Guest guest Posted June 10, 1999 Report Share Posted June 10, 1999 Welcome ! I hope we do hear from you, sounds like you may have good input since you have been around this plan for a couple of years. I too started a couple of years ago but I am just getting back into it. Glad to have you here!! Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 1999 Report Share Posted June 29, 1999 Hi ....Welcome to our wonderful club, thanks to Sue!.....Your letter is such an inspiration to me and I'm sure the others.....Send more like it and maybe one day down the road we all can also send encouraging letters.....Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 1999 Report Share Posted June 29, 1999 Hi , It's me again, Judi....Yep, unfortunatly I do remember what a tomatoe tastes like....and think I better stop have my tomatoe every day with my salad for lunch...I didn't realize that they were so " bad " that we should not be able to remember what they tasted like....!...Oh, do you take any suppliments ....You sound like you really got the hang of this diet but I see no metion of any vitimens etc...And that's wonderful about your colestrol!....and that your Dr. is supportive of your losing weight on this diet....judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 1999 Report Share Posted June 29, 1999 Hello Judi;; Please tell me why tomatoes are bad for a person on this diet; I am learning so many No Nos. EB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 1999 Report Share Posted August 14, 1999 Welcome Jules, Sounds like your a very busy person. I think that while on induction for the first 14days, You are not to exceed 20gr. of carbs. Then after induction you add 5 for grams of carbs. a week. Hope that helps! Ree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 1999 Report Share Posted August 14, 1999 Jules - I started 3 weeks ago at about 30 carbs...I have now switched to Atkins for the Induction period is much less on the carbs. I recommend reading both books because everybody's body is different...good luck and welcome. :-)Kristi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 1999 Report Share Posted August 14, 1999 Most of my extra 40 pounds was left over from my son - of course he's 13!!! LOL. Nita http://ni3d.homestead.com/nitaspages/nitasbirdsheet.html Nita's Nest, with " Beginning with Birds " basic care sheet. Hello > From: JJules71@... > > Hello, My name is Jules and I am a 28 y/o married mother of two boys.I have > heard alot about this life style change from my uncle who lost 60 lbs in 5 > months. He started the change b/c his cholesteral was out of control and the > medicine wasn't working. I am truly hoping that I can get a good start on > this I need to loose 60lbs which is left over from my last son, he is 2 now > as of thursday, so I really need to get it together! Although I am very > motivated and have good intentions I have a huge fear of failure. I don't > want to pack this extra around for the rest of my life, and I am sick of the > comments from my family members so here I am. I am quite busy with the boys > and school,( I am going to college to be a pharmacy tech) But I really need > the support and I am no this computer all the time too! Please feel free to > send any advise I need it!! One question I do have is where did you all start > carb wise?? The stuff I got online said start at 30-40 grams of carbs in a > day total, then go lower if you need to. Is this right? What success have any > of you had? How much exercise do you get in? What type? Thanks for the > talk..... JULES..... > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 1999 Report Share Posted August 15, 1999 sorta like when people ask how old i am, and i say 40; then they ask me when my birthday was, and I say " three years ago... " ->Most of my extra 40 pounds was left over from my son - of course he's 13!!! BEAUTIFUL> BUT LOSING!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 1999 Report Share Posted August 15, 1999 Hey, I'm 43, too - I could use that line! Nita http://ni3d.homestead.com/nitaspages/nitasbirdsheet.html Nita's Nest, with " Beginning with Birds " basic care sheet. Re: Hello > > > sorta like when people ask how old i am, and i say 40; then they ask me when > my birthday was, and I say " three years ago... " > > > ->Most of my extra 40 pounds was left over from my son - of course he's > 13!!! > BEAUTIFUL> BUT LOSING!!!!!! > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 1999 Report Share Posted August 20, 1999 Hi all! Sally, we are huge NASCAR fans!!!! The whole family watches every week...we have a satellite dish too so we watch it commercial free! Write to me personally if you want to chat about more Nascar! ) Jacki mom of 3, two w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 1999 Report Share Posted November 3, 1999 Thanks ! You made me smile! Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 1999 Report Share Posted November 4, 1999 Hi Carol and Welcome to our list. I am Sally, Mom of na, and 6 with CF and Downs. I too am on Cystic-L and Concoll. Glad you made it. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Hi Laurie, When were you diagnosed? What treatment plan are you currently following? Feel free to throw any and all questions out here, someone will always answer them I'd like to suggest that you read the posts on here from the beginning, there are about 1400 or so now I *think*, though I'm having brain fog right now so I could be off by a few hundred Just know your not alone with this disease anymore and all the folks here are great for support, questions or just listening when you need to vent. *HUGZ* to you. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Hi Laurie: Glad you found this group. I hope you find it as valuable and supportive as I have. I was diagnosed 10/99 and started on PTU 11/99. I'm in my 6th month of treatment and am doing quite well now. At 07:01 PM 04/26/2000 -0700, you wrote: >Hello, > >I am new to your list. I just found out that I have Graves. > >Im not even really sure what it is, or how it will affect me. > >That's why I joined your list! > >My name is Laurie and I live in Oregon with my husband > >and my 5 Chihuahua's. > > >------------------------------------------------------------------------ >You set the price on thousands of products. Computers, electronics, >art, home appliances and more. Visit uBid today! >http://click./1/3026/3/_/585824/_/956801189/ >------------------------------------------------------------------------ > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 , Thanks for the welcome. Im really glad to hear that you are doing well. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 >I am new to your list. I just found out that I have Graves. Im not even really sure what it is, or how it will affect me. That's why I joined your list! My name is Laurie and I live in Oregon with my husband and my 5 Chihuahua's. Hee hee. Five chihuahua's!!! Welcome to the list! How are you feeling? Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Do you think it is associated with Graves? I have two chihuahuas. <laughter> Elaine (Virginia) RE: Hello > >I am new to your list. I just found out that I have Graves. Im not even > really sure what it is, or how it will affect me. That's why I joined your > list! My name is Laurie and I live in Oregon with my husband and my 5 > Chihuahua's. > > Hee hee. Five chihuahua's!!! > > Welcome to the list! How are you feeling? > > Kari > > ------------------------------------------------------------------------ > High rates giving you headaches? The 0% APR Introductory Rate from > Capital One. 9.9% Fixed thereafter! > http://click./1/3010/3/_/585824/_/956850802/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Hee! I can see the headlines: " Breaking News!: Chihuahua's found to be cause of Graves Disease! " err....if we ever were any kind of news, that is. Kari, one cat Re: Hello Do you think it is associated with Graves? I have two chihuahuas. <laughter> Elaine (Virginia) RE: Hello > >I am new to your list. I just found out that I have Graves. Im not even > really sure what it is, or how it will affect me. That's why I joined your > list! My name is Laurie and I live in Oregon with my husband and my 5 > Chihuahua's. > > Hee hee. Five chihuahua's!!! > > Welcome to the list! How are you feeling? > > Kari > > ------------------------------------------------------------------------ > High rates giving you headaches? The 0% APR Introductory Rate from > Capital One. 9.9% Fixed thereafter! > http://click./1/3010/3/_/585824/_/956850802/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > ------------------------------------------------------------------------ Was the salesman clueless? Productopia has the answers. http://click./1/3019/3/_/585824/_/956856805/ ------------------------------------------------------------------------ ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Hey Kari...how bout " Chihuahua's Now Known rs of Graves Disease " I have 2 weird cats and one Shi Tzu named Pepe who use to be my moms dog. I couldn't imagine life without them They just seem to know when I'm not feeling well they gather round and petting them seems to make me feel better. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Hi Laurie, Before the drs. rush you into the RAI, please please please take the time to read about all of the treatments out there. If you read back through the posts here you will see so many of them that are doing well on the ATD's (anti-throid drugs). You will also see some posts from about BRT (block and replace therapy) which has had a great deal of success in Europe (correct me here if I'm wrong somebody). Just take the time to read and learn about this disease BEFORE a dr. pushes or talks you into either RAI or surgery. Both of those are permanent And both of those don't mean you will stop bouncing from hypo to hyper on this roller coaster ride. I was pushed into RAI 4 years ago. If I were diagnosed today I would have done things differently, I would have learned about this disease and learned how to fight for time with the drs. and in all likelihood made different choices. Learning about it is the best thing you can do for yourself right now. *HUGZ* Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Laurie, I don't know if codeine is good or bad...I do know that I couldn't take it because it created horrible stomach pains for me. I did have a script for adavan (sp?) and used it when I absolutely HAD to get some sleep, but it left me groggy the next day...unless of course that was just the Graves Brain Fog ;P Have they started you on any ATD's yet? Or propananol for the heart palps? Are you having the heart palps? Did they recommend that while you are hyper to not exercise except for some relaxing walking? While hyper, your body is in overdrive and you don't need to add to it. Another thing you may want to becareful with is shellfish, vitamins with iodine in them, kelp, salt with iodine...your thyroid will take in the extra iodine and produce more T4 which it is already doing in excess...you truly don't want to add to that. There is a vitamin called Vitasana that has no iodine in it. It is expensive, here it runs me about $18.00 for 90 tablets. As you are reading, keep a pen and paper with you and write down questions as they arise, if you don't find the answers in the posts, just put them out here, someone will answer them. Good luck with the reading...and know you are no longer alone in this Laurie. We are all in this together. *HUGZ* Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Jody Spitale wrote:Hi Laurie,When were you diagnosed? What treatment plan are you currently following? Hi, I was just diagnosed with it. I have not felt good for a long time. I am also very anemic. I am suppose to go see a Dr. next week about some radioactive treatment. Im not even sure what my options are. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Oh Laurie I am so sorry about not having the insurance, that can make it tough. I am surprised they haven't put you on ATD's and propananol though...the ATD will block the production of hormones from your thyroid and the propananol will slow your heart rate down significantly. You may want to call them and ask them about it. As for the drugs, PTU is less costly than Tapazol, but I believe that someone wrote a post on here recently that there is now or will be soon a generic form of Tap. Propananol is a generic beta blocker. Also Graves is now recognized as a disabling disease. You may want to check into that, though I am not sure how to do it or where. But if your drs. would do your paperwork and you were able to get SSI or disability or both, you may also qualify for some medical assisstance too. I sure do hope so. Is your job a very physical one? If so, then you should call your dr. about it and see if you can get the disability going right away...or at the very least get the beta blockers. Graves can be treated Laurie, and when it is it is not life threatening...untreated in some form and it can be deadly, it can also cause permanent heart problems. So persevere. We all know about the tiredness and the muscle fatigue...the brain fog and weight gain were and still are the worst for me. I told someone else earlier, and I will tell you now, Patience must be your middle name as you start this journey...just know your not alone okay. *HUGZ* Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Laurie, There are (from everything I've learned from this group, my doc, and reading info) three treatments for this disease (no cure, as yet...): 1. Drugs (ATD's, they're called, I believe..) 2. Radioactive Iodine treatment (RAI) 3. Surgery I'm on the drugs (Propylthiouracil, or PTU) plus a beta-blocker to keep my heartrate down. They've worked wonders! I've been on them since last fall, and feel a heck of a lot better. My levels are quite normal, and now we just a wait-and-see if I go into remission. Others will tell you similar stories, and a few here have had the RAI or surgery, and will undoubtedly share their stories. I hope they do. The information I've received from this list (as I said in an earlier post today! jeez, chatty, aren't I?) has helped me make some important decisions about my health. Do read the archives for some Radioactive treatment stories, though, before you decide. Kari Re: Hello Jody Spitale wrote:Hi Laurie,When were you diagnosed? What treatment plan are you currently following? Hi, I was just diagnosed with it. I have not felt good for a long time. I am also very anemic. I am suppose to go see a Dr. next week about some radioactive treatment. Im not even sure what my options are. Laurie ------------------------------------------------------------------------ GET WHO WANTS TO BE A MILLIONAIRE FREE! GET THE OFFICIAL COMPANION TO TELEVISION'S HOTTEST GAME SHOW PHENOMENON PLUS 5 MORE BOOKS FOR $2. Click for details. http://click./1/3014/3/_/585824/_/956869452/ ------------------------------------------------------------------------ ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 >Hey Kari...how bout " Chihuahua's Now Known rs of Graves Disease " Poor little guys. >I have 2 weird cats and one Shi Tzu named Pepe who use to be my moms dog. Huh! My friend just adopted a blind, 8 year old toy poodle named Pepe. Small world. >I couldn't imagine life without them They just seem to know when I'm not feeling well they gather round and petting them seems to make me feel better. My kitty gets very upset when I cry, and comes and sits with me, looking very concerned. She's only one year old, too! Sweet little thing. Aren't pets the best? So comforting. Kari Quote Link to comment Share on other sites More sharing options...
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