Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 The high lactate and pyruvate levels should be pursued by a metabolic specialist. Just my recommendation. Ricci Seattle, WA << Not sure if this the appropiate posting place for this question but would appreciate any input. We are living in Switzerland where unfortunately the medical profession still looks at autism as a psychotic condition and refuses to acknowledge any links to immune disorders, vaccine, diets etc so for our 27 month son we are working somewhat alone. We have just had his blood analysed and the results came back with high numbers for: Lymphocytes 52pct (suggested range 33-50) Sedimentation 13mm (range 1-10) Lactate 4.69 mmol/l (range 0.5-2.2) Pyruvate 272 umol/l (range 50-105) T4 (EIA) 144 (range 58-155) Enolase neurone 23.8 ug/l (expected less than 12.5) amino acids - (umol/l) alanine 476 (range 100-310) arginine 86 (range 10-65) lysine 144 (range 45-145) glutamate 32 (range 25-250) glutamine 493 (range 60-470) Otherwise other results were mid-range. Doctor said nothing meaningful in above data and our son probably had a cold for the blood test, but from the little I've read I see most of the above linked to body immune issues. Any comments gratefully accepted. rgds >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 You have not done enough test. You need to contact Dr. Goldberg's office and get the list of tests that need to be done. You have to look for antibodies to viruses, yeast's, abnormal cytokine profile, etc., It is a lot of testing but that coupled with the medical history and physical will give you a reflection of the immune system. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 , Look at total white cell count and proportion that eosinophils - is of this. Range is 0 - 6%. High range suggets blood allergies that are likely to be immune related. Lymphocytes can and do vary as can all the four components of a white cell count, depending on any bacterial or viral activity. Look a ANA Titer - Anti Nuclear Antibody. - If elevated, suggests an auto-immune disorder and is possibly genetic. My 4 1/2 yo son has a positive response to this, as does my sister 10x his age! Do contact Dr Goldberg in CA. see www.neuroimmunedr.com for details. He recommends a whole range of blood tests to help diagnose the nature of an immune dysfunction related to autism. We live in Singapore and brought our son all that way (20 hours) to see him - nobody here knows anything about it! Good luck, Blood Test Not sure if this the appropiate posting place for this question but would appreciate any input. We are living in Switzerland where unfortunately the medical profession still looks at autism as a psychotic condition and refuses to acknowledge any links to immune disorders, vaccine, diets etc so for our 27 month son we are working somewhat alone. We have just had his blood analysed and the results came back with high numbers for: Lymphocytes 52pct (suggested range 33-50) Sedimentation 13mm (range 1-10) Lactate 4.69 mmol/l (range 0.5-2.2) Pyruvate 272 umol/l (range 50-105) T4 (EIA) 144 (range 58-155) Enolase neurone 23.8 ug/l (expected less than 12.5) amino acids - (umol/l) alanine 476 (range 100-310) arginine 86 (range 10-65) lysine 144 (range 45-145) glutamate 32 (range 25-250) glutamine 493 (range 60-470) Otherwise other results were mid-range. Doctor said nothing meaningful in above data and our son probably had a cold for the blood test, but from the little I've read I see most of the above linked to body immune issues. Any comments gratefully accepted. rgds __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Does mycoplasma ever go away without the use of antibiotics? I really am afraid of long term use. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Barb, I would direct your ? to www.immed.org check our Dr nicolsen's site re; myco's. For me personally, it is such a low dosage, 100mg three times per week, with great chance of recovery, that beyond any small long term effects, I chose to combat the potentially dangerous infection, instead. Also Dr Mercola tries to never prescribes meds for anything but this . So that spoke volumes . As far the "lupas like " symptoms while on it for small amounts of people according to some small studies, and some people discussing this, it is such a low dosage Dr Mercola hasn’t had this problem. He has over 20,000 patients, and also a 80% recovery using this protocol. So I went with that. I will send you the link on his treatment for it. Hope that helps. I try not to take meds for anything, and really never had, not even pain meds after the c section of Tyler or after explant, and I only take disected thyroid for my thyroid problems, but after researching, and reading "Rheumatoid arthritis- the Infection Connection" forget it. I went on it, and watched the numbers decrease, and feel better overall after a couple bad herxes. Some recovery takes years, some not. To me, it is not something to mess with, esp if you are chronically ill like I was. love ----- Original Message ----- From: BARBY4271@... Sent: Thursday, January 01, 2004 12:18 PM Subject: Re: blood test Does mycoplasma ever go away without the use of antibiotics? I really am afraid of long term use.Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Barb, I know I am behind on this post, but just wanted to make a comment about your rheumatoid factor becoming normal again after explant...that is so great! I wish mine would have! The last time I had it checked it was almost normal again, but still slightly elevated, and I am approaching 6 years post explant. So for yours to go back to normal already is a really great sign! Did you get any other answers on your questions about the candida and mycoplasma? I don't know what the answers are for sure, but I think it would be prudent to make the assumption that you should deal with them both, and there are many natural therapies for overcoming candida. However, mycoplasma is something I am not familiar with in terms of treatment and I am not sure what might work in the alternative arena, other than our standby natural anti-microbials like garlic, oregano oil, and others. Antibiotics certainly may have a place--we've got a number of women on the minocycline or doxycline. Have you discussed this test result with your doctor? Did you make any decisions on treatment? Patty ----- Original Message ----- From: barbsul2002 Sent: Tuesday, December 30, 2003 7:22 AM Subject: blood test I just had some blood work done and had some ??? My rheumatoid factor which was slightly elevated before explant is now normal, my TSH is 2.9, but i had a mycoplasma species test by PCR and it came out positive, and I had a candida saliva test done which was high by the lab. I was wondering if these 2 tests are accurate and if antibiotic therapy is necessary to get rid of mycoplasma? Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 , You are lucky too! I wish my rf would have come back to normal soon after explant. Hmmm, wonder why mine didn't come down very fast. At it's highest it was 159, and the last time it was checked, I think it was in the 50's. (Normal is under 40.) I'm with ya on the TSH. I feel best when it is at the lowest normal range number, around .50. I'm still on the T3 too, and am feeling really good with both the Armour and cytomel. Let us know when you get to go off the minocin. How is your cleansing diet going? I have yet to get with it, with our travels last weekend, and being sick this week. I have not had the motivation I need to do any flushes, and truthfully, doing a liver flush while sick is not recommended. I hope to be back in the swing of things soon. Patty ----- Original Message ----- From: JOSEPH PALANCA Sent: Wednesday, December 31, 2003 9:09 AM Subject: RE: blood test Barb, you sound like me! I also had an elavated rf that went away after explant, as well as ana. Your tsh is ok, I try to keep mine between .50 and 2./ Really Dr mercola likes it under 1. Just some of my thoughts on this; I also tested positive for myco's and went on antibiotic therapy with minocin for it, for about a year now. I swear by its effectivness. My count is very low now, and will be able to go off soon in Dr mercolas opinion. I also had high candida as well. Still have small amounts of it left, but not an "infection" on the live cell as was before. I guess small amounts are normal. I would treat the myco's if you can find a doc that will do it(very controversial amoungst docs still as they arent up to par on this issue) I would also treat your yeast with "Fungal Defense" by Garden of Life, it is a 14 day program, then follow up with Primal Defense if possible. Take probiotics, lots of garlic, oil of oregeno and cut way back on carbs and eliminate sugar if you want to be aggressive. Thats what I did. And it works for both the myco's and the yeast at the same time. Just some tips, on what worked for me. Diet is essential. When I didnt cut back on sugar and carbs (refined, white) the yeast was going no where. Same with myco's/ mycos are very dangerous to your immnuity and need to be taken seriously. They are known to cause all sorts of diseases. So its great you are up on this, now you go girl! Im sure you will be a great fighter! ulie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Patty, I have an appt with an infectous disease doctor this week to discuss the mycoplasma infection. So I will let you know what happens. I already have been taking kyolic garlic pills, probiotics , and coconut oil for the yeast issue. I hope those things help. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 -Barb I hope that your doctor understands the significance that mycoplasma infections can play in all sorts of autoimmune diseases. I definitely would treat for it as well as do everything I can to support my immune system and detoxify. Good luck with your visit and let us know what the doctor advises. I am one of several on the antibiotic protocol for mycoplasma---I have mycoplasma fermantans and hominus. Hominus has been especially associated with lupus and many people with Gulf war syndrome and cfs and fms have mycoplasma fermantans. I know that the ap has helped me! Blessings, kathy -- In , BARBY4271@A... wrote: > Patty, > I have an appt with an infectous disease doctor this week to discuss the > mycoplasma infection. So I will let you know what happens. I already have been > taking kyolic garlic pills, probiotics , and coconut oil for the yeast issue. > I hope those things help. > Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Kathy, How long have you been on doxy? Did you have any more blood test to see if its taking care of the mycoplasma? Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 -- Patty I went to see a doctor in Iowa who specializes in the antibioic protocol. I had clindamycin IV's done outpatient at their hospital and he took blood for mycoplasma testing. the test was sent to the arthritis research center in Gaithersburg, Md. The test results came under the heading of Mycoplasma Ab titer/. There are about 4 different strains of mycoplasma associated with autoimmune disease---I had 2 of them. One of the worst is mycoplasma fermantans. It is acutally a modified mycoplasma that was developed in a laboratory as part of biowarfare research. Nice to know, huh? At any rate, Dr. Mcpherson Brown, among others, did research showing that this mycoplasma could be found in joints of people with rheumatoid arthritis. He treated many people with tetracylcine (doxy and minocycline are now used more often). He developed the original antibiotic protocol. There are alot of studies--especially with RA-showing that AP helps many conditions:scleroderma, RA, Lupus, Dermamyositis, etc. Now they are using it for fms also. You hear success rates of about 2/3 to 80% of people taking them. Many people are on AP without tests for mycoplasma and many people get their antibiotics from regular md's or other doctors in alternative medicine who can prescribe. there are some well known and respected rheumatologists who use the AP. The response to this treatment is very variable. Some people get better almost immediately, many more in 6-9 months start to see improvement. However, some have been on AP over 2 years before seeing improvement. So one shouldn't give up. Some need small doses--others much larger. Some do well on minocin--others on doxy or tetra. Some never herx and others have a herx from hell. Some herx for short amts of time--others seem to herx for months on end. THose who herx will feel like they are getting worse. Joint pain, swelling, almost any symptom will increase until it gradually turns around. this frightens patients-- especially those with RA who find more joint swelling. That is when they often think they are getting worse and quit. Some RA patients may not improve for 3 or more years. Most people on AP seem to use more than one mode of attacking their condition. Many change their diets, do cleanses, take supplements, etc. The one downside to ap is that some people seem to relapse after about five years. Apparently their bodies get use to the antibiotic. Switching antibiotic, upping the antibiotic or including another often brings another remission. I think the best chance to get better is by using the AP with all the other things we try to do here to get healthy. I know that if I had scleroderma or another life threatening disease like it, I would be on ap in a heartbeat. There is no cure or stopping systemic scleroderma and I have talked with many people on the rheumatic websites who went from being terrible to be in remission. One lady in partciular was at deaths door and my doctor put her on the AP. Two years later she had her life back. I don't think the AP is the only way to go, but I do think it is a very viable option that we should keep in mind if we need it. kathy - In , " Dave & Patty " <fdp3@c...> wrote: > Kathy, > Can you tell us again how you got the mycoplasma diagnosis, with the specific strains identified? It seems that most doctors just don't understand this issue. I know when I went with Daryl to her doctor to talk about it, he said there was no way she had it, as she would be so sick she would need to be hospitalized and near death...obviously, he had no clue what we were talking about and what we were seeking. I'm curious about your experience getting this diagnosis--(sorry if you have already discussed it before! ) > Patty > ----- Original Message ----- > From: mikat828 > > Sent: Saturday, January 10, 2004 3:07 PM > Subject: Re: blood test > > > -Barb > I hope that your doctor understands the significance that mycoplasma > infections can play in all sorts of autoimmune diseases. I > definitely would treat for it as well as do everything I can to > support my immune system and detoxify. Good luck with your visit > and let us know what the doctor advises. I am one of several on the > antibiotic protocol for mycoplasma---I have mycoplasma fermantans > and hominus. Hominus has been especially associated with lupus and > many people with Gulf war syndrome and cfs and fms have mycoplasma > fermantans. I know that the ap has helped me! > Blessings, kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 --Barb I take doxycycline 3 times a week at 25-50mg range. This is really low but I have herxes and this all I can tolerate. It has helped me at this dose though. Not everyone needs the higher doses. kathy - In , BARBY4271@A... wrote: > Kathy, > May I ask what antibiotic you are on and what dose? Do you take it everyday > or 3 times a week. > Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 -- Patty I found him through reading a book about scleroderma called something like " Scleroderma-the treatment that could save your life " and also he is mentioned on the www.roadback.org website. They are happy to send docs who do ap if you ask and tell them where you live. I think these websites are very helpful to all of us here whether we do ap or not because they all have so many symptoms in common and also provide other help like here with diet, alternative medicine etc. hugs,kathy - In , " Dave & Patty " <fdp3@c...> wrote: > Awesome info Kathy. Wow, an Iowa doctor who specializes in the antibiotic protocol! They can just pop up anywhere, can't they? How did you find him? I know very few people who have used the long term antibiotic therapy....please keep us up to date on how you are doing with it. > Hugs, > Patty > ----- Original Message ----- > From: mikat828 > > Sent: Monday, January 12, 2004 9:36 AM > Subject: Re: blood test > > > -- > Patty > I went to see a doctor in Iowa who specializes in the antibioic > protocol. I had clindamycin IV's done outpatient at their hospital > and he took blood for mycoplasma testing. the test was sent to the > arthritis research center in Gaithersburg, Md. The test results > came under the heading of Mycoplasma Ab titer/. There are > about 4 different strains of mycoplasma associated with autoimmune > disease---I had 2 of them. One of the worst is mycoplasma > fermantans. It is acutally a modified mycoplasma that was developed > in a laboratory as part of biowarfare research. Nice to know, huh? > At any rate, Dr. Mcpherson Brown, among others, did research showing > that this mycoplasma could be found in joints of people with > rheumatoid arthritis. He treated many people with tetracylcine > (doxy and minocycline are now used more often). He developed the > original antibiotic protocol. There are alot of studies-- especially > with RA-showing that AP helps many conditions:scleroderma, RA, > Lupus, Dermamyositis, etc. Now they are using it for fms also. You > hear success rates of about 2/3 to 80% of people taking them. Many > people are on AP without tests for mycoplasma and many people get > their antibiotics from regular md's or other doctors in alternative > medicine who can prescribe. there are some well known and respected > rheumatologists who use the AP. The response to this treatment is > very variable. Some people get better almost immediately, many more > in 6-9 months start to see improvement. However, some have been on > AP over 2 years before seeing improvement. So one shouldn't give > up. Some need small doses--others much larger. Some do well on > minocin--others on doxy or tetra. Some never herx and others have a > herx from hell. Some herx for short amts of time--others seem to > herx for months on end. THose who herx will feel like they are > getting worse. Joint pain, swelling, almost any symptom will > increase until it gradually turns around. this frightens patients-- > especially those with RA who find more joint swelling. That is when > they often think they are getting worse and quit. Some RA patients > may not improve for 3 or more years. Most people on AP seem to use > more than one mode of attacking their condition. Many change their > diets, do cleanses, take supplements, etc. The one downside to ap > is that some people seem to relapse after about five years. > Apparently their bodies get use to the antibiotic. Switching > antibiotic, upping the antibiotic or including another often brings > another remission. I think the best chance to get better is by > using the AP with all the other things we try to do here to get > healthy. I know that if I had scleroderma or another life > threatening disease like it, I would be on ap in a heartbeat. There > is no cure or stopping systemic scleroderma and I have talked with > many people on the rheumatic websites who went from being terrible > to be in remission. One lady in partciular was at deaths door and > my doctor put her on the AP. Two years later she had her life > back. I don't think the AP is the only way to go, but I do think it > is a very viable option that we should keep in mind if we need it. > kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2008 Report Share Posted March 13, 2008 Hi Aliza, Your blood looks very good. Your wbc and platelets are perfect but your reds, hgb and hct are a little bit low. They all go together so when one is low, they usually all get a bit low. Yours are only slightly low which is actually pretty standard for many of us so I don't see anything to worry about here. Hope you're feeling better, Tracey --- In , " alizayaffagutierrez " <taina2044@...> wrote: > > hey guys i got a cbc done last fri. when i was felling under the > weather. maybe you can help me understand if this is good or bad i > don't see my gp 'till next week and my hem/onc 'till may here goes > > > wbc...6.7 > platelets..250 > rbc....3.53 > hgb....11.0 > hct.....31.7 > > > aliza rochester n.y. > Quote Link to comment Share on other sites More sharing options...
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