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Re: Public awareness Jane

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> In a message dated 10/6/00 8:22:01 AM Pacific Daylight Time,

> jrjaclam@m... writes:

Dear Karyn,

Thanks for the vote of confidence. I think I am going to email

our local news stations here in the Detroit Metro area. They are

always doing segments on good health matters, and maybe they will do

one on pancreatitus. It can't hurt!

After reading alot of the others stories, mine seems almost

minor. Even though the pain is so real.

Thanks for your support -- I'll write again soon -- Jane

>

> << I am so glad my daughter found this website, I sometimes feel

like I am

> all alone with this illness, because there is so little known about

it as far

> as the public goes.

>

>

> Hi Jane,

>

> Thank you for sharing some of your story. This is definitely a

disease that

> requires us to hold one another up. You said it right, there needs

to be

> increased public as well as medical awareness of this disease. I

wish I had

> limitless amount of money so I could travel worldwide setting up

support

> groups, working with the healthcare professionals, and educate

everyone about

> the pathophysiology of pain.

>

> We can do this, one step at a time. I am frustrated because I can't

even

> reach all of the Pancreatitis patients in Indianapolis. I don't

give up,

> because of members like yourself.

>

> The key to being a Pancreatitis survivor is having hope and

motivation to

> take control over the healthcare.

>

> Glad you are here,

>

> Karyn

>

> Pancreatitis Support Network

> Indianapolis Symposium on Pancreatitis 2000

> November 11, 2000

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