Re: Tying up a loose end in the Provenge thread.

[Guest guest]

<snip> I guess most

people go just round on the wheels in the ruts that are made for them. <snip> Yep, that sounds like me.

All the best

Terry Herbert

in Melbourne

Australia

Diagnosed ‘96: Age

54: Stage T2b: PSA 7.2: Gleason 7: No treatment. Jun '07 PSA 42.0 - Bony

Metastasis: Aug '07: Intermittent ADT: PSA 2.3 Aug '10

It is a

tragedy of the world that no one knows what he doesn’t know, and the less

a man knows, the more sure he is that he knows everything. Joyce Carey

From:

ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of Georgia Sam

Sent: Wednesday, 24 November 2010

10:37 AM

To: ProstateCancerSupport

Subject:

Tying up a loose end in the Provenge thread.

A loose end I'd like to tidy up.

Terry asked " When you say .. 'You could possibly get as long, maybe more

by going on testosterone patches ' <snip> I say " As long as what?

The median survival time? The end time? Do you have any references to support your

view that testosterone patches can enhance the survival of men with T4

aggressive disease? Just interested to know if this is your opinion or a view

backed by any evidence at all. "

You sound so incredulous matey ! My reply to your last but one sentence

is YES. As a matter of fact I do have some evidence, plenty in fact. I am

surprised this information is not more widely known. I guess most people go

just round on the wheels in the ruts that are made for them.

Anyhow, I posted it, but unfortunately the text editor then squidged it out of

recognisable existence. So, what I am going to do is put it up as a file on my

website with a link as follows.

http://poetryfromtheprostrateyears.com/prostate_science/androgen_therapy/

The other thing I wanted to mention was the fact that in the UK both NICE

and BAUS (and the EAU) have a commentery about late stage disease options,

including IHT - in other words, going OFF all treatment. The reason is that it

may well improve QoL for advanced PC sufferers - and save a bit of NHS money at

the same time. The caveat is that it has not been shown to improve survival.

But then, who cares ? With late stage disease the issue is arguably QoL. That

is why there is a commentary, to help men make informed decisions about this

stage of the journey.

What intrigues me is this: Is there a similar commentary by the powers-that-be

in the 'States or Canada, or

Australia or New Zealand. If

there isn't there should be.

Therapeutic androgen is a reality. Make no mistake. If anyone finds the article

useful feel free to print it out, but please remember the credits &

copyright by yours truly.

Sam.

For your delectation and edification:-

http://poetryfromtheprostrateyears.com/

~

[Guest guest]

I think there is an awful lot of controversy and confusion, even among experts,

regarding medical treatments for advanced prostate cancer. Experts still

disagree on when and what kind of ADT to take, when to take chemotherapy, what

other drugs are useful, what side effects should be treated and what should be

ignored, and on an on. As for testosterone supplementation as a treatment -

I've seen arguments both for it and against it. The literature appears to show

that some people have benefited from it, but we just don't know enough to know

who will benefit from each specific treatment and who will do worse. There's

still a lot of basic science to do before we really understand this disease.

I suspect that, like so much else that we do, it's a crap shoot. If you feel

adventurous, you can say your prayers, rub your lucky rabbit's foot, or whatever

works for you, and roll the dice.

A hundred years from now our great great grandchildren will look back and wonder

how we all got by in such primitive times.

Alan

[Guest guest]

ok guys,

I thin you have covered this and I need your info. I seem to be getting boobs on Lupron-fixes or that I need to accept it. I am to fat and these are boobs starting. I have been on

Lupron for a year now with a very very good PSA 0.5.

Tom W

To: ProstateCancerSupport Sent: Wed, November 24, 2010 10:08:29 AMSubject: Re: Tying up a loose end in the Provenge thread.

I think there is an awful lot of controversy and confusion, even among experts, regarding medical treatments for advanced prostate cancer. Experts still disagree on when and what kind of ADT to take, when to take chemotherapy, what other drugs are useful, what side effects should be treated and what should be ignored, and on an on. As for testosterone supplementation as a treatment - I've seen arguments both for it and against it. The literature appears to show that some people have benefited from it, but we just don't know enough to know who will benefit from each specific treatment and who will do worse. There's still a lot of basic science to do before we really understand this disease.I suspect that, like so much else that we do, it's a crap shoot. If you feel adventurous, you can say your prayers, rub your lucky rabbit's foot, or whatever works for you, and roll the dice.A hundred years from

now our great great grandchildren will look back and wonder how we all got by in such primitive times.Alan

[Guest guest]

Alan wrote: <snip> " A hundred years from now our great great grandchildren

will look back and wonder how we all got by in such primitive times. "

Alan.

Based on our performance the last hundred years we may still be casting

about for answers a hundred years from now. Let us hope we are entering

another " Age of Enlightenment " that will bring with it meaningful research

and resourceful practicioners.

" Hope is the thing with feathers/That perches in the soul. " Dickinson

Re: Tying up a loose end in the Provenge

thread.

>I think there is an awful lot of controversy and confusion, even among

>experts,

> regarding medical treatments for advanced prostate cancer. Experts still

> disagree on when and what kind of ADT to take, when to take chemotherapy,

> what

> other drugs are useful, what side effects should be treated and what

> should be

> ignored, and on an on. As for testosterone supplementation as a

> treatment -

> I've seen arguments both for it and against it. The literature appears to

> show

> that some people have benefited from it, but we just don't know enough to

> know

> who will benefit from each specific treatment and who will do worse.

> There's

> still a lot of basic science to do before we really understand this

> disease.

>

> I suspect that, like so much else that we do, it's a crap shoot. If you

> feel

> adventurous, you can say your prayers, rub your lucky rabbit's foot, or

> whatever

> works for you, and roll the dice.

>

> A hundred years from now our great great grandchildren will look back and

> wonder

> how we all got by in such primitive times.

>

> Alan

>

>

>

>

>

>

> ------------------------------------

>

> There are just two rules for this group

> 1 No Spam

> 2 Be kind to others

>

> Please recognise that Prostate Cancerhas different guises and needs

> different levels of treatment and in some cases no treatment at all. Some

> men even with all options offered chose radical options that you would not

> choose. We only ask that people be informed before choice is made, we

> cannot and should not tell other members what to do, other than look at

> other options.

>

> Try to delete old material that is no longer applying when clicking reply

> Try to change the title if the content requires it