Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 Yes, I know this, thank you. I have already done extensive research on this drug as well and have come across some great info. ~ << From: " a " <aA@...> , I posted some links about Remicade and the criteria for prescribing it. It has FDA approvals for patients that have not responded adequately to MTX. It has only been approved for Crohns since August 1998, so it has been used a few months longer than Enbrel. Enbrel and Remicade both work by inhibiting a protein called tumor necrosis factor (TNF). They really are quite similar in the way that they work. I haven't done much research on Remicade because we haven't had anyone on the list that takes it. I'll send in whatever I find. a >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2000 Report Share Posted March 14, 2000 , RA does not have to take away your life, it will change it. I miss being able to ski, skate, jog and all the other things I used to do. Now I do other things, not as physical. It would be nice not to have daily pain, but it has become part of my life. I appreciate the days it's not so bad. On days like today when the pain is really bad, I am thankful for the internet to keep my mind off of it, and teach me almost anything I want to know about. There are days I get angry and depressed. Coming here and talking to others in the same situation really helps me to feel better. Who knows why we had to get this disease, we just did. Learning to live with it and overcome the hardships that come with it, is what helps us to cope. It's not easy, and everyone reacts differently and copes in their own way. I hope you find the meds to control the disease, and the mental strength to deal with it. Our lives are like being on a roller coaster. Some days are better than others, and we just have to learn to roll with the coaster. a ----- Original Message ----- From: Valued Compaq Customer <ruf-caimi@...> < onelist> Sent: Monday, March 13, 2000 4:32 PM Subject: [ ] Remicade > From: " Valued Compaq Customer " <ruf-caimi@...> > > Hi , > I keep thinking about this remicade thing. I guess I am hoping I will > have my life back. That is what my heart is hoping but my mind knows that > is gone forever. This is crazy, but I need to ask if you can move around > better? My hip is so bad, my regular doctor wants me to make sure the RA > doctor looks at it. He thinks they can do something. I think I want an > x-ray to see what is going on or if any damage is being done. Somedays, I > think I still don't understand this whole RA thing. I was telling my > doctor about you and the remicade. He feels it is the only way for me to > go, any relief will be better than what I have now. > > > ------------------------------------------------------------------------ > MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > 1/2122/3/_/478567/_/952983051/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2000 Report Share Posted March 15, 2000 , I know you have researched Remicade and have learned a lot about it. The rest of us here may not know as much, and discussing it helps us to learn about it. I like to find out as much as I can about all options available because I know it just may be me trying it one day. I still have many unanswered questions about the treatment, so hopefully as you and other go through it and I read more about it, I will find the answers. a ----- Original Message ----- From: <Rysu19@...> < onelist> Sent: Tuesday, March 14, 2000 10:31 PM Subject: Re: [ ] Remicade > From: Rysu19@... > > Yes, I know this, thank you. I have already done extensive research on this > drug as well and have come across some great info. > > ~ > > << From: " a " <aA@...> > > , > I posted some links about Remicade and the criteria for prescribing it. It > has FDA approvals for patients that have not responded adequately to MTX. > It has only been approved for Crohns since August 1998, so it has been used > a few months longer than Enbrel. Enbrel and Remicade both work by > inhibiting a protein called tumor necrosis factor (TNF). They really are > quite similar in the way that they work. I haven't done much research on > Remicade because we haven't had anyone on the list that takes it. I'll > send in whatever I find. > > a >> > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > 1/937/3/_/478567/_/953091110/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2000 Report Share Posted March 16, 2000 , Just a quick note........I noticed you had neck problems also. Did your Fibro occur after your neck problems? Just curious especially after the url a sent out on the ABC special. ~ Carol ~ ----- Original Message ----- From: Valued Compaq Customer <ruf-caimi@...> < onelist> Sent: Wednesday, March 15, 2000 6:12 PM Subject: [ ] remicade > From: " Valued Compaq Customer " <ruf-caimi@...> > > Hi , > Thank You again for your note, I can be a pain at times. > I am 53 years old and was diagnosed two years ago with Ra, Fibro, and > Osteoarthrits, plus the whole neck thing five years ago. I take many > drugs, probably to many, but here goes. > Prednisone, prilosec, methotrexate, fosamax, vioxx, synthroid, atenolol, > folic acid, zocor,methyldopa, lotensin, hydrochlorothiazide, plus iron 2x's > a day. It is a good thing, I already have carpal tunnel, because all the > typing for these drugs would have done it. Just kidding--- I tried > Gold Injections and was allergic, I was also allergic to celebrex. Other > drugs have failed, actually nothing has stopped it. I have to stop > physical therapy because, well first it was suppose to be only aquatic > therapy and it hurts to much. My doctor was annoyed that the therapist > threw in physical therapy, I knew that was wrong. I will keep going to > aquatic, the pool is great. I have to get an MRI on my hip, see what is > happening. I think your right it is a flare. > Anyway, again thank you, what you and a wrote is so right. I know one > thing if this had not happend I would never have had the opportunity to go > to school. I do enjoy that. I also would never have met any of you, and I > feel honored that I have had the opportunity to get to know all of you. > Your right you do learn who your friends are, or arn't. > Thanks Guys, > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0% > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > 1/937/3/_/478567/_/953161811/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Hi all, I agree with Harold (aka Grandpavan) about publishing and risks. For example, the new indications for Remicade say you must get a TB test prior to beginning treatment. Apparently some patients had inactive TB and the Remicade brought it active. I talked to my rheumy about it and he said that almost all the cases reported were in Europe, which still struggles with TB in its regular population, let alone immune system compromised. Like Harold, I have been on Remicade for 4.5 years, and will continue to take it as long as I can. I currently do not have insurance so the manufacturing company, Centocor, is giving it to me for free. I understand people being reluctant to try meds because of potential side effects. However, I grew up in NYC and, since I survived 22 years living in the ghetto without being shot, I figure I'm living on borrowed time anyway. November 8 is my 5 year anniversary of being diagnosed with arthritis. While I hate living in pain, enduring fatigue, and the countless "you're so young" and "you don't look sick", having arthritis has given me opportunities that I never would have had (make no mistake, I would give it back if I could). Recently, someone asked me how I could stay upbeat despite all I live with. I just look at bad things and say "At least I could dress myself today" -- something I couldn't do 5 years ago. Sorry for the ramble (although those of you who have been on the list awhile aren't surprised)! Take care, Steph in Culpeper, VA ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Rock, jazz, country, soul more. Find the music you love on MSN Music! Quote Link to comment Share on other sites More sharing options...
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