Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 Have you considered DES or Estrodiol instead of chemo? There is more information here: http://www.hrpca.org/estrogens.htm Hi all,Saw the oncologist on Tuesday and my PSA had gone up from 56 to 74.He has taken me off the Ketacanozole and will be starting me on Nilutamide. The next step after that he says will be chemo. He didn't say what kind of chemo it would be, but it has me rather nervous. I also asked about the continual pain in my legs and he prescribed hyrocodone which does help. Also, I asked again about doing the Turp, and am keeping that as an option though I am not sure about that as I may be starting chemo later. I have another appointment to see the oncologist in April, and will also be getting another bone and CT scan. He has also taken me off Terosozin because he says at this point, and with the catheteer in it doesn't do any good. As always I will keep you apprised of any new developments.Dave Halvorsen -- Emersonwww.flhw.org Every 2.25 minutes a man is diagnosed with prostate cancer.Every 16.5 minutes a man dies from the disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 Dave,As has suggested learn about DES and estrogen.FYI- The chemotherapy the doctor is suggesting is docetaxel (taxotere). Don't wait for the doctor to schedule the treatments to learn about the treatment protocol. Now is the time. You can learn about it by going to the malecare.org web page and clicking on tab for advanced prostate cancer programs. Download the Advanced Prostate Cancer Kit guide and joi the advanced prostate cancer support group (link on the page). Hi all, Saw the oncologist on Tuesday and my PSA had gone up from 56 to 74. He has taken me off the Ketacanozole and will be starting me on Nilutamide. The next step after that he says will be chemo. He didn't say what kind of chemo it would be, but it has me rather nervous. I also asked about the continual pain in my legs and he prescribed hyrocodone which does help. Also, I asked again about doing the Turp, and am keeping that as an option though I am not sure about that as I may be starting chemo later. I have another appointment to see the oncologist in April, and will also be getting another bone and CT scan. He has also taken me off Terosozin because he says at this point, and with the catheteer in it doesn't do any good. As always I will keep you apprised of any new developments. Dave Halvorsen -- T Nowak, MA, MSWDirector for Advocacy and Advanced Prostate Cancer Programs, Malecare Inc. Men Fighting Cancer, TogetherSurvivor - Recurrent Prostate, Thyroid, Melanoma and Renal Cancers www.advancedprostatecancer.net - A blog about advanced and recurrent prostate cancerwww.malecare.org - information and support about prostate cancer http://health.groups.yahoo.com/group/advancedprostatecancer/ - an online support group for men and their families diagnosed with advanced and recurrent prostate cancer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 Dave I'll add my voice to the diethyl stilbesterol idea, I've been on it for over 2 years. Remember there will be the need to take aspirin or clopidogrel or similar to safeguard against clotting Re: PSA up again Dave,As has suggested learn about DES and estrogen.FYI- The chemotherapy the doctor is suggesting is docetaxel (taxotere). Don't wait for the doctor to schedule the treatments to learn about the treatment protocol. Now is the time. You can learn about it by going to the malecare.org web page and clicking on tab for advanced prostate cancer programs. Download the Advanced Prostate Cancer Kit guide and joi the advanced prostate cancer support group (link on the page). Hi all,Saw the oncologist on Tuesday and my PSA had gone up from 56 to 74.He has taken me off the Ketacanozole and will be starting me on Nilutamide. The next step after that he says will be chemo. He didn't say what kind of chemo it would be, but it has me rather nervous. I also asked about the continual pain in my legs and he prescribed hyrocodone which does help. Also, I asked again about doing the Turp, and am keeping that as an option though I am not sure about that as I may be starting chemo later. I have another appointment to see the oncologist in April, and will also be getting another bone and CT scan.He has also taken me off Terosozin because he says at this point, and with the catheteer in it doesn't do any good. As always I will keep you apprised of any new developments.Dave Halvorsen -- T Nowak, MA, MSWDirector for Advocacy and Advanced Prostate Cancer Programs, Malecare Inc. Men Fighting Cancer, TogetherSurvivor - Recurrent Prostate, Thyroid, Melanoma and Renal Cancerswww.advancedprostatecancer.net - A blog about advanced and recurrent prostate cancerwww.malecare.org - information and support about prostate cancerhttp://health.groups.yahoo.com/group/advancedprostatecancer/ - an online support group for men and their families diagnosed with advanced and recurrent prostate cancer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2011 Report Share Posted March 4, 2011 > Saw the oncologist on Tuesday and my PSA had gone up from 56 to 74. > He has taken me off the Ketacanozole and will be starting me on > Nilutamide. The next step after that he says will be chemo. He > didn't say what kind of chemo it would be, but it has me rather > nervous. (ka-snip) The 'net is flooded with anecdotes about the horrors of chemotherapy. Some might even be in the vicinity of accurate. I cannot say. I do believe that the anecdotes are absolutely not to be relied upon when a patient is making his own decision. What bothers A might help B; and vice versa. The usual chemo is Taxotere (docetaxel) with something else such as, possibly, bevacizumab (Avastin) or estramustine (Emcyt) or other. Here's a tip: (a) Chew ice, and ( if possible dip your hands into a bowl of ice. (a) should alleviate odd changes to taste; ( should alleviate any tendency for " peripheral neuropathy, " tingling or numbness. Thousands upon thousands of men -- and women -- have been treated. Detailed information on Taxotere and other meds is available online at www.rxlist.com Information on Taxotere is at http://www.rxlist.com/taxotere-drug.htm There is an encyclopedia-load of information available. Let me know if/when you're prescribed to start chemo and what drugs are involved. The medic probably does not have the time to give you a truly thorough briefing. Quote Link to comment Share on other sites More sharing options...
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