Fwd: Rheumatoid Arthritis Drug Linked to Cancer

[Guest guest]

Good evening

What are we to do? We take chances.. Don't know about you BUT....

I can't go on with this constant pain and total exhaustion and I am sure there are many on this group that will agree with me...

There are days I can't even get out of bed for anything except to go to the bathroom. I am so exhausted all the time I cry and you can't explain this to anyone they can't understand what we go though.

Everyone is different and I think we must try everything ... meds.. Diet whatever ... what works for you may not work for me. I have a friend on Humira and it was the cure for her. she has no symptoms ......................but, Humira didn't work for me on any level. I expected a miracle with Humira... I had heard wonderful things about it and each shot I gave myself I thought would be the one and it was not. Now I start Remicade and ... excuse me but I am scared poopless. I don't know what will happen to me if this doesn't work this is what my RD held out as the last resort. On a good day I use a cane ... on a not so bad day I use a walker ... on a bad day a wheelchair and a really bad day I don't get out of bed.

I might be able to deal with the pain there are after all good pain pills but the total fatigue and exhaustion on top of pain does me in completely. I am so scared if Remicade doesn't work I am going to be like this the rest of my life or on high doses of steroids which we all know can cause other problems and are not pleasant to take.

Since what works for one doesn't work for someone else ... I think we should not give up hope but try everything............ I also believe the cure is not going to be the same for everyone with RA.

I would also love to hear with anyone that is or was on Remicade.

Best to all

Chrisina

I agree Harold! I am sorry if it seemed I was saying not to take meds because of some possible side effects. I didn't mean that at all and I am glad that you pointed that out! Thank you.

Hugs, Jacy

~Season's Greetings

jacymail@...IM: jacygal - ICQ: 96949087www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Harold Van Tuyl

Rheumatoid Arthritis

Sent: Monday, December 06, 2004 14:43

Subject: Re: Fwd: Rheumatoid Arthritis Drug Linked to Cancer

The cure MAY be worse for SOME people but on average the cure helps. That's why it is essential that we keep up with our laboratory work and doctor's appointments and also that we mention any changes to the doctors. Almost all bad side effects can be reversed by early detection and stopping the offending medication. Also most studies compare to the general population instead of comparing to people with RA or similar but not taking the medication being studied. Some of the observed effects are because of the disease and not because of the medication.

Chrisina DenBaugh, CEOwww.Adoption-Free-Search.orgEmergency Medical Locators for Adoptees"Dedicated to adoptees whose lives are imperiled by medical crisis"Free Medical locations Locating and obtaining biological medical histories For the adoption community and all in needBiological family traces for transplants availableStaff members are online 24/7 To handle emergency searches.Donations of old databases, year books, cross directories greatly appreciated Fax: 775-845-4334No one should die because they are adoptedFREE DNA Project for Adoptees and Birthfamily _http://www.touchedbyadoption.org/_ (http://www.touchedbyadoption.org/) IF YOU CAN FOSTER OR ADOPT A DOG IN ANY STATE PLEASE CONTACT ME AT ONCE. Feed a Dog in Need Click on site below http://www.animalrescuesite.com/cgi-bin/WebObjects/CTDSites.woa/237Donations are not currentyTax Deductible http://www.adoption-free-search.org/Donate.htm

[Guest guest]

i am on remicade i was taling it every 8 weeks now i a on every 6

weels i really fell geart after one of the shots but they only last

6 weeks on me but i wouldn't give them up they work for

me sherrie

>

>

> Good evening

>

> What are we to do? We take chances.. Don't know about you

BUT....

> I can't go on with this constant pain and total exhaustion and I

am sure

> there are many on this group that will agree with me...

>

> There are days I can't even get out of bed for anything except to

go to the

> bathroom. I am so exhausted all the time I cry and you can't

explain this to

> anyone they can't understand what we go though.

>

> Everyone is different and I think we must try everything ...

meds..

> Diet whatever ... what works for you may not work for me. I have

a friend on

> Humira and it was the cure for her. she has no symptoms

> ......................but, Humira didn't work for me on any

level. I expected a miracle with

> Humira... I had heard wonderful things about it and each shot I

gave myself I

> thought would be the one and it was not.

>

> Now I start Remicade and ... excuse me but I am scared poopless.

I don't

> know what will happen to me if this doesn't work this is what my

RD held out as

> the last resort. On a good day I use a cane ... on a not so bad

day I use a

> walker ... on a bad day a wheelchair and a really bad day I don't

get out of

> bed.

>

> I might be able to deal with the pain there are after all good

pain pills

> but the total fatigue and exhaustion on top of pain does me in

completely. I

> am so scared if Remicade doesn't work I am going to be like this

the rest of

> my life or on high doses of steroids which we all know can cause

other

> problems and are not pleasant to take.

>

>

> Since what works for one doesn't work for someone else ... I

think we

> should not give up hope but try everything............ I also

believe the cure is

> not going to be the same for everyone with RA.

>

> I would also love to hear with anyone that is or was on Remicade.

>

> Best to all

>

> Chrisina

>

>

>

>

>

> I agree Harold! I am sorry if it seemed I was saying not to take

meds

> because of some possible side effects. I didn't mean that at all

and I am glad

> that you pointed that out! Thank you.

> _Hugs, Jacy_

> (http://weightogo/)

_~Season's Greetings_

> (the-haha-files/)

_jacymail@c..._ (mailto:jacymail@c...)

> IM: jacygal - ICQ: 96949087

> _www.geocities.com/mtn_rose_

(http://www.geocities.com/mtn_rose)

> _Want a signature like this?_ (http://www.plaxo.com/signature)

>

> ----- Original Message -----

> From: _Harold Van Tuyl_ (mailto:hvantuyl@c...)

> _Rheumatoid Arthritis _ (mailto:rheu

> matoid_arthritis )

> Sent: Monday, December 06, 2004 14:43

> Subject: Re: Fwd: Rheumatoid Arthritis

Drug Linked to

> Cancer

>

>

> The cure MAY be worse for SOME people but on average the cure

helps. That's

> why it is essential that we keep up with our laboratory work and

doctor's

> appointments and also that we mention any changes to the

doctors. Almost all

> bad side effects can be reversed by early detection and stopping

the offending

> medication. Also most studies compare to the general population

instead of

> comparing to people with RA or similar but not taking the

medication being

> studied. Some of the observed effects are because of the disease

and not

> because of the medication.

>

>

>

>

>

>

>

>

> Chrisina DenBaugh, CEO

> www.Adoption-Free-Search.org

> Emergency Medical Locators for Adoptees

> " Dedicated to adoptees whose lives are imperiled by medical

crisis "

> Free Medical locations

> Locating and obtaining biological medical histories

> For the adoption community and all in need

> Biological family traces for transplants available

> Staff members are online 24/7 To handle emergency searches.

>

> Donations of old databases, year books, cross directories

greatly

> appreciated

> Fax: 775-845-4334

> No one should die because they are adopted

>

> FREE DNA Project for Adoptees and Birthfamily

> _http://www.touchedbyadoption.org/_

(http://www.touchedbyadoption.org/)

>

> IF YOU CAN FOSTER OR ADOPT A DOG IN ANY STATE PLEASE CONTACT ME

AT ONCE.

> Feed a Dog in Need Click on site below

> _http://www.animalrescuesite.com/cgi-

bin/WebObjects/CTDSites.woa/237_

> (http://www.animalrescuesite.com/cgi-

bin/WebObjects/CTDSites.woa/237)

>

> Donations are not currentyTax Deductible

>

> _http://www.adoption-free-search.org/Donate.htm_

> (http://www.adoption-free-search.org/Donate.htm)

[Guest guest]

I was started out on Arava and after about four months with no significant improvement my RD added Methotrexate. I took myself off Arave. About four months later my RD added Remicade at 3 mg/kg and over about 6 months increased it slowly to 6 mg/kg. We were about ready to give up and try something else when my medicines started to work. Some people get relief fairly quickly, others get relief much slower, and some get no relief at all.

I started off with 40 mg Prednisone to permit me to get out of bed and slowly reduced this whenever I could do so and still function. Now I am completely off Prednisone except for special needs. You may need to be on Prednisone to permit you to function.

Kineret works differently from any other RA drug so you might consider that if Remicade doesn't work.

You sound like you may have depression/anxiety problems that can be helped with medication. Please ask your doctor if you need something. God bless.

----- Original Message -----

From: CHRISINAD@...

Rheumatoid Arthritis

Sent: Tuesday, December 07, 2004 10:37 PM

Subject: Fwd: Rheumatoid Arthritis Drug Linked to Cancer

Good evening

What are we to do? We take chances.. Don't know about you BUT....

I can't go on with this constant pain and total exhaustion and I am sure there are many on this group that will agree with me...

There are days I can't even get out of bed for anything except to go to the bathroom. I am so exhausted all the time I cry and you can't explain this to anyone they can't understand what we go though.

Everyone is different and I think we must try everything ... meds.. Diet whatever ... what works for you may not work for me. I have a friend on Humira and it was the cure for her. she has no symptoms ......................but, Humira didn't work for me on any level. I expected a miracle with Humira... I had heard wonderful things about it and each shot I gave myself I thought would be the one and it was not. Now I start Remicade and ... excuse me but I am scared poopless. I don't know what will happen to me if this doesn't work this is what my RD held out as the last resort. On a good day I use a cane ... on a not so bad day I use a walker ... on a bad day a wheelchair and a really bad day I don't get out of bed.

I might be able to deal with the pain there are after all good pain pills but the total fatigue and exhaustion on top of pain does me in completely. I am so scared if Remicade doesn't work I am going to be like this the rest of my life or on high doses of steroids which we all know can cause other problems and are not pleasant to take.

Since what works for one doesn't work for someone else ... I think we should not give up hope but try everything............ I also believe the cure is not going to be the same for everyone with RA.

I would also love to hear with anyone that is or was on Remicade.

Best to all

Chrisina

I agree Harold! I am sorry if it seemed I was saying not to take meds because of some possible side effects. I didn't mean that at all and I am glad that you pointed that out! Thank you.

Hugs, Jacy

~Season's Greetings

jacymail@...IM: jacygal - ICQ: 96949087www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Harold Van Tuyl

Rheumatoid Arthritis

Sent: Monday, December 06, 2004 14:43

Subject: Re: Fwd: Rheumatoid Arthritis Drug Linked to Cancer

The cure MAY be worse for SOME people but on average the cure helps. That's why it is essential that we keep up with our laboratory work and doctor's appointments and also that we mention any changes to the doctors. Almost all bad side effects can be reversed by early detection and stopping the offending medication. Also most studies compare to the general population instead of comparing to people with RA or similar but not taking the medication being studied. Some of the observed effects are because of the disease and not because of the medication.

Chrisina DenBaugh, CEOwww.Adoption-Free-Search.orgEmergency Medical Locators for Adoptees"Dedicated to adoptees whose lives are imperiled by medical crisis"Free Medical locations Locating and obtaining biological medical histories For the adoption community and all in needBiological family traces for transplants availableStaff members are online 24/7 To handle emergency searches.Donations of old databases, year books, cross directories greatly appreciated Fax: 775-845-4334No one should die because they are adoptedFREE DNA Project for Adoptees and Birthfamily _http://www.touchedbyadoption.org/_ (http://www.touchedbyadoption.org/) IF YOU CAN FOSTER OR ADOPT A DOG IN ANY STATE PLEASE CONTACT ME AT ONCE. Feed a Dog in Need Click on site below http://www.animalrescuesite.com/cgi-bin/WebObjects/CTDSites.woa/237Donations are not currentyTax Deductible http://www.adoption-free-search.org/Donate.htm