Guest guest Posted March 11, 2001 Report Share Posted March 11, 2001 > All of this is meant to reassure all of us parents of OCDers that our > kids are not psychotic. People with OCD are aware that their thoughts > (and kids I think tend to describe their thoughts as " voices " ) are not > real. It is the fear that they instill that is real. Does this make > sense to anyone? I think that it's quite possible that some kids refer to intrusive thoughts as " voices " - they certainly do feel like they're coming from somewhere outside one's self. You are correct when you state that OCD folks are generally aware that their thoughts are not real. Knowing that doesn't stop the anxiety they produce, though, as you said. I've found that at times when I'm having an internal " dialogue " with my OCD I'm simultaneously moving the back of my tongue and making quiet, glottal clicks in the rear of my throat. I can certainly see how a person with a psychosis or some form of dementia could hear their own " clicking " and interpret it as outside voices. In fact, I think I read somewhere that some schizophrenics are know to hear " voices " in this way (can't remember the reference, though). Certain OCD medications I've taken have caused auditory and visual hallucinations - actual " hear it " / " see it " hallucinations, not just fear of what I MIGHT see or hear. The auditory hallucinations often take the form of whispering voices - I can't tell what they're saying, but they definitely sound human. I still hear them at times (even on different medications), but I find them somewhat comforting for some reason. I'm fully aware that they're the product of the meds, though, and nothing real. Visual hallucinations are much less common with me, but one med in particular caused them all the time. I saw a ferris wheel, people in the room with me who weren't really there, running animals, and " tracer " lines following moving objects, among other things. The objects looked like they were there, but didn't really look " real " - in other words, I could tell a hallucinatory object from a real one. It was great fun watching them because I knew that they were just side-effects from medication. To be quite honest, I sort of miss them sometimes - some of them were really entertaining. I guess what I'm getting to is that I agree with you completely when you state that most OCD sufferers know the difference between voices/hallucinations and reality. It often helps to externalize your OCD thoughts by assigning them to outside forces - though you know that they're a part of you, thinking of them as external things helps you to maintain a feeling of sanity and focus. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2001 Report Share Posted June 8, 2001 Hi everyone!; Thought you all would like to see what Ray does for his golfing problems. There was a whole page write up in the " Bella Vista Village " newspaper about him! I am proud of Ray for looking for a way to continue what he loves !. . . He is a member of our support group in Northwest Arkansas. (we have PN and CMT members as well as two who have Charcot Foot) http://home.mc2k.com/rayw/chair.html I use my power chair to move furniture around, and also to vaccum from it. They really are tools to allow you to find a way to continue doing! Huggggs Libby By the way feel free to give my new phone to others who ask; the phone company where I just moved from doesn't " offer the service " to put your new number on recording! GRRRRRRRRRRRRR ===== " I THANK GOD FOR MY HANDICAPS, FOR, THROUGH THEM, I HAVE FOUND MYSELF, MY WORK, AND MY GOD. " - Helen Keller " A friend is someone who knows the song in your heart and can sing it back to you when you have forgotten the words. " ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Living w/CMT http://www.geocities.com/charcot_marie_tooth CMT Education and Awareness: E-mail group: __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2001 Report Share Posted October 28, 2001 I only received two of the seven messages listed in this digest. Thanks for helping with the problem ---- Original Message ----- From: < > < > Sent: Sunday, October 28, 2001 6:43 AM Subject: Digest Number 922 Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. ------------------------------------------------------------------------ There are 7 messages in this issue. Topics in this digest: 1. Nizoral, pinching From: Kkscharste@... 2. Re: Digest Number 921 From: " hemry " <hemry@...> 3. Re: Nizoral From: " kathleen przekwas " <evchk96@...> 4. Re: Pinching - help! From: " kathleen przekwas " <evchk96@...> 5. Re: Pinching - help! From: mball13@... 6. Re: Nizoral From: " Stillman " <courtneycns@...> 7. Nizoral and Pinching From: " Hinds " <Hindssite@...> ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Sat, 27 Oct 2001 09:09:05 EDT From: Kkscharste@... Subject: Nizoral, pinching Re nizoral: My understanding is that you should NOT discontinue any medication until instructed to do so unless you are seeing the adverse side affects that you were previously warned about. There may be positives that you do not recognize yourself until you are questioned about your child's functioning. Re: pinching We successfully ended this behavior by pairing " no pinching " by holding my child's hands down close to his side so as to prevent the pinching. Since he hated to be restrained, this worked as an aversive, so he began to stop pinching to avoid the restraining. It took a while for him to see that we were not going to let him get away with the pinching. First you usually see an acceleration of pinching (the " test " ), then quick decrease in pinching. The key is to not give up during the increase in pinching, thinking your intervention isn't working. Hope this helps Kate ________________________________________________________________________ ________________________________________________________________________ Message: 2 Date: Sat, 27 Oct 2001 09:58:44 -0400 From: " hemry " <hemry@...> Subject: Re: Digest Number 921 Based on the last message in this group, our computer may have been used by a virus to try to disseminate itself. The lack of an attachment to the message means it probably didn't succeed in this case (I assume automatically refused to forward the attachment). The virus we found on our hard drive is W32/Magistr, which automatically sends out copies of itself. If you've received any email from us with an attachment, please delete without reading and use your virus protection system to scan your Windows files. We regret any problems this may cause anyone. J. Hemry FYI > > A Project to Map Autism Research > > An all-encompassing and comprehensive review exercise to map the > current state of knowledge in autism research is being conducted. This > unique project is a precursor to the establishment of a UK-based Foundation > for Autism Research. > The project, spearheaded by the Institute of Child Health, is a > collaboration between academic and voluntary organisations; namely PACE > (Parents’ Campaign for Education) and the UK National Autistic Society > (NAS). The project is being overseen by an expert panel including Sir > Rutter, Simon Baron-Cohen and Shattock. > > In order to develop and refine the proposal for an Autism Research > Foundation, a preliminary mapping exercise into autism research is necessary > to: > • Identify from a global perspective what research into autism is > currently being undertaken > • Identify emerging themes, and areas of interface between academic > disciplines > • Identify topics of potential value that are under-researched and > locate themes for which funding is particularly hard to obtain at present. > > In addition to mapping published scientific work, the project wishes > to gain information regarding current research activity and scientist, > practitioner and parent views about future research priorities. FEAT is > distributing this questionnaire to give you the opportunity to have your say > about the direction of future research. Unlike previous research, the > project aims to raise questions rather than to answer them. > As you may well know, the questions and problems of autism are > pressing. Please respond promptly. > Please complete the attached form and return it (either as a Word > document or in the body of an email) to > > FEAT@... > > THEN FORWARD THIS ORIGINAL POST TO OTHERS YOU KNOW WHO MIGHT WANT TO > PARTICIPATE BUT WHO ARE NOT REACHED BY THIS LIST. > > Your assistance in this matter is greatly appreciated. > > > Q 1. What do you consider to be the priorities for research in the > next decade and > why do you consider research in this area is needed? > > > > > Q 2. If you are currently involved in research activity in autism > spectrum disorder we would like you detail the title and aims of your > current projects. > > > > > > > > Tina M. Hendrix > Cure2000@... > Vice-President, California Coalition > Neuro-Immune Dysfunction Syndromes > Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, > etc. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 connie, maybe, you need to convert your avi-files in another avi-format (there seem to be different ways of decoding avis. you could use e.g. the programm videomach from: http://www.gromada.com best stephan odermatt, switzerland > > Message: 2 > Date: Sun, 28 Nov 2004 17:13:20 -0000 > From: " cbalmony " <cbalmony@...> > Subject: AVI > > > I have the AVI unlock feature for BrainMaster. I also have a video > camera that saves my videos in AVI. I was hoping I could use home > videos of my kids as the " reward " feature in BM, but when I saved it > in the file and chose it, nothing happened. Does anyone know if > there is a way to use my own AVI files on the BM? > > Connie > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Joyce, I made some diet changes, started exercising, drinking water and loosing weight. NSAIDS can be very dangerous, because you can get unexplained GI bleeding from them..so I do not take any NSAIDS. Prednisone can also cause GI distress as well, plus some serious bloating. I am a post op surgical weight loss patient..so my diet, exercise and water is for life. So far it works great. I also left my high stress, higg pressure job. which almost immediately decreased my pain. toni In a message dated 12/3/2004 1:41:53 AM Central Standard Time, Rheumatoid Arthritis writes: Date: Fri, 3 Dec 2004 00:11:06 -0600 From: "Joyce McCrary" <j.mccrary@...>Subject: Re: All drugs have the potential to do serious damageHow are you bearing out Toni? I'm suppose to be taking Naproxyn500mg but OTC Motrin is just as good if I take 800mg. I also take Darvocet 200mg and Prednison 20mg prn. On bad daysnone of it helps. I have been thinking of asking my Dr togive me a shot of Prednisone in my lower back. Thats what he wantedto do this past April when I had the worst flareup with RA I haveever had. My son died in April which caused the flareup. I never realized stress could cause so much pain that I could hardly walk orget up and down..............Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Hi Joyce, I noticed a big change in myself when I altered my diet. I try to eat as little processes food as possible, stick to decaffeinated drinks and avoid sugar. These seem to be my main food triggers. The big one for flaring me up, apart from infections, is stress. I find meditation, even for ten minutes helps me. Sometimes changing your diet or lifestyle isn't easy, but it really is worth the effort. I have found my weekly food bill is actually less since I began using fresh fruit and veg instead of frozen. Then again, I am lucky I have a big market not too far from me. If anyone would like advice on meditation & methods to use, please contact me off list at AmethystWillowWolf1@... and I will be happy to help. Big Hugs to everyone, Lynne "What lies behind us and what lies before us are tiny matters, Compared to what lies within us." '' If we lived as wolves do, the planet would be a lot cleaner place! '' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 Toni, I believe you are right that NSAIDs are very dangerous. I had to go to the hospital this morning to have some tests done. They found I have diverticulosis, two ulcers in my stomach and have acid refulx. The doctor said he thought the ulcers are from the arthritis medicine that I've taken for so long and prescribed Nexium. Gee that stuff is expensive............Joyce ----- Original Message ----- From: aclavern33@... Rheumatoid Arthritis Sent: Friday, December 03, 2004 1:55 AM Subject: Re: Digest Number 922 Joyce, I made some diet changes, started exercising, drinking water and loosing weight. NSAIDS can be very dangerous, because you can get unexplained GI bleeding from them..so I do not take any NSAIDS. Prednisone can also cause GI distress as well, plus some serious bloating. I am a post op surgical weight loss patient..so my diet, exercise and water is for life. So far it works great. I also left my high stress, higg pressure job. which almost immediately decreased my pain. toni In a message dated 12/3/2004 1:41:53 AM Central Standard Time, Rheumatoid Arthritis writes: Date: Fri, 3 Dec 2004 00:11:06 -0600 From: "Joyce McCrary" <j.mccrary@...>Subject: Re: All drugs have the potential to do serious damageHow are you bearing out Toni? I'm suppose to be taking Naproxyn500mg but OTC Motrin is just as good if I take 800mg. I also take Darvocet 200mg and Prednison 20mg prn. On bad daysnone of it helps. I have been thinking of asking my Dr togive me a shot of Prednisone in my lower back. Thats what he wantedto do this past April when I had the worst flareup with RA I haveever had. My son died in April which caused the flareup. I never realized stress could cause so much pain that I could hardly walk orget up and down..............Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 i got ulcers from the meds i was on thst is when they put me on vioxx now they have me on mobic i also have acid refulix and hace to take previced every day thanks to the meds i was on sherrie > Toni, I believe you are right that NSAIDs are very dangerous. I had > to go to the hospital this morning to have some tests done. They > found I have diverticulosis, two ulcers in my stomach and have > acid refulx. The doctor said he thought the ulcers are from the > arthritis medicine that I've taken for so long and prescribed Nexium. > Gee that stuff is expensive............Joyce > ----- Original Message ----- > From: aclavern33@a... > Rheumatoid Arthritis > Sent: Friday, December 03, 2004 1:55 AM > Subject: Re: Digest Number 922 > > > Joyce, > I made some diet changes, started exercising, drinking water and loosing weight. NSAIDS can be very dangerous, because you can get unexplained GI bleeding from them..so I do not take any NSAIDS. Prednisone can also cause GI distress as well, plus some serious bloating. > > I am a post op surgical weight loss patient..so my diet, exercise and water is for life. So far it works great. > > I also left my high stress, higg pressure job. which almost immediately decreased my pain. > > toni > > In a message dated 12/3/2004 1:41:53 AM Central Standard Time, Rheumatoid Arthritis writes: > Date: Fri, 3 Dec 2004 00:11:06 -0600 > From: " Joyce McCrary " <j.mccrary@2...> > Subject: Re: All drugs have the potential to do serious damage > > How are you bearing out Toni? I'm suppose to be taking Naproxyn > 500mg but OTC Motrin is just as good if I take 800mg. I also take > Darvocet 200mg and Prednison 20mg prn. On bad days > none of it helps. I have been thinking of asking my Dr to > give me a shot of Prednisone in my lower back. Thats what he wanted > to do this past April when I had the worst flareup with RA I have > ever had. My son died in April which caused the flareup. I never > realized stress could cause so much pain that I could hardly walk or > get up and down..............Joyce > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 hi i just read your e-mail i was on vioxx for about 8 years and then one day they call me to say it is off the market. so i tried to go without but a flaore -up now i am on mobic and it seems to be working, i also have acid-reflux but a small case of it. i just hope they don't find any trouble with mobic down the line. annmariescorn720 <scorn720@...> wrote: i got ulcers from the meds i was on thst is when they put me on vioxx now they have me on mobic i also have acid refulix and hace to take previced every day thanks to the meds i was on sherrie> Toni, I believe you are right that NSAIDs are very dangerous. I had> to go to the hospital this morning to have some tests done. They> found I have diverticulosis, two ulcers in my stomach and have> acid refulx. The doctor said he thought the ulcers are from the > arthritis medicine that I've taken for so long and prescribed Nexium. > Gee that stuff is expensive............Joyce> ----- Original Message ----- > From: aclavern33@a... > Rheumatoid Arthritis > Sent: Friday, December 03, 2004 1:55 AM> Subject: Re: Digest Number 922> > > Joyce,> I made some diet changes, started exercising, drinking water and loosing weight. NSAIDS can be very dangerous, because you can get unexplained GI bleeding from them..so I do not take any NSAIDS. Prednisone can also cause GI distress as well, plus some serious bloating. > > I am a post op surgical weight loss patient..so my diet, exercise and water is for life. So far it works great.> > I also left my high stress, higg pressure job. which almost immediately decreased my pain.> > toni> > In a message dated 12/3/2004 1:41:53 AM Central Standard Time, Rheumatoid Arthritis writes:> Date: Fri, 3 Dec 2004 00:11:06 -0600> From: "Joyce McCrary" <j.mccrary@2...>> Subject: Re: All drugs have the potential to do serious damage> > How are you bearing out Toni? I'm suppose to be taking Naproxyn> 500mg but OTC Motrin is just as good if I take 800mg. I also take > Darvocet 200mg and Prednison 20mg prn. On bad days> none of it helps. I have been thinking of asking my Dr to> give me a shot of Prednisone in my lower back. Thats what he wanted> to do this past April when I had the worst flareup with RA I have> ever had. My son died in April which caused the flareup. I never > realized stress could cause so much pain that I could hardly walk or> get up and down..............Joyce> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2004 Report Share Posted December 8, 2004 I recently had a gastroscopy and found I have small erosuons in my stomach caused by the meds. They also tested for gluten tolerance and I am ok on that. The doc put me on Lansoprazole for the erosions and acid reflux, I have been told some people need to take these as long as they take medsd as a preventative agains ulcers. hugs Lynnw "What lies behind us and what lies before us are tiny matters, Compared to what lies within us." '' If we lived as wolves do, the planet would be a lot cleaner place! '' -------Original Message------- From: ann dailey Date: 12/08/04 13:50:57 Rheumatoid Arthritis Subject: Re: Re: Digest Number 922 hi i just read your e-mail i was on vioxx for about 8 years and then one day they call me to say it is off the market. so i tried to go without but a flaore -up now i am on mobic and it seems to be working, i also have acid-reflux but a small case of it. i just hope they don't find any trouble with mobic down the line. annmariescorn720 <scorn720@...> wrote: i got ulcers from the meds i was on thst is when they put me on vioxx now they have me on mobic i also have acid refulix and hace to take previced every day thanks to the meds i was on sherrie> Toni, I believe you are right that NSAIDs are very dangerous. I had> to go to the hospital this morning to have some tests done. They> found I have diverticulosis, two ulcers in my stomach and have> acid refulx. The doctor said he thought the ulcers are from the > arthritis medicine that I've taken for so long and prescribed Nexium. > Gee that stuff is expensive............Joyce> ----- Original Message ----- > From: aclavern33@a... > Rheumatoid Arthritis > Sent: Friday, December 03, 2004 1:55 AM> Subject: Re: Digest Number 922> > > Joyce,> I made some diet changes, started exercising, drinking water and loosing weight. NSAIDS can be very dangerous, because you can get unexplained GI bleeding from them..so I do not take any NSAIDS. Prednisone can also cause GI distress as well, plus some serious bloating. > > I am a post op surgical weight loss patient..so my diet, exercise and water is for life. So far it works great.> > I also left my high stress, higg pressure job. which almost immediately decreased my pain.> > toni> > In a message dated 12/3/2004 1:41:53 AM Central Standard Time, Rheumatoid Arthritis writes:> Date: Fri, 3 Dec 2004 00:11:06 -0600> From: "Joyce McCrary" <j.mccrary@2...>> Subject: Re: All drugs have the potential to do serious damage> > How are you bearing out Toni? I'm suppose to be taking Naproxyn> 500mg but OTC Motrin is just as good if I take 800mg. I also take > Darvocet 200mg and Prednison 20mg prn. On bad days> none of it helps. I have been thinking of asking my Dr to> give me a shot of Prednisone in my lower back. Thats what he wanted> to do this past April when I had the worst flareup with RA I have> ever had. My son died in April which caused the flareup. I never > realized stress could cause so much pain that I could hardly walk or> get up and down..............Joyce> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 To Haja and Tess, Thank you so much for the lead on how i can purchase coconut oil. Someone asked if a heart attack victim can take coconut oil. A cousin-in-law of mine had open heart surgery (changed defective [from birth] valves) and after a month or two his wife came to me asking for more of the vco we made. Apparently, both of them took it even before the surgery. After the surgery he wanted to take more and i said make sure you ask his doctor first before giving him his tablespoon a day (that kinda scared me). His famous and seasoned cardiologist allowed him to do it. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Do not send anymore e-mails. Thank You Coconut Oil wrote: There are 18 messages in this issue. Topics in this digest: 1. cholesterol From: mary@... 2. cooking with coconut oil From: Biderman 3. Re: Fat and Protein From: " k8teeth " 4. Re: cooking with coconut oil From: " " 5. Re: cooking with coconut oil From: Wilkins 6. Re: cooking with coconut oil From: " " 7. Re: cooking with coconut oil From: tess mamangun 8. Re: cooking with coconut oil From: Biderman 9. coconut flour brownie recipe From: jeanne_simons@... 10. Re: cooking with coconut oil From: Wilkins 11. Re: Digest Number 921 From: melly banagale 12. Re: Digest Number 921 From: Hajjah Begum Ibrahim 13. How do you know if coconut oil is causing you to detox? From: " godsfood4us " 14. correction " coconut flour brownie recipe From: jeanne_simons@... 15. Re: How do you know if coconut oil is causing you to detox? From: tess mamangun 16. Re: Digest Number 921 From: tess mamangun 17. Can coconut be used by heart attack survivor??? From: Noel Elardo 18. RE: correction " coconut flour brownie recipe From: " Deb Casey " ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Mon, 20 Feb 2006 16:28:52 +0000 From: mary@... Subject: cholesterol I'm interested to know if anyone has had a significant change in their cholesterol level with eating VCO. Has anyone found their cholesterol has gone up or down? ________________________________________________________________________ ________________________________________________________________________ Message: 2 Date: Mon, 20 Feb 2006 12:29:37 -0800 (PST) From: Biderman Subject: cooking with coconut oil I'd just like to give an additional bit of information about my cooking practices with flavored coconut oils. 1) I never use it out of the bottle on salads or anything that doesn't require it to be heated to a moderate or higher first. Garlic flavored in my husband favorite in his scrambled eggs. Since more harmful bateria are destroyed by heat I think this would take care of any concerns. 2) I only make enough of the flavored oil to last a few days and not weeks. 3) I always wash and dry the bottles in between refillings. Becca Biderman Panama Expertos Helping you live the good life of Panama! www.PanamaExpertos.com Quote Link to comment Share on other sites More sharing options...
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