the CD8 T suppressor cells which would ordinarily stop autoantibodies from forming we can't just use immunosuppressive drugs. What we need is something like CD8 replacement cells which would restore immune system balance. In the meantime we can do what we can to help restore balance naturally. Like with the immunomodulators I mentioned before, and energy healing, etc. As for the neurotransmitters, they intercept messages between the endocrine, nervous and immune systems and have never been targeted as the main problem in GD. No one really understands the connection between catecholamines and thyroid hormone. They just say the effects are similar. Anyway, it's still the immune system hyping things up. And many researchers still feel, like in the article you sent me, that stress is the instigator. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 > Hello Darlings, I just had a thought. When you get a new drug there is a > leaflet which explains all the side effects. How on earth do they know > that these side effects exist? > Unlike regular doctors, do researchers listen to their subjects? Or do > they hook up some kind of computer where the monkies can point to the > hurties? Or do they just rely on the numbers? Or do they guess? I am not > being silly. I think that this is a valid question. > All drugs at some point have to go thru drug trials with human patients. Hopefully the docs running the trials keep good track of how the patients feel and respond to the meds so they can list how people react. I wish however they would be a little more specific as to how many people experienced the side effects etc. There are no numbers on most of the leaflets and it is hard to tell how many patients experienced what. 1 patient out a 100? 2 out of 500? etc etc etc. How rare were the rare side effects, exactly how many people died from the drugs and why? Tho this info is probably more than the companies think the patients really need to know, but the way they write them up as is usually has some folks I know run screaming into the night positive they are going to experience every little side effect listed. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Believe it or not Bonnie you can get that information. But my dear I wish to challenge the statement that " All drugs at some point have to go thru drug trials with human patients. " I have a suspicion that that is not true any more. Or rather the sample is so small it has no statistical validation. I was trying to make the point that somewhere in the world, doctors listen to patients. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.