Kathy C.-welcome demographics/places lived, been to

[Guest guest]

Kathy C., welcome and so happy you are posting. I understand how you are

feeling, the denial and all. This group is full of wonderful and

knowledgeable people. Please ask anything. You have had a lot of things

happening in your life at the same time. New marriage and all.

Congratulations on your marriage, Kathy. We all have to fight for ourselves

if we don't have a doctor who will do it or if our insurance companies stall

or whatever. My husband's company has a human resources person who when

asked will talk direct to a representative that the insurance company has for

his company and believe me it can help when scheduling tests and getting

approval quicker than the usual 2 weeks or more that you would have to wait

if the doctor's office sought the approval alone. We have to stay on top of

things for ourselves because this disease is so rare most doctors don't know

about it. Early detection and medication is important. Glad you are on

board with us. Look forward to getting to know you better. Love and God

Bless, Ronnie

In a message dated 2/12/2000 9:08:24 AM Pacific Standard Time,

catherk@... writes:

<< Hi, this is Kathy C. I guess I've been hiding out- my husband hooked us up

with your group right before Christmas- almost the same day I received my

diagnosis (sp?)- see, I don't even want to think of anything medical ! I'm

still in denial- but this request for ancestry hit home. I was born in

northeastern PA- have German ancestry (I'm 6th generation in US) on my mom's

side- Dad unk. I've lived most my life in upstate (clarification is

necessary) NY and moved to northern VA 1 1/2 yrs ago. Married 5 mths ago (w/3

stepkids, girls 13-19) and diagnosed w/RP 1 1/2 mths ago. Ken-my wonderful

hubby has been after me to go beyond my HMO- but I've been uncomfortable

asking for what I don't know. I see information regarding the establishment

of a baseline- and I appreciate all the infor. I've been in the medical field

somewhat and expect doctors to look at me weird- thanks for sharing so much,

I guess this is my big step for the day- now I'll try to do some work!

Again, thanks, I'm here and appreciate you all so much- I'll be back- I have

a lot of questions.

-----Original Message----- >>

[Guest guest]

In a message dated 02/12/2000 2:11:50 PM Eastern Standard Time,

Ronniegrl@... writes:

<< We have to stay on top of

things for ourselves because this disease is so rare most doctors don't know

about it. Early detection and medication is important. >>

I can't stress the importance of this early treatment is so important

Love and Gentle Hugs,

Angie

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