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Re: Reply re: Biela's

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Hi Kathy!

Well, I will get with the foundation for all their publicity info and get

back to you. The Gala is through the foundation. As far as families

go...everyone is invited, it is just the cost of tickets that are a wee bit

high. As far as Great Strides...We had that at Sea World of Texas. It was

great. For the $50 pledge you got breakfast, lunch and snacks and a free day

into Sea World...also a T-shirt! It is a great thing. What kind of info do

you want or need and I will get it for you!

I do have other children. I have Felicia-6, -4, Reese-16 months and

Jarrett-2 months. Felicia doesn't wake up...usually...for her treatments at

5:30. I sit at her bedside and turn the aerosol on and give it to her while

she sleeps. She loves that special time with me. We watch movies and read

stories and sometimes sit outside while we do this. She is a trooper. She

knows that if she doesn't do it she'll end up in the hospital. She HATES the

hospital! She fears the " NG TUBE " and " IV'S " and will do anything to stay

out of there! Felicia is asleep by 8:30 and school starts at 7:50. She does

really well on this schedule. When it fails are those days that she doesn't

have school. Those days are tough! The cooperation is wonderful! She

doesn't have nap time in 1st grade, but I do request that she go to the

nurse's office if she is tired.

Well, Take care and let me know what all you need and I will get it to you!

Kathy Biela

Felicia's mom

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