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Janice wrote:

So what is wrong with me???? he gave me Atarax for anxiety and itching

skin. I screamed at him - my frickin skin doesn't itch - it burns like

a sun burn all the time. He said try this until Monday and if not

better give me a call. Well, do I call him or call someone else for an

appointment? What does it mean that the ANA is inconclusive?? Makes

me wonder if he even really had the tests run.

~~~~~~~~~~~~~

You .. like a lot of us .. are stuck in the roller coaster ride of

testing.

With lupus, as well as diabetes, the nerve endings can become damaged..

this is called neuropathy. The skin will feel like it is burning,

itching, bugs crawling, etc. The nerve endings are misfiring because of

damage. Atarax is an antihistamine.. Atarax relieves itching from

allergic reactions and can be used as a sedative before and after

general anesthesia. Antihistamines work by decreasing the effects of

histamine, a chemical the body releases that narrows air passages in the

lungs and contributes to inflammation. Antihistamines reduce itching and

swelling due to nerve irritation as well.

If your symptoms do not improve, then by all means contact him. Atarax

is the least invasive of drugs .. causes less damage than other drugs

used in Lupus. Doctors usually begin with Atari and progress from there.

You were wondering if he even had the tests run .. so .. get copies of

the reports. You may have to pay a dollar for the copy, or he may give

it to you for free, depending on office practice. He cannot REFUSE to

give you your test results. As long as you are using them for personal

use and sign a waiver releasing the copies to you alone, then he is

required by law to give you copies. If he cannot produce the copies,

then by all means .. contact your insurance company and report him as

well as the American Medical Association.

ANA tests are only one of the tests that are examined to get a diagnosis

for lupus. There are many criteria for a diagnosis. Sometimes it will

take months to years for a diagnosis because as the disease is either

active or not, the test results will vary on when the blood was drawn.

Other times you can be diagnosed in one doctor visit.

Don't despair .. we have all been where you are at right now ..

I know the depression is hard .. but you have made a wonderful decision

is joining a support group (LUPIES) and you will find we wont tell you

the pain is all in your head .. and we don't care if you feel like

venting some anger or frustration.. just remember to watch the language

... smiles .. we have young members on here as well.

hugs..

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  • 8 years later...
Guest guest

My name is Lori & my husband was diagnosed in early April with Prostate Cancer.

As you all know, there is a wealth of info out there. We have spent the past few

weeks reading books & internet searches. I wish I would have thought of looking

for this yahoo group at that time. We have decided to go with robotic surgery

after meeting with a regular urologist/surgeon and the robotic surgeon. We

considered proton at Loma and may have gone for it except he needs other

urinary surgery any way. So would have had to have surgery then the proton

treatment.

The best piece of advice we received was from his sister who said; " research,

make a decision and never look back " .

Dave's gleason was 7 (3+4) on one side and 6 (3+3) on the other. His PSA was

only 5.2. He is 63, only symptom was urinary problems.

We have been amazed at all the information other men have so very willingly

shared. We have spoken to men with each type of treatment. As you all know,

there is no best treatment - unlike many other cancers.

Thank you & we are looking forward to support from here after his surgery. God

Bless, Lori

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Hi Lori,

I'm so sorry to hear what you are both going though. My husband has Prostate Cancer and has had treatment of IMRT, 44 treatments all together. He had his PSA done yesterday and we are waiting to see his Oncologist next week but so far so good. I wish you both the best of luck and if you ever need to chat, just let me know. Take care,, I'll keep you both in my thoughts and prayers.

Best of luck,

Sheila

Newbie

My name is Lori & my husband was diagnosed in early April with Prostate Cancer. As you all know, there is a wealth of info out there. We have spent the past few weeks reading books & internet searches. I wish I would have thought of looking for this yahoo group at that time. We have decided to go with robotic surgery after meeting with a regular urologist/surgeon and the robotic surgeon. We considered proton at Loma and may have gone for it except he needs other urinary surgery any way. So would have had to have surgery then the proton treatment. The best piece of advice we received was from his sister who said; "research, make a decision and never look back". Dave's gleason was 7 (3+4) on one side and 6 (3+3) on the other. His PSA was only 5.2. He is 63, only symptom was urinary problems. We have been amazed at all the information other men have so very willingly shared. We have spoken to men with each type of treatment. As you all know, there is no best treatment - unlike many other cancers.Thank you & we are looking forward to support from here after his surgery. God Bless, Lori

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Guest guest

Hi Lori,

I'm so sorry to hear what you are both going though. My husband has Prostate Cancer and has had treatment of IMRT, 44 treatments all together. He had his PSA done yesterday and we are waiting to see his Oncologist next week but so far so good. I wish you both the best of luck and if you ever need to chat, just let me know. Take care,, I'll keep you both in my thoughts and prayers.

Best of luck,

Sheila

Newbie

My name is Lori & my husband was diagnosed in early April with Prostate Cancer. As you all know, there is a wealth of info out there. We have spent the past few weeks reading books & internet searches. I wish I would have thought of looking for this yahoo group at that time. We have decided to go with robotic surgery after meeting with a regular urologist/surgeon and the robotic surgeon. We considered proton at Loma and may have gone for it except he needs other urinary surgery any way. So would have had to have surgery then the proton treatment. The best piece of advice we received was from his sister who said; "research, make a decision and never look back". Dave's gleason was 7 (3+4) on one side and 6 (3+3) on the other. His PSA was only 5.2. He is 63, only symptom was urinary problems. We have been amazed at all the information other men have so very willingly shared. We have spoken to men with each type of treatment. As you all know, there is no best treatment - unlike many other cancers.Thank you & we are looking forward to support from here after his surgery. God Bless, Lori

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