Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 Dear RP friends, Welcome to all the new people in the group - I hope you find this group as loving and supporting as I do - I look forward to all the posts and have learned alot - I have been on ENBREL for 14 weeks now - and - this is going well. I have had two relapses for about 3 days each time. The ear pain will come back and thats what I call a relapse. But it is not as severe as it was before I went on the Enbrel. I am tapering the prednisone and am at 25 mgs now - thats down from 80mgs. I have managed to loose some weight and some of my pred round face. I still have other problems - like my back is aching all the time - I started warm water - pool therapy today. My therapist is great and is trying to help me as much as he can. I have a thought here and want to know if anyone else has noticed this - I seem to have the most problems with the areas of my body that have been previously injured for had surgery. For instance - I fell and ruptured L4 and 5 about 6 years ago and that is were that back pain is located. I also had surgery on my left foot for a bunionectomy and that is where my foot is hurting something awful - my rheumy thinks I may have a stress fracture related to the disease, since there is alot of cartilage in the foot. My foot hurts on the top of the instep and is swollen so have a tough time wearing shoes. The bottom of my foot doesnt hurt but when I walk on it - it feels like I am walking on wads of cotton. As for meds - I also take Prilosec - Celebrex - 1200 mgs of calcium - Vit C and multi vitamin in additon to Enbrel and prednisone. I do take ibuprofen when I have headache and back pain. For a symbol for our disease I like the moon with a beacon idea and the color red - as thats my color!! Hope everyone is escaping the nasty flu and colds as we have enough problems already. Keep praying and dont ever lose sight of the LORD - we all have a purpose - just pay attention and you will know what it is!!! I have become a s Minister and this is a very rewarding thing to do - It really takes the focus away from my problems as I minister to my care receivers. My problems seem small - ! God will guide you and show you the way! Pray and keep your faith strong and LISTEN - he is LISTENING TOOOOOO Barbara from SD Quote Link to comment Share on other sites More sharing options...
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