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YANA update March 2010 #3

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RIP: We lost one of our

members - http://www.yananow.net/Mentors/phW.htm

JOSEPH WASIAK on March

10. Diagnosed in April 2009 with stage T4 disease and a PSA of 1,892.0 ng/ml

MINIPOLL The MiniPoll dealing with the ‘ minor’

 side effects of surgery - Climacturia (the leakage

of urine at climax), Peyronie's Disease (a bend developing in the erect penis),

Change in size (loss of length or girth in the erect penis) – has been closed

and the results are here http://www.yananow.net/MiniPoll2.htm

NEW POSTS:

http://www.yananow.net/Mentors/W2.htm

 JAMES WOOD comes in as a Gold three star member having been

diagnosed in 1997 when he chose Watchful Waiting until a rising PSA and second

biopsy when he chose PBT (Proton Beam Therapy)

 at ville

http://www.yananow.net/Mentors/LeonardF.htm  

FRANK LEONARD diagnosed in January has had RALP (Robotic

Assisted Laparoscopic Surgery)

http://www.yananow.net/Mentors/EdR.htm 

ED RIDER diagnosed last month and has chosen RP (Radical Prostatectomy)

http://www.yananow.net/Mentors/JoeS.htm 

JOE SCHMIDT diagnosed in November and has chosen Surgery

http://www.yananow.net/Mentors/GovindS.htm 

GOVIND SHARMA newly diagnosed and undecided

http://www.yananow.net/Mentors/TomasB.htm 

TOMAS BERGMAN after considering all options since diagnosis in October 2008 he

has chosen PBT (Proton Beam Therapy) at ville

http://www.yananow.net/Mentors/M4.htm 

DAVID MANSFIELD newly diagnosed and undecided – contemplating HIFU (High

Intensity Focused Ultrasound)

http://www.yananow.net/Mentors/ForrestT.htm 

FORREST THURBER chose PBT (Proton Beam Therapy) after diagnosis in December

2007 – has rectal bleeding now but not other side effects

http://www.yananow.net/Mentors/JimC4.htm

 JIM COLLYNS diagnosed with a PSA of over 1,000

and staged T4 after he had insisted on a PSA test when his back problem

didn’t clear up

http://www.yananow.net/Mentors/V.htm 

RICHARD VANCE newly diagnosed and undecided now that his insurers have knocked

him back for PBT (Proton Beam Therapy) at ville

http://www.yananow.net/Mentors/KenL.htm

 KEN LILLAGORE  a little over a year after his RP

(Radical Prostatectomy) he has ED and some occasional leaks

http://www.yananow.net/Mentors/GregK.htm

 GREG KAMPA newly diagnosed and undecided

http://www.yananow.net/Mentors/phK3.htm

 JOSEPH KURY  still with ED problems after his

RALP (Robotic Assisted Laparoscopic Prostatectomy) fourteen months ago

http://www.yananow.net/Mentors/D.htm

 KENNETH DOWD diagnosed in 2001 wth a PSA of 48.0 and a GS 7 large tumour, he chose

EBRT (External Beam Radiation Therapy) and ADT (Androgen Deprivation Therapy)

with a rising PSA he says he cannot afford treatment

http://www.yananow.net/Mentors/F.htm

 RICHARD FRATTALI diagnosed in 2003 and is concerned

about rising PSA after failed RP (Radical Prostatectomy) and adjuvant EBRT

(External Beam Radiation Therapy) and adverse reaction to Lupron

UPDATES FROM MEMBERS

http://www.yananow.net/Mentors/AmadorA.htm

AMADOR MONTEJANO moving on to Ketoconzole

after ADT (Androgen Deprivation Therapy) failure for his T4, GS8 PSA 98

diagnosis

http://www.yananow.net/Mentors/EdB.htm 

ED B recovering from his RALP (Robotic Assisted Laparoscopic

Prostatectomy) with everything returning to normal

http://www.yananow.net/Mentors/C2.htm

 ROBERT CURTIS on ADT (Androgen Deprivation Therapy) after

failed RP (Radical Prostatectomy) but is concerned because his COBRA runs out

this summer

http://www.yananow.net/Mentors/GeoffH.htm

 GEOFF H  ADT (Androgen Deprivation Therapy) for a T4 diagnosis has

failed with PSA up to 198 and he has started on Taxotere

http://www.yananow.net/Mentors/DaveL.htm

 DAVE LANDRUM 27 months out from his Cyberknife® and he has a mixed bag

of side effects

http://www.yananow.net/Mentors/JoeT.htm 

JOE TILLSON nine months out from RALP (Robotic Assisted Laparoscopic

Prostatectomy) he’s happy with his decision – still working on the

ED issues

http://www.yananow.net/Mentors/AllisterM.htm 

ALLISTER MURPHY started on Degarelix

but that hasn’t helped much yet with a PSA of 40.0 – down from

158.0 at diagnosis

http://www.yananow.net/Mentors/B.htm

RICHARD B five years after his RALP (Robotic Assisted

Laparoscopic Surgery) his PSA is undetectable, but his ED problems include

Peyronie’s Disease

http://www.yananow.net/Mentors/H3.htm 

 PAUL HOUY  PSA falling after an enjoyable stay at ville for PBT (Proton

Beam Therapy)

http://www.yananow.net/Mentors/DelM.htm

 DEL MANCUSO completed his IGRT (Image Guided Radiation

Therapy) in February and is very happy with the outcome

http://www.yananow.net/Mentors/IanV.htm

 IAN VAGG in his fifth year since a T4 diagnosis with a PSA

of 24 and a GS 8 – PSA still under 2.0 on Eligard and alternative

medicines http://www.yananow.net/Mentors/MarkC.htm

 MARK CORONE has finally got his penile implant to sort out his ED after RALP (Robotic Assisted Laparoscopic

Surgery) and ADT (Androgen Deprivation Therapy)–  delays

due to heart surgery and bladder cancer – as he enters year five after a

GS 9 diagnosis

http://www.yananow.net/Mentors/P2.htm 

DAVID PRICE has finished the first leg  - ADT (Androgen

Deprivation Therapy) of his three therapy approach and will have his HDR

– (High Dosage Radiation Therapy) next

http://www.yananow.net/Mentors/H3.htm

 DAVID HERITAGE still arguing for Casodex instead of Zoladex

for ADT (Androgen Deprivation Therapy)

http://www.yananow.net/Mentors/TimG.htm

 TIM GODFREY three months after RP (Radical Prostatectomy)

he is battling with ED issues

http://www.yananow.net/Mentors/MickS.htm

 MICK SMITH still on Active Surveillance with 3 or 4 months

to go to next biopsy and getting a bit antsy

http://www.yananow.net/Mentors/RickC2.htm

 RICK CALLAHAN  has had a second biopsy but is considering

focal Cryotherapy or PBT (Proton Beam Therapy)

at Philadelphia

http://www.yananow.net/Mentors/RickD2.htm

 RICK DANCER still undecided – now looking at surgery

or EBRT (External Beam Radiation Treatment)

http://www.yananow.net/Mentors/T.htm

 ERIC TAYLOR  is the man responsible for the indexing on the

site (he had the idea and did all the groundwork) is in his tenth year after

surgery for a GS 9 diagnosis and has a PSA of 0.10 compared to previous

“less than 0.10”

http://www.yananow.net/Mentors/DonF.htm

 DON FLIEG six months out of EBRT (External Beam Radiation

Treatment)/ADT (Androgen Deprivation Therapy) salvage therapy for failed RALP

(Robotic Assisted Laparoscopic Surgery) has ED and incontinence

http://www.yananow.net/Mentors/JeffD.htm

 JEFF DAVIS two and a half years after RALP (Robotic

Assisted Laparoscopic Surgery) all’s well apart from occasional leaks

http://www.yananow.net/Mentors/CJayP.htm

 C JAY P  two years after his PBT (Proton Beam

Therapy)  at Loma and he’s happy

with his choice

http://www.yananow.net/Mentors/BruceJ.htm  

 BRUCE JACKSON  has

finally sent in his update on his RALP (Robotic Assisted Laparoscopic Surgery)

2 ½ years ago – and very interesting it is. Now he has had a penile

implant he has completed the trifecta – no ED, no PSA and no incontinence

http://www.yananow.net/Mentors/P.htm 

FRANK P reports in about his CyberKnife® recovery – had some rectal

proctitis but that has cleared up

http://www.yananow.net/Mentors/H2.htm

 RICHARD H after failed RALP (Robotic Assisted Laparoscopic

Surgery) and failed salvage ADT (Androgen Deprivation Therapy) he is looking to

join a trial

http://www.yananow.net/Mentors/H.htm

 GEORGE HARDY Silver member - five years since he found out

what a PSA of 185.0 might mean – EBRT (External Beam Radiation Treatment)

plus ADT (Androgen Deprivation Therapy)

http://www.yananow.net/Mentors/MikeD.htm

 MICHAEL DURBIN  doing well after his combined IMRT

(Intensity Modulated Radiation Therapy) and Brachytherapy although

there’s some mystery about the seeds migrating – or not

http://www.yananow.net/Mentors/RonT.htm

 RON T still very much in favour of his choice of HIFU (High

Intensity Focused Ultrasound). twelve months after treatment

http://www.yananow.net/Mentors/KenE.htm

 KEN E still with some urinary issues after his

Brachytherapy

http://www.yananow.net/Mentors/JeffD2.htm

  JEFF DUNAWAY is recovering well from his September RALP

(Robotic Assisted Laparoscopic Surgery)

http://www.yananow.net/Mentors/I.htm

 CHRISTOPHER IVY coming

up to two years since diagnosis when he chose Active Surveillance with a lower

PSA and a negative biopsy

http://www.yananow.net/Mentors/DennisD3.htm

 DENNIS DENMICK decided on RALP (Robotic Assisted Laparoscopic Surgery)

after diagnosis in February

http://www.yananow.net/Mentors/WalterR.htm

 WALTER R reporting in after his first PSA after

RALP (Robotic Assisted Laparoscopic Prostatectomy)

All the

best

Terry

Herbert

+61

3 9891 6883

 +61

421 907 318

: terryherbert1942

1/60 Morna Rd,

        

DONCASTER EAST VIC 3109,

         

Australia

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