Guest guest Posted May 21, 2011 Report Share Posted May 21, 2011 I'd like to second what Milt Baker said and encourage you to continue your aggressive search for the best treatment. When I was diagnosed 5 years ago, I spent a while feeling stunned but then I took a tip from the folks on this group and began a 6 month long search: I went to Dr. "Snuffy" Myers in VA (reportedly the best at helping you put all the pieces together and develop the best treatment plan), the Seattle Prostate Institute (reportedly the best for seeds), the Dana-Farber Cancer Center (in Boston, my hometown), Dr. Ash Tewari in NYC and Mani Manon at Henry Ford Hospital in Detroit (reportedly the two best for robotic surgery), and the Dattoli Cancer Center in FL (reportedly the best for seeds plus radiation combined). I was treated at Dattoli's and have been fine since. It has always puzzled me that people will spend thousands of dollars and travel all over for their vacation but not devote the same resources to finding the best medical care and avoiding substandard care. I'm reminded of the old riddle: "What do you call someone who graduated last in medical school?" Answer: "Doctor" There are some online resources that have helped me a lot. The first is PCRI (the Prostate Cancer Research Institute). They have a helpline staffed by incredibly knowledgeable people, most of them in recovery from prostate cancer. Another is Dr. Myers' video blog in which he gives away all kinds of info about prostate cancer realated issues. He's also in recovery from prostate cancer. Here are some links. Good luck. http://www.prostate-cancer.org/pcricms/node/89 http://www.prostateforum.com/ http://askdrmyers.wordpress.com/ Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 You might want to consider a 'multiparametric MRI " , which is several different types of MRI (3 or 4) done at one time. I have not had one, but am told this gives better information on the location and aggressiveness of the cancer. Also, it facilitates a more targeted biopsy and " focal therapy " , if appropriate. It is done at UCSF, not too far from you, and was recommended to me by a former top radiologist.. The only downside that I see is that you might find out too much, resulting in unnecessary treatment. Probably mentioned to you before, but you might want a second opinion on the biopsy slides. Again, I have no experience with this, so you should seek medical advice on whether or not it is good for you. Best, Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 You might want to consider a 'multiparametric MRI " , which is several different types of MRI (3 or 4) done at one time. I have not had one, but am told this gives better information on the location and aggressiveness of the cancer. Also, it facilitates a more targeted biopsy and " focal therapy " , if appropriate. It is done at UCSF, not too far from you, and was recommended to me by a former top radiologist.. The only downside that I see is that you might find out too much, resulting in unnecessary treatment. Probably mentioned to you before, but you might want a second opinion on the biopsy slides. Again, I have no experience with this, so you should seek medical advice on whether or not it is good for you. Best, Doug Quote Link to comment Share on other sites More sharing options...
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