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My Sweat Test & Misc.

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Sorry it took so long to get back to you on my results -- which BTW were

negative!!! What a relief. It has been busy here -- last week of school,

field trips, Bri's grad from 5th grade, my father is staying with us, etc.

is doing great -- even her sinuses have cleared for a while. I have

been reading the posts about sinus rinsing - I am curious how many of you see

ENT's that are familiar with CF - my ENT knows nothing, I am always telling

him things. Should I find a new ENT?

On the subject of CPT - had a very hard first 18 months of life -- a

lot of infections and hospitalizations -- since her dx and treatments

(including cpt 1 - 3 times depending on health) she has only been in for

surgery -- and no LRI (lower respiratory infections). I am not willing to

stop cpt and see if it helps -- in our eyes, it did and it does.

On the subject of staying at home - I worked as an office manager at a very

stressful office during my first two - was always so ill - I was

paying for daycare and not getting paid - I quit and never went back -

was born about one year later. I often think about working again, but can't

imagine not being there for all three kids whenever they need me. We

fortunately can afford this -- but do have to budget.

Sorry for the ramble - I only post once in a while but when I do......

Have a good week -

Sally

Mom of na 11, 9w/asthma & 5 w/cf & ds

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