Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 > I had a post pulled regarding thyroid storm at the NGDF > site yesterday. ! I can't believe they pulled that post. It's so benign . . . what a draconian move. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 > From: jutek@... > > Hi All- > > I had a post pulled regarding thyroid storm at the NGDF > site yesterday. I'll paste it on below. All the medical > information I used is from Emergency Medicine: A > comprehensive study guide. It's used in major EDs across > the country. Also let me make it clear that I wasn't in > thyroid storm and that I wish that I still had my thyroid. > But there's nothing to be done about it now except try to > tell others what's going on with their healthcare. I wonder > how many of them know what goes on behind the scenes. > > Hi Edmee- > > What does crash mean and was the hospital you were admitted > to the same one you work in? I've read that there aren't any > predicting factors that would suggest thyroid storm as opposed > to uncomplicated thyrotoxicosis (thyroid levels can be similar) > but the resulting illness can drastically differ. There are > some theories that attempt to explain why thyroid storm occurs > in some patients but nothing is really known except that it's rare. > > By the time I went to the doctor about any problem, I had a resting > HR of 150 before I'd get out of bed in the a.m. (it was over 200 > when I'd do anything), I was wacky, sweating, very weak, had a > huge goiter and buggy eyes. But they didn't call it thyroid storm. > Just Graves'. I was only 24 which substantially reduces risk of > permanent damage (other than the problems associated with no > longer having a thyroid). > > I wonder if this uncertainty of thyroid storm is one reason we're > ablated so routinely. > > Take care, > > Utecht If this is the post you say they pulled, it is still there. 01/27/2000 01:30:15 - Utecht - Re: Thyroid storm C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 You can send a 9x12 stamped(1.08), self addressed envelope to the National Graves' Disease Foundation PO Box 1969 Brevard, NC 28712 You will received some very good information and you can also call 1- and leave a message for info or your phone number if you need a call back. All phone calls are done on Friday. Regards, Liz Volunteer Re: NGDF pulled post > From: jutek@... > > Hi All- > > I had a post pulled regarding thyroid storm at the NGDF > site yesterday. I'll paste it on below. All the medical > information I used is from Emergency Medicine: A > comprehensive study guide. It's used in major EDs across > the country. Also let me make it clear that I wasn't in > thyroid storm and that I wish that I still had my thyroid. > But there's nothing to be done about it now except try to > tell others what's going on with their healthcare. I wonder > how many of them know what goes on behind the scenes. > > Hi Edmee- > > What does crash mean and was the hospital you were admitted > to the same one you work in? I've read that there aren't any > predicting factors that would suggest thyroid storm as opposed > to uncomplicated thyrotoxicosis (thyroid levels can be similar) > but the resulting illness can drastically differ. There are > some theories that attempt to explain why thyroid storm occurs > in some patients but nothing is really known except that it's rare. > > By the time I went to the doctor about any problem, I had a resting > HR of 150 before I'd get out of bed in the a.m. (it was over 200 > when I'd do anything), I was wacky, sweating, very weak, had a > huge goiter and buggy eyes. But they didn't call it thyroid storm. > Just Graves'. I was only 24 which substantially reduces risk of > permanent damage (other than the problems associated with no > longer having a thyroid). > > I wonder if this uncertainty of thyroid storm is one reason we're > ablated so routinely. > > Take care, > > Utecht If this is the post you say they pulled, it is still there. 01/27/2000 01:30:15 - Utecht - Re: Thyroid storm C ---------------------------------------------------------------------------- -- Please click above to support our sponsor ---------------------------------------------------------------------------- -- ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Hi Jean- It's back! It was gone this morning and I rechecked this afternoon and it still wasn't there. That's when I put it on onelist. Believe me I'm very compulsive about checking things like that. Maybe I'll wait longer next time. Not an easy task for an impatient person like me. I've sent the copy of that chapter and it probably had to be OKed through her 1st since I referred to something I've read. All I can say is that it's great that it's back! Gives me some hope. Take care, Bonnie Crawford wrote: > > > > > > > From: jutek@... > > > > Hi All- > > > > I had a post pulled regarding thyroid storm at the NGDF > > site yesterday. I'll paste it on below. All the medical > > information I used is from Emergency Medicine: A > > comprehensive study guide. It's used in major EDs across > > the country. Also let me make it clear that I wasn't in > > thyroid storm and that I wish that I still had my thyroid. > > But there's nothing to be done about it now except try to > > tell others what's going on with their healthcare. I wonder > > how many of them know what goes on behind the scenes. > > > > Hi Edmee- > > > > What does crash mean and was the hospital you were admitted > > to the same one you work in? I've read that there aren't any > > predicting factors that would suggest thyroid storm as opposed > > to uncomplicated thyrotoxicosis (thyroid levels can be similar) > > but the resulting illness can drastically differ. There are > > some theories that attempt to explain why thyroid storm occurs > > in some patients but nothing is really known except that it's rare. > > > > By the time I went to the doctor about any problem, I had a resting > > HR of 150 before I'd get out of bed in the a.m. (it was over 200 > > when I'd do anything), I was wacky, sweating, very weak, had a > > huge goiter and buggy eyes. But they didn't call it thyroid storm. > > Just Graves'. I was only 24 which substantially reduces risk of > > permanent damage (other than the problems associated with no > > longer having a thyroid). > > > > I wonder if this uncertainty of thyroid storm is one reason we're > > ablated so routinely. > > > > Take care, > > > > Utecht > > If this is the post you say they pulled, it is still there. > 01/27/2000 01:30:15 - Utecht - Re: Thyroid storm > > C > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 I am confused. Was it pulled after being posted, or was it not yet posted and thus not pulled? What is the NGDF? Elaine Researching Bohemian Surnames S L E P I C K A and H R U S K A Re: NGDF pulled post > > > Hi Jean- > > It's back! It was gone this morning and I rechecked this afternoon and > it still wasn't there. That's when I put it on onelist. Believe me I'm > very compulsive about checking things like that. Maybe I'll wait longer > next time. Not an easy task for an impatient person like me. > > I've sent the copy of that chapter and it probably had to be OKed > through her 1st since I referred to something I've read. > > All I can say is that it's great that it's back! Gives me some hope. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 ETM: NGDF=National Graves' Disease Foundation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Hi Elaine- I posted it between 10 and 11pm pacific time so it was on throughout the night and early the next morning. Some people on the east coast probably saw it early in the morning and then it was pulled by the time I looked around 8am pacific time. Some stuff should probably be pulled because it's so far out or inflammatory. But I didn't think that post was one of them. Of course, I'm a little biased. NGDF is the National Graves' Disease Foundation. Take care, ETM wrote: > > > > I am confused. Was it pulled after being posted, or was it not yet posted > and thus not pulled? > > What is the NGDF? > > Elaine > > Researching Bohemian Surnames > S L E P I C K A and H R U S K A > > Re: NGDF pulled post > > > > > > > Hi Jean- > > > > It's back! It was gone this morning and I rechecked this afternoon and > > it still wasn't there. That's when I put it on onelist. Believe me I'm > > very compulsive about checking things like that. Maybe I'll wait longer > > next time. Not an easy task for an impatient person like me. > > > > I've sent the copy of that chapter and it probably had to be OKed > > through her 1st since I referred to something I've read. > > > > All I can say is that it's great that it's back! Gives me some hope. > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.