Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 Apologies for the delays in updates and data being loaded – I have had a good deal of trouble with the ISP who lost a lot of data. Fortunately I had backup files and these have now been uploaded. Can I ask you all a special favour? Can you check whatever pages you might normally visit to make sure they are working properly – I can’t check all 1500+ pages myself. If there are any problems can you please mail me, at terryherbert42@... and give the page address – just clip and paste off your browser and a brief description of the problem. Amongst the stories on this update are two that illustrate the range of this disease: Andre H diagnosed at 45 with might be termed an insignificant disease (T1c/GS6/PSA3.0) and Roy White diagnosed at 72 with an aggressive disease (T4/GS10/PSA7,000.0 ng/ml) LOST MEMBER http://www.yananow.net/Mentors/RonH.htm RON HARD RIP chose not to suffer the pain of bone metastases after his Alternative Therapies failed to manage or cure his advanced disease CHANGES TO PAGES http://www.yananow.net/choices.htm#notes CHOICES - NOTES includes reference to a newly developed technique of extracting the prostate gland through the penis (ouch!) termed Natural Orifice Transluminal Endoscopic Surgery, or NOTES NEW POSTS: http://www.yananow.net/Mentors/JakeH.htm JAKE HANNAM has decided on Focal Cryotherapy after his GS 8 diagnosis http://www.yananow.net/Mentors/BobK3.htm BOB KAHN recently diagnosed and considering CyberKnife® or PBT (Proton Beam Therapy) http://www.yananow.net/Mentors/DougH.htm DOUG HARVEY chose RP (Radical Prostatectomy) but is worried about changes in ultra-sensitive tests and the effect of statins http://www.yananow.net/Mentors/KB.htm K BRIT diagnosed in May and chose RALP (Robotic Assisted Laparoscopic Surgery) http://www.yananow.net/Mentors/MikeU.htm MIKE U chose RP (Radical Prostatectomy) over EBRT (External Beam Radiation Therapy) for his GS 10 diagnosis after multi-disciplinary review – an excellent concept http://www.yananow.net/Mentors/NeilP.htm NEIL P elected to have RALP (Robotic Assisted Laparoscopic Prostatectomy) http://www.yananow.net/Mentors/AnilN.htm ANIL NATHANEY diagnosed with PSA 38/GS 7/T3c tumour in November 2009 and choose neoadjuvant ADT (Androgen Deprivation Therapy) and EBRT (External Beam Radiation Therapy) http://www.yananow.net/Mentors/T.htm RICHARD TRAISTER after toying with the idea of Active Surveillance has chosen IMRT (Intensity Modulated Radiation Therapy) http://www.yananow.net/Mentors/T.htm KEITH TWEED is undecided after his July 23 diagnosis of what seems to be an insignificant tumour UPDATES FROM MEMBERS http://www.yananow.net/Mentors/BobW.htm BOB WOOD PSA still dropping after his EBRT (External Beam Radiation Therapy) with adjuvant ADT (Androgen Deprivation Therapy) – no serious side effects http://www.yananow.net/Mentors/TomJ.htm TOM JOHNSON four star Gold member – diagnosed in 1996 PSA 100/GS7/Stage T4– has been off Chemotherapy after failed ADT (Androgen Deprivation Therapy) for almost 18 months and his PSA is still staying down http://www.yananow.net/Mentors/BarryC3.htm BARRY COWAN undetectable PSA after EBRT (External Beam Radiation Therapy) and adjuvant ADT (Androgen Deprivation Therapy) http://www.yananow.net/Mentors/DaveM.htm DAVE MARTINEZ chose RALP after his on again/off again diagnosis PSA still undetectable and Viagra is working http://www.yananow.net/Mentors/SteveB3.htm STEVE B diagnosed in October 2008 at age 40 with a PSA of 41, GS8, T4 tumour he had neo adjuvant ADT (Androgen Deprivation Therapy) and Surgery http://www.yananow.net/Mentors/GrantM.htm GRANT MARTIN back on ADT (Androgen Deprivation Therapy) after his vacation from the therapy and some EBRT (External Beam Radiation Therapy) http://www.yananow.net/Mentors/ToddM.htm TODD MERRITT happy with the outcome of his RALP (Robotic Assisted Laparoscopic Prostatectomy) with a PSA of 0.08 no ED and a downgraded GS to one spot of GS6 http://www.yananow.net/Mentors/K.htm DAVID KING has been able to reduce his Viagra dosage to deal with his ED after RALP (Robotic Assisted Laparoscopic Prostatectomy) in 2007 http://www.yananow.net/Mentors/DennisC3.htm DENNIS CUNNINGHAM has decided to go Watchful Waiting as a solo exercise since he cannot find a doctor to support his decision despite an apparently insignificant tumor diagnosis and falling PSA http://www.yananow.net/Mentors/RayL2.htm RAY L two and a half years after surgery has undetectable PSA but ED issues persist http://www.yananow.net/Mentors/SudhanshuG.htm SUDHANSHU GOUR still keeping his PSA down after his original PSA 377/GS 8/T3 diagnosis and EBRT (External Beam Radiation Therapy) plus ADT (Androgen Deprivation Therapy) – interesting comments on the ‘socialist’ nature of medical treatment in India http://www.yananow.net/Mentors/D.htm STEPHEN DUGDALE has some support for a Watchful Waiting/Active Surveillance approach http://www.yananow.net/Mentors/F3.htm JOHN FARROW on Abiraterone Acetate + Prednisone trial with falling PSA and retreating tumour but a new side effect affecting his vision http://www.yananow.net/Mentors/W.htm ROBERT WALLACE still battling urinary problems after his Brachytherapy and has some ‘hangover’ effects from adjuvant ADT (Androgen Deprivation Therapy) http://www.yananow.net/Mentors/LesT.htm LES TENNEY PSA is still low after EBRT (External Beam Radiation Therapy) and adjuvant ADT (Androgen Deprivation Therapy) http://www.yananow.net/Mentors/phS2.htm JOSEPH SMITH Silver member six years out from his RP (Radical Prostatectomy) uses Testosterone supplement but still has ED – his stricture problems are well behind him http://www.yananow.net/Mentors/BobB.htm BOB B decided to have adjuvant EBRT (External Beam Radiation Therapy) despite the apparent success of his RALP (Robotic Assisted Laparoscopic Prostatectomy) http://www.yananow.net/Mentors/JerryS.htm JERRY SULLIVAN chose EBRT (External Beam Radiation Therapy) plus Brachytherapy and his PSA is bouncing some http://www.yananow.net/Mentors/AndreH.htm ANDRE H despite his youth – under 50 - he decided on Active Surveillance as a better option than aggressive treatment http://www.yananow.net/Mentors/RoyW.htm ROY WHITE had a very bad diagnosis T4/GS10/PSA 7,000.0 when diagnosed two years ago. Metastases are retreating but PSA is increasing again from a low of 4.6 ng/ml http://www.yananow.net/Mentors/C.htm GEORGE CROZIER chose RALP (Robotic Assisted Laparoscopic Prostatectomy) and has an undetectable PSA and ED http://www.yananow.net/Mentors/C2.htm ROBERT CURTIS has extensive soft tissue metastases despite a low PSA of 1.40 after failed RP (Radical Prostatectomy) , EBRT (External Beam Radiation Therapy) and ADT (Androgen Deprivation Therapy) and feels he will not last much longer http://www.yananow.net/Mentors/P.htm PAUL PROUE in the six months since his diagnosis his PSA has halved while he practices Active Surveillance http://www.yananow.net/Mentors/DaneS.htm DANE SHELDON says his PSA is ‘under control’ with a reading of 0.40 after RALP (Robotic Assisted Laparoscopic Surgery) ED is a work in progress as is his Peyronie’s disease http://www.yananow.net/Mentors/GreggM.htm GREGG MORRISON one of our Platinum members – diagnosed almost 20 years ago in 1991 and having a RP (Radical Prostatectomy) Gregg is battling a number of age related health issues http://www.yananow.net/Mentors/BrentE.htm BRENT ECCLES Silver member concerned about a rising PSA – now 1.40 ng/ml five years after RP (Radical Prostatectomy) and EBRT (External Beam Radiation Treatment)after http://www.yananow.net/Mentors/RickD.htm RICK DURBIN Silver member, coming up to Gold, nine years after failed RP (Radical Prostatectomy) for a GS8 metastasized disease, ADT (Androgen Deprivation Therapy) has kept his PSA down and his spirits up http://www.yananow.net/Mentors/SteveS.htm STEVE SYWAK two and a half years after RALP (Robotic Assisted Laparoscopic Prostatectomy) with hard work and a daily dose of Viagra he has achieved pre-surgical erection status All the best Prostate men need enlightening, not frightening Terry Herbert - diagnosed in 1996 and still going strong Read A Strange Place for unbiased information at http://www.yananow.net/StrangePlace/index.html Quote Link to comment Share on other sites More sharing options...
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