Guest guest Posted July 18, 1999 Report Share Posted July 18, 1999 Hi group I've been with the group a short time ,and find that most of us have been experiencing a lot of flares. Not to pleasant!!! We have experimented with all sorts of stuff not even heard of by the good doctor. When I read " The Road Back " I was totally impressed with how much sense it made to me. I don't believe I read about him giving his patience silver, that would be as bad as gold and all that other toxic stuff he was so much against., may-be I'm wrong but I think I'll stick to what the protocol and Dr.Mercola's Diet Has to offer. My opinion is the pharmicutical companies thrive on us poor suckers, who are in sever pain and ready to try just about anything ease the pain and crippling effects of this disease. They would not be able to maintain their high profits of billions of dollars and low moral values if it wasn't for us. In the past couple of months there has been a drug new to the market, it is suppose to ease the pain 100% but when you stop taking it the pain returns and all this for a mere $1200.00. I suppose if you had that kind of money you deserve not to have pain but for the most part us peasants only get that amount or less a month to live on. So stick to the cherries, I much prefer to give my money to the farmers. Thanks for letting me blow off a little steam. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 1999 Report Share Posted July 19, 1999 Bonnie, Interesting opinion. It's great if soley taking antibiotics and the diet work for you. But for those of us that have had remission and then antibio stop working--you have to go on and find something that does work to augment the antibiotics--CS works for me. You would need to read/research it before you call it toxic or before you ever take anything. I too originally had that opinion, just from the name it sounded dangerous. But, CS is the ONLY thing that stopped my rapid downward slide that Dioxy started--wish I would have known of it sooner!!!!!!!--I hate the feeling of helplessness when you start regressing rapidly and nothing is working and everything takes 2 months to " give it a good try " --re antibiotics. I include this in case someone else can benefit--if you can't that is fine too. But I wish I would have known I could be pain free--I mucked around the last 2 years trying different antibiotics in hopes of " finding the right one " , meanwhile I am now in a wheelchair and slowly starting the journey back again. I have no pain (relatively speaking compared to previously), the fogginess is gone, I am gaining weight, and I am gaining movement in my hips. If I go off silver and the symptoms return (as with any antibiotic I have tried). Nothing works for everyone. So I respect your opinion, but please be careful, someday you may have to look beyond your paradigm that you call reality now and look for another alternative. Be well. L RA 9 yrs, Antibio 7 yrs (Biaxin and Minocin currently) In a message dated 99-07-18 15:08:52 EDT, you write: << I don't believe I read about him giving his patience silver, that would be as bad as gold and all that other toxic stuff he was so much against., may-be I'm wrong but I think I'll stick to what the protocol and Dr.Mercola's Diet Has to offer. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 1999 Report Share Posted July 20, 1999 I am Not For one minute saying I am not without Pain And I am not saying that if I was desperate for relief maybe I would try other methods. I also hate the feeling of helplessness, I think most people don't like that feeling.I think for the most part we have one goal in mind, to be at least something we once were and only hope and pray to be again. So what works for you ,you must go with if you are comfortable with it . And you are right I know nothing about silver but It sounds pretty scarey to me. My problem is I don't like experimenting particularly when a method has been proven.I know what it is like not being able to walk, or not being able to comb my hair, or cut my meat or pick my grand kids up,or pulling the sheets over me in the middle of the night or even the simple task of brushing my teeth.I am still convinced that following Browns protacal even with out IVs is the only way to go, and that is my views.Good things are worth waiting for. Bonnie At 08:43 PM 7/19/99 EDT, you wrote: >Bonnie, >Interesting opinion. > >It's great if soley taking antibiotics and the diet work for you. But for >those of us that have had remission and then antibio stop working--you have >to go on and find something that does work to augment the antibiotics--CS >works for me. You would need to read/research it before you call it toxic or >before you ever take anything. I too originally had that opinion, just from >the name it sounded dangerous. > >But, CS is the ONLY thing that stopped my rapid downward slide that Dioxy >started--wish I would have known of it sooner!!!!!!!--I hate the feeling of >helplessness when you start regressing rapidly and nothing is working and >everything takes 2 months to " give it a good try " --re antibiotics. > >I include this in case someone else can benefit--if you can't that is fine >too. But I wish I would have known I could be pain free--I mucked around the >last 2 years trying different antibiotics in hopes of " finding the right >one " , meanwhile I am now in a wheelchair and slowly starting the journey back >again. I have no pain (relatively speaking compared to previously), the >fogginess is gone, I am gaining weight, and I am gaining movement in my hips. >If I go off silver and the symptoms return (as with any antibiotic I have >tried). Nothing works for everyone. > >So I respect your opinion, but please be careful, someday you may have to >look beyond your paradigm that you call reality now and look for another >alternative. Be well. > > L >RA 9 yrs, Antibio 7 yrs (Biaxin and Minocin currently) > > >In a message dated 99-07-18 15:08:52 EDT, you write: > ><< I don't believe I read about him giving his > patience silver, that would be as bad as gold and all that other toxic > stuff he was so much against., may-be I'm wrong but I think I'll stick > to what the protocol and Dr.Mercola's Diet Has to offer. >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 1999 Report Share Posted July 20, 1999 Hi Thanks for the support, it's just since I started Ap that I have been fighting everyones negitive thoughts about the program.I am trying to keep a positive attitute about it and the more negativity the stronger my will is to help prove Dr Browns AP. I wasn't even born when he started his research and he died before I knew anything about him .He must have been one class act. It would be good to know what is helping and what is not so the more stuff you put into yourself the harder it is to tell. We want our rheumys to be convinced that the AP is what put us into remission, there by giving someone else a chances to have a alternative theropy as apposed to what is offered now by the main stream practitioners. Bonnie At 11:39 PM 7/19/99 -0700, you wrote: > Re: rheumatic Dr. Browns theory > > ><bondan@...> >> >>Hi Bonnie... things, and I probably will never consider ie prednisone, >gold injections, c. silver, as viable options for me. I'm doing Clin >injections once every two weeks and doxy 3x a week. I've been in an >incredible herx for about 5 months ..... I can relate to absolutely >everything you said, from brushing teeth to pulling the covers up (or >not!). And, when it seems to be too much to bear, I remind myself that >Dr.Brown did not say it was going to be a walk in the park. Due to the >severity of my particular case, I'm sure it will be a while, and I'm >prepared for that. " " ...I'll cross that bridge when and if it comes >along. Well, didn't intend to go on and on...just felt like maybe you >needed to know someone else feels the same way you do. I know I needed to >know. Be well, >> >> >> >>I am Not For one minute saying I am not without Pain And I am not saying >>that if I was desperate for relief maybe I would try other methods. I also >>hate the feeling of helplessness, I think most people don't like that >>feeling.I think for the most part we have one goal in mind, to be at least >>something we once were and only hope and pray to be again. So what works >>for you ,you must go with if you are comfortable with it . And you are >> about silver but It sounds pretty scarey to me. My >>problem is I don't like experimenting particularly when a method has been >>proven.I know what it is like not being able to walk, or not being able to >>comb my hair, or cut my meat or pick my grand kids up,or pulling the sheets >>over me in the middle of the night or even the simple task of brushing my >>teeth.I am still convinced that following Browns protacal even with out IVs >>is the only way to go, and that is my views.Good things are worth waiting >for. >> >>At 08:43 PM 7/19/99 EDT, you wrote: >>>Bonnie, >>>Interesting opinion. >>> >>>It's great if soley taking antibiotics and the diet work for you. But for >>>those of us that have had remission and then antibio stop working--you have >>>to go on and find something that does work to augment the antibiotics--CS >>>works for me. You would need to read/research it before you call it >toxic or >>>before you ever take anything. I too originally had that opinion, just from >>>the name it sounded dangerous. >>> >>>But, CS is the ONLY thing that stopped my rapid downward slide that Dioxy >>>started--wish I would have known of it sooner!!!!!!!--I hate the feeling of >>>helplessness when you start regressing rapidly and nothing is working and >>> " " --re antibiotics. >>> >>>I include this in case someone else can benefit--if you can't that is fine >>>too. But I wish I would have known I could be pain free--I mucked around >the >>> " finding the right >>> " , meanwhile I am now in a wheelchair and slowly starting the journey >>back >>>again. I have no pain (relatively speaking compared to previously), the >>>fogginess is gone, I am gaining weight, and I am gaining movement in my >>hips. >>>If I go off silver and the symptoms return (as with any antibiotic I have >>>tried). Nothing works for everyone. >>> >>>So I respect your opinion, but please be careful, someday you may have to >>>look beyond your paradigm that you call reality now and look for another >>>alternative. Be well. >>> >>> L >>>RA 9 yrs, Antibio 7 yrs (Biaxin and Minocin currently) >>> >>> >>>In a message dated 99-07-18 15:08:52 EDT, you write: >>> >>><< I don't believe I read about him giving his >>> that would be as bad as gold and all that other toxic >>> stuff he was so much against., may-be I'm wrong but I think I'll stick >>>>> >>> >>> >> >>--------------------------- Quote Link to comment Share on other sites More sharing options...
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