Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 SMALL PROBLEM Every now and then I get an update, or even a new story, where there is no means of identifying the person sending the story or update in. No Name, no e-mail address, nothing. There is nothing I can do with these submissions – I can’t even mail the person to ask for information. There were a couple of these last month, so if you’ve sent in any updates that haven’t appeared yet, maybe you forgot to fill in the form. NEW POSTS: http://www.yananow.org/Mentors/GregD.htm GREG D newly diagnosed with GS 8 T3a disease and chose Abiraterone Trial – Lupron + Abiraterone + RP (Radical Prostatectomy) http://www.yananow.org/Mentors/W.htm EDWARD WAKELEY chose RP (Radical Prostatectomy) for his April 2011 diagnosis http://www.yananow.org/Mentors/B3.htm JOHN BERKERS joins us as a Silver Member and is in his sixth year of AS (Active Surveillance) http://www.yananow.org/Mentors/G.htm JOHN G after due consideration has chosen AS (Active Surveillance) http://www.yananow.org/Mentors/CarlS3.htm CARL S chose RP (Radical Prostatectomy) and has ED issues http://www.yananow.org/Mentors/D2.htm ROBERT DEAN diagnosed in April and considering IMRT (Intensity Modulated Radiation Therapy) + Brachytherapy or PBT (Proton Beam Therapy) http://www.yananow.org/Mentors/AntK.htm ANT KNE diagnosed last week and considering RALP (Robotic Assisted Laparoscopic Surgery) or PBT (Proton Beam Therapy) http://www.yananow.org/Mentors/BillN.htm BILL NGA also diagnosed last week and undecided http://www.yananow.org/Mentors/BillM.htm BILL MALLETT results of second biopsy caused him to move from AS (Active Surveillance) to RALP (Robotic Assisted Laparoscopic Prostatectomy) and he has some problems. UPDATES FROM MEMBERS: http://www.yananow.org/Mentors/WendellJ.htm WENDELL JEFFERIES still has an undetectable PSA after being on ADT vacation following EBRT (External Beam Radiation Therapy) for failed RP (Radical Prostatectomy) http://www.yananow.org/Mentors/JackL.htm JACK LONG newly Silver Member with undetectable PSA four years after RALP (Robotic Assisted Laparoscopic Prostatectomy) and no side effects http://www.yananow.org/Mentors/RickD2.htm RICK DANCER undetectable PSA and no side effects after Calypso EBRT (External Beam Radiation Therapy) http://www.yananow.org/Mentors/A.htm PAUL A now has a detectable PSA after his RP (Radical Prostatectomy) and is still very opposed to AS (Active Surveillance) http://www.yananow.org/Mentors/IanV.htm IAN VAGG a bit concerned because his PSA is up to 4.1 while he is on ADT (Androgen Deprivation Therapy) http://www.yananow.org/Mentors/B3.htm DAVID BAGNALL has decided on EBRT (External Beam Radiation Therapy) - Calypso http://www.yananow.org/Mentors/RickG.htm RICK GOINS PSA still falling three years after EBRT (External Beam Radiation Therapy) http://www.yananow.org/Mentors/M4.htm DAVID MANSFIELD chose HIFU (High Intensity Focused Ultrasound) and is happy with the choice – no side effects and a PSA of 0.70 http://www.yananow.org/Mentors/PatI.htm PAT INGLESE almost two years after HIFU (High Intensity Focused Ultrasound), PSA is undetectable and apart from minor bladder stricture, no problems http://www.yananow.org/Mentors/RonG.htm RON GERARD chose AS (Active Surveillance) but while on vacation in Mexico chose to have a bone scan which was incorrectly interpreted as showing widespread metastases leading to a recommendation of orchidectomy which was declined http://www.yananow.org/Mentors/T.htm ERIC TAYLOR Gold One Star member diagnosed in 2000 with GS 9 and choosing RP (Radical Prostatectomy) still has a 0.10 PSA and is heading off on another travel adventure, proving that there is life after prostate cancer. http://www.yananow.org/Mentors/KurtB.htm KURT BRUST ten weeks out from RALP (Robotic Assisted Laparoscopic Prostatectomy) somewhat concerned about ED http://www.yananow.org/Mentors/RemiM.htm REMI MORRISSETTE after having a Color Doppler scan is considering abandoning AS (Active Surveillance) and moving to focal therapy http://www.yananow.org/Mentors/LawrenceB.htm LAWRENCE BOOKBINDER returns as a Gold One Star member eleven years after his decision to choose AS (Active Surveillance) http://www.yananow.org/Mentors/D2.htm STEPHEN DOFELMIER his nine month check up after Brachytherapy shows his PSA down and his side effects dissipating http://www.yananow.org/Mentors/P2.htm GARY POWELL PSA still undetectable more than three years after RALP (Robotic Assisted Laparoscopic Prostatectomy) http://www.yananow.org/Mentors/LeoC.htm LEO CROWLEY PSA stable fifteen months after Brachytherapy – no side effects http://www.yananow.org/Mentors/RandyO.htm RANDY OGLE PSA still dropping after Brachytherapy and back to mostly normal http://www.yananow.org/Mentors/GregK.htm GREG KAMPA PSA stable after dropping from PBT (Proton Beam Therapy) very minor side effects http://www.yananow.org/Mentors/MaxH.htm MAX HUNTER chose ADT (Androgen Deprivation Therapy), EBRT (External Beam Radiation Therapy) and Brachytherapy and has a PSA of 0.10 with ED http://www.yananow.org/Mentors/S3.htm FRANK STREIFF had a failed RP (Radical Prostatectomy) and although his PSA is down to 2,100 on Taxotere, feels like calling it a day Ann is not so sure http://www.yananow.org/Mentors/P.htm GARY POWELL Silver Member gong for Gold still on Chemotherapy vacation after failed RP (Radical Prostatectomy), EBRT (External Beam Radiation Treatment) and ADT (Androgen Deprivation Therapy) – regrets the EBRT http://www.yananow.org/Mentors/BobB2.htm BOB BISHOP four months after starting ADT (Androgen Deprivation Therapy) for failed RP (Radical Prostatectomy) and EBRT (External Beam Radiation Therapy) his PSA is down http://www.yananow.org/Mentors/J.htm ROGER JAEGER Silver Member has had his Provenge shots after failed ADT (Androgen Deprivation Therapy) – no side effects http://www.yananow.org/Mentors/MazharulH.htm MAZHARUL HUQ has completed his Brachytherapy procedure with no problems http://www.yananow.org/Mentors/NeilF.htm NEIL FALCONE two and a half years after his Cyberknife his PSA remains at 0.30 and he has no side effects http://www.yananow.org/Mentors/H.htm TIMOTHY HOTUJEC Silver Member PSA down to 0.20 on ADT (Androgen Deprivation Therapy) for failed RP (Radical Prostatectomy) http://www.yananow.org/Mentors/C3.htm ROBERT CREW all returning to normal after EBRT (External Beam Radiation Treatment) with ne0-adjuvant ADT (Androgen Deprivation Therapy) NEW LINK At the suggestion of new member Ant Kne I have included a link on the RESOURCES page at http://www.yananow.org/resources.html#insurance to the book written by Health Care advocate Laurie Todd entitled “How to fight your insurance company and win” All the best Prostate men need enlightening, not frightening Terry Herbert - diagnosed in 1996 and still going strong Read A Strange Place for unbiased information at http://www.yananow.org/StrangePlace/index.html Quote Link to comment Share on other sites More sharing options...
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