My day in Ottawa

[Guest guest]

Hello everyone,

Yup, I am still hanging around, actually it was a very eventful day. Quite

tiring, but some new things have come through.

First things first, I had two IV's back to back. One vitamins and minerals,

the other amino acids. I had decided to take on another dose since the last

time I felt good from it.

My doctor sent a letter on my condition to the insurance company, so as to

try and get them to aproove payment on what I need. She put it really to the

point:

-my diagnosis

-my severe allergies, especially to foods

-the possibility of what could happen if I landed again in the hospital

since they have caused me frequent anaphylactic shocks

-my weight being 75lbs. which is urgent to get things going quick as to not

give any chance for the heart to go out of whack

-she felt that she found this difficult to accept that there is medical

procedures there to help me and that if it would not be given to me, I would

definitely die.

I think that put it really to the point.

So, the insurance company got off their fanny and aprooved the IV's that I

need to help me get to a more decent level. We are just waiting the aprooval

now for a private nurse at home which should come in soon.

As for my lungs, I will continue to take oxygen at home and do inhalation

therapy. It makes such a nice decor in my living room .LOL

We talked about several antibiotics to add to the Clindamycin. We were both

disappointed that I had a respiratory allergic reaction to Cipro. What I

asked was to see if we could desensitize me to it and that I would be able

to take it after. So, that is the plan, we will do a full day of allergy

testing for Cipro and when we find the level where I react less severely, it

will be used to make an antiallergic injection before taking the Cipro.

First we will boost with vitamins and minerals, then desensitize. If that

doesn't pan out Biaxin or flagyl will be the next on the list.

We will be trying to help the ulcers in the intestines with a few different

items.

I will also have to be monitored for thyroid for which will pass a new test

since I have the feeling something is going on there, that would most

probably be caused by my tegretol.

I also met an nuerosurgeon yesterday and discussed having brain surgery to

get rid of my trigeminal neuralgia since my therapeutic levels are falling

which could lead me to a crisis. He is not to enthusiastic about it since I

am a complicated case, lots of conditions to deal with.

Finally, things are rolling along just fine for my court case I won.Money

will be knocking at my doorstep soon.(Can't wait!)

Well, that's it for tonight, I am all tuckered out...

Hugs to all,