Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 -----Original Message----- From: Judy <jaryan17@...> egroups <egroups> Date: Thursday, January 18, 2001 8:15 PM Subject: [] Hello! >I'm 58 and dx two years ago with cmt. Hello, what problems are you having with your CMT? ~>Becky M. >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Hi Just the usual I guess. I got afo's about a year and a half ago and they help a lot. From: " Maxwell " <rmax@...> Reply-egroups <egroups> Subject: Re: [] Hello! Date: Thu, 18 Jan 2001 20:25:37 -0600 -----Original Message----- From: Judy <jaryan17@...> egroups <egroups> Date: Thursday, January 18, 2001 8:15 PM Subject: [] Hello! >I'm 58 and dx two years ago with cmt. Hello, what problems are you having with your CMT? ~>Becky M. >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 -----Original Message----- From: Judy <jaryan17@...> egroups <egroups> Date: Thursday, January 18, 2001 8:53 PM Subject: Re: [] Hello! >Hi >Just the usual I guess. I got afo's about a year and a half ago and they >help a lot. > >>>>Hi again, " Just the usual " ????? LOL, the longer you are ont this list you will find there is no such thing as usual regarding CMT. Take me, I wear full leg braces, use forearm crutches to walk. I have lost muscles in, feet, ankles, lower legs, thighs (quads) fanny, YES I said fanny LOL, shoulders, chest, upper back, hands, forearms upper arms. Throat! The inside of my throat, (right side so far) is athophied, I have trouble swallowing, choking, and at times breathing, losing hearing on right side, so you see there is no usual. I'd like to hear what symptoms you have, like any problems with your hands? Do you have pain? I do nearly 24/7. Join in tell us about yourself, this is a great group of people here. ~>Becky M. From: " Maxwell " <rmax@...> >Reply-egroups ><egroups> >Subject: Re: [] Hello! >Date: Thu, 18 Jan 2001 20:25:37 -0600 > > >-----Original Message----- >From: Judy <jaryan17@...> >egroups <egroups> >Date: Thursday, January 18, > > 2001 8:15 PM >Subject: [] Hello! > > > > > > >I'm 58 and dx two years ago with cmt. > >Hello, what problems are you having with your CMT? ~>Becky M. > >_________________________________________________________________ > >Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Sorry, didn't mean to sound flip. After reading how it is for you I really feel bad. My cmt isn't bad at all really. It's mostly in my feet and lower legs. I do have some in my hands but right now it's just weakness. I have noticed that my legs up to my hips seem to be getting smaller. That's not all bad. I have some pain in my feet. Now the tops of my feet are hurting. Where do you live Becky? From: " Maxwell " <rmax@...> Reply-egroups <egroups> Subject: Re: [] Hello! Date: Thu, 18 Jan 2001 21:09:38 -0600 -----Original Message----- From: Judy <jaryan17@...> egroups <egroups> Date: Thursday, January 18, 2001 8:53 PM Subject: Re: [] Hello! >Hi >Just the usual I guess. I got afo's about a year and a half ago and they >help a lot. > >>>>Hi again, " Just the usual " ????? LOL, the longer you are ont this list you will find there is no such thing as usual regarding CMT. Take me, I wear full leg braces, use forearm crutches to walk. I have lost muscles in, feet, ankles, lower legs, thighs (quads) fanny, YES I said fanny LOL, shoulders, chest, upper back, hands, forearms upper arms. Throat! The inside of my throat, (right side so far) is athophied, I have trouble swallowing, choking, and at times breathing, losing hearing on right side, so you see there is no usual. I'd like to hear what symptoms you have, like any problems with your hands? Do you have pain? I do nearly 24/7. Join in tell us about yourself, this is a great group of people here. ~>Becky M. From: " Maxwell " <rmax@...> >Reply-egroups ><egroups> >Subject: Re: [] Hello! >Date: Thu, 18 Jan 2001 20:25:37 -0600 > > >-----Original Message----- >From: Judy <jaryan17@...> >egroups <egroups> >Date: Thursday, January 18, > > 2001 8:15 PM >Subject: [] Hello! > > > > > > >I'm 58 and dx two years ago with cmt. > >Hello, what problems are you having with your CMT? ~>Becky M. > >_________________________________________________________________ > >Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 -----Original Message----- From: Judy <jaryan17@...> egroups <egroups> Date: Thursday, January 18, 2001 10:41 PM Subject: Re: [] Hello! >Sorry, didn't mean to sound flip. After reading how it is for you I really >feel bad. My cmt isn't bad at all really. It's mostly in my feet and lower >legs. I do have some in my hands but right now it's just weakness. I have >noticed that my legs up to my hips seem to be getting smaller. That's not >all bad. I have some pain in my feet. Now the tops of my feet are hurting. > >Where do you live Becky? > >>>>>Southwest Missouri, how about you? Do you take any meds for your CMT? If so what kind? How about other family members any with CMT? ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 -----Original Message----- From: Maxwell <rmax@...> egroups <egroups> Date: Thursday, January 18, 2001 10:57 PM Subject: Re: [] Hello! > >-----Original Message----- >From: Judy <jaryan17@...> >egroups <egroups> >Date: Thursday, January 18, 2001 10:41 PM >Subject: Re: [] Hello! > > >>Sorry, didn't mean to sound flip >>> >>>>>>Judy I didn't take it as flip but rather that you were shy, (short responses) LOL, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 In a message dated 1/18/2001 8:37:43 PM Pacific Standard Time, jaryan17@... writes: > I'm 58 and dx two years ago with cmt. > HI Jaryan , I am 33 dx with CMT long time ago.. LOL Hope you enjoy the list as much as I do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 I , I'm still getting use to it but it does look interesting Judy From: jacee17@... Reply-egroups egroups Subject: Re: [] Hello! Date: Fri, 19 Jan 2001 12:57:22 EST In a message dated 1/18/2001 8:37:43 PM Pacific Standard Time, jaryan17@... writes: > I'm 58 and dx two years ago with cmt. > HI Jaryan , I am 33 dx with CMT long time ago.. LOL Hope you enjoy the list as much as I do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2001 Report Share Posted February 23, 2001 , Thank you for the intro and for the update. It really sounds like things are going well for your daughter and your family. I think it's great that your insurance company paid 100% - congratulations on that!! It sounds like you have a great attitude about the therapy and that will just make the whole process so much easier! Please keep us posted on progress! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2001 Report Share Posted February 23, 2001 , What insurance do you have? You are lucky to live close to CT. We were given the choice of Charlotte or Paramus, NJ. We chose NJ because my folks live on the way there. Good luck! Kathy mom to l lamdoid cranio CVR 1/18/01 getting DOC Band 2/26/01 (9 mos and 2 days) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2001 Report Share Posted February 23, 2001 Welcome to the group ! 's picture didn't come thru. We'd love to see her. Kendra in Canadawww.plagiocephaly.org/support ----- Original Message ----- From: Bobbitt Plagiocephaly Sent: Friday, February 23, 2001 7:57 AM Subject: Hello! Hello All,My name is and I feel I need to introduce myselfas others have done. I joined the group several weeksago. I have not posted but read the posts severaltimes a day. I have however emailed several peopledirectly. This group has helped me so very much. Mydaughter , was casted on February 2 and receivedher Doc Band on February 12. will be 7 monthson Feb. 25. At the beginning, I felt sorry for and myself. After reading the posts I have come torealize how lucky we are. We started therapy at agreat age, we don't have to commute, and insurancecovered the band 100%. I have learned a great deal ofinformation about plagio from reading the posts. Idon't know what I would have done without this supportgroup. (probably still feeling sorry for our selves!)Little is doing well. She seems to mind theband most when she is tired. We think we are alreadyseeing improvement. Attached is wearing her band. I hope it isokay to send it this way. Kendra, you are so very knowledgabe. Thank you forsharing. Bobbitt, Charlotte NC__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 Hi, my name is Heidi, I am 37 and have two small girls, and I live in Minnesota. I was just tested and found out the tests were negative for RA though I have all the symptoms - stiff feet and hands in the morning, red and swollen toes and fingers, that have been going on for about two months. My doctor is taking a " wait and see " approach. My question to the group is the following - about three years ago I became very, very ill and went to Mayo clinic. There it was determined I had peripheral neuropathy of an unknown origin. I have read that RA can cause neuropathy and am curious if any of you experienced neuropathy BEFORE your RA diagnosis? I know the doctors want to take a wait and see approach but I really am not that personality type and, besides, why should I wait? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 And this is related to CD how? From: [mailto: ] On Behalf Of Luttrell Sent: Sunday, April 11, 2010 12:27 PM Paola Aliverti Subject: [ ] Hello! Hello! I bought a Canon digital camera at a online shop(ktpshop.com),and now I have received it,I find it realy has good quality and reasonable price,some webs like " google " " " are now promoting their company,and now their company are having a big promotion for customers,all the products are having a price reduction,wish you not to miss it!Thanks! Sharp LC42XL2E 42 in. LCD TV (Price:399.00eur) Apple MB604LLA 17 (Price:480.00eur) ASUS Eee PC 1000H 10-Inch Netbook (Price:138.00eur) Nokia 8800 Carbon Arte (Price:280.00eur) Canon EOS 40D Digital SLR Camera (Price:360.00eur) SONY PLAYSTATION 3 40GB (Price:196.00eur) Please forgive my sending this mail if you so not like it,thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Sorry celiac friends, my account was hacked last weekend. My apologies for the spam. I am going to deactivate this account and start using my married name e-mail. Kind regards, Luttrell Stanko P.S. - This has been happening to a lot of friends, so if you have a account, my advice would be to change your password! From: driley99 <driley99@...>Subject: RE: [ ] Hello! Date: Sunday, April 11, 2010, 7:24 PM And this is related to CD how? From: [mailto:celiacbayar eagroups (DOT) com] On Behalf Of Luttrell Sent: Sunday, April 11, 2010 12:27 PM Paola Aliverti Subject: [ ] Hello! Hello! I bought a Canon digital camera at a online shop(ktpshop. com),and now I have received it,I find it realy has good quality and reasonable price,some webs like"google" "" are now promoting their company,and now their company are having a big promotion for customers,all the products are having a price reduction,wish you not to miss it!Thanks! Sharp LC42XL2E 42 in. LCD TV (Price:399.00eur) Apple MB604LLA 17 (Price:480.00eur) ASUS Eee PC 1000H 10-Inch Netbook (Price:138.00eur) Nokia 8800 Carbon Arte (Price:280.00eur) Canon EOS 40D Digital SLR Camera (Price:360.00eur) SONY PLAYSTATION 3 40GB (Price:196.00eur) Please forgive my sending this mail if you so not like it,thanks! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.