Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 In a message dated 10/6/2004 10:49:09 PM Central Standard Time, j.mccrary@... writes: Sounds as though your regular doctor knows more than your reumy does. I believe I'd find another one. Do you have pain in your fingers when they get wet or cold? I have raynauds syndrome along with my RA and if my fingers are cold I have extreme pain in my hands and fingers especially if they get wet at the same time. My fingers turns purple...........Joyce I was diagnosed quite a few years ago with Raynauds syndrome by a rheumatologist (I didn't have RA then, but I had "overuse syndrome" and tendonitis. My hands have never turned purple, although my feet, cheeks and ears do. The newest Rheumy doesn't believe that I have Raynaud's though! Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Hello everyone, I have had some concerns over the past while about my rheumatologist and what to ask you about it. In the past when I have said to my rheumy that when my joints are really acting up it feels like someone is thrusting sharp icicles into my knuckles writs and ankles and she told me she didn't think it was much but to dress warmly. When I later repeated this to my regular doctor he was a bit surprised and said that what described was indicative of a bad flare up. I had also mentioned to my rhuemy about how for the past few months my hands and feet were getting really cold and I was having problems warming them up and should I be concerned. Again my rheumy said she felt it was nothing. My regular doctor checked my blood pressure as soon as I told him, checked out my hands a feet and said he felt I have raynaud's syndrome. He also said that it was not uncommon in people who have RA. Am I over-reacting or should I ask my doctor to refer me to another rheumatologist? The other question I have is definitely more mature in manner - with all of my medications and trying to cope with pain, cold and feeling like I could sleep 18 - 20 hours a day but don't and also fitting in running the house and trying to have a normal life, I have next to no sexual inclinations at all. My husband is a very patient man but I think even his is wearing thin. Any suggestions on how to pep up the ole sex drive?? -- Scientific discovery may not be better than sex, but the satisfaction lasts longer -- Stephan Hawking Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Hi - no, you aren't over-reacting. I would definitely discuss this with your doctor and see who else he can recommend. Hopefully there are more than one so you can find someone who takes your concerns more seriously. As for the other - let me know what you find out - I haven't figuredi it out yet. Beth > Hello everyone, > > I have had some concerns over the past while about my rheumatologist and > what to ask you about it. > > In the past when I have said to my rheumy that when my joints are really > acting up it feels like someone is thrusting sharp icicles into my > knuckles writs and ankles and she told me she didn't think it was much > but to dress warmly. When I later repeated this to my regular doctor he > was a bit surprised and said that what described was indicative of a bad > flare up. I had also mentioned to my rhuemy about how for the past few > months my hands and feet were getting really cold and I was having > problems warming them up and should I be concerned. Again my rheumy said > she felt it was nothing. My regular doctor checked my blood pressure as > soon as I told him, checked out my hands a feet and said he felt I have > raynaud's syndrome. He also said that it was not uncommon in people who > have RA. > > Am I over-reacting or should I ask my doctor to refer me to another > rheumatologist? > > The other question I have is definitely more mature in manner - with all > of my medications and trying to cope with pain, cold and feeling like I > could sleep 18 - 20 hours a day but don't and also fitting in running > the house and trying to have a normal life, I have next to no sexual > inclinations at all. My husband is a very patient man but I think even > his is wearing thin. Any suggestions on how to pep up the ole sex drive?? > > > > -- > Scientific discovery may not be better than sex, but the satisfaction lasts longer > -- Stephan Hawking Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 Sounds as though your regular doctor knows more than your reumy does. I believe I'd find another one. Do you have pain in your fingers when they get wet or cold? I have raynauds syndrome along with my RA and if my fingers are cold I have extreme pain in my hands and fingers especially if they get wet at the same time. My fingers turns purple...........Joyce ----- Original Message ----- From: " /Don " <wolfpak4@...> <Rheumatoid Arthritis > Sent: Wednesday, October 06, 2004 8:40 PM Subject: Concerns Hello everyone, I have had some concerns over the past while about my rheumatologist and what to ask you about it. In the past when I have said to my rheumy that when my joints are really acting up it feels like someone is thrusting sharp icicles into my knuckles writs and ankles and she told me she didn't think it was much but to dress warmly. When I later repeated this to my regular doctor he was a bit surprised and said that what described was indicative of a bad flare up. I had also mentioned to my rhuemy about how for the past few months my hands and feet were getting really cold and I was having problems warming them up and should I be concerned. Again my rheumy said she felt it was nothing. My regular doctor checked my blood pressure as soon as I told him, checked out my hands a feet and said he felt I have raynaud's syndrome. He also said that it was not uncommon in people who have RA. Am I over-reacting or should I ask my doctor to refer me to another rheumatologist? The other question I have is definitely more mature in manner - with all of my medications and trying to cope with pain, cold and feeling like I could sleep 18 - 20 hours a day but don't and also fitting in running the house and trying to have a normal life, I have next to no sexual inclinations at all. My husband is a very patient man but I think even his is wearing thin. Any suggestions on how to pep up the ole sex drive?? -- Scientific discovery may not be better than sex, but the satisfaction lasts longer -- Stephan Hawking Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 My finges and toes hurt quite a bit when they get cold & wet but they turn white not purple. I don't know - it would be so much nicer if everything could be simpler! lol Joyce McCrary wrote: > Sounds as though your regular doctor knows more than your reumy does. I > believe > I'd find another one. Do you have pain in your fingers when they get > wet or > cold? > I have raynauds syndrome along with my RA and if my fingers are cold I > have > extreme pain in my hands and fingers especially if they get wet at the > same > time. > My fingers turns purple...........Joyce > > > ----- Original Message ----- > From: " /Don " <wolfpak4@...> > <Rheumatoid Arthritis > > Sent: Wednesday, October 06, 2004 8:40 PM > Subject: Concerns > > > > Hello everyone, > > I have had some concerns over the past while about my rheumatologist and > what to ask you about it. > > In the past when I have said to my rheumy that when my joints are really > acting up it feels like someone is thrusting sharp icicles into my > knuckles writs and ankles and she told me she didn't think it was much > but to dress warmly. When I later repeated this to my regular doctor he > was a bit surprised and said that what described was indicative of a bad > flare up. I had also mentioned to my rhuemy about how for the past few > months my hands and feet were getting really cold and I was having > problems warming them up and should I be concerned. Again my rheumy said > she felt it was nothing. My regular doctor checked my blood pressure as > soon as I told him, checked out my hands a feet and said he felt I have > raynaud's syndrome. He also said that it was not uncommon in people who > have RA. > > Am I over-reacting or should I ask my doctor to refer me to another > rheumatologist? > > The other question I have is definitely more mature in manner - with all > of my medications and trying to cope with pain, cold and feeling like I > could sleep 18 - 20 hours a day but don't and also fitting in running > the house and trying to have a normal life, I have next to no sexual > inclinations at all. My husband is a very patient man but I think even > his is wearing thin. Any suggestions on how to pep up the ole sex drive?? > > > > -- > Scientific discovery may not be better than sex, but the satisfaction > lasts > longer > -- Stephan Hawking > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 You need a real rheumatologist instead of the clown you are going to. God bless. > > From: /Don <wolfpak4@...> > Date: 2004/10/07 Thu AM 01:40:58 GMT > " Rheumatoid Arthritis " <Rheumatoid Arthritis > > Subject: Concerns > > Hello everyone, I have had some concerns over the past while about my rheumatologist and what to ask you about it. In the past when I have said to my rheumy that when my joints are really acting up it feels like someone is thrusting sharp icicles into my knuckles writs and ankles and she told me she didn't think it was much but to dress warmly. When I later repeated this to my regular doctor he was a bit surprised and said that what described was indicative of a bad flare up. I had also mentioned to my rhuemy about how for the past few months my hands and feet were getting really cold and I was having problems warming them up and should I be concerned. Again my rheumy said she felt it was nothing. My regular doctor checked my blood pressure as soon as I told him, checked out my hands a feet and said he felt I have raynaud's syndrome. He also said that it was not uncommon in people who have RA. Am I over-reacting or should I ask my doctor to refer me to another rheumatologist? The other question I have is definitely more mature in manner - with all of my medications and trying to cope with pain, cold and feeling like I could sleep 18 - 20 hours a day but don't and also fitting in running the house and trying to have a normal life, I have next to no sexual inclinations at all. My husband is a very patient man but I think even his is wearing thin. Any suggestions on how to pep up the ole sex drive?? -- Scientific discovery may not be better than sex, but the satisfaction lasts longer -- Stephan Hawking Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 , Keep talking til somebody helps you.... Don't be afraid to seek other help. First goal is to get the pain and swelling under control. When you can get enough rest, it always helps. Controlling the pain and swelling will lead to being able to get some rest. I believe our hormones are all tied in with this... I have reached menopause and working hard on natural hormones and not synthetic ones to help all the menopausal symptoms. I don't choose the regular HRT that all the regular docs push because I don't want cancer from synthetic estrogen. I was also told that since I have an auto-immune disease it is not surprising that I have no sex drive anymore. Since the body is dealing with the RA, she feels it may take some time to get all the hormones right again. I am making some headway and found somebody to help that seems knowledgable. Just found out they can make a lozenge to melt under the tongue instead of rubbing on cream now for the hormones. I have moved from pure torture to very functional now!!! I am also sleeping better now. Ovaries do not shrivel up and die. That is a lie. Women have been fed lies for years. Synthetic estrogen causes cancer and makes women fat and no diet on earth will make them lose it!! Best of luck, Kay ----- Original Message ----- From: " /Don " <wolfpak4@...> <Rheumatoid Arthritis > Sent: Wednesday, October 06, 2004 8:40 PM Subject: Concerns > > Hello everyone, > > I have had some concerns over the past while about my rheumatologist and > what to ask you about it. > > In the past when I have said to my rheumy that when my joints are really > acting up it feels like someone is thrusting sharp icicles into my > knuckles writs and ankles and she told me she didn't think it was much > but to dress warmly. When I later repeated this to my regular doctor he > was a bit surprised and said that what described was indicative of a bad > flare up. I had also mentioned to my rhuemy about how for the past few > months my hands and feet were getting really cold and I was having > problems warming them up and should I be concerned. Again my rheumy said > she felt it was nothing. My regular doctor checked my blood pressure as > soon as I told him, checked out my hands a feet and said he felt I have > raynaud's syndrome. He also said that it was not uncommon in people who > have RA. > > Am I over-reacting or should I ask my doctor to refer me to another > rheumatologist? > > The other question I have is definitely more mature in manner - with all > of my medications and trying to cope with pain, cold and feeling like I > could sleep 18 - 20 hours a day but don't and also fitting in running > the house and trying to have a normal life, I have next to no sexual > inclinations at all. My husband is a very patient man but I think even > his is wearing thin. Any suggestions on how to pep up the ole sex drive?? > > > > -- > Scientific discovery may not be better than sex, but the satisfaction lasts longer > -- Stephan Hawking > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Thanks! I sort of felt that me regular doctor seems more informed or at the least believes me. hvantuyl@... wrote: > You need a real rheumatologist instead of the clown you are going to. > God bless. > > > > From: /Don <wolfpak4@...> > > Date: 2004/10/07 Thu AM 01:40:58 GMT > > " Rheumatoid Arthritis " > <Rheumatoid Arthritis > > > Subject: Concerns > > > > > > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Kay, Thank you so much for your e-mail. Sometimes it just helps to know that you are not alone in your concerns or experiences. After reading you post I am so glad that my Mom has refused the synthetic hormones - it makes sense as birth control pills increase a woman's risk for cancer too. I am just trying to get some energy back and am hoping that will help in the long run and I definatly think a new rheumatologist is in order. Thank God my regular doctor is a good doctor. Kay Simpson wrote: > , > Keep talking til somebody helps you.... Don't be afraid to seek other > help. > First goal is to get the pain and swelling under control. When you > can get > enough rest, it always helps. Controlling the pain and swelling will lead > to being able to get some rest. > > I believe our hormones are all tied in with this... I have reached > menopause and working hard on natural hormones and not synthetic ones to > help all the menopausal symptoms. I don't choose the regular HRT that all > the regular docs push because I don't want cancer from synthetic estrogen. > I was also told that since I have an auto-immune disease it is not > surprising that I have no sex drive anymore. Since the body is > dealing with > the RA, she feels it may take some time to get all the hormones right > again. > I am making some headway and found somebody to help that seems > knowledgable. > Just found out they can make a lozenge to melt under the tongue instead of > rubbing on cream now for the hormones. I have moved from pure torture to > very functional now!!! I am also sleeping better now. Ovaries do not > shrivel up and die. That is a lie. Women have been fed lies for years. > Synthetic estrogen causes cancer and makes women fat and no diet on earth > will make them lose it!! > > Best of luck, > Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 , you just made me think of my (use to be family doctor) . He knew I had arthritis but never bothered to see what kind I had. When I had day surgery a few years ago, my Ear, Nose, and Throat Doctor was getting my medical history from me. When I told him I had arthritis and raynaud's disease, he stated he was having a Rheumatoid Factor done on me which turned out positive. My other doctor should have done that as I had gone to him for quite awhile. Joyce ----- Original Message ----- From: " /Don " <wolfpak4@...> <Rheumatoid Arthritis > Sent: Thursday, October 07, 2004 8:17 PM Subject: Re: Concerns Thanks! I sort of felt that me regular doctor seems more informed or at the least believes me. hvantuyl@... wrote: > You need a real rheumatologist instead of the clown you are going to. > God bless. > > > > From: /Don <wolfpak4@...> > > Date: 2004/10/07 Thu AM 01:40:58 GMT > > " Rheumatoid Arthritis " > <Rheumatoid Arthritis > > > Subject: Concerns > > > > > > * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Hi , Yes, it can make her regress if done improperly. What dose and timing are you going to use with the DMPS, and what is your daughter's weight? Is this under the direction of a physician ( a suspect since using DMPS)? Have you done a DDI hair test to check for toxicity, or some other test? Many people see great gains chelating their children with low and frequent doses. We use ALA here, not DMSA or DMPS, but if you provide a bit more information, I'm sure all the helpful people here will have some great comfort for you, as well as sage advice. P. gbrn98 wrote: > > Please bear with me. I'm really nervous about starting DMPS on my > daughter who is 3 1/2. She was diagnosed with autism at 27 months. > This past year she has made great improvements with eye contact, some > socialization. To begin with, she is VERY loving, loves to cuddle. > Her main issues are speech. She has very little behavioral issues, > very mild stims (when excited). She is an extremely picky eater. Her > speech therapist thinks she has apraxia. Bless her heart, she tries to > repeat words you say. She is very vocal, and can say a handful of > words. > So, why am I worried?? Can this chelating stuff make her regress?? If > so, is it a permanent thing? Will it make her really ill?? What GAINS > has anyone seen when doing this?? > Sorry for all the questions.... she is to start this weekend! Help!! > Thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Does ALA need to be supervised by a doctor or can I start that myself? What's the website for this protocol? Does ALA cause parasites?? My little one now jumps " over " objects, didn't do this 6 months ago. Now even kicks a ball. It's her speech that is holding her back, speech therapist thinks she has apraxia. Would ALA/chelating help with this?? > > > > > > Please bear with me. I'm really nervous about starting DMPS on my > > > daughter who is 3 1/2. She was diagnosed with autism at 27 months. > > > This past year she has made great improvements with eye contact, some > > > socialization. To begin with, she is VERY loving, loves to cuddle. > > > Her main issues are speech. She has very little behavioral issues, > > > very mild stims (when excited). She is an extremely picky eater. Her > > > speech therapist thinks she has apraxia. Bless her heart, she > tries to > > > repeat words you say. She is very vocal, and can say a handful of > > > words. > > > > > So, why am I worried?? > > > > > > It's your intuition telling you to be cautious for the sake of your > > child - very normal! > > > > > > > > > Can this chelating stuff make her regress?? > > > > > > Yes, if done improperly. > > > > The protocol that most people in this group use (Andy's protocol) is > > the safest and has almost no risk of regression, if done properly. > > > > > > > If > > > so, is it a permanent thing? Will it make her really ill?? > > > > > > Only for what Andy calls the " harmful, inappropriate " chelation > protocols. > > > > On Andy's protocol it is possible to feel much better during > > chelation, there is no need to feel ill, if a person does get really > > ill it is an indication that something is wrong. > > > > > > > > > What GAINS > > > has anyone seen when doing this?? > > > > > > Many parents have cured there children (had their diagnosis reversed). > > Many adults have cured chronic health conditions (that mainstream med > > would say are incurable). > > > > > > > > > > > Sorry for all the questions.... she is to start this weekend! Help!! > > > > > > Stop and investigate before you follow the advise of a doctor. Most > > do not understand chelation and do prescribe treatments that are > harmful. > > > > Tell us exactly what she is to start this weekend. > > > > It's ok to delay or say no to the treatment (depending on what it is). > > > > J > > > > > > > > > > > > > Thanks > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 I'm curious. What window are you afraid of missing? There isn't really a window of opportunity for chelation. I'm recovering an 18 year old son! As long as you remove exposure, then things won't get worse unless you move the metal around by unsafe chelation, as far as I know. There are people on the board recovering children of all ages and sizes. It is always safer to learn as much as you can before starting. Postponing until you are more comfortable with the process is probably a good idea. It will give you time to learn and ask more educated questions of your health care practitioner. The amount the doctor wants to use isn't as bad as some I've heard, but still higher than should be dosed. Also, it shouldn't be dosed just once, but on the half -life for a period of 3 days to optimize the amount of mercury removed without redistribution. DMSA also chelates lead I believe. We don't use it here though, so probably someone more knowledgeable can help with that. It doesn't sound that safe though, like maybe the doc is doing a modified challenge test - where you stir up a bunch of metals at once and see what comes out in the urine. Not all will come out though, some will redistribute. That is when it becomes not safe. Doing several days at low dose minimizes this. I saw you had another e-mail that asked about using ALA (alpha lipoic acid) As for ALA, there is information about frequent dose ALA in the files section of this message board. We use only ALA 3 days on 4 days off, 1/8mg per pound of body weight dosed every 3-4 hours. 3 hours day - 4 hours night. It is not necessary that a doctor supervise, and ALA is available without a prescription, as is DMSA another chelator used by many on the board. You can buy your own ALA and then divide it into the right size dose for the round. I have a pharmacist friend who is also interested in chelating compound it for us, so we have the right amount in a tablet. It costs to have her do it, but it is worth not having to divide myself. ALA is very inexpensive too. P. gbrn98 wrote: > > She is going to be given 50 mg?? (couldn't read handwriting) - > hopefully orally. Will call docs office today to double check. We > are to do 6 hours urine pre/post so......... > > I'm really considering post poning until I know more about this. I > just don't want my daughter to miss that " window " . > > > > > > > > Please bear with me. I'm really nervous about starting DMPS on > my > > > daughter who is 3 1/2. She was diagnosed with autism at 27 > months. > > > This past year she has made great improvements with eye contact, > some > > > socialization. To begin with, she is VERY loving, loves to > cuddle. > > > Her main issues are speech. She has very little behavioral > issues, > > > very mild stims (when excited). She is an extremely picky eater. > Her > > > speech therapist thinks she has apraxia. Bless her heart, she > tries to > > > repeat words you say. She is very vocal, and can say a handful > of > > > words. > > > > > So, why am I worried?? > > > > > > It's your intuition telling you to be cautious for the sake of your > > child - very normal! > > > > > > > > > Can this chelating stuff make her regress?? > > > > > > Yes, if done improperly. > > > > The protocol that most people in this group use (Andy's protocol) is > > the safest and has almost no risk of regression, if done properly. > > > > > > > If > > > so, is it a permanent thing? Will it make her really ill?? > > > > > > Only for what Andy calls the " harmful, inappropriate " chelation > protocols. > > > > On Andy's protocol it is possible to feel much better during > > chelation, there is no need to feel ill, if a person does get really > > ill it is an indication that something is wrong. > > > > > > > > > What GAINS > > > has anyone seen when doing this?? > > > > > > Many parents have cured there children (had their diagnosis > reversed). > > Many adults have cured chronic health conditions (that mainstream > med > > would say are incurable). > > > > > > > > > > > Sorry for all the questions.... she is to start this weekend! > Help!! > > > > > > Stop and investigate before you follow the advise of a doctor. Most > > do not understand chelation and do prescribe treatments that are > harmful. > > > > Tell us exactly what she is to start this weekend. > > > > It's ok to delay or say no to the treatment (depending on what it > is). > > > > J > > > > > > > > > > > > > Thanks > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Do you need to do ALA with DMPS or can it be done by itself? Does it pull heavy metals as well? I didn't know if chelating needed to be done in a certain " time frame " . > > > > > > > > Please bear with me. I'm really nervous about starting DMPS on > > my > > > > daughter who is 3 1/2. She was diagnosed with autism at 27 > > months. > > > > This past year she has made great improvements with eye contact, > > some > > > > socialization. To begin with, she is VERY loving, loves to > > cuddle. > > > > Her main issues are speech. She has very little behavioral > > issues, > > > > very mild stims (when excited). She is an extremely picky eater. > > Her > > > > speech therapist thinks she has apraxia. Bless her heart, she > > tries to > > > > repeat words you say. She is very vocal, and can say a handful > > of > > > > words. > > > > > > > So, why am I worried?? > > > > > > > > > It's your intuition telling you to be cautious for the sake of your > > > child - very normal! > > > > > > > > > > > > > Can this chelating stuff make her regress?? > > > > > > > > > Yes, if done improperly. > > > > > > The protocol that most people in this group use (Andy's protocol) is > > > the safest and has almost no risk of regression, if done properly. > > > > > > > > > > If > > > > so, is it a permanent thing? Will it make her really ill?? > > > > > > > > > Only for what Andy calls the " harmful, inappropriate " chelation > > protocols. > > > > > > On Andy's protocol it is possible to feel much better during > > > chelation, there is no need to feel ill, if a person does get really > > > ill it is an indication that something is wrong. > > > > > > > > > > > > > What GAINS > > > > has anyone seen when doing this?? > > > > > > > > > Many parents have cured there children (had their diagnosis > > reversed). > > > Many adults have cured chronic health conditions (that mainstream > > med > > > would say are incurable). > > > > > > > > > > > > > > > > Sorry for all the questions.... she is to start this weekend! > > Help!! > > > > > > > > > Stop and investigate before you follow the advise of a doctor. Most > > > do not understand chelation and do prescribe treatments that are > > harmful. > > > > > > Tell us exactly what she is to start this weekend. > > > > > > It's ok to delay or say no to the treatment (depending on what it > > is). > > > > > > J > > > > > > > > > > > > > > > > > > > Thanks > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 We aren't supervised by a doctor. We see a naturopath, but he's not doing the chelation. We will have her levels checked after about 12 rounds though. No, ALA doesn't cause parasites. My daughter had them before I started the chelation. I need to add more probiotics to her routine. For Ruby it appears that the ALA is helping with language the most. She says a lot of words, but can't pronounce most of them. I'm noticing now that she can suddenly pronounced certain words that she had trouble with before. It's coming along now. I've also noticed her co-ordination is getting better and she is getting more confident. She usually climbs up and down the stairs, but lately she has been holding the railing and going up about 6 steps all by herself with no prompting. Also, before we started chelation Ruby could not jump. She used to get on the bed and jump on her knees. After 4 rounds of ALA she could suddenly jump on her feet on the bed. After 5 rounds she started jumping on her feet on the floor. One more thing! She used to kiss us with her forehead, after this past round (6th) she is kissing us on the lips! Every time we ask her for a kiss she kisses us on the lips. This is huge for her. Her tactile defensiveness is gone too, but I think that was mostly due to diet and biomeds. So, the changes aren't always huge right away, but they are there. I am not stopping. She literally does something new after each round. Just stay on top of the yeast that chelation causes, which can be A LOT. I use biotin and GSE and now will be adding a probiotic. I was nervous to start too, but now I get excited for each round. > > > > > > > > Please bear with me. I'm really nervous about starting DMPS on > my > > > > daughter who is 3 1/2. She was diagnosed with autism at 27 > months. > > > > This past year she has made great improvements with eye > contact, some > > > > socialization. To begin with, she is VERY loving, loves to > cuddle. > > > > Her main issues are speech. She has very little behavioral > issues, > > > > very mild stims (when excited). She is an extremely picky > eater. Her > > > > speech therapist thinks she has apraxia. Bless her heart, she > > tries to > > > > repeat words you say. She is very vocal, and can say a handful > of > > > > words. > > > > > > > So, why am I worried?? > > > > > > > > > It's your intuition telling you to be cautious for the sake of > your > > > child - very normal! > > > > > > > > > > > > > Can this chelating stuff make her regress?? > > > > > > > > > Yes, if done improperly. > > > > > > The protocol that most people in this group use (Andy's protocol) > is > > > the safest and has almost no risk of regression, if done properly. > > > > > > > > > > If > > > > so, is it a permanent thing? Will it make her really ill?? > > > > > > > > > Only for what Andy calls the " harmful, inappropriate " chelation > > protocols. > > > > > > On Andy's protocol it is possible to feel much better during > > > chelation, there is no need to feel ill, if a person does get > really > > > ill it is an indication that something is wrong. > > > > > > > > > > > > > What GAINS > > > > has anyone seen when doing this?? > > > > > > > > > Many parents have cured there children (had their diagnosis > reversed). > > > Many adults have cured chronic health conditions (that > mainstream med > > > would say are incurable). > > > > > > > > > > > > > > > > Sorry for all the questions.... she is to start this weekend! > Help!! > > > > > > > > > Stop and investigate before you follow the advise of a doctor. > Most > > > do not understand chelation and do prescribe treatments that are > > harmful. > > > > > > Tell us exactly what she is to start this weekend. > > > > > > It's ok to delay or say no to the treatment (depending on what it > is). > > > > > > J > > > > > > > > > > > > > > > > > > > Thanks > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 ALA chelates mercury. There isn't a time frame, other than the sooner your start, the sooner the child is recovered. But, we're doing a 13 yo and an 18 yo. Many adults chelate. From what I understand, you are never too old. I wish I had known about it when my son was younger, but better to know now than not at all. We are using only ALA. His siblings have already said that they've noticed a big difference in him, and he was high functioning to start with. He seems much more stable emotionally. We've only done two weeks, and are starting at a super low dose - 1/16 mg per lb. We started that low since he has had yeast issues in the past, and also sensitivities to many things. I thought maybe that would be too low to notice anything, but obviously it isn't if his siblings are already commenting. Again, you can check the files section of the board for more info. The protocol we are using is based on Hall Cutler's low/frequent dosing. He has a site where you can order his book Amalgam Illness http://www.noamalgam.com P. gbrn98 wrote: > > Do you need to do ALA with DMPS or can it be done by itself? Does it > pull heavy metals as well? I didn't know if chelating needed to be > done in a certain " time frame " . > > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Hi , I have been following this group for about 8 months - reading, researching, learning from all of you. The amount of information available here is invaluable. I have been very leery of the dmsa/ala chelation. We did a challenge a few years ago - that reported no mercury or leads. My doc at the time said they probably didn't have any mercury to worry about...After reading these past few months - I see that a challenge may be and probably inconclusive. I am terrified to mess up what my severely autistic 15 year old twins already face. So I approach this with caution and awe. We have removed all toxins from our house, BEDiet, supp's, probitoics, etc...and still, no improvement - so I feel that Chelation is the next probable step. I am encouraged to read from several families who have recovered their children (older and young) through chelation - and have been so generous with their time in answering all my questions. Dana (danasview) and her kids, shelley axe her 17 year old and , your 18 year old as well... and many more .. A couple of Questions ...You indicated you, like Dana, administered AMA only - without DMPS. I have gone to Dana's website many times and saw her protocol as well as s... Did you also have a specific diet, and or protocol you followed in addition with your chelation? How old and when did you begin administering the AMA and how long did it take before you saw any noticible improvements? Did you have trouble getting your son back to sleep during the evening rounds. My son connor wakes at the slightest - and does not go back to sleep. This can go on for months at a time. I feel fortunate that we have the summer vacation here - and that sleepless nights wont be draining on a school day. I regret to take the valuable time to ask mundane and repetative questions, but as I say, I want to do this right - I've no background in anything even remotely scientiific - so I feel like a kindergartenger in a a group of PhD's - and don't want to ask anything too sophmoric. Thank you all for all the help and guidance you have offered me and hundreds like me Cherie Connor & 15 year old severly autisitic twins " P. " <the.great.zambini@...> wrote: I'm curious. What window are you afraid of missing? There isn't really a window of opportunity for chelation. I'm recovering an 18 year old son! As long as you remove exposure, then things won't get worse unless you move the metal around by unsafe chelation, as far as I know. There are people on the board recovering children of all ages and sizes. It is always safer to learn as much as you can before starting. Postponing until you are more comfortable with the process is probably a good idea. It will give you time to learn and ask more educated questions of your health care practitioner. The amount the doctor wants to use isn't as bad as some I've heard, but still higher than should be dosed. Also, it shouldn't be dosed just once, but on the half -life for a period of 3 days to optimize the amount of mercury removed without redistribution. DMSA also chelates lead I believe. We don't use it here though, so probably someone more knowledgeable can help with that. It doesn't sound that safe though, like maybe the doc is doing a modified challenge test - where you stir up a bunch of metals at once and see what comes out in the urine. Not all will come out though, some will redistribute. That is when it becomes not safe. Doing several days at low dose minimizes this. I saw you had another e-mail that asked about using ALA (alpha lipoic acid) As for ALA, there is information about frequent dose ALA in the files section of this message board. We use only ALA 3 days on 4 days off, 1/8mg per pound of body weight dosed every 3-4 hours. 3 hours day - 4 hours night. It is not necessary that a doctor supervise, and ALA is available without a prescription, as is DMSA another chelator used by many on the board. You can buy your own ALA and then divide it into the right size dose for the round. I have a pharmacist friend who is also interested in chelating compound it for us, so we have the right amount in a tablet. It costs to have her do it, but it is worth not having to divide myself. ALA is very inexpensive too. P. gbrn98 wrote: > > She is going to be given 50 mg?? (couldn't read handwriting) - > hopefully orally. Will call docs office today to double check. We > are to do 6 hours urine pre/post so......... > > I'm really considering post poning until I know more about this. I > just don't want my daughter to miss that " window " . > > > > > > > > Please bear with me. I'm really nervous about starting DMPS on > my > > > daughter who is 3 1/2. She was diagnosed with autism at 27 > months. > > > This past year she has made great improvements with eye contact, > some > > > socialization. To begin with, she is VERY loving, loves to > cuddle. > > > Her main issues are speech. She has very little behavioral > issues, > > > very mild stims (when excited). She is an extremely picky eater. > Her > > > speech therapist thinks she has apraxia. Bless her heart, she > tries to > > > repeat words you say. She is very vocal, and can say a handful > of > > > words. > > > > > So, why am I worried?? > > > > > > It's your intuition telling you to be cautious for the sake of your > > child - very normal! > > > > > > > > > Can this chelating stuff make her regress?? > > > > > > Yes, if done improperly. > > > > The protocol that most people in this group use (Andy's protocol) is > > the safest and has almost no risk of regression, if done properly. > > > > > > > If > > > so, is it a permanent thing? Will it make her really ill?? > > > > > > Only for what Andy calls the " harmful, inappropriate " chelation > protocols. > > > > On Andy's protocol it is possible to feel much better during > > chelation, there is no need to feel ill, if a person does get really > > ill it is an indication that something is wrong. > > > > > > > > > What GAINS > > > has anyone seen when doing this?? > > > > > > Many parents have cured there children (had their diagnosis > reversed). > > Many adults have cured chronic health conditions (that mainstream > med > > would say are incurable). > > > > > > > > > > > Sorry for all the questions.... she is to start this weekend! > Help!! > > > > > > Stop and investigate before you follow the advise of a doctor. Most > > do not understand chelation and do prescribe treatments that are > harmful. > > > > Tell us exactly what she is to start this weekend. > > > > It's ok to delay or say no to the treatment (depending on what it > is). > > > > J > > > > > > > > > > > > > Thanks > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 I think I will try this approach and to take it slow as well. How long do you anticipate your children to be on this? How will I know if all mercury is pulled out? Can I tell by improvements? The doctor we are seeing is actually an environmental allergist and said he has treated autism in the past. But there is still something there that makes me feel " iffy " about him. Thanks for all who have responded to all my questions. I'm sure I'll have plenty more, especially when I start the ALA. Do I need to give that with anything else?? She is already on several supplements like SNT/Diflucan/TMG with b12 and folic/mB12 injections/digestive enzymes/taurine/melatonin/probiotics/cod liver oil. Thanks again, > > > > Do you need to do ALA with DMPS or can it be done by itself? Does it > > pull heavy metals as well? I didn't know if chelating needed to be > > done in a certain " time frame " . > > > > - > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 The biggest thing to know before starting any chelation - whether ALA, DMSA or DMPS, is that you should remove exposure to metals. Does your daughter have any fillings? Are they silver? That is usually the biggest concern, since they are mercury. They need to be safely removed before chelation. As for things to add, I believe there is also a file about supplements in the files section. You will want to start there and read a lot before starting. The time you take to ask questions, read and educate yourself will be well worth it. I took almost a year, and got Andy's book Amalgam illness on top of all the files section and reading the messages here. Wait until you feel comfortable that you know what and why you are doing it. Many of the parents here get a hair analysis test from Doctor's Data, which can be ordered without a physician. You send in the hair and get results back. Then, you can post the results here on the message board for people to help you interpret. That will give you a good idea of where to start, and if you may want to start with DMSA instead of just ALA. Andy has developed what are called " counting rules " which help discern the presence of mercury. When you call DDI for the hair test, you can mention this message board for a discount. Again, more info about the hair test is in the files section. A lot of people start with DMSA then add ALA. DMSA chelates without crossing the blood brain barrier, so if there is a lot of metal to move, it is best to start with that so less chance of redepositing in the brain. There are many more knowledgeable people about that here than me, so if you have questions after reading the files, ask away! :-) Make sure the Cod Liver Oil is a brand that tests mercury free. It should say on the bottle. We also have our son, who tends to be yeasty, on biotin daily. It helps with yeast. Chelation can increase yeast. I've read that l-Carnatine helps ALA absorption, so I have the kids taking that also, but not necessarily with every dose of ALA. There's been some talk here about TMG - can't remember if it was good or bad or if there were problems since we don't use it. But, thought I'd mention it in case there were. You might search past posts for that. As for the doctor you are seeing. I have a great naturopath that I use for health care, but I wouldn't trust him to chelate any of us. He doesn't know about the protocol we use, and uses EDTA. I do hope to educate him about the process as we progress. I believe he will be very open to it. But, if he isn't, we will still do it our way. Best to you, P. gbrn98 wrote: > > I think I will try this approach and to take it slow as well. How > long do you anticipate your children to be on this? How will I know > if all mercury is pulled out? Can I tell by improvements? The > doctor we are seeing is actually an environmental allergist and said > he has treated autism in the past. But there is still something > there that makes me feel " iffy " about him. Thanks for all who have > responded to all my questions. I'm sure I'll have plenty more, > especially when I start the ALA. Do I need to give that with > anything else?? > She is already on several supplements like SNT/Diflucan/TMG with b12 > and folic/mB12 injections/digestive > enzymes/taurine/melatonin/probiotics/cod liver oil. > Thanks again, > > > > > > > > > Do you need to do ALA with DMPS or can it be done by itself? Does > it > > > pull heavy metals as well? I didn't know if chelating needed to be > > > done in a certain " time frame " . > > > > > > - > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Hi Cherie, Never feel that your questions are mundane, if you have them, then they are valid. I use Andy's protocol with ALA - every 3 hours day, 4 hours night, 3 days on 4 off. But since my son (and his sister) seem very sensitive to changes both good and bad, I decided to start with 1/16mg per pound. I'm really pleased with our first couple of rounds and surprisingly noticed a much more stable son! He is high functioning more aspergers symptoms. We've never had him diagnosed, nor have I spend much time trying to figure which. I spent more time trying to keep his life stable and get him well. Our daughter isn't autistic, but does have mito dysfunction, so doing her too. We didn't really notice much diff with her yet. As for our son, I'm happy that he is very peaceful these last two weeks. His usual tendency to not like schedule disruption has been the biggest problem, as well as speech blocks. He's been very communicative, and schedule changes didn't bother him to the point that his sister's dislike of short change notice was the biggest problem with a hectic schedule this past week. We teased her that she had gotten his problem, which she hadn't, just his issues overshadowed hers. We noticed an almost instant complexion improvement with him too. That was not expected, but acceptable. :-) We've also had no angry outbursts with usually are a big grunt from another room. Then we check and find that it is something like a fly buzzing around his head which he is ready to sacrifice his Wii remote to kill!!! Not good. But, none of those outbursts this past 2 weeks. He's actually spoken up about several things that have bothered him the last couple of weeks without getting the brain to mouth block that used to leave us sitting at the table for hours while he tried to get out simple phrases like " I felt bad when I said no to my sister. " Man, I don't miss that at all!! So, all in all, I can say that we have noticed major improvement with less ALA and just a couple weeks. I can't wait to keep going! The whole family is so pumped about this. As for what else we do with our son. He takes the following supplements - biotin - 5mg daily, single dose probiotics - mostly in the form of kefir which he remembers much better than the pill, but a Protec, Natural Factors, probiotic pill when he does remember (can't put with the rest of his pills since it requires refrigeration enzymes - Natural Factors Cal/Mag - the magnesium as mag oxide Vit D - in both his Cal/Mag and A Vit A - 15,000 IU daily (looks high, but 67% of that is beta carotene) Zinc - 50 mg daily B50 - 1 x daily Vit C - 1,000 mg with 200 mg Rose Hips l-Lysine - 500 mg daily l-Carnatine - 250 mg Milk Thistle - 250 mg daily when chelating and the day after Vit E - 400 mg daily He also takes No-Fenol when he eats high phenol foods or we see his ears get red ;-) We did notice improvements with the supplements too, which we have been doing for over a year. The biggest diet thing we've noticed with him has been phenol intolerance and the tendency to yeast overgrowth which manifest in respiratory system. I have not done GFCF with him, and he has never had eating issues other than phenols. I'm sure it may help, but the biggest problem he seems to have in the bathroom is daydreaming on the toilet. We've been able to keep him pretty regular with the probiotics and enzymes. Since he is 18, it is pretty tough to get much from him about his bathroom habits, so I just tell him to let me know if there are any problems. We eat an organic, whole food diet as much as possible, only raw milk products other than the kefir. We found when we discovered this site, that we had actually been living a maintenance lifestyle without knowing it. Though we enjoy the lifestyle and diet, it will be nice to not keep experiencing random yeast issues when we are done chelation!!! He's suffered with throat infections that were yeast for years, and couldn't take antibiotics as he was allergic. Discovering Grapefruit Seed Extract for his sore throats was a big AHA moment here. He hasn't had a singe throat infection since that discovery, and we've been on a large learning curve with his ASD symptoms, many we didn't even know were related. My son actually wakes up for the 2 a.m. dose with his cell phone alarm. He comes upstairs and gives his sister her ALA, then lets me know that he did. He then makes his nightly bathroom trip and goes back to bed. I'm assuming that he gets back to sleep find, since he never says he doesn't. On his way to bed, he also stops by his computer to start a download of some sort - since we can download without using up our allotted megabytes between 2 and 5 a.m. He was pretty tickled with the chelation schedule for that reason. But, I believe that is an incentive, since he NEVER has woken up for the 6 a.m dose. I have to take that one to him, even though his alarm is set. I might be disappointed if he runs out of things to download. Our 13 yo daughter, though, doesn't wake for any dose. She always asks us in the morning if we forgot the sleep time doses. We tell her no, she sits up takes them and just falls back into her comfy pillow never to remember a thing. It doesn't really wake her, but she takes the pill and a drink like she is awake. That's it in a nutshell. I'm not at all an expert with this, and feel like a fish in strange waters many times compared to the more knowledgeable people here. But, I take what I can use for my kids and run with it. We've found so much great help here. It has been a Godsend to have found this message boards. My kids are so much more comfortable these days, and hopefully they will be that way without a zillion supplements within a couple years, though sooner won't hurt my feelings. I'm not going to rush it though. Slow and steady wins the race. P. cherie mohr wrote: > > Hi , > > I have been following this group for about 8 months - reading, > researching, learning from all of you. The amount of information > available here is invaluable. > > I have been very leery of the dmsa/ala chelation. We did a challenge a > few years ago - that reported no mercury or leads. My doc at the time > said they probably didn't have any mercury to worry about...After > reading these past few months - I see that a challenge may be and > probably inconclusive. I am terrified to mess up what my severely > autistic 15 year old twins already face. So I approach this with > caution and awe. > > We have removed all toxins from our house, BEDiet, supp's, probitoics, > etc...and still, no improvement - so I feel that Chelation is the next > probable step. > > I am encouraged to read from several families who have recovered their > children (older and young) through chelation - and have been so > generous with their time in answering all my questions. Dana > (danasview) and her kids, shelley axe her 17 year old and , your > 18 year old as well... and many more . A couple of Questions > ...You indicated you, like Dana, administered AMA only - without > DMPS. I have gone to Dana's website many times and saw her protocol as > well as s... Did you also have a specific diet, and or protocol > you followed in addition with your chelation? How old and when did you > begin administering the AMA and how long did it take before you saw > any noticible improvements? Did you have trouble getting your son back > to sleep during the evening rounds. My son connor wakes at the > slightest - and does not go back to sleep. This can go on for months > at a time. I feel fortunate that we have the summer vacation here - > and that sleepless > nights wont be draining on a school day. > > I regret to take the valuable time to ask mundane and repetative > questions, but as I say, I want to do this right - I've no background > in anything even remotely scientiific - so I feel like a > kindergartenger in a a group of PhD's - and don't want to ask anything > too sophmoric. > > Thank you all for all the help and guidance you have offered me and > hundreds like me > > Cherie > Connor & 15 year old severly autisitic twins > > " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 You know, my son is more stable now too. I am very happy about this. We will be doing our fourth round (with my two boys 5 & 10 years) starting tomorrow. Haven't noticed much with the 10 year old, but the 5 year old's really leveling out Yea! > > > > Hi , > > > > I have been following this group for about 8 months - reading, > > researching, learning from all of you. The amount of information > > available here is invaluable. > > > > I have been very leery of the dmsa/ala chelation. We did a challenge a > > few years ago - that reported no mercury or leads. My doc at the time > > said they probably didn't have any mercury to worry about...After > > reading these past few months - I see that a challenge may be and > > probably inconclusive. I am terrified to mess up what my severely > > autistic 15 year old twins already face. So I approach this with > > caution and awe. > > > > We have removed all toxins from our house, BEDiet, supp's, probitoics, > > etc...and still, no improvement - so I feel that Chelation is the next > > probable step. > > > > I am encouraged to read from several families who have recovered their > > children (older and young) through chelation - and have been so > > generous with their time in answering all my questions. Dana > > (danasview) and her kids, shelley axe her 17 year old and , your > > 18 year old as well... and many more . A couple of Questions > > ...You indicated you, like Dana, administered AMA only - without > > DMPS. I have gone to Dana's website many times and saw her protocol as > > well as s... Did you also have a specific diet, and or protocol > > you followed in addition with your chelation? How old and when did you > > begin administering the AMA and how long did it take before you saw > > any noticible improvements? Did you have trouble getting your son back > > to sleep during the evening rounds. My son connor wakes at the > > slightest - and does not go back to sleep. This can go on for months > > at a time. I feel fortunate that we have the summer vacation here - > > and that sleepless > > nights wont be draining on a school day. > > > > I regret to take the valuable time to ask mundane and repetative > > questions, but as I say, I want to do this right - I've no background > > in anything even remotely scientiific - so I feel like a > > kindergartenger in a a group of PhD's - and don't want to ask anything > > too sophmoric. > > > > Thank you all for all the help and guidance you have offered me and > > hundreds like me > > > > Cherie > > Connor & 15 year old severly autisitic twins > > > > " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Comments interspersed. S S Re: concerns Posted by: " gbrn98 " gbrn98@... gbrn98 Wed Jun 18, 2008 10:20 am (PDT) Does ALA need to be supervised by a doctor or can I start that myself? *Both ALA and DMSA chelation can be done without a doc. DMSA's available without a prescription from www.vrp.com ALA is available at most HFS but you need to look for the lowest doses and usually still split them depending on the weight of the individual. What's the website for this protocol? *This is it. The FAQS, files, and Andy Cutler's books. Does ALA cause parasites?? *Moving mercury causes yeast, so you need to have a yeast protocol in place. My little one now jumps " over " objects, didn't do this 6 months ago. Now even kicks a ball. It's her speech that is holding her back, speech therapist thinks she has apraxia. *Awesome! Good to see progress. Would ALA/chelating help with this?? *ALA chelates mercury from body and brain and chelates arsenic. Have you done a hair test and applied counting rules? Dana has a post about what helped her kid(s) with speech. _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Depends on what you're trying to chelate. ALA chelates mercury from body and brain and chelates arsenic. S S Re: concerns Posted by: " gbrn98 " gbrn98@... gbrn98 Wed Jun 18, 2008 1:37 pm (PDT) Do you need to do ALA with DMPS or can it be done by itself? Does it pull heavy metals as well? I didn't know if chelating needed to be done in a certain " time frame " . _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 Have you done DDI hair tests and applied counting rules? They've available without a doc through DLS (Direct Lab Services) and if you mention this list they'll give you a discount. That will help you determine what you're dealing with. S S Re: concerns Posted by: " cherie mohr " mohrcherie@... mohrcherie Wed Jun 18, 2008 2:13 pm (PDT) Hi , I have been following this group for about 8 months - reading, researching, learning from all of you. The amount of information available here is invaluable. I have been very leery of the dmsa/ala chelation. We did a challenge a few years ago - that reported no mercury or leads. My doc at the time said they probably didn't have any mercury to worry about...After reading these past few months - I see that a challenge may be and probably inconclusive. I am terrified to mess up what my severely autistic 15 year old twins already face. So I approach this with caution and awe. _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 > > Does ALA need to be supervised by a doctor or can I start that > myself? I chelated all four of my kids, and now myself, with ALA only. I did not use a doctor. >>It's her speech that is holding > her back, speech therapist thinks she has apraxia. Would > ALA/chelating help with this?? What my son needed for speech is written here http://www.danasview.net/issues.htm Dana Quote Link to comment Share on other sites More sharing options...
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