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This is Barb's husband Park... I'm sorry if this is a stupid question, but I

was reading something about nutritional yeast being different and safe as

opposed to the regular kind of yeast... so does it work the same way as

regular yeast, could one like bake bread with it safely and it would make

the bread rise and everything? Because we're near a health store that sells

different flours, millet, buckwheat, quinoa etc...

>From: mogdrmom@...

>Reply-candidiasisegroups

>candidiasisegroups

>Subject: Re: How to keep weight on

>Date: Mon, 10 Apr 2000 08:50:15 EDT

>

>When i was going thru the crucial die-offs i lost 20 pds (which was 1 yr.

>ago) i am sorry to say i have regained some of that, i am still working on

>ridding the yeast but can tolerate some different foods than before.

>Mogdrmom

>Try small meals, home made soups, meat & veggies.

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Nutritional yeast won't make bread rise because it is dead. However, it

still contains the chemicals that stimulate it's growth that it produced

when it was alive, and those chemicals remain even after it has died, and

they also stimulate the growth of candida when you ingest them. That's how

it feeds candida. This is why any kind of yeast, whether it's yeast that's

been baked in bread and has been killed by the heat of baking, or turula

yeast or bakon yeast or any other type of yeast can aggravate a candida

problem. Foods that have been raised or fermented by yeasts also contain

nutrients to help the yeasts grow, such as sugars, or dough conditioners

that will also feed the candida and stimulate it's growth.

lindaj@...

Re: How to keep weight on

>Date: Mon, 10 Apr 2000 08:50:15 EDT

>

>When i was going thru the crucial die-offs i lost 20 pds (which was 1 yr.

>ago) i am sorry to say i have regained some of that, i am still working on

>ridding the yeast but can tolerate some different foods than before.

>Mogdrmom

>Try small meals, home made soups, meat & veggies.

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  • 3 years later...

Patty, That dose sounds more normal if she does have systemic. She may even have to go higher. n was put on 20mg and improved greatly, but all are different. Some kids are put on 60 or somewhere in between. Sed rate is an inflammation indicator. Generally it is below 20, and some say 10 for kids. C reactive protein is another they measure. It should be below 1, but it will be elevated in a flare with systemic. Again, since they just upped her dose they will watch to see what happens, and if she improves then they will ever so slowly taper. She will probably be on that dose from one to two weeks at least to see how she responds.

There are 3 categories of drugs used in this disease. NSaid's-think of them simplistically like tylenol, advil and aleve. What they use with these kids are lots of other ones that last usually at least 12 hours so you don't have to give them so often.

DMard's- that helps to stop the joint destruction and the actual disease rather than just trying to control the inflammation or swelling which is what the nsaids do. Methotrexate, plaquenil, sulfasalzine are some examples.

Then you have the tumor necrosis factor (tnf) inhibitors--or biologicals. These are pretty new and a great break through for the disease. Since they are new, they are very expensive. About 12 grand a year. It includes Enbrel, Remicade, Kineret, and Humira. That is all I can think of.

Generally the doctors will start with an nsaid to get the swelling and inflammation down. Then they might add steroids with a dmard. If a dmard fails, then they move on to a biological. They have to try a dmard first most of the time for insurance purposes. Dmard's are lots cheaper than the biologicals.

All of this is very simplistic, but it will give you are start.

By the way, n woke up for the first time in four years with her jaw hurting pretty badly. She is supposed to spend the night with her cousin, but as it often so happens, we might have to pick her up early. Maybe tomorrow the pain will have moved on to a new place. Happy New Year. (marian, almost 15, systemic)

Yet Another Question

Hello All:Happy New Year's Eve. Caitlin's rheumy has upped her steroids as of yesterday afternoon (from his vacation with his family, no less, I think we are fortunate to have found this doctor). He is still extremely concerned about her anemia. So he upped it from 9 mg once a day (see I know this now thanks to and Becki:) to 9mg twice a day, am and at dinner. Hopefully, it didn't last night, keep her up a night getting a dose so late in the day. So she is now on 18 mg of Pred. Is this considered a large dose? Is there a certain amount of time she should be on it or weaned off of it? Her levels were/are:While in the hospital: sed rate 100, hemoglobin 11.1 and hematicrit (sp?) 33.0.Bone marrow biopsy - 12/24: sed rate wasn't checked, hemoglobin 8.4 and hematicrit 26.712/29: sed rate 116, hemoglobin 8.8 and hematicrit 25.9Her sed rate is going up again, which, I guess, explains her joints hurting again. Her hemoglobin is up a smidgeon (thankfully), but her hematicrit has dropped. I just hope and pray the steroids start working on the anemia so she doesn't need a blood transfustion.Thanks for all your words of wisdom.Take care.Patty

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In a message dated 12/31/03 5:15:05 PM Central Standard Time, Emeraldsx3@... writes:

.. So she is now on 18 mg of Pred. Is this considered a large dose? Is there a certain amount of time she should be on it or weaned off of it?

Hi Patty,

18 mg is borderline of high doses and you might very well see some side effects.If Caitlins SED is 116 she might be on it a while.The higher doses should bring it down though. went from 109 down to 34 in 2 weeks.There is no specific time frame for steroid doses.They need to get Caitlen diagnosed so they can start treatment.Steroids is just a quick fix.Right now the rheumies concern is to get that SED way down and get the hemo and hematocrit up.With the SED so high are they monitoring for organ inflimation? never went beyond multiple huge glands so we were lucky.

used to have to do an AM and PM dose.We found if you give right after dinner as close to 5:00-5:30 it didn't interfere with sleep.They will try to taper the PM dose or get it added to the am dose as soon as possible.PM doses do not work as well and cause more side effects.

Try not to fret to much about what the steroids might do in the future.Right now they are neccessary and can prevent complications.

Love and Hugs

Becki and 5 systemic

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In a message dated 12/31/03 6:41:20 PM Eastern Standard Time,

bc.price@... writes:

<< Sed rate is an inflammation indicator. Generally it is below 20, and some

say 10 for kids. >>

Wow, Caitlin's is now at 116, no wonder she hurts:(

<<DMard's- that helps to stop the joint destruction and the actual disease

rather than just trying to control the inflammation or swelling which is what

the nsaids do. >>

I wonder if and when her doctor will put her on these. These sound like they

are great, if they actually could stop the actual disease itself.

<<y the way, n woke up for the first time in four years with her jaw

hurting pretty badly. She is supposed to spend the night with her cousin, but

as

it often so happens, we might have to pick her up early. Maybe tomorrow the

pain will have moved on to a new place. Happy New Year. (marian, almost

15, systemic)

>>

Sorry to hear that n's jaw is hurting her:( I hope she gets to visit

with her cousin. I hope the pain moves on out! Happy New Year to you too.

Take care.

Patty

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In a message dated 1/2/04 11:32:49 AM Eastern Standard Time,

Arthurnator@... writes:

<< The higher doses should

bring it down though. went from 109 down to 34 in 2 weeks. >>

I pray they work and bring her sed rate down. Wow, 109 to 34 in two weeks, I

hope Caitlin's works within that time frame:)

<<They need to get Caitlen diagnosed so they

can start treatment.Steroids is just a quick fix.Right now the rheumies

concern

is to get that SED way down and get the hemo and hematocrit up.With the SED

so high are they monitoring for organ inflimation? never went beyond

multiple huge glands so we were lucky.>>

Yes, I agree and pray everyday that they figure out exactly what is going on

with Caitlin and diagnose her. I worry that they may never be able to

pinpoint it:( You know, even though her hemoglobin and hematocrit are low, she

looked like she had some color in her face today. Of course, she had a fever,

but

even now, with the fever down, she looks like she has a little color. I hope

it's true and not just wishful seeing. How do they monitor for organ

inflammation? She has a blood draw on Monday and is seeing the rheumy on

Tuesday

should I ask them for a particular scan/test to check the organs?

<<Try not to fret to much about what the steroids might do in the

future.Right

now they are neccessary and can prevent complications.

>>

Thanks Becki and am trying to just live day to day now with everything. I

find if I think of the past, I get angry and when I think of the future I worry.

So right now I worry day to day. I feel so much better when Caitlin has a

good day:)

What kinds of complications do the steroids prevent - joint destruction?

Take care.

Patty

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  • 9 months later...

I do the test and have had a problem.

The question came about because so many things are being found unsafe, if not downright dangerous, for us. It is the long term we were wondering about. I haven't found any studies on that and didn't think to ask my doc yesterday.

I mean is vanity worth it if it will affect my RA?

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Lynne

Rheumatoid Arthritis

Sent: Friday, October 22, 2004 02:26

Subject: Re: yet another question

Hi Jacy,

I have RA and use hair dye no problem, but I would suggest doing the patch test they tell you to do first as everyone is different.

Hugs, Lynne

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Oops! Have not had a problem.

Sorry, I suffer from cerebral flatulence from time to time.

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Jacy

Rheumatoid Arthritis

Sent: Friday, October 22, 2004 09:58

Subject: Re: yet another question

I do the test and have had a problem.

The question came about because so many things are being found unsafe, if not downright dangerous, for us. It is the long term we were wondering about. I haven't found any studies on that and didn't think to ask my doc yesterday.

I mean is vanity worth it if it will affect my RA?

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Lynne

Rheumatoid Arthritis

Sent: Friday, October 22, 2004 02:26

Subject: Re: yet another question

Hi Jacy,

I have RA and use hair dye no problem, but I would suggest doing the patch test they tell you to do first as everyone is different.

Hugs, Lynne

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Jacy,

You are very right about so much stuff being unsafe for us today. There are definite studies on hair stylists living shorter lives because of fooling with chemicals and breathing that stuff all day long. I would tend to say be very careful myself.... Our water, our air we breathe,,, everything is getting polluted.

Kay

----- Original Message -----

From: Jacy

Rheumatoid Arthritis

Sent: Friday, October 22, 2004 10:58 AM

Subject: Re: yet another question

I do the test and have had a problem.

The question came about because so many things are being found unsafe, if not downright dangerous, for us. It is the long term we were wondering about. I haven't found any studies on that and didn't think to ask my doc yesterday.

I mean is vanity worth it if it will affect my RA?

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Lynne

Rheumatoid Arthritis

Sent: Friday, October 22, 2004 02:26

Subject: Re: yet another question

Hi Jacy,

I have RA and use hair dye no problem, but I would suggest doing the patch test they tell you to do first as everyone is different.

Hugs, Lynne

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And you can't pay me to get acrylic nails!

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Kay Simpson

Rheumatoid Arthritis

Sent: Saturday, October 23, 2004 18:51

Subject: Re: yet another question

Jacy,

You are very right about so much stuff being unsafe for us today. There are definite studies on hair stylists living shorter lives because of fooling with chemicals and breathing that stuff all day long. I would tend to say be very careful myself.... Our water, our air we breathe,,, everything is getting polluted.

Kay

----- Original Message -----

From: Jacy

Rheumatoid Arthritis

Sent: Friday, October 22, 2004 10:58 AM

Subject: Re: yet another question

I do the test and have had a problem.

The question came about because so many things are being found unsafe, if not downright dangerous, for us. It is the long term we were wondering about. I haven't found any studies on that and didn't think to ask my doc yesterday.

I mean is vanity worth it if it will affect my RA?

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Lynne

Rheumatoid Arthritis

Sent: Friday, October 22, 2004 02:26

Subject: Re: yet another question

Hi Jacy,

I have RA and use hair dye no problem, but I would suggest doing the patch test they tell you to do first as everyone is different.

Hugs, Lynne

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hey, Jacy! I go to the salon and have my hair

colored so the gray won't show; I go every six

weeks and have done so since '95....no problem

here...gentle hugs, Marcia

--- Lynne <lynne@...> wrote:

> Hi Jacy,

> I have RA and use hair dye no

> problem, but I would suggest doing the patch

> test they tell you to do first as everyone is

> different.

>

> Hugs, Lynne

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Good to know. Thanks.

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Marcia Stoyle

Rheumatoid Arthritis

Sent: Saturday, October 23, 2004 21:21

Subject: Re: yet another question

hey, Jacy! I go to the salon and have my haircolored so the gray won't show; I go every sixweeks and have done so since '95....no problemhere...gentle hugs, Marcia--- Lynne <lynne@...> wrote:> Hi Jacy,> I have RA and use hair dye no> problem, but I would suggest doing the patch> test they tell you to do first as everyone is> different.> > Hugs, Lynne __________________________________________________

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Hey guys,

as you know I tested negative for rf factor (is that it?)

and have blessed the last couple of weeks with much less intrusive

pain and manageable short-lived swelling---

that's good. but i've discovered that when things are going better

I tend to lose momentum in seeking care.

If symtoms are drowsy or on the comfortable edge of dormant,

is it advisable to still push for treatment?

I'm going to clinics now and they aren't impressed . LOL

they don't have any advice for me but to keep taking aleve .

once again I went to the state for medicaid, but the program is still frozen

(thanks to some very sorry mismanagement by Engler, our former governor of 12 years, while I paid into the system faithfully, since I've been working since I was 14)

buuut, anyway!

worked a little ambitiously in the garden yesterday and woke up feeling

like a zombie.

Just wondering if anyone had any suggestions on how to convince the

"freebie missions" that there is something real and something that threatens my future productivity happening with me.

making a loud noise doesn't seem to help. 'I understand, but there is nothing I can do' is a favorite phrase around here at the moment.

love and peace to you all

yellowJacy <jacymail@...> wrote:

Good to know. Thanks.

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: Marcia Stoyle

Rheumatoid Arthritis

Sent: Saturday, October 23, 2004 21:21

Subject: Re: yet another question

hey, Jacy! I go to the salon and have my haircolored so the gray won't show; I go every sixweeks and have done so since '95....no problemhere...gentle hugs, Marcia--- Lynne <lynne@...> wrote:> Hi Jacy,> I have RA and use hair dye no> problem, but I would suggest doing the patch> test they tell you to do first as everyone is> different.> > Hugs, Lynne __________________________________________________

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Hi Yellow,

I know this is probably a bit of risky advice, but when I had to go for initial assessments I used to make sure I overdid it the day before just so they would see me the way I am a lot of the time.

Hope this helps...Lynne

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  • 7 months later...
Guest guest

Hi,

OK that sounds about right then. These are not battered or fried.

They're about 3/4 of the size of a chicken nugget so they're smaller

than normal " buffalo wings. " I think 4 oz of meat is supposed to be

about the size of a deck of cards. This was 3.5 oz, so a tad smaller

than that? Plus, it's fake meat. LOL

Thank you!

nancyjbowman wrote:

> Kerri,

>

> I'm not familiar with this product, but it makes a difference in

> whether they are battered and fried, or just " tenders " . Since this

> isn't even real meat, I'm not sure what it is.

>

> That being said, I used to be able to eat about 5 or 6 boneless

> buffalo wings from Chili's. Not especially good for me since they

> were battered and fried. I tried them one time since fill#4 and I can

> eat 1. Not worth ordering anymore. Anything with batter on it just

> gloms up on me. If it was just chicken tenders with no skin or

> batter, I could probably eat about 4 of them now, or whatever 1/2

> measures out to be.

>

> NANCY

> 8/14/04

> -63

> DR. KURI

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Guest guest

Yes, these soy " wings " are delicious! Taste just like meat!

2-4 ounces of this sounds just about right. the Band pouch is the

size of a golfball, and can stretch to about twice that comfortably.

Eating much more of solids can easily over-stretch the pouch, which

can lead to slippage. Sandy R

> Is anyone familiar with MorningStar veggie buffalo wings?

> http://www.kelloggs.com/cgi-bin/brandpages/product.pl?

product=317 & company=23

>

> Today for lunch I had 6 of these which I figured to be about 3.5 oz

and

> felt comfortably full. I cut them up into wheee little pieces and

> dipped them in low cal ranch dressing. I've found cutting these up

> fools my eyes and makes me think I'm eating more than I am. I also

use a

> smaller plate. Having a little bit of food on a big plate makes me

feel

> deprived. The same amount of food on a small plate makes me feel

like

> I'm eating normally.

>

> My question is, is this a good amount to be full on after a fill?

I've

> read up on this stuff and I know everyone is different, but it

really

> helps to ask people who have been there.

>

> Thanks!

> Kerri

>

>

>

> Op date: May 4th, 2005

> 232/207/130ish

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  • 5 months later...

Some of you mention you have more than one child with aspergers? So

did you know where the disease cam from genetically?Does this mean if

you have one you will have another with it too? This is another thing

my sons girlfriend has said. She does not want another to have it if

they get married. I am pretty sure it is from the mothers side, since

there is nothing that i am aware of on this side. What are your

thoughts?? Sandy

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I believe it has to be somewhat. I have my 9 year old diagnosed ADHD but in the

process of being diagnosed AS. I know he is. Actually at age 5, I took him to be

evaluated FOR AS, and they diagnosed ADHD (which is true, but I believe he has

both) and....then I also have a 6 year old that was diagnosed moderately

autistic but now is considering high functioning. So there " has to be " in my

mind?

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My personal thoughts are it.. Is genetic.. And I had two children.. One on

the spectrum one not on the spectrum. However they had two different bio

dads.....

I feel that it could have come from either side.. Based on both family

histories. Yes.. It is something to consider.. And my Daughter has often

mentioned she would adopt a child rather than risk it.. Yet she is only 14.

My son.. Is high functioning.. And of course I wouldn't trade him for the

world. He was my second and from day one I knew I would only have two

children. So he was my planned last child. .. Regardless of his diagnoses.

-- ( ) RE: Yet another question

Some of you mention you have more than one child with aspergers? So

did you know where the disease cam from genetically?Does this mean if

you have one you will have another with it too? This is another thing

my sons girlfriend has said. She does not want another to have it if

they get married. I am pretty sure it is from the mothers side, since

there is nothing that i am aware of on this side. What are your

thoughts?? Sandy

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Sherri-

You might want to check out The ADHD Autism Connection by Diane Kennedy. She

has 3 boys diagnosed - 2ADHD, 1Aspy - she finds more commonalities than

differences between them and makes the case that the autism community and the

psych/pediatric community could come together for some diagnostic common ground.

Noreen

>

> I believe it has to be somewhat. I have my 9 year old diagnosed ADHD but in

the process of being diagnosed AS. I know he is. Actually at age 5, I took him

to be evaluated FOR AS, and they diagnosed ADHD (which is true, but I believe he

has both) and....then I also have a 6 year old that was diagnosed moderately

autistic but now is considering high functioning. So there " has to be " in my

mind?

>

>

>

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Yes you're so right Noreen. Also his Psychologist (and a Psychiatrist is on the

board as well) told me that it's very typical for ADHD children to have a " touch

of autism " or more.. Also the doctors here are very good at this sort of thing

and diagnosis, so I am very positive he will be diagnosed Aspergers. I have no

doubts really. It's all there; it's obvious to me since he was 4 and had SOME

language difficulties among OTHER things too. Thanks! I may have ot check that

ADHD Autism out.

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