Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Hi Sherrie, You can talk anytime you need to. If I can help I certainly will. You can mail me offlist if you would rather. My mail is AmethystWillowWolf@... take care, Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Hi Sherrie...I am 37 and have RA since I was 34. I get fatigued alot! I am from Pennsylvania....how about you? sherri Stay strong and healthy >From: " scorn720 " <scorn720@...> >Reply-Rheumatoid Arthritis >Rheumatoid Arthritis >Subject: hi all >Date: Thu, 21 Oct 2004 14:06:51 -0000 > > > >my name is sherrie and i am looking for some people to talk to about >my RA and lupus what is the best time to talk to you all thanks > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Sherrie, I would be happy to talk to you anytime. I have Lupus and RA as well. Looking forward to hearing from you! ~ at shelsmieg2000@... scorn720 <scorn720@...> wrote: my name is sherrie and i am looking for some people to talk to about my RA and lupus what is the best time to talk to you all thanks __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2004 Report Share Posted November 17, 2004 I have been reading the emails and some of you are in so much worse shape than me...that is what makes me not post anything or ask any questions. I feel ashamed that my aches and pains are so minor to most of you...my heart goes out to you and you are in my prayers....this has been a rough week for me and my primary doctor is away until November 28...my RA doctor told me that the problems that I am having should be asked to my primary DR and not the RA DR...so I come to you for help...here goes...for awhile (a few months maybe) I started waking up with my hips hurting me...my neurologist told me that I had bursitis in both my hips and since my shoulders also hurt and lower back too...he gave me 17 nerve blocks (not all at once), naturally that didnt help the pain...then my feet swelled up (and ankles, more on left side than right) and the soles of my feet were so swollen that my daughter took me to the emergency room...the nitwit doctor there told me that " he doesn't know what to tell me and I should soak my feet in ebson salt " ... my daughter then asked him to check for lymes disease...so he took a blood test...a few days later my doctor called me and said that I do have lymes disease and that I need to take strong antibiotice for a month...a week+ later, she (the doctor) called me back and said that I do not have lymes disease so I should go off the antibiotics and come to her office...I was still swollen and gaining weight quickly, she was stumped so she admitted me into the hospital for tests...at the hospital, my blood pressure was 180, my cholesterol was 499, and I was not given anything to lower either...instead, I was given PT to learn how to walk with a walker (which I refused)...the doctor finally came to see me and said that she my blood work showed that the RA was high so she sent an RA doctor to see me while I was still in the hospital...since my stomache was very swollen, they did a cat scan on by belly, it showed a shadow on my liver, so I had to go get an MRI, which showed all was ok...I was put on the Medrol pack then had to go back to the RA doctor (not sure when the RA doctor took more bloodwork but it came back as showing that I had mild RA and mild Lupus), so I was back on the Medrol...and told to take until the pain subsided and to go off when pain is gone then to just take as needed...this past week I have not taken any Medrol, my body is still swelling but my joints dont hurt excepet for my left shoulder, the RA doctor is now calling in a prescrition for plaquenil and told me that the swelling, skin tightening and also when I breath, my lungs hurt...that I need to see my primary doctor for that...my lower back hurts so much and also in the center of my back, and my legs feel as if they got heaviet to lift...am I insane??? What is happening to me??? I also have headaches daily, the kind of headaches that keep you in bed...could all this be a totally different problem and I am being treated for the wrong thing??? The pain in the middle of my back was there on and off for years, I went to ER many times until finally they said it was my gallbladder so that got taken out in 1999...but the pain still comes back, like right now...I am ready to go to the ER again because the pain pills are not working on that pain...any advice? or am I just crazy???? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.