Re: Milly, New to the group.

[Guest guest]

Hi everyone,

I am new in the group and have just been reading up on all your e-mails.

What a relief to hear your experiences, all so common to myself. I will

constuct a more informative an interesting email back to you all very soon.

The 'rug bazaar'situation was so familiar to me. I have had CU since October

'99, I had it 10 years ago too, but only for 6 weeks then. This time it is

hanging on! Does anyone use ECHINACEA? A homeopathic remedy. I also take a

high does of vit.C @3000mg a day (as much as I remember to take!) and

Clarityn (1-3 10 mg a day). They seem to help alot. I have also stopped

drinking beer (AAAGGHHH) and eating too much yeasty stuff, shellfish, nuts

and strawberries. I've been through the pred. days and finally came off

after 6 months, was REALLY bad for two weeks, bedbound at times especially

when it was bad on my feet, but it evened off after a while. The pred. only

surpressed them I'm sure, and made me feel mad! Its going to be great to

find out more!

Milly, London U.K.

P.S Do less guys suffer from this or are they not into egroups??

>

>Reply-To: urticariaegroups

>To: urticariaegroups

>Subject: Re: Re: decent UK hospitals for CU

>Date: Wed, 28 Jun 2000 20:42:11 PDT

>

>It is so sad that our UK friends can't seem to get decent care, at least

>for

>CU. What we have in the States leaves a lot to be desired, but at least we

>have a lot of doctors and facilities to choose from, and there are some out

>there who actually know a thing or two. What about in other countries,

>is

>it the same elsewhere? I'm beginning to think most of us know as much as or

>more than the majority of the so-called experts - ooh, that's a scary

>thought! We're the ones with a stake in any outcome in all this, no doubt.

>It wouldn't surprise me one bit if we're the ones, with our combined

>genius,

>who finally figure this thing out. I can't wait until the questionaire is

>finished (or is it? - I haven't looked lately); I think this will help a

>lot

>in finding any patterns. Remember how at first everyone thought Lyme

>disease

>was just " all in your head " ; same with so many diseases. Then finally

>someone sees a pattern and the mystery is on its way to being solved. There

>won't be a cure until we know exactly what we're dealing with; why it's

>happening, how it's happening, why it happens to some and not others. It

>could even turn out to be something really simple and what should have been

>obvious. I truly believe we will find out, though. I think it's inevitable.

>- scratching (so what else is new) in Calif., Jackie

>

>

> >From: abenad@...

> >Reply-To: urticariaegroups

> >To: urticariaegroups

> >Subject: Re: decent UK hospitals for CU

> >Date: Wed, 28 Jun 2000 23:15:07 -0000

> >

> >Don't get you hopes up for a decent hospital in the UK treating C.U.

> >I was refered to St.' the self proclaimed experts in treating

> >our condition, but they have failed me badly. Apart from putting me

> >on the h1/h2 combo they have failed to help me in any way, infact it

> >seemed they just were not interested at all. I was at the lupus

> >clinic and it took a visit to the blood specialists to tell me i had

> >been going to the wrong clinic for 5 years!!! So you can see why i am

> >so bitter, not once did it ever occur to the experts at the lupus

> >clinic to send me to the dermatology department. Ok, they will not

> >be able to help me either but its the thought that counts. As it has

> >been said time and time agin by various C.U. sufferers, if you want

> >to sort it you got to do it yourself. Infact you definately have to

> >do it yourself, because in the end we are the only experts we will

> >ever see.

> >

>

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