Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Jody, Thanks so much for your post. I am going to go read all the back posts and information I can find. The Dr office just called and they are going to give me codeine to help me sleep. Is this good or bad? Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Jody, Thanks for all your help. I have to go to work at 3:30 am. I get so tired. I have been working 10 hour days. They have not given me any meds yet. I know my resting heart rate is 120. Who knows what it is when Im working. They never told me about the seafood either. They really did not tell me much of anything. I think sometimes not having insurance..... well anyway when I call the Dr's they say oh you are the one with no insurance. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 > Another thing you may want to becareful with is shellfish, vitamins with > iodine in them, kelp, salt with iodine...your thyroid will take in the extra > iodine and produce more T4 which it is already doing in excess...you truly > don't want to add to that. There is a vitamin called Vitasana that has no > iodine in it. It is expensive, here it runs me about $18.00 for 90 tablets. $18! Yipes. Have you checked around for other brands? I get mine at Wal-mart, they are the Spring Valley brand, women's daily. No iodine :-) and they run me about $4 for 80 or 100 (no bottle in front of me, I can't remember numbers still LOL). But I quite like them, tho I wish they weren't quite horse pills (I have this lovely gag reflex. I've been known to have problems getting my irth control pills down). Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 > Another thing you may want to becareful with is shellfish, vitamins with > iodine in them, kelp, salt with iodine...your thyroid will take in the extra > iodine and produce more T4 which it is already doing in excess...you truly > don't want to add to that. There is a vitamin called Vitasana that has no > iodine in it. It is expensive, here it runs me about $18.00 for 90 tablets. $18! Yipes. Have you checked around for other brands? I get mine at Wal-mart, they are the Spring Valley brand, women's daily. No iodine :-) and they run me about $4 for 80 or 100 (no bottle in front of me, I can't remember numbers still LOL). But I quite like them, tho I wish they weren't quite horse pills (I have this lovely gag reflex. I've been known to have problems getting my irth control pills down). Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 I did try the Walmart brand ones, but must have had a reaction to the dye in them because within 30 minutes I started getting a headache, within an hour I couldn't focus the headache had gotten so bad. I never attributed it to the vitamins and took them for another 5 days with the same results. I talked to 2 different pharmacists and both suggested I not take them for a few days, stopped them, headaches never came back, talked to the pharmacists (who don't know each other) and both said the same thing, probably the dye in them. So I spend the extra money ... for now ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Jody, Were you never given ATD's before the decision for RAI was made? I can not take either one of them, Tapazole or PTU, so I will have to have RAI anyway. e Re: Hello > Hi Laurie, > Before the drs. rush you into the RAI, please please please take the time to > read about all of the treatments out there. If you read back through the > posts here you will see so many of them that are doing well on the ATD's > (anti-throid drugs). You will also see some posts from about BRT > (block and replace therapy) which has had a great deal of success in Europe > (correct me here if I'm wrong somebody). Just take the time to read and > learn about this disease BEFORE a dr. pushes or talks you into either RAI or > surgery. Both of those are permanent And both of those don't mean you > will stop bouncing from hypo to hyper on this roller coaster ride. > > I was pushed into RAI 4 years ago. If I were diagnosed today I would have > done things differently, I would have learned about this disease and learned > how to fight for time with the drs. and in all likelihood made different > choices. Learning about it is the best thing you can do for yourself right > now. > > *HUGZ* > Jody > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > ------------------------------------------------------------------------ > Avoid the lines and visit avis.com for quick and easy online > reservations. Enjoy a compact car nationwide for only $29 a day! > Click here for more details. > http://click./1/3011/3/_/585824/_/956877534/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Laurie, I was given " Ambien " (a sleeping pill) to sleep. I don't think I slept for one entire month before this was given to me. e Re: Hello > Jody, > > Thanks so much for your post. I am going to go read all the back posts and information I can find. > > The Dr office just called and they are going to give me codeine to help me sleep. Is this good or bad? > > Laurie > > > > > ------------------------------------------------------------------------ > Now the best and coolest websites come right to you based on your > unique interests. eTour.com is surfing without searching. > And, it's FREE! > http://click./1/3013/3/_/585824/_/956878230/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Jody, Ativan is an ant-anxiety pill. It will make you very sleepy. The doctor gave me a prescription for that and then later my sister told me that she became addicted to Ativan. So I have not been taking them. I am experiencing extreme anxiety though. At least I am pretty sure that is what it is, I " freak " out all of the time and start hyperventilating. e Re: Hello > Laurie, > I don't know if codeine is good or bad...I do know that I couldn't take it > because it created horrible stomach pains for me. I did have a script for > adavan (sp?) and used it when I absolutely HAD to get some sleep, but it > left me groggy the next day...unless of course that was just the Graves > Brain Fog ;P > > Have they started you on any ATD's yet? Or propananol for the heart palps? > Are you having the heart palps? Did they recommend that while you are hyper > to not exercise except for some relaxing walking? While hyper, your body is > in overdrive and you don't need to add to it. > > Another thing you may want to becareful with is shellfish, vitamins with > iodine in them, kelp, salt with iodine...your thyroid will take in the extra > iodine and produce more T4 which it is already doing in excess...you truly > don't want to add to that. There is a vitamin called Vitasana that has no > iodine in it. It is expensive, here it runs me about $18.00 for 90 tablets. > > As you are reading, keep a pen and paper with you and write down questions > as they arise, if you don't find the answers in the posts, just put them out > here, someone will answer them. > > Good luck with the reading...and know you are no longer alone in this > Laurie. We are all in this together. > *HUGZ* > Jody > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > http://click./1/3019/3/_/585824/_/956879318/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 e, I was on Tap and inderal (beta blocker) for 5 weeks off for 1 one then given RAI. I was told at time diagnosis that remaining on the ATD's was NOT an option for me and I had to chose between RAI and Surgery. After watching some video on treatments, my husband and I chose RAI. I can tell you this right now e, if I were able to make the decision all over again I would NOT do the RAI. It scares me way to much. If it were absolutely true that the ATD's would not work for me I would have gone to the surgery. It is wierd but there was just a story on the noon news on the radio today regarding the breakdown of 3 Mile Island in Pa. in 1979 and how researchers have been following 32 people within a 5 mile area of 3 Mile Island for cancer. Their deduction: Radaiation has NO links to cancer...There is a woman down there that was quoted to the say that those same researchers did no research or following on individuals for " auto-immune diseases or neuological diseases " and she has in hand facts and figures how much of an increase there has been in residents in a 30 mile radius have such a high increase in both auto-immune and neuological diseases....hmmmmmmmm those of us with an Graves disease are also at a much higher risk to get at least one other auto-immune disease...I am curious if those of us that have had RAI are more prone to that. I don't want diabetes, I don't want lupus, I don't want, Rheumatoid Arthritis...and I am scared to death of getting them because I already have one A-I and RAI. A friend is bringing me a copy of the story and I am going to try to contact this woman. It is a story from the ABC news. I want to know more about this. I truly wish you could consider at least consulting with a surgeon and asking the questions of how many he/she has done, how many a month he/she has done, what complications have he/she run into. I know with your moms history the thought of surgery is scaring you to death...it would me too. But your moms journey is NOT your journey. Your mom probably didn't have the access to information and support that you have, and it sure sounds like her follow up wasn't there. You are too smart and know there are people who are here for you to allow what happened to your mom happen to you. Also a second opinion or a new endo altogether would be a good thing for you too, just based on what you have been telling us this one has been like for you. You also have talked about wanting children in the future. I, along with others don't believe they truly KNOW what long term effects there are that could cause problems in that area. I think it was in one of s past posts that in some country's they won't do RAI on women of childbearing years...something else to consider. These are just *my* opinions e. The ultimate decision is YOURS and YOURS alone...not mine, not your dr., not anyone else and you have to do what is right for YOU. If you are going to do the RAI, and your numbers are showing you still very high hyper, please talk to your dr. about the dangers to you there. As your thyroid begins to die off it will put all of the stored hormone it has into your system making you more hyper than you have been...ask your dr. what the chances of this causing you to go into thyroid storm will be. They wouldn't do RAI on me until they got my numbers down before having it, had they not been able to accomplish that with the Tapazole, then surgery would have been my only options. I was fortunate. I am soooooooooo very glad you wrote today. Not hearing from you for the last couple of days has had me worried about you. e, we all care so much...and no matter what YOUR choice is...we are all here for you. *HUGZ* Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 e, It was Ambien that I was given, not the Atavan...I'm sorry Laurie that I gave you the wrong one...and thank you e for bringing the right one into it. Your right the Atavn is very addictive, my aunt was on it for years and when the drs. quit giving it to her cold turkey, the withdrawals for her were horrible. She was 83 when they refused to perscribe it for her again. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 > > I did try the Walmart brand ones, but must have had a reaction to the dye in > them because within 30 minutes I started getting a headache, within an hour > I couldn't focus the headache had gotten so bad. I never attributed it to > the vitamins and took them for another 5 days with the same results. I > talked to 2 different pharmacists and both suggested I not take them for a > few days, stopped them, headaches never came back, talked to the pharmacists > (who don't know each other) and both said the same thing, probably the dye > in them. So I spend the extra money ... for now Well, that sucks big time. I have a friend who has a wheat allergy and has to hunt for wheat free vitamins (tho I think she also gets the Spring Valley, but a different formulation). The things we go thru to stay healthy :-) Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Hi , I have a glucose tolerance test done every 12-18 months since I was a child and became ill with a low grade temp and they could never figure out what it was. They were so sure then it was diabetes, but it wasn't...at that time. My mom continued to have me tested growing up and it is something I still continue with, especially having had gestational diabetes when pregnant with my last pregnancy. I just had it done 2 months ago and was fine. But as for diabetes not being that bad... I am so terrified of needles I don't know how I would do it personally. When I go get my bloodwork done, either my hubby or a friend goes with me so I can white knuckle their hands. I have been like this after having some arterial bloodwork done and other blood tests done at the UCSD Medical Center in '86 and they infiltrated a major vein...thank God it wasn't the artery they did. But it was very painful and I was bruised for over a month. I have never gotten over it. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2000 Report Share Posted April 28, 2000 Hi Jody, If you have had high glucose levels before, you will probably get diabetes. There have been some experiments giving people at risk for diabetes Metoformin. I do not know what the outcome of this was. From what I have been told, and I mistrust all the medical information I am told or read, Graves developes AFTER diabetes has been established. 5% of people with diabetes go on to develop Graves. You can be a diabetic and not know it. If you blood sugar is 150 after a 12 hour fast you are a diabetic. Being a diabetic is not the end of the world. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2000 Report Share Posted April 29, 2000 Hi e and Jody- I had RAI over 12 years ago at the age of 24. My thyroid is completely dead. I was able to have a baby after 3 years of infertility with the help of fertility drugs. Everyone else in my family but me and my cousin with no thyroid function (she doesn't have autoimmune disease but neither of us have a thyroid regardless of the reason) can easily have babies. I have been off birth control this time since 2/99 and haven't been able to get pregnant yet despite trying. Please don't assume that you'll be fertile after RAI regardless of what your doctors tell you. They cannot figure out why I'm having problems since all my female hormone levels are well within the normal range. I've had a perfect ultrasound too. Duh! I'm missing something that most people have that drives everything. I can't figure out why that's so hard to understand. I suppose it's an arrogance about treatment. It disgusts me that they dicker with our lives so and then can't or won't help us when there're problems. I know this is an angry letter but I just can't help it. Take care, Jody Spitale wrote: > e, > I was on Tap and inderal (beta blocker) for 5 weeks off for 1 one then given > RAI. I was told at time diagnosis that remaining on the ATD's was NOT an > option for me and I had to chose between RAI and Surgery. After watching > some video on treatments, my husband and I chose RAI. I can tell you this > right now e, if I were able to make the decision all over again I > would NOT do the RAI. It scares me way to much. If it were absolutely true > that the ATD's would not work for me I would have gone to the surgery. > > It is wierd but there was just a story on the noon news on the radio today > regarding the breakdown of 3 Mile Island in Pa. in 1979 and how researchers > have been following 32 people within a 5 mile area of 3 Mile Island for > cancer. Their deduction: Radaiation has NO links to cancer...There is a > woman down there that was quoted to the say that those same researchers did > no research or following on individuals for " auto-immune diseases or > neuological diseases " and she has in hand facts and figures how much of an > increase there has been in residents in a 30 mile radius have such a high > increase in both auto-immune and neuological diseases....hmmmmmmmm those of > us with an Graves disease are also at a much higher risk to get at least one > other auto-immune disease...I am curious if those of us that have had RAI > are more prone to that. I don't want diabetes, I don't want lupus, I don't > want, Rheumatoid Arthritis...and I am scared to death of getting them > because I already have one A-I and RAI. > > A friend is bringing me a copy of the story and I am going to try to contact > this woman. It is a story from the ABC news. I want to know more about > this. > > I truly wish you could consider at least consulting with a surgeon and > asking the questions of how many he/she has done, how many a month he/she > has done, what complications have he/she run into. > > I know with your moms history the thought of surgery is scaring you to > death...it would me too. But your moms journey is NOT your journey. Your > mom probably didn't have the access to information and support that you > have, and it sure sounds like her follow up wasn't there. You are too smart > and know there are people who are here for you to allow what happened to > your mom happen to you. Also a second opinion or a new endo altogether > would be a good thing for you too, just based on what you have been telling > us this one has been like for you. > > You also have talked about wanting children in the future. I, along with > others don't believe they truly KNOW what long term effects there are that > could cause problems in that area. I think it was in one of s past > posts that in some country's they won't do RAI on women of childbearing > years...something else to consider. > > These are just *my* opinions e. The ultimate decision is YOURS and > YOURS alone...not mine, not your dr., not anyone else and you have to do > what is right for YOU. > > If you are going to do the RAI, and your numbers are showing you still very > high hyper, please talk to your dr. about the dangers to you there. As your > thyroid begins to die off it will put all of the stored hormone it has into > your system making you more hyper than you have been...ask your dr. what the > chances of this causing you to go into thyroid storm will be. They wouldn't > do RAI on me until they got my numbers down before having it, had they not > been able to accomplish that with the Tapazole, then surgery would have been > my only options. > I was fortunate. > > I am soooooooooo very glad you wrote today. Not hearing from you for the > last couple of days has had me worried about you. e, we all care so > much...and no matter what YOUR choice is...we are all here for you. > > *HUGZ* > Jody > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > ------------------------------------------------------------------------ > Get paid for the stuff you know! > Get answers for the stuff you don’t. And get $10 to spend on the site! > http://click./1/2200/3/_/585824/_/956944526/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 , I have never had any desire to have children, so I don't think that will be a problem. I have often wondered why I have never gotten pregnant though. I miss my birth control pills for a week at a time and then take a handful of them, always have for the 17 years I have taken them and I have never gotten pregnant. I would never wish my genes on anybody. I sure wish my mother would have done the same and spared me this miserable life. e Re: Hello > Hi e and Jody- > > I had RAI over 12 years ago at the age of 24. My thyroid is completely dead. I was able to have a baby after 3 > years of infertility with the help of fertility drugs. Everyone else in my family but me and my cousin with no > thyroid function (she doesn't have autoimmune disease but neither of us have a thyroid regardless of the reason) can > easily have babies. I have been off birth control this time since 2/99 and haven't been able to get pregnant yet > despite trying. Please don't assume that you'll be fertile after RAI regardless of what your doctors tell you. > They cannot figure out why I'm having problems since all my female hormone levels are well within the normal range. > I've had a perfect ultrasound too. Duh! I'm missing something that most people have that drives everything. I > can't figure out why that's so hard to understand. I suppose it's an arrogance about treatment. > > It disgusts me that they dicker with our lives so and then can't or won't help us when there're problems. > > I know this is an angry letter but I just can't help it. > > Take care, > > > > Jody Spitale wrote: > > > e, > > I was on Tap and inderal (beta blocker) for 5 weeks off for 1 one then given > > RAI. I was told at time diagnosis that remaining on the ATD's was NOT an > > option for me and I had to chose between RAI and Surgery. After watching > > some video on treatments, my husband and I chose RAI. I can tell you this > > right now e, if I were able to make the decision all over again I > > would NOT do the RAI. It scares me way to much. If it were absolutely true > > that the ATD's would not work for me I would have gone to the surgery. > > > > It is wierd but there was just a story on the noon news on the radio today > > regarding the breakdown of 3 Mile Island in Pa. in 1979 and how researchers > > have been following 32 people within a 5 mile area of 3 Mile Island for > > cancer. Their deduction: Radaiation has NO links to cancer...There is a > > woman down there that was quoted to the say that those same researchers did > > no research or following on individuals for " auto-immune diseases or > > neuological diseases " and she has in hand facts and figures how much of an > > increase there has been in residents in a 30 mile radius have such a high > > increase in both auto-immune and neuological diseases....hmmmmmmmm those of > > us with an Graves disease are also at a much higher risk to get at least one > > other auto-immune disease...I am curious if those of us that have had RAI > > are more prone to that. I don't want diabetes, I don't want lupus, I don't > > want, Rheumatoid Arthritis...and I am scared to death of getting them > > because I already have one A-I and RAI. > > > > A friend is bringing me a copy of the story and I am going to try to contact > > this woman. It is a story from the ABC news. I want to know more about > > this. > > > > I truly wish you could consider at least consulting with a surgeon and > > asking the questions of how many he/she has done, how many a month he/she > > has done, what complications have he/she run into. > > > > I know with your moms history the thought of surgery is scaring you to > > death...it would me too. But your moms journey is NOT your journey. Your > > mom probably didn't have the access to information and support that you > > have, and it sure sounds like her follow up wasn't there. You are too smart > > and know there are people who are here for you to allow what happened to > > your mom happen to you. Also a second opinion or a new endo altogether > > would be a good thing for you too, just based on what you have been telling > > us this one has been like for you. > > > > You also have talked about wanting children in the future. I, along with > > others don't believe they truly KNOW what long term effects there are that > > could cause problems in that area. I think it was in one of s past > > posts that in some country's they won't do RAI on women of childbearing > > years...something else to consider. > > > > These are just *my* opinions e. The ultimate decision is YOURS and > > YOURS alone...not mine, not your dr., not anyone else and you have to do > > what is right for YOU. > > > > If you are going to do the RAI, and your numbers are showing you still very > > high hyper, please talk to your dr. about the dangers to you there. As your > > thyroid begins to die off it will put all of the stored hormone it has into > > your system making you more hyper than you have been...ask your dr. what the > > chances of this causing you to go into thyroid storm will be. They wouldn't > > do RAI on me until they got my numbers down before having it, had they not > > been able to accomplish that with the Tapazole, then surgery would have been > > my only options. > > I was fortunate. > > > > I am soooooooooo very glad you wrote today. Not hearing from you for the > > last couple of days has had me worried about you. e, we all care so > > much...and no matter what YOUR choice is...we are all here for you. > > > > *HUGZ* > > Jody > > ________________________________________________________________________ > > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > ------------------------------------------------------------------------ > > Get paid for the stuff you know! > > Get answers for the stuff you don't. And get $10 to spend on the site! > > http://click./1/2200/3/_/585824/_/956944526/ > > ------------------------------------------------------------------------ > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- > > > ------------------------------------------------------------------------ > Accurate impartial advice on everything from laptops to table saws. > http://click./1/3020/3/_/585824/_/956994489/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 Dear Amber, My suggestion is to get support for yourself in dealing with a person with this disorder. He has to be in charge of his body, his health, and the way he wants to deal with this illness. You have to let it go, and support him in his choice of how to live with this. -Judy in Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 Amber, I would check with his allergist, because my GP and my pharmacist both had a cow at first when they saw the amount of antihistamines the allergist prescribed. I had done the same thing like you said and took benadryl at night and my GP and pharmacist both said no, but the allergist said it was OK. But then she gave me allegra 180 mg and zyrtec to take and I dont need the benadry. The pharmacist is still bothered that I am on 2 different antihistamines, but its working. Zelma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 Dear Zelma, If your pharmacist is bothered by your prescriptions, he doesn't have a clue how to treat urticaria. Our's is a disorder that is only managed by steroids or lots and lots of differnt types of H1 and H2 antihistimines at very high doses. If you read here, you'll hear story after story of high dose anithistimines. When the doses are too low, we suffer. I can't tell you how long I suffered before I got educated and demended correct dosing, and relief came. Don't be scared by medical folks who are ignorant about this disorder. We all deserve relief from symptoms. -Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 Many (if not most) of us tend to respond better to a combination of H1 and H2 antihistamines. With urticaria, both types of histamine are coursing through the body, so suppressing just one won't solve the problem. The two most common combos are zantac with zyrtec and atarax with tagamet. - Jackie _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 Many (if not most) of us tend to respond better to a combination of H1 and H2 antihistamines. With urticaria, both types of histamine are coursing through the body, so suppressing just one won't solve the problem. The two most common combos are zantac with zyrtec and atarax with tagamet. - Jackie _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Hi Laurie, Welcome to the group, I am glad you found us. Since you have recently had RAI, I will try to explain a bit about what is going on, there are others who can and will do a much better job for you though. The RAI is killing your thyroid, while it is so new, it is struggling to live, so it is working overtime and putting much more thyroid hormone into your system. This will settle down in soon. I won't comment on your meds and dosages because I wasn't aware enough back when I was diagnosed and had my RAI to do so. The best piece of advice I can give your right now is to get into the archives here and start reading...you will be able to pick out the posts you want by the subject in most cases, but reading from the beginning helped me so very much. Those of us that I am aware of that have had RAI in this group besides myself are Elaine (Daisy), U, _A, Redhen, e (how are you doing btw e, it has been a long time since we have heard from you?)...I am sure there are many more, I just am not aware of it. Another thing, while reading the posts, keep a pen handy for questions, if you don't find the answers in following posts, just ask them! You will learn by your reading that you will now have to become very very aware of your body and what it is feeling so you won't drop into hypo. Ask your dr. to do labs on you every couple of weeks or so instead of 3 mos. down the road. I can tell you this, I had RAI on 6/7/96...had my first blood test on 7/3/96 and blood work still showed me very hyper...on 7/18/96 I was so exhausted I literally could not get up off the couch and had to crawl upstairs to use the bathroom on my hands and knees...my husband called my *then* endo, she ordered some blood work 'stat' called back the next morning and told me I had to go on thyroid hormone...so one can definitely go hypo very quickly at some point. Another suggestion...get copies of ALL of your blood work...including those that were taken that led to diagnosis and keep them. As you read the archives you will see why they will come in handy. I know these suggestions sound like a lot with your mind racing and your body feeling so terrible, I think you may be surprised at how much reading will help you to understand and grasp a bit of a handle on what is going on. When we have some control over this disease, it seems a bit more manageable. Another group that you may want to check out, if not now, down the road is http://groups.yahoo.com/group/AtomicWomen Try to take care, the severity of what is going on now will calm down shortly...write here whenever you have to! And keep reading. We do understand what you are going through. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Hi Laurie, from what I understand it is quite common to go a little hyper after RAI and probably eventually go hypo. Did you have the bad hyper symptoms before when originally diagnosed or is it worse now? It takes at least a week to 10 days before you will notice clinical improvement from the PTU because it prevents release of more thyroid hormone but has no effect on the hormone already in your bloodstream. These hormones need to used up first. So we SUFFER with all the nasty hyper symptoms for a week or so. I noticed your doc gave you Xanax for the anxiey. How much did you get prescirbed a day. With one of my hyper bouts my doc gave me .5 mgs 2 times a day bbut another time WHen really anxious I needed .5 mgs 4 times a day. IT is important to use this only short term like weeks but it is habit forming but can really help with the panic. Hope this is of some help, Hello > Hi I am new to the group so I wanted to introduce myself. > My name is Laurie and I have recently been diagnosed with Graves. A week ago > I had the RAI. Since then I have lost 7# and my thyroid is even more active. > I am on Toprol, 200mgs. a day and on PTU, 300mgs a day. I am shaking, hands, > legs, plus I ache all over. This morning I popped my meds. then threw up. It > scared me because I haven't vomited since I was a kid and now I am 48 years > old. Has this happened to any of you from the disease or from the PTU? > Well I am out of work now with plenty of time on my hands and I thought this > group would give me a place to vent/complain and learn. Nobody really > understands what this is all about until they go through it. I wish I could > use this energy to do constructive things but I am too weak to do much of > anything. Even my computer that I dearly love gets me frazzled now. I am on > Xanax too to try to calm my insides. > Sorry for going on and on. > Laurie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 Oh Kathy, I'm so sorry, I was thinking SURELY this must be something else... I know most would consider this " totally off the wall " , and ok, I would have a hard time arguing with them, but nonetheless... You first noticed Cytoluminescent Therapy (CLT) awhile back, as reported by Ralph Moss' Oct. newsletter. Now I have NO IDEA if there is anything to CLT or not, but have generally gotten the feeling that Ralph Moss is pretty quick to reject the obvious scams (you know, Zappers and such). I'm a little slower to reject stuff he feels positive about without a much closer look (although of course his endorsement is no guarantee it " works " !). Anyway, I noticed Kees Braam (on Yahoo groups " cancercure " and webmaster of www.kanker-actueel.nl ) is following a breast cancer patient who went to Ireland for the treatment. The benefits are probably exaggerated ( " cure " is tough to achieve!), but if this even helps extend survival time it could still be worthwhile. http://www.kanker-actueel.nl/rem_sto..html http://groups.yahoo.com/group/cancercure/message/19273 Next week she will go in for scans, I sure hope it is successful!!! I'll be watching over there to see what happens... NOTE: for all CLT references, go to LINKS section of this page, " Alternative Medicine " / " Cytoluminescent Therapy " Kind of interesting this is coming out at the same time they are starting to see success with PDT for lung cancer patients, tripling the survival time (PDT is similar to but not the same as CLT) http://www.kcc.tju.edu/Clinical/kccnews/FriedbergPDT.htm How to Evaluate Alternative Therapies, by Steve Dunn http://www.cancerguide.org/alternative.html http://www.cancerguide.org/alternative_philosophy.html http://www.cancerguide.org/wheatchaff/wheatchaff.html Best Wishes, > Hi everyone, > Returned from the hospital this am - went in for outpatient bronchoscopy on Tuesday which was not successful (bleeding due to low platelets). They admitted me and gave me platelets and then did a thorascopy (sp?) on Wednesday. Ended up in ICU for 24 hours due to complications with intubating me. Apparently, I have small airways. The surgeon was able to get a whole nodule from the right lung base and it came back positive for colon cancer. I was sure it was a fungus or other lung infection. They compared it to my other two slides (colon and retroperitonial nodes) and it is the same. So, hows that for strange disease progression? Totally skipped my liver and innumerable nodules in the lungs. Surgery out now due to number of nodules, and they won't remove the lymph nodes with disease in my lungs. All signs point to chemotherapy. We are still getting used to this diagnosis and will begin researching on our own very soon. What a lousy Christmas gift. > Take Care, > Kathy O. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 this is from my surgeon..I received this am..hugs,kaye -- RE: hello I know that this is worrisome to you and please know that I am concerned too I spoke with Dr. Bramham at length and we will follow up the previous studies just after the first of the year. As we spoke about before, given the information from the previous scans, it is not entirely clear where the tumor might be located-the time has been necessary but I recognize difficult I have not forgotten about you in the least. We will make arrangements for the studies and then contact you. Enjoy the rest of the holidays. Best regards, Lee Gorden M.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 " bellagrace2003 " <bellagrace2003@y...> wrote: >But I'd first like to send my > condolences to Betty at the loss of her husband. I'm so very sorry > for your painful loss. > Gracie ---Thanks so much. Sure glad you are here too, we all need to see this uplifting news of your posts. Hugs, Betty B. Quote Link to comment Share on other sites More sharing options...
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