Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 LOST MEMBERS Sad to report the passing of two Members earlier this year http://www.yananow.net/Mentors/D.htm RUPERT D although his initial diagnosis was not too bad, sadly his ADT (Androgen Deprivation Therapy) failed to deal with it http://www.yananow.net/Mentors/B.htm DEREK BIRD Gold Three Star Member who had a PSA of 145.0 when he was diagnosed in 1996 did not respond to an update reminder and I understand that he has passed on, possibly from a stroke NEW POSTS: http://www.yananow.net/Mentors/TimT.htm TIM THOMPSON chose PBT (Proton Beam Therapy) at and has almost finished his therapy http://www.yananow.net/Mentors/WladK.htm WLAD KRQ joins us from Poland with a brief story of RP (Radical Prostatectomy), EBRT (External Beam Radiation Treatment) and ADT (Androgen Deprivation Therapy), so you Polish language people get in and welcome him http://www.yananow.net/Mentors/SamB.htm SAM BING newly diagnosed and undecided http://www.yananow.net/Mentors/W.htm RICHARD WATT chose RP (Radical Prostatectomy) and is recovering http://www.yananow.net/Mentors/LynnR.htm LYNN REID abandoned PBT (Proton Beam Therapy) after six sessions and took the (AS) Active Surveillance path - an interesting story indeed UPDATES FROM MEMBERS http://www.yananow.net/Mentors/AlanJ.htm ALAN J chose IMRT (Intensity Modulated Radiation Therapy) plus ADT for his GS9 diagnosis and is a little concerned about a rising PSA – could this be linked to a rising Testosterone level? http://www.yananow.net/Mentors/TerryC.htm TERRY C another Active Surveillance member whose second biopsy would be classified in the US as ‘no cancer found’ http://www.yananow.net/Mentors/L2.htm GEORGE L has finished his CyberKnife® therapy and is waiting to see his PSA drop http://www.yananow.net/Mentors/TrevorT.htm TREVOR TOOHILL has chosen surgery but because of a lack of RALP (Robotic Assisted Laparoscopic Surgery) experience has chosen the Manual Laparoscopic procedure http://www.yananow.net/Mentors/JimW2.htm JIM WHELAN chose EBRT (External Beam Radiation Therapy) and is now a bit concerned about fluctuating PSA levels http://www.yananow.net/Mentors/P.htm PHILLIP POPP dealing with ED issues after his RALP (Robotic Assisted Laparoscopic Prostatectomy) three months ago http://www.yananow.net/Mentors/HenkvdW.htm HENK VAN DER WILK not far away from a Gold status this Silver Member ha been diagnosed with osteoporosis after ADT (Androgen Deprivation Therapy) for failed RP (Radical Prostatectomy) http://www.yananow.net/Mentors/C.htm ROGER CARNELL one year after diagnosis and he finds the side effects from his Active Surveillance acceptable http://www.yananow.net/Mentors/L2.htm RICHARD LEE having problems after EBRT (External Beam Radiation Therapy) following failed RALP (Robotic Assisted Laparoscopic Prostatectomy) still on ADT (Androgen Deprivation Therapy) with ED and no libido http://www.yananow.net/Mentors/GordonM.htm GORDON MCLEOD still has an undetectable PSA in his seventh year after ADT (Androgen Deprivation Therapy), RP (Radical Prostatectomy) and Chemotherapy for a ‘bad’ diagnosis with a PSA of over 80 and a GS 8 http://www.yananow.net/Mentors/G.htm ERIC GAMBLE one of our Platinum Members – diagnosed in 1994 with a GS 9 tumour at age 70, he is now 86 and the only side effect he complains of is a lack of energy after his EBRT plus ADT (Androgen Deprivation Therapy) http://www.yananow.net/Mentors/TonyS.htm TONY SHORES concerned about his testosterone levels which have not recovered during his eighteen month Lupron vacation after IMRT (Intensity Modulated Radiation Therapy) http://www.yananow.net/Mentors/HankH.htm HANK HANCOCK still trying to establish why he has a positive PSA after RALP (Robotic Assisted Laparoscopic Prostatectomy) http://www.yananow.net/Mentors/EdB.htm ED B still very happy with his choice of RALP (Robotic Assisted Laparoscopic Prostatectomy) http://www.yananow.net/Mentors/H4.htm JOHN H has significant incontinence problems after his RALP (Robotic Assisted Laparoscopic Prostatectomy) and is considering a sling or a sphincter procedure and is seeking input http://www.yananow.net/Mentors/RichB2.htm RICH BROWN two years after RALP he has no major issues to deal with http://www.yananow.net/Mentors/S.htm JAMES SANFORD his PSA is still dropping after his EBRT (External Beam Radiation Treatment) and he is satisfied with his choice http://www.yananow.net/Mentors/JackL.htm JACK LONG three years after RALP (Robotic Assisted Laparoscopic Prostatectomy) he has some ED problems but they are not serious http://www.yananow.net/Mentors/ErnestF.htm ERNEST FRANK Gold Member still having problems with bleeding from IMRT (Intensity Modulated Radiation Therapy) induced proctitis http://www.yananow.net/Mentors/FullerJ.htm FULLER JONES biggest supporter of PBT (Proton Beam Therapy) on the site reports he’s doing well three and a half years down the track http://www.yananow.net/Mentors/DerryM.htm DERRY MOUNT discovered bone metastasis after rising PSA following combined EBRT (External Beam Radiation Therapy) and Brachytherapy now on Lupron http://www.yananow.net/Mentors/K2.htm MICHAEL KNIGHT is now ten weeks post RP (Radical Prostatectomy) and has some incontinence and ED issues but is concerned about the staples at the surgery site http://www.yananow.net/Mentors/JoeMc.htm JOE MC had his bladder and prostate removed after ADT (Androgen Deprivation Therapy) for his GS 9 diagnosis and his wounds became infected – looking for input from anyone with similar problems http://www.yananow.net/Mentors/JerryB.htm JERRY BRAAM his rising PSA after RALP (Robotic Assisted Laparoscopic Prostatectomy) 2 ½ years ago may have been due to bladder infection – still using 3 pads per day http://www.yananow.net/Mentors/B.htm PETER BROWN going well after his ‘mixed grill’ of ADT (Androgen Deprivation Therapy) plus EBRT (External Beam Radiation Therapy) plus Brachytherapy http://www.yananow.net/Mentors/RalphB.htm RALPH BESNOY eight years after his RP (Radical Prostatectomy) PSA is still undetectable for this Silver member http://www.yananow.net/Mentors/TomL3.htm TOM LANCASTER is on an unusual therapy - DES (diethylstilboestrol) – after experiencing a rising PSA after EBRT (External Beam Radiation Treatment) http://www.yananow.net/Mentors/H.htm THOMAS HEHIR slight upward PSA at 6 months but staying with his Active Surveillance choice I am now up to date with all entries that I have received. If you have submitted your story or an update and it has not appeared on the site or I have not acknowledged it, please e-mail me at terryherbert42@... Hardy is sending out reminders for men who haven’t updated In the last year or more – he is up to June/July last year. If you haven’t sent in an update for the past 12 months, please consider going along to the UPDATE PAGE and sending in your news – if you want to send in your story for the first time then JOIN US . BUT …….can you please send in your stories before the end of November? I know it is a busy time for Mentors in the US, but I am going on holiday (i.e. vacation) in December and will not be processing any material until January when I get back. I’d rather do as much as I can before I go rather than face a backlog when I get back. I am hoping that the website can be re-structured for greater ease of operation and navigation while I am away so we can start the New Year off with the changed site. All the best Terry in Australia All the best Prostate men need enlightening, not frightening Terry Herbert - diagnosed in 1996 and still going strong Read A Strange Place for unbiased information at http://www.yananow.net/StrangePlace/index.html All the best Prostate men need enlightening, not frightening Terry Herbert - diagnosed in 1996 and still going strong Read A Strange Place for unbiased information at http://www.yananow.net/StrangePlace/index.html Quote Link to comment Share on other sites More sharing options...
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