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Hi Terry, add these to the list of hypo from over medicating: Joint pain,

muscle aches, puffiness of eyes, face, hands and feet, even higher

cholesterol levels, sleepiness, but insomnia at night, depression, sometimes

panic attacks, irregular heartrate ( bradycardia) and just out and out

feeling like you can't get moving. Elaine is right I would rather not be a

slug being hypo. Give me slightly hyper symptoms anyday! At least you can

function..... I.

symptom list

> Hi everyone,

>

> I don't know if anyone but me is interested in this little project, but I

> thought it would be helpful to have a cumulative list of personal symptoms

> that coincide with each stage of GD we've experienced, from pre-treatment

to

> life on ATD's or after RAI or surgery. My thought is that we could each

add

> to it, and keep it updated with all the bizarre stuff that happens if it

> does, and use it as a simple reference tool to answer some of the

questions

> that come up.

>

> I've started the list, but I'm sure I've forgotten half the stuff I should

> put on it. I'd love to see it grow. I especially suspect the list will

grow

> from those who have had RAI, and that part will be very helpful to newly

> diagnosed folks contemplating the choices they have to make, under

pressure

> from zap-happy endos.

>

> So, here's my beginning. Feel free to make it grow!

>

> TerryP

>

> Graves Symptom Roundup

>

> Before ATD¹s

>

> Racing heart (rapid pulse)

> Vibrating feeling all the time

> Hard time breathing

> Weak legs & arms

> Dizziness

> Disorientation

> Enlarged thyroid

> Sleeplessness

> Irritability

> Shaking hands

> Unable to write clearly

> Unable to stay engaged in anything

> Unable to sit still

> Forgetfulness/brain fog

> Complete lack of stamina (quickly exhausted)

> Constant hunger

> Weight gain or loss (gain for me!)

>

>

> Stablized w/ ATD¹s

> Stress causes destabilization and recurring symptoms

> Other autoimmune problems (such as viral gum disease)

> Less stamina than pre GD

> Rising cholesterol level

> Need to fine-tune dosage frequently or go hypo or hyper

> Overmedicating leads to hypo symptoms of:

> -Lethargy

> -headaches

> -brain fog

> -hair loss

> -weight gain

>

>

>

>

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Terry,

Don't forget the Graves Rage! That was a big one for me...though it did come

in handy when dealing with local politicians <grin>

Jody

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Terry,

Don't forget the Graves Rage! That was a big one for me...though it did come

in handy when dealing with local politicians <grin>

Jody

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Is that why I have that...lately it has been getting so bad hubby has shaken

me to get me breating :(

Jody

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Terry,

I was on Prozac for 6 weeks, 2 years ago because my second endo (fired him

too) told me it would help take off the weight...took off 16 lbs and felt

like crap so I quit it cold turkey...NOT the thing to do with that family of

drugs!

I just remembered another hyper symptom...my mind is working slow lately but

you reminded me of it...when I was at my worst hyper, for about 3/4 months I

was broke out in what looked like little measles over my whole torso and

upper arms and upper legs, angry red things that itched like heck and when

scratched burned even worse. Soon as I started the PTU (was on for only a

few weeks before RAI) they went away. The dr. said it was because of my

rapid heart beat which also caused congestive heart failure for me.

Jody

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,

Thanks for this. I'm keeping the list off-line and adding anything that

comes to me (thanks Elaine for your addition too). I'll re-enter it here

updated every few days, maybe as it grows it will jog some memories. I

realize I forgot a few on my original list, blotchy itchy hips (pre-ATD's)

and constant phlegm in my throat at night trying to get to sleep (now).

One thing I'm curious about though, with regard to RAI--on another list it

seemed everyone was on anti-depressants post RAI. Is that common?

TerryP

>

> Reply-To: graves_supportegroups

> Date: Sun, 15 Oct 2000 18:20:55 -0400

> To: <graves_supportegroups>

> Subject: Re: symptom list

>

> Hi Terry, add these to the list of hypo from over medicating: Joint pain,

> muscle aches, puffiness of eyes, face, hands and feet, even higher

> cholesterol levels, sleepiness, but insomnia at night, depression, sometimes

> panic attacks, irregular heartrate ( bradycardia) and just out and out

> feeling like you can't get moving. Elaine is right I would rather not be a

> slug being hypo. Give me slightly hyper symptoms anyday! At least you can

> function..... I.

> symptom list

>

>

>> Hi everyone,

>>

>> I don't know if anyone but me is interested in this little project, but I

>> thought it would be helpful to have a cumulative list of personal symptoms

>> that coincide with each stage of GD we've experienced, from pre-treatment

> to

>> life on ATD's or after RAI or surgery. My thought is that we could each

> add

>> to it, and keep it updated with all the bizarre stuff that happens if it

>> does, and use it as a simple reference tool to answer some of the

> questions

>> that come up.

>>

>> I've started the list, but I'm sure I've forgotten half the stuff I should

>> put on it. I'd love to see it grow. I especially suspect the list will

> grow

>> from those who have had RAI, and that part will be very helpful to newly

>> diagnosed folks contemplating the choices they have to make, under

> pressure

>> from zap-happy endos.

>>

>> So, here's my beginning. Feel free to make it grow!

>>

>> TerryP

>>

>> Graves Symptom Roundup

>>

>> Before ATD¹s

>>

>> Racing heart (rapid pulse)

>> Vibrating feeling all the time

>> Hard time breathing

>> Weak legs & arms

>> Dizziness

>> Disorientation

>> Enlarged thyroid

>> Sleeplessness

>> Irritability

>> Shaking hands

>> Unable to write clearly

>> Unable to stay engaged in anything

>> Unable to sit still

>> Forgetfulness/brain fog

>> Complete lack of stamina (quickly exhausted)

>> Constant hunger

>> Weight gain or loss (gain for me!)

>>

>>

>> Stablized w/ ATD¹s

>> Stress causes destabilization and recurring symptoms

>> Other autoimmune problems (such as viral gum disease)

>> Less stamina than pre GD

>> Rising cholesterol level

>> Need to fine-tune dosage frequently or go hypo or hyper

>> Overmedicating leads to hypo symptoms of:

>> -Lethargy

>> -headaches

>> -brain fog

>> -hair loss

>> -weight gain

>>

>>

>>

>>

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Terry,

I am not sure about the majority on the anti-depressants but I am 6+

years post RAI and am not on them. I also do not have a lot of the

symptoms (thank God) that others talk of after taking the RAI route.

Then again I do fight the weight battle and such more so then before.

Now as for your symptom list - been there and done that.

Terry Stone

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You should use the database tables at egroups for this record -

/database/graves_support

</database/graves_support> .

Just click add a table and then decide what type you want to use. You could

create a table for each stage of symptoms. Also, you all could really get a

lot of good use out of the polls.

Just some thoughts....

Jen, Sis w/ GD 29/25

symptom list

Hi everyone,

I don't know if anyone but me is interested in this little project, but I

thought it would be helpful to have a cumulative list of personal symptoms

that coincide with each stage of GD we've experienced, from pre-treatment to

life on ATD's or after RAI or surgery. My thought is that we could each add

to it, and keep it updated with all the bizarre stuff that happens if it

does, and use it as a simple reference tool to answer some of the questions

that come up.

I've started the list, but I'm sure I've forgotten half the stuff I should

put on it. I'd love to see it grow. I especially suspect the list will grow

from those who have had RAI, and that part will be very helpful to newly

diagnosed folks contemplating the choices they have to make, under pressure

from zap-happy endos.

So, here's my beginning. Feel free to make it grow!

TerryP

Graves Symptom Roundup

Before ATD¹s

Racing heart (rapid pulse)

Vibrating feeling all the time

Hard time breathing

Weak legs & arms

Dizziness

Disorientation

Enlarged thyroid

Sleeplessness

Irritability

Shaking hands

Unable to write clearly

Unable to stay engaged in anything

Unable to sit still

Forgetfulness/brain fog

Complete lack of stamina (quickly exhausted)

Constant hunger

Weight gain or loss (gain for me!)

Stablized w/ ATD¹s

Stress causes destabilization and recurring symptoms

Other autoimmune problems (such as viral gum disease)

Less stamina than pre GD

Rising cholesterol level

Need to fine-tune dosage frequently or go hypo or hyper

Overmedicating leads to hypo symptoms of:

-Lethargy

-headaches

-brain fog

-hair loss

-weight gain

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You should use the database tables at egroups for this record -

/database/graves_support

</database/graves_support> .

Just click add a table and then decide what type you want to use. You could

create a table for each stage of symptoms. Also, you all could really get a

lot of good use out of the polls.

Just some thoughts....

Jen, Sis w/ GD 29/25

symptom list

Hi everyone,

I don't know if anyone but me is interested in this little project, but I

thought it would be helpful to have a cumulative list of personal symptoms

that coincide with each stage of GD we've experienced, from pre-treatment to

life on ATD's or after RAI or surgery. My thought is that we could each add

to it, and keep it updated with all the bizarre stuff that happens if it

does, and use it as a simple reference tool to answer some of the questions

that come up.

I've started the list, but I'm sure I've forgotten half the stuff I should

put on it. I'd love to see it grow. I especially suspect the list will grow

from those who have had RAI, and that part will be very helpful to newly

diagnosed folks contemplating the choices they have to make, under pressure

from zap-happy endos.

So, here's my beginning. Feel free to make it grow!

TerryP

Graves Symptom Roundup

Before ATD¹s

Racing heart (rapid pulse)

Vibrating feeling all the time

Hard time breathing

Weak legs & arms

Dizziness

Disorientation

Enlarged thyroid

Sleeplessness

Irritability

Shaking hands

Unable to write clearly

Unable to stay engaged in anything

Unable to sit still

Forgetfulness/brain fog

Complete lack of stamina (quickly exhausted)

Constant hunger

Weight gain or loss (gain for me!)

Stablized w/ ATD¹s

Stress causes destabilization and recurring symptoms

Other autoimmune problems (such as viral gum disease)

Less stamina than pre GD

Rising cholesterol level

Need to fine-tune dosage frequently or go hypo or hyper

Overmedicating leads to hypo symptoms of:

-Lethargy

-headaches

-brain fog

-hair loss

-weight gain

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I now must lie on my side to prevent being awakened by " snorting " -- not

snoring -- in my early sleep. I am sure it may be an early symptom of

apnea.

Elaine

(Virginia)

Re: symptom list

> Add sleep apnea to the hypo list. This is a well documented but little

known

> fact.

>

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When I went searching for material to counteract my endo's push toward RAI,

one of the first symptoms I hit was " depression " and the suggested inability

to adequately function after RAI. I was stunned. I am a widow, live alone.

What on earth is on a doctor's mind (so-called " specialist " <smirk>), when

there is no mention of the possibility of inability to act and react after

RAI? He suggested that it could be taken care of. More medicine? How

long? Who is going to pick up my slack while I am sunk in depression?

Stupid!

Elaine

(Virginia)

symptom list

>

>

>> Hi everyone,

>>

>> I don't know if anyone but me is interested in this little project, but I

>> thought it would be helpful to have a cumulative list of personal

symptoms

>> that coincide with each stage of GD we've experienced, from pre-treatment

> to

>> life on ATD's or after RAI or surgery. My thought is that we could each

> add

>> to it, and keep it updated with all the bizarre stuff that happens if it

>> does, and use it as a simple reference tool to answer some of the

> questions

>> that come up.

>>

>> I've started the list, but I'm sure I've forgotten half the stuff I

should

>> put on it. I'd love to see it grow. I especially suspect the list will

> grow

>> from those who have had RAI, and that part will be very helpful to newly

>> diagnosed folks contemplating the choices they have to make, under

> pressure

>> from zap-happy endos.

>>

>> So, here's my beginning. Feel free to make it grow!

>>

>> TerryP

>>

>> Graves Symptom Roundup

>>

>> Before ATD¹s

>>

>> Racing heart (rapid pulse)

>> Vibrating feeling all the time

>> Hard time breathing

>> Weak legs & arms

>> Dizziness

>> Disorientation

>> Enlarged thyroid

>> Sleeplessness

>> Irritability

>> Shaking hands

>> Unable to write clearly

>> Unable to stay engaged in anything

>> Unable to sit still

>> Forgetfulness/brain fog

>> Complete lack of stamina (quickly exhausted)

>> Constant hunger

>> Weight gain or loss (gain for me!)

>>

>>

>> Stablized w/ ATD¹s

>> Stress causes destabilization and recurring symptoms

>> Other autoimmune problems (such as viral gum disease)

>> Less stamina than pre GD

>> Rising cholesterol level

>> Need to fine-tune dosage frequently or go hypo or hyper

>> Overmedicating leads to hypo symptoms of:

>> -Lethargy

>> -headaches

>> -brain fog

>> -hair loss

>> -weight gain

>>

>>

>>

>>

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Terry,

That constant phlegm you mention reminds me of how I feel after eating wheat

or dairy. Before I figured this out I used to be nauseated alot. When I

cheat, the phlegm is back and my allergies go wild. Since gluten sensitivity

is so common in GD, you might want to see if eliminating gluten (wheat, rye,

barley, and oats) helps with this.

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Terry, how about these? Hyper- oily skin and hair

Hypo- thick and dry tongue, also, my eyebrows stopped growing completely,

dry brittle hair

symptom list

> >

> >

> >> Hi everyone,

> >>

> >> I don't know if anyone but me is interested in this little project, but

I

> >> thought it would be helpful to have a cumulative list of personal

symptoms

> >> that coincide with each stage of GD we've experienced, from

pre-treatment

> > to

> >> life on ATD's or after RAI or surgery. My thought is that we could each

> > add

> >> to it, and keep it updated with all the bizarre stuff that happens if

it

> >> does, and use it as a simple reference tool to answer some of the

> > questions

> >> that come up.

> >>

> >> I've started the list, but I'm sure I've forgotten half the stuff I

should

> >> put on it. I'd love to see it grow. I especially suspect the list will

> > grow

> >> from those who have had RAI, and that part will be very helpful to

newly

> >> diagnosed folks contemplating the choices they have to make, under

> > pressure

> >> from zap-happy endos.

> >>

> >> So, here's my beginning. Feel free to make it grow!

> >>

> >> TerryP

> >>

> >> Graves Symptom Roundup

> >>

> >> Before ATD¹s

> >>

> >> Racing heart (rapid pulse)

> >> Vibrating feeling all the time

> >> Hard time breathing

> >> Weak legs & arms

> >> Dizziness

> >> Disorientation

> >> Enlarged thyroid

> >> Sleeplessness

> >> Irritability

> >> Shaking hands

> >> Unable to write clearly

> >> Unable to stay engaged in anything

> >> Unable to sit still

> >> Forgetfulness/brain fog

> >> Complete lack of stamina (quickly exhausted)

> >> Constant hunger

> >> Weight gain or loss (gain for me!)

> >>

> >>

> >> Stablized w/ ATD¹s

> >> Stress causes destabilization and recurring symptoms

> >> Other autoimmune problems (such as viral gum disease)

> >> Less stamina than pre GD

> >> Rising cholesterol level

> >> Need to fine-tune dosage frequently or go hypo or hyper

> >> Overmedicating leads to hypo symptoms of:

> >> -Lethargy

> >> -headaches

> >> -brain fog

> >> -hair loss

> >> -weight gain

> >>

> >>

> >>

> >>

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More to add that I haven't seen yet and keep remembering...hair loss, for me

it was over half of my hair...and my nails no longer have any natural enamel

on them, they split, peel and break or get very thick and it can't be filed

even.

Jody

Amazing how many things we *forget* about that goes with this disease and

they just keep coming back with a bit of help from each other.

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More to add that I haven't seen yet and keep remembering...hair loss, for me

it was over half of my hair...and my nails no longer have any natural enamel

on them, they split, peel and break or get very thick and it can't be filed

even.

Jody

Amazing how many things we *forget* about that goes with this disease and

they just keep coming back with a bit of help from each other.

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Elaine,

I dread hearing that kind of advice, as my entire work world is FOOD, I

teach cooking and also cater weddings etc. Recipe testing and tasting are

huge parts of my days! I'm working on a menu for an all-dairy bat mitzvah at

the moment. Of course just about everything they want has wheat in it too.

Yikes, life is complicated.

I'll give it a try though, I am going off to visit my daughter for a week

and won't have to feed anyone (except her occasionally). Do you think that

would be long enough to notice results?

Terry

> From: daisyelaine@...

> Reply-To: graves_supportegroups

> Date: Mon, 16 Oct 2000 22:18:13 EDT

> To: graves_supportegroups

> Subject: Re: symptom list

>

> Terry,

> That constant phlegm you mention reminds me of how I feel after eating wheat

> or dairy. Before I figured this out I used to be nauseated alot. When I

> cheat, the phlegm is back and my allergies go wild. Since gluten sensitivity

> is so common in GD, you might want to see if eliminating gluten (wheat, rye,

> barley, and oats) helps with this.

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

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Elaine,

I dread hearing that kind of advice, as my entire work world is FOOD, I

teach cooking and also cater weddings etc. Recipe testing and tasting are

huge parts of my days! I'm working on a menu for an all-dairy bat mitzvah at

the moment. Of course just about everything they want has wheat in it too.

Yikes, life is complicated.

I'll give it a try though, I am going off to visit my daughter for a week

and won't have to feed anyone (except her occasionally). Do you think that

would be long enough to notice results?

Terry

> From: daisyelaine@...

> Reply-To: graves_supportegroups

> Date: Mon, 16 Oct 2000 22:18:13 EDT

> To: graves_supportegroups

> Subject: Re: symptom list

>

> Terry,

> That constant phlegm you mention reminds me of how I feel after eating wheat

> or dairy. Before I figured this out I used to be nauseated alot. When I

> cheat, the phlegm is back and my allergies go wild. Since gluten sensitivity

> is so common in GD, you might want to see if eliminating gluten (wheat, rye,

> barley, and oats) helps with this.

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

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Yes, I noticed results within a few days. I lost weight, quit having food

cravings, and quit having sinus drainage. I plan on buying some almond flour

one of these days so I can make almond cookies.

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Yes, I noticed results within a few days. I lost weight, quit having food

cravings, and quit having sinus drainage. I plan on buying some almond flour

one of these days so I can make almond cookies.

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Hi Terry-

Another thing I've noticed is that I get " phlegmy " when my T3 starts to wear

off. And it goes away within an hour of taking my thyroid hormone.

I think it can be a sign of hypothyroidism too. But if it is you'd have

other symptoms too.

Take care,

> Terry,

> That constant phlegm you mention reminds me of how I feel after eating

wheat

> or dairy. Before I figured this out I used to be nauseated alot. When I

> cheat, the phlegm is back and my allergies go wild. Since gluten

sensitivity

> is so common in GD, you might want to see if eliminating gluten (wheat,

rye,

> barley, and oats) helps with this.

>

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I couldn't access anything before 1999 in the archives. How do you get

there?

Terry

> From: redhengirl@...

> Reply-To: graves_supportegroups

> Date: Wed, 18 Oct 2000 18:52:59 EDT

> To: graves_supportegroups

> Subject: Symptom List

>

> 'Sorry all. Musta been asleep at the switch again. I just caught up reading

> digests. The 1997 Survey results are on the graves_support page at

> , but don't include the list of symptoms or results of that part

> of the survey. I think I can locate that information, it will just take a

> little time.

>

> Caroline -- I'm so glad to hear that the surgery is over and hope you will

> continue to recover with good supervision from your doctor.

>

> Red

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

>

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Dear Terry

This is a great idea, good on ya.

Could I add to the list -

Pre ATDs

High Blood Pressure

Difficulty exercising and walking up stairs

Miscarriage

Infertility

Longer between cycles with shorter and lighter menstruation

Generalised itchy skin

Total intolerance to heat

Higher body temperature

Increased perspiration (I had very sweaty smelly feet which improved with ATDs)

Lowered libido

Increased number of bowel motions (up to 8 per day)

Loss of hair and lack of lustre of hair

Low cholesterol level

Symptoms I've had since, but I don't know if they are associated with becoming

hypo on ATD's or the GD

Aching joints, especially elbows, knees, wrists and fingers.

Sensations of 'fire' going through bones that lasts about 8hrs or so and target

the one area, eg 1 finger.

Feelings of depression and easily being overwhelmed

Intolerance to stress

Difficulty with physical activity

I'll let you know about the post surgical symptoms as time goes by.

Cheers

Caroline

Terry ding wrote:

> Here's a copy of all I have so far. If you find any inaccuracies, let me

> know. Also anything left out. I'll just keep it going until it stops!

> Terry

>

> Graves Symptom Roundup

>

> Before ATD¹s (hyper)

> oily skin and hair

> Racing heart (rapid pulse)

> Vibrating feeling all the time

> Hard time breathing

> Weak legs & arms

> Dizziness

> Disorientation

> Enlarged thyroid

> Sleeplessness

> Irritability

> Shaking hands

> Unable to write clearly

> Unable to stay engaged in anything

> Unable to sit still

> Forgetfulness/brain fog

> Complete lack of stamina (quickly exhausted)

> Constant hunger

> Weight gain or loss (gain for me!)

> Blotchy itchy hips

> Graves rage

>

> Stablized w/ ATD¹s

> Stress causes destabilization and recurring symptoms

> Other autoimmune problems (such as viral gum disease)

> Less stamina than pre GD

> Rising cholesterol level

> Need to fine-tune dosage frequently or go hypo or hyper

>

> Overmedicating with ATD's leads to hypo symptoms of:

> oLethargy

> oheadaches

> obrain fog

> ohair loss

> oweight gain

> Constant phlegm in throat at night

>

> Hypo (mostly I think from post-RAI)

> thick and dry tongue

> eyebrows stopped growing completely

> dry brittle hair

> severe hair loss

> nails that split and break and get very thick and can¹t be filed and have no

> enamel

> Joint pain,

> muscle aches

> puffiness of eyes, face, hands and feet

> even higher cholesterol levels & triglyceride levels

> sleepiness, but insomnia at night

> depression

> sometimes panic attacks

> irregular heartrate ( bradycardia)

> feeling like you can't get moving (like a slug)

> Sleep apnea

> Aversion to cold

> Never the " right " temperature

> brain simply does not work.

> Loss of memory

> Can¹t perform simple tasks like spelling own name.

> Unable to stop crying but not really sad.

> Cannot do simple daily tasks without outside intervention and direction

>

>

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